My son is very fortunate to be in an autistic pre-school. The program is housed in the school district but is funded through the county Health and Human Services. There are 2 classrooms with 12 students each. There are always over 60 children on the waiting list. Of course most of the kids age out before they ever make it to the program (the program serves 3 and 4 year olds). Our pediatricain recognized the signs very early so we were able to get our son at the top of the waiting list for his age group.
The teachers are really wonderful and they do a great job. They do incorporate ABA. I feel he needs several more sessions each day of the ABA. Because of the number of students and the other activities that are built into the curriculum he only gets three short sessions of ABA each day, but again I do feel very fortunate to have him in the program. If he was not in the program he would be in the pre-school program in the district. None of those classrooms are prepared to teach an autistic child. Usually their main goal for the autistic kids is to keep them from eating the paste.
The school district provided the speech therapy for the students that are lucky enough to be in the autistic preschool. My son gets "15" minutes a week. With transition time to the speech room it is really only 10 minutes. He shares that ten minutes with another student. In our IEP with the school district I challenged anyone to look me in the eye and tell me that they considered 10 minutes a week to be adequate. Hello! It takes 10 minutes to warm up. Anyway there appears to be some loophole in the "must provide an adequate education" dogma that since he is in a "private" school they can get away with the 10 min. and that is that.
Next year he will go to the developmental kindergaten (which will have kids with all types of disabilities). From what I can gather they all get 10 minutes a week of speech also. Supposedly, you should be able to get more through the IEP process but in reality it just doesn't happen. I have him in private speech therapy once a week for 30 minutes and I can see what a difference it makes for him. He needs it every day! I am willing to concede that the ideal education is not going to be provided by the school district, but I certainly expect adequate. I really do not think the 10 minutes he gets a week have made any difference in his progress. Basically they provide this minut amount of service in order to keep their federal funding. (They also did this with gifted eduaction. Last year they did finally add one classroom, a 5th and 6th grade spilt. Until then the only gifted eduaction they had was summer classes that teachers could recommend students attend. Because of the summer classes they were able to keep the funding.)
I have talked with the speech pathologist on the elementary school my son will attend when he is in first grade. She was about the only on who has been up front about the services that my child will get. They kids are grouped by need (with several in each group)and the sessions are 20 min that includes transition time so they really get 15 min of group therapy. Once again I ask, "How can this be adequate?"
I am certain that my son will need an aide when he attends elementary school in order for him to stay on task and learn. However, because he is not disruptive I doubt he will get one. Of course I will fight for it. I will also fight for more speech next year. I feel like I need to fight just to be heard. And all of the fighting will probably never benefit my our child. However, if enough people are loud enough to be heard, eventually some changes will be made that will benefit other children.
Sometimes it is hard for me to come on the healthboards and read about the services that others are receiving. I don't think they always know how fortunate they are. I don't remember who, but awhile back a mom was very upset because without a diagnosis her child could only recieve 12 hours of home therapy. I just wanted to shout. Not at the mom of course. She was right in knowing that her child needed even more services to really reach their potential and I admire her for fighting for it. I was frustrated with the discrepency realizing that is some areas 12 hours of home services was considered minimal while most places provide nothing. When my son was still in early eduaction he receive 40 min. twice a month of speech. (Of course if their were things going on like teacher training that month he would see the therapist once.) That was the most service we have received from the district. I am so happy that some kids are getting alot of services but at the same time it makes me even more angry that most are not. Most areas of the country do not even have any private facilities that you can utilize in order to get an "appropriate education."
Sponsor
jeffreys mom
01-04-2006, 05:24 PM
I want to scream with you. My son will do better than most because I have educated myself on the Laws and how he is ENTITLED TO A FREE PUBLIC EDUCATION TO APPROPRIATELY MEET HIS UNIQUE NEEDS. My son recieved alot of Early Intervention and I'm truly grateful because it's helped mold him to be the child he is today. I have always been confused about the differences in what the different states offer for Early Intervention Services. There should be some consistency across the board and some government funding to be sure that these children get the much needed services as young as possible. I feel pretty certain that something in their environment has triggered the uptick in autistic cases and there should be someone accountable to oversee the programs across the board to be sure that all kids are treated with the same opportunities.
I pushed for anything I could get for my son in the birth to three program and probably caught some lucky breaks that I don't feel guilty about. I know that my advocating for my son and talking to other mothers about what their children should be getting I am paying back for the breaks we got. I continue to be there to guide and support other parents in this situation because I know what it feels like and how frustrating it is.
