Bictwin
01-01-2006, 02:46 PM
Okay well Im not going to go through my entire history cause believe me that would take way too long. But I started having back pain almost 6 years ago. That was my sophomore year of high school and I was a hard core cheerleader and gymnast. It was assumed I pulled a muscle and I did the "norm" try to rest, advil, ice and heat. I never went to a doctor unless something was broken.
But 2 months later it was still hurting so after the season was over I started seeing doctors. TO make a long story short I was diagnosed with Scheuremanns disease, which normally affects young boys around 12 or 13, its a disease that fuses a part of your spine. (Normally the cervical) I was however a 15 year old girl, and once I stopped growing the disease stopped where it was leaving my T10-L1 only partially fused. I am now 2 months post op but having problems with pain below the incision. I have been on every med known to mankind.
From anti inflammatories to arthritis medication and now ive been on pain killers. I started with Norco and went to morphine, then dilaudid. After surgery i was on oxycodone, then vicodin. But developed a rash and joint pain so i now know im allergic tovicodin. They changed me to darvocet which ive only been on for 2 days. Has anyone else used darvocet? Im wondering if fentanyl patches would work better, any suggestions would be appreciated!
Thanks, Ash :wave:
But 2 months later it was still hurting so after the season was over I started seeing doctors. TO make a long story short I was diagnosed with Scheuremanns disease, which normally affects young boys around 12 or 13, its a disease that fuses a part of your spine. (Normally the cervical) I was however a 15 year old girl, and once I stopped growing the disease stopped where it was leaving my T10-L1 only partially fused. I am now 2 months post op but having problems with pain below the incision. I have been on every med known to mankind.
From anti inflammatories to arthritis medication and now ive been on pain killers. I started with Norco and went to morphine, then dilaudid. After surgery i was on oxycodone, then vicodin. But developed a rash and joint pain so i now know im allergic tovicodin. They changed me to darvocet which ive only been on for 2 days. Has anyone else used darvocet? Im wondering if fentanyl patches would work better, any suggestions would be appreciated!
Thanks, Ash :wave:
Sponsor
mpvt
01-01-2006, 02:53 PM
I'm wondering why after 2 months post-op why your still requireing pain killers.Was the operation deemed a success or failure?????...........Dave
Fabrashamx
01-01-2006, 04:16 PM
Hi, You may want to go back on the oxy, percocet or oxycontins, If you are allergic to vicodin then you probably cannot take any hydros, vidodin and lortab are in that group. I am not sure what percentage of people who are allergic to the hydro are also allergic to the oxy, But allergies tend to start after a period of exposure, and get worse with each new encounter, so if you try the oxy, take a small dose at first and watch for any allergic reaction. I'm sure someone will come along that can give you more help with your specific condition, but I am sorry to hear you are having a rough time, I hope you are feeling some relief soon. Your Friend, Fabby :wave:
Bictwin
01-01-2006, 11:12 PM
The reason I still need the pain meds, even after 2 months post op, is because I had the surgery on T10-L1 but now im having pain in the lower back. Around L1-S1. Where I had the surgery was disk pain because it was already partly fused, but L1-S1 has no physically looking abnormalities that can be seen on CT, MRI, or xrays. So wouldnt I be the lucky one to have a disk problem in my mid back, and a nerve problem in my lower?? UGH! I may go back to the oxy's although after only a few days on the darvocet im doing okay Not great but ok. So any advice on any different meds, or patches would be helpful. Plus anyone that has taken darvocet i would like to talk to. I dont know much about it and I would like to hear if anyone had success.
Ash
Ash
roboronnie
01-02-2006, 02:16 AM
Hi Ash...
I too have taken many pain meds. I have peripheral neuropathy. My pain management doc has me on Neurontin and Cymbalta for the nerve pain but I find that I still need to take the Darvocet. I've experienced not taking the Darvocet but found that I needed it. I told my PM doc and he was surprised to hear that. He told me my last visit that he has tried it with other patients with the neuropathy and they have also indicated improvement in their pain. It only lessens it enough to make the pain tolerable. I also have a spinal cord stimulator (SCS) which is also not enough to make me pain free.
Hope this helps.
