How I love my son, I would do anything in the world for him. His name is Jessie ( REMOVED). And he will be my only child. He has Infantile Scoliosis. At 11 months old he was diagnosed with Infantile Scoliosis with a 35% curvature. Though he was supposed to be fitted with a back brace, he was not. Nor was he given any type of medical treatment thus far. Now, he has a 57% curvature as of a Dec 15th appointment. Still, without indepth discussion of a back brace or a casting, my wife and the doctors are talking about :confused: surgery. Surgery on a 14 month old child. I have seen all the risk associated with this type of surgery with a child his age. I can not understand for the life of me why Jessie wasn't put into a back brace when he was diagnosed with this disease. My wife will not get a 2nd opinion, she is taking what the doctor is saying as that is all there is to do. I can not convince her she needs a 2nd opinion. I am starting to believe she is doing this so that he will be on a SSI check, just like her and her daughter. My wife, soon to be ex, has Cerebal Palsy. I also fear, if he has surgery, how she will be able to take good care of him. She is pretty much bound to a wheelchair and only has real use of her right arm. I am in serious concern for my sons health. I hope perhaps she would listen to Dr. PHil. For she is also a huge fan of Dr. Phil, as I am. I watch the show everyday, as I live in Ohio. She lives in Arkansas and to my knowledge still watches it. I am also having a very hard time getting ahold of my sons medical records. I must get them, for everytime I talk to her about his condition, she avoids questions and gets mad when I point things out that should have been looked into. I am at a loss of what to do. I am in the process of getting the medical records sent to me, though it may be after christmas before I get the information I need to know about my son. Not going to be a pleasant christmas for me...not knowing how my son is really doing. If there is any advice for me out there, I would greatly appreciate it. If anyone wishes to contact me , my email is ( REMOVED) Daniel ( REMOVED)



http://www.healthboards.com/boards/faq.php?faq=faq_hb#3
"Posts that offer OR request information for any kind of off-board contact information, for any purpose, will be removed and will lead to banning."



( REMOVED)

Please read and follow the posting rules.