I think it's appauling that the level of services differ from state to state, but also various towns with in a state. The town I live in provides much less for a child with High Functioning Autism than the next town over. My son was stripped of all the 1.1 he was getting the day he turned three. He was doing remarkably with this 1.1 but the school feels he should now apply his skills in a classroom setting. They recommend an Integrated Preschool 15 kids 8 typical 7 special need with one teacher and one aide for the entire class.
This just is not good enough and I will not sit still and let this happen. He has a receptive language delay and will get lost without enough 1.1 assistance. I wish more parents would stand up for their childrens rights which would make it better for all involved. I feel the school has basically tried to bully me into accepting their IEP through various tactics, whether it be intimidation, guilt, avoiding my calls. It's just been exhausting but I'm going to keep trying to get the most I can to help him fulfill his potential.
I am prepared to take what ever steps are necessary to get him the assistance he needs without compromising him. I am sorry I have ranted and definately sound like I'm on a soap box. This is just the release of six weeks worth of aggravation, heartbreak, and frustration !!! Thanks for listening.
BetsyAnn
01-05-2006, 01:13 AM
Jeffereysmom, that is so frustrating! After giving your son some appropriate help initially it is criminal to take it away because he turned three, especially since we all know that that 3-5 year period is so critical. Keep up the fight. My thoughts are with you.
kaybee
01-05-2006, 10:46 AM
I'm new to this board but only in a professional capacity as someone who works with autistic children and wanting desparately to provide appropriate services. The first thing that needs to be done is a review of the IEP. The time should have been stipulated at the initial meeting and rarely does anyone provide direct services (OT, PT, or Speech) for less than 60 minutes a week. There have been winning lawsuits against therapists for actually only getting students for 20 minute time periods each session. The minimum amount of time spent in direct therapy (not transitioning to and from class) is 25 minutes but the IEP would have to say 50 min/week instead of 60. The district that lost the lawsuit had to make up the extra therapy time over the summer.
If the IEP indicates that services will be indirect then I'm not sure how much the minimum amount of time legally could be since speech therapy is not the primary service provider of the IEP. If your child's IEP states that he should get 60 minutes of direct therapy, then you have the law on your side and would no doubt win whatever you pushed for. If your child were not in a preschool disabilities program and had an IEP for speech therapy services, the minimum amount of time spent with your child is 60 minutes. I think the main thing is to check the wording in the IEP. As a parent you have every right to push for increased services because it does not appear that FAPE (Free and Appropriate Public Education) is being provided and neither is Due Process. In my school district, for speech therapy, there isn't an IEP written for less than 60 minutes of services. If there was, we wouldn't receive any funds for that child. With a child who is autistic with difficulties with speech and language skills, we'd be inclined to provide therapy services 4-5 days a week for 30 minutes - at least.
I'm battling with the district now on behalf of a highly functioning autistic child who has a speech IEP, qualifies for all day 4k, and can't function in his current regular classroom. As soon as the LEA rep for the district found out about the child's diagnosis, they decided they weren't in a position to accommodate him in a more appropriate self contained class with disabilities and even went outside of the intervention team to reduce the child to 1.5 hours a day of school! Can you believe it? If those parents were just a bit more aware of their rights, they'd realize they had been violated and would no doubt win a lawsuit - probably get a shadow for the child at the very least.
I wish you both luck with the battle. It's a shame when you can't turn to your own school district for the help that your children have a right to! Raising a stink about your child's rights seems to be the only way to get what you're entitled to these days.
lynn2291
01-05-2006, 01:32 PM
Hi,
I'm sorry to hear that you are having difficulty with your school district. The sad fact is that many speech therapists are so overloaded with the number of students on their caseloads that the children are the ones who suffer. You do have the right as a parent to push for more services. It is my understanding that if the IEP is marked that your child is getting indirect services, that means that the speech therapist does not have to pull your child out of class and work with him in a small group. Indirect services could mean just consultation with the classroom teacher. As for direct services, in my school district there is not a time limit as to how much direct service a child has to receive. It is based on the child's need. Most children get 60 minutes a week of service, however we have children who are getting more than that and children who are getting less than that. It should be based on the need of the child, not the therapists time constraints in her schedule. I hate to say it but the last poster was right, the only way that you will probably get an increased amount of therapy time is to raise a stink and threaten to take the school district to court. Even if you are not thinking of taking it to court,often just the threat of it, will get results. Best of luck to you. I hope that you get the services that your child is entitled to.