Ronnelle
I too have taken many pain meds. I have peripheral neuropathy. My pain management doc has me on Neurontin and Cymbalta for the nerve pain but I find that I still need to take the Darvocet. I've experienced not taking the Darvocet but found that I needed it. I told my PM doc and he was surprised to hear that. He told me my last visit that he has tried it with other patients with the neuropathy and they have also indicated improvement in their pain. It only lessens it enough to make the pain tolerable. I also have a spinal cord stimulator (SCS) which is also not enough to make me pain free.
Hope this helps.
Ronnelle
pedden
01-02-2006, 06:44 PM
Hello, I am currently using the Duragesic patches 75mcg/hr changing them every 48 hours. Most of the time they are prescribed every 72 hours, but I was having a problem with them sticking that long and the meds lasting that long. But to be honest with you the patches work great for nerve pain with me. Now I also am on Lyrica 75mg 2X a day, which is probably very important in my relief. Roxicodone 15mg up to 4X a day as needed, Dialudid 2mg up to 4X a day as needed, and Xanax 1mg 4X a day. Now on the Roxicodone and Dilaudid I do not take both of them 4 times a day everyday, and different people are gonna need different dosing schedules and everything, and only a MD can tell you for certain what you should need and/or what you are gonna get. I wish like alot of the other great people on here that I could tell you whats gonna work and/or what a doctor might be willing to do for you, but I/we cant. I do use my breakthrough pain meds (Roxicodone&Dilaudid) on a regular basis usually atleast everyday, but not always the 4 times a day like I said. I still get my refills every month, but my doctors are aware of how many of everything I have left and how many I have taken. Alot of doctors will not be this way with alot of people, but I have had alot of test and procedures done to confirm my nerve damage. And also have been honest with my doctors as far as medicines go. For example; I have always taken my bottles in for them to see what exactlly I have, not that they have questioned me, its just so they can honestly say well I seen him have this amount, so nobody can question there judgement or anything. But I will finish up just saying that in order for your doctor or anybody elses doctor to try using any of these meds on you, your best bet is to be completely honest, and forethcoming like I have been in bringing the meds for them to physically see. And also be aware that not every doctor is gonna be like mine or anyone elses on here, and noone on here can tell you what a doctor would or wouldnt do. Just hang in there and keep us posted. Sorry my post is so long, I just like to make sure I make everyone aware of everything I am thinking when I post. Thank You for letting me be a part of this discussion.
Sincerely,
Jonathan Motte :)
Sincerely,
Jonathan Motte :)
curiousforever
01-02-2006, 08:08 PM
Hi Ash...
I too have taken many pain meds. I have peripheral neuropathy. My pain management doc has me on Neurontin and Cymbalta for the nerve pain but I find that I still need to take the Darvocet. I've experienced not taking the Darvocet but found that I needed it. I told my PM doc and he was surprised to hear that. He told me my last visit that he has tried it with other patients with the neuropathy and they have also indicated improvement in their pain. It only lessens it enough to make the pain tolerable. I also have a spinal cord stimulator (SCS) which is also not enough to make me pain free.
Hope this helps.
Ronnelle
Have they found a cause for the PN? I just started having peripheral neuropathy about 6 months ago. It started in my arms. Now it's up and down my legs. Along with other neuro symptoms. I'm taking topomax cymbalta and percocet...and it's barely keeping up with the pain after really really limiting my activities....
I too have taken many pain meds. I have peripheral neuropathy. My pain management doc has me on Neurontin and Cymbalta for the nerve pain but I find that I still need to take the Darvocet. I've experienced not taking the Darvocet but found that I needed it. I told my PM doc and he was surprised to hear that. He told me my last visit that he has tried it with other patients with the neuropathy and they have also indicated improvement in their pain. It only lessens it enough to make the pain tolerable. I also have a spinal cord stimulator (SCS) which is also not enough to make me pain free.
Hope this helps.
Ronnelle
Have they found a cause for the PN? I just started having peripheral neuropathy about 6 months ago. It started in my arms. Now it's up and down my legs. Along with other neuro symptoms. I'm taking topomax cymbalta and percocet...and it's barely keeping up with the pain after really really limiting my activities....