BetsyAnn
01-05-2006, 09:25 PM
[QUOTE=kaybee]The time should have been stipulated at the initial meeting and rarely does anyone provide direct services (OT, PT, or Speech) for less than 60 minutes a week. In my school district, for speech therapy, there isn't an IEP written for less than 60 minutes of services. If there was, we wouldn't receive any funds for that child. With a child who is autistic with difficulties with speech and language skills, we'd be inclined to provide therapy services 4-5 days a week for 30 minutes - at least.
QUOTE]
kaybee, although I very much appreciated your post, I have been absolutely enraged all day long after reading it. I quoted the part that really go me. I can not see how anyone could consider anything less than 60 min. a week adequate. And you would think that a child with autism would get speech services several times a week. It just isn't happening in my district.
lynn2291, I am glad you included the part about "threat of a law suite." I think I will feel at little better if at least throw that out there.
I do have an appointment with the director of special eduaction on Monday. I am sure I will be wound up next week! I am very interested to find out what the official stipulations are for children in a private program. What I have been told is that although the district is responsible for the speech therapy they have different regulations than if they were in the public school(that is how they get away with only 10 min.). But no one has been able to tell me what the actual stipulations are.
If you ladies have any advice for me before my appointment I would appreciate it. The issues I would like to address with the director are 1) Let's get him some appropriate speech now. 2) How do I go about getting an appropriate amount of speech written into his IEP for next year.
I think I will put a call in to the state special ed director and ask what type of services I should be expecting this year and in the years to come.
kaybee
01-06-2006, 09:32 AM
BetsyAnne, here are your rights:
You have a right to ask for an IEP meeting in order to amend it to include more therapy. You DO NOT have to wait until the annual review. If the IEP is ammended now, you can have increased services for the rest of this year.
The public school district is obligated to serve children from 3-21 yrs., according to federal law. If your son's program is being funded by the County for Health and Human Services, who is providing the speech therapy? Is it contracted through that program or is he getting it from a school speech therapist? What I'm getting at, is if the program is contracting with an outside speech therapist, they may be getting around it somehow. If it is being provided by the school district's therapist, then they may be in violation.
So, the bottom line is that you have a right to demand that the public school provide the services. You have a right to demand an IEP meeting immediately and if your son is not receiving OT, PT or adequate speech therapy services, you have the right to demand that the school district provide the services free of charge. BTW, if your child were in a daycare, private school or in no program at all, federal law stipulates that you be provided with any and all services offered by the school district. If your district isn't providing the services that your son is qualified for, then they are obligated to find and pay for therapists who will provide the services for them. Being overloaded or short a therapist is no excuse and not your problem. Use your son's psychological report, speech evaluation, or any other reports as your ammo. I'm sure in the 'recommendations' section you won't find, 'therapy for 10 minutes a week'. If you aren't getting OT or PT services and haven't had an eval done yet, you might want to go ahead and get a prescription from your son's dr, have it in hand at the next IEP meeting and make sure he is evaluated to see if he qualifies for those services as well. Sensorimotor integration therapy is a great therapy for autistic children.
Oh, gosh, sorry this is getting so long. Also, if your district is offering any training in autism, like ABA, ask to be a part of it... Once a district sees that you mean business, you can pretty much get anything you have a right to.
Please don't wait until the annual review! It will potentially waste a half of a year of his time. If, after you have the IEP ammended, and adequate services still aren't being provided, then a lawsuit would get them scrambling. Another bit of advice, if you can't get them to amend the IEP, don't sign it because if you do, it shows that you are in agreement.
Yikes! I'm sorry, but if you've gotten this far, maybe you're still with me...
You may want to find out how to contact a parent advocate and have them attend any meetings with you. I think the district's guidance counselors are suppose to have that info for you. In addtion to enlightening you of your rights, they have a lot of pull with the school district. I'm wishing you lots of luck!
karen
jeffreys mom
01-06-2006, 01:35 PM
Thank you Betsyann and Karen. This post is right in the middle of my fighting disaster with the school district. I'm too exhaused and quite honestly depressed to even get into the details. All I can say I just want to resolve things and the resistance from the district is rediculous. I have been wishing that the people making the decisions for our kids futures knowing full well they are not providing what's appropriate encounter what we have to go through someday. I know it's wrong to wish problems on others so I just need chill and ...... God forgive me
Thanks for listening
kaybee
01-06-2006, 02:21 PM
I hate to hear that you are both going through so many problems. It seems to happen more often than not that parent's aren't informed of their child's rights or the district simply doesn't want to bother with providing the services. To be honest, a diagnosis of autism is frustrating because even tho you may be working with professionals, very few are experts in that field alone.
I'll tell you of the situation that has prompted me to jump on this bandwagon. Actually, there are two: one is that I find myself providing more and more services to children in my county who are not yet diagnosed with autism but are obviously autistic. It seems to be getting more and more prevalent which is really concerning me. The other issue is more frustrating. We have a 4k student that qualified for full day school. After school started, I mentioned that he appeared to have some strong autistic tendencies and only at that time, did the parents fess up to it and show us a report. I was ready to launch the whole intervention thing with OT, PT in addition to speech, look at other placements because a traditional classroom wasn't working for him, and get him started on what he needed. After the 'team' met, The district rep decided on her own and without consulting the team, that the district didn't have anything available and the child was placed on a reduced schedule. He now comes to school for 1 1/2 hours a day. That's it. Talk about discrimination. I have steam coming out of my ears. No other services are being provided. Also, there is no transition between services provided for the birth to 3 yr old and when the kids reach 4. So, whatever intensive program these children may have received through early intervention is dropped when they get into school.
I sure hope you both get some results!
BetsyAnn
01-09-2006, 02:32 PM
I am on my way to meet with the Special Ed. director. It should be interesting. What I have discovered so far is that my son does not have an IEP, he has a Private School Service Plan (I knew that but had forgotten). It does not come with the same due process as an IEP. Also, I got a copy of the state "Golden Rules" for special ed. It was updated in 2000. It states very clearly that districts are not obligated to provide services for students in private schools. However, it appears that the federal IDEA update of 2004 says that they do. Now since they are providing speech, my assumption would be that they need to do so adequately. I know that we all can agree that 10 min. a week is certainly not adequate. What I am finding is the schools define adequate by what most kids in the district with similar problems are getting. All of the kids in my sons situation are getting 10 min. so somehow that is adequate. In some districts kids are getting 35 hours a week of services so a child getting only 10 hours is getting an inadequate amount.
Thanks to everyone for your support and advice. I will post later about the meeting.
jeffreys mom
01-09-2006, 06:41 PM
Good Luck...... I know what u r going through and it's so frustrating. I hope you have success in getting through to them.
BetsyAnn
01-10-2006, 12:16 AM
This is what we found out. The IDEA revision of 2004 does mandate that some "district" money be spent on special education for students that are in private schools. There is a formula based on the number of students that have been identified as special needs and are enrolled in private schools. Now here is the interesting part, the district can spend that money anyway it sees fit. It can all go to one school, and it can all go to one cause as long as it fits into special education. They could spend all of the money on busing, or if they were really into occupational therapy they could spend it all there. They can mix it up as well. There is no requirement that my child receive any service as long as he was offered placement in the public school. When my child is in the public education system, there is no guarantee that he will receive what most would consider adequate services either. As long as he is making progress and they at least provide indirect services they have met their requirement. Our IEP should be interesting this spring. I called the State Office of Education and got the same story. Also, without an IEP we do not have the same rights to "due process."
I did talk with the speech therapist today also. She informed me that she has been working with Caden for 20 min. I really was under the assumption that it was still the 15 min slot with transition time (hence 10 min.) I do trust her. So our initially meeting did pay off. But still I believe that it is very inadequate.
kaybee
01-10-2006, 10:41 AM
BetsyAnne, inadequate is really an understatement. Any speech therapist worth a grain of salt knows that it isn't even worth the child's time for her to be doing such a minimal amount of therapy with your son. The only way anything like that can really work is if she's also working with you on techniques to use in your home and any other setting away from his school. Hopefully she's doing some intense training for his teachers, too. It sounds to me like the district is functioning on a loophole and that's a shame. But at least you know where you stand and now know what you're dealing with. Other agencies out there may be available to your son and may be able to help with increased intervention, like Easter Seals. What kind of program are they using with your son? Is there a whole team of professionals involved?
So, are you being provided with progress notes on a timely basis from everyone that works with him? The district has the burden of proof when they claim he's making progress.
I sound like such a downer but hate to see any district doing this!
specialbabies
01-12-2006, 12:13 PM
My child had different disabilities, however I can fully relate about the school system, My child had to have his 1st seizure( i was in the hospital) before they would pick him up on the disability bus. We live just shy of the 2 mile mark(so you have to walk). I hope all your issues get better. :)
bzybeader
01-12-2006, 04:58 PM
Wow, an hour or speech once or twice a week? Not here in CA -- kids have to be *severe* to get that much, or not be autistic but classified as having a severe speech deficit..and they have to fight to get that. IEPs aren't regularly written with anywhere near that amount of help.
All kids should be so lucky to get at least 1-2 hours of speech per week, but in reality, I don't know anyone that didn't have to fight -- and even those that fight aren't necessarily getting it. Our schools here are so overcrowded and understaffed, and wonderful staffers that are here can only do so much.
Privately-funded speech and OT are available to some, but not everyone, which is awful. People have resigned themselves to state-provided insurance to get some in some cases, while those of us with insurance we're working our tails off to pay for can't get it covered under the insurance.
We've been fortunate but we're still early in the fight. We've had a couple of issues already, and you are so right -- know the law, and don't be afraid to let them know you know it. Outside assessments can be helpful, and document, document, document.
Bzybeader
BetsyAnn
01-17-2006, 09:31 PM
I have an interesting update. Last week when I was volunteering in my son's class I noticed a new speech schedule. It was spaced out in 20 min. increments instead of the 15 min increments that it had previously been. I do not know if that happened before I talked to the special ed. director or after. It is possible it was there since mid-December. It is also possible it was just put up that week.
Today I received a phone call from the special ed. director. She informed me that she has meet with the head of the speech department, the speech therapist, and the director of my son's school and they will be increasing the speech for all lf the kids to two sessions a week. I asked if that would be two twenty min. sessions and she said yes. Wow! I did not see that comming. What a big improvement. Of course I would like even more but with the 1/2 hour of priviate speech he receives along with these two sessions I feel he will definetly make some great progress.
This should be great news, right? Tell me why instead of felling excited or happy I feel suspicious.
Special babies I would assumed that the two mile rule would not apply to a disabled child. Tell me more about your fight.
bzybeader, what type and amount of services have you been able to get for your child?
kaybee, I apologize for not responding to your questions earlier. I had to remove my self from the topic temporarily because I get so engrossed in my rage that I can't get anything done. I also wanted to say that it is nice to have your perspective. I am glad you joined that boards. The program my son is in incorporates ABA sessions and they work on social skills. One of the main goals for the kids to have good attending skills. The teachers are paraprofessionals. They have no formal training. They receive on the job training. They do a wonderful job. All of the teachers in the program are great with the kids. I am so grateful that the program is available. We do not have ABA centers or other private programs available in my area. Notes are sent home each day on his progress. On Thursdays a more indepth note is sent home (they have Friday off.) There are no other professionally trained people that work with my son besides the speech therapist. Last year we received an end of year progress report for speech and that was it. This year we received a pre-private school student plan meeting paper that discussed possible goals. We have not received any other correspondence.
jeffreys mom
01-18-2006, 03:49 AM
Hi Betsyann; I'm glad things are a little better. I feel your frustration and completely relate to not being able to post about it because you are so enraged. I feel the same way .... enraged, depressed, helpless, hopeless.
It's so frustrating to know what the kids need for services then hit the brick wall when you have school officials try to pacify you and offer the barest of minimum. They feel that they are covered if the child makes progress regardless of how little that may be. It's completely unethical to allow a child to just skim by when they have potential to make more progress with the appropriate services in place. HOW DO WE GET THIS TO HAPPEN?????
My son is extremely bright in an academic sense. This has been his down fall with the school system. He is actually significantly ahead of his peers in the typical PDD fascination with numbers, letters, colors, and shapes. Big whoop.
He needs the help with COMMUNICATION SKILLS and playskills and how not to be so self directed. I'm grateful that he is in an integrated setting with lots of typical peers but he needs the assistance with the socialization piece and it's just not being offered. The school tells me that they will make sure he gets help when needed. I want to know how that is possible with 15 kids
7 of which are on IEP's for their own needs with ONE TEACHER and ONE Aide who has no training in Autistic Spectrum Disorder.
I'm ranting now. Good luck with everything, I'm glad to hear you feel a little better.
BetsyAnn
01-18-2006, 12:43 PM
Jefferys mom, thanks for all of your support. It helps to have people that can relate. I can see why you are outraged. There is no way an autistic child in a class with 15 students and 2 adults can get the one-on-one attention they need to learn proper skills. Of course he is making progress. You make certain of it. But how much more progress would he make if they were doing there part?
Sick_of_me
01-19-2006, 02:25 PM
Wow, when I was 5 to about 8 or 9 I had speech EVERY day for an hour....and I lived in Florida! :eek: I'm so sorry this is happing to you and your son, I hope it will all work out soon. :wave:
BetsyAnn
01-19-2006, 02:36 PM
Wow, when I was 5 to about 8 or 9 I had speech EVERY day for an hour....and I lived in Florida! :eek: I'm so sorry this is happing to you and your son, I hope it will all work out soon. :wave:
Now that sounds like a reasonable amount. Do you mind if I ask what type of speech problem you had?
Sick_of_me
01-19-2006, 10:05 PM
Now that sounds like a reasonable amount. Do you mind if I ask what type of speech problem you had?
Nope, not at all. I would stutter. :o But I'm good now (I'm 16 BTW). :) I still do it sometimes, but it's rare. This will sound crazy, but drama classes tend to help children with speech problems, Iv'e known 2, and then there's mio. :D (And it's really fun!) :bouncing:
bzybeader
01-19-2006, 10:08 PM
Betsyann, my child gets speech 2x a week for 20 mins each. He also gets OT consult twice a month...both are things we had to fight for. My son is very verbal, but he needs speech for pragmatics -- he'll monopolize a conversation about his obsessions, has flat affect, little eye contact, etc. He's had two outside OT assessments, both done in reknown centers, yet school says that most of the OT problems they found and reported on were not 'educationally necessary,' so that's why he doesn't get more in school though he has a hard time sitting still and has sensory issues and motor issues. He's in an SDC and also gets behavioral therapy but via the RC, not the school. The SDC also provides social skills help, but he'll eventually need more than they're giving.
Overall, we're not unhappy with what we have now, and the school is great -- his teacher is amazing and we love her -- but our next IEP is coming up in a couple of months. I know people who get less and have fought harder, so I can't complain but I do think it shouldn't be such a fight -- and I know no one getting the hours of speech per week mentioned in other posts, which I assume is just a locale thing.
smw73
01-31-2006, 01:39 AM
I'm 32 years old and have mild autism. I wasn't openly diagnosed until a few years ago - when I was a child, the professionals brushed over the problem and didn't explain things very well to my confused parents. They just said I would eventually grow out of the problem. God I had a hard time in school. I did okay academically and was even advanced in some areas, like maths and music. But I had problems socialising and with physical sports. Ironically, though my gross motor coordination was pretty terrible, I was very good at handwriting, arts and crafts - the best in my class. But I used to dread sports times - I was terrified of climbing things and was always picked last for competitive sports. The teachers always turned a blind eye to bullying or whatever - they just used to say that children had to learn to stand up for themselves with their peers. I had speech problems and no therapy was provided for it. I just couldn't understand why I felt so different from everyone else (that was probably the worst problem - not knowing). I just used to think I was retarded, like I got called all the time.
Despite this, once I left school I 'adjusted' and things improved for me a lot - I finally felt free to be myself, joined groups, made friends, etc. I went to the professionals and finally, after a lot of misdiagnoses or being told it was 'all in my head', I got answers. Fortunately, things are a bit better these days than when I was growing up - there's a bit more understanding. But there still seems to be a long way to go. I really think it's something which needs to be seriously dealt with, in schools.
kaybee
01-31-2006, 12:08 PM
SMW73, I've been in the profession for many years and have never, ever met an adult with high functioning autism. It was refreshing to read your post.
Back when you were in school, speech therapy (believe it or not) wasn't the same as it is today. There were very few laws that governed the field and unfortunately, to be honest, a dx of autism really intimidated therapists back then. I can't say that it's better today because autism and all the areas of difficulty associated with it, including the wide ranges of functional ability is frankly overwhelming. It is still very confusing and so individualized, it's overwhelming. In addition, what might look to me like severe autism based on communication skills, may be diagnosed as only mild to a psychologist. Guess what I'm saying is that the therapy recommendations are always changing with new methods and my head spins every time something new comes out!
BetsyAnn, it really sounds to me like you've pushed the right buttons. Maybe the director originally gave you a line of bull to pacify you and when you called him/her on it they realized they couldn't legally get away with the amount of speech therapy that was initially provided. What do you want to bet, they received the funds for your son based on the minimum amount of therapy (50 minutes a week) but tried to get away with only providing 15 minutes? Still, I think it's a shame that having recognized that your son needs more, you're still having to pay out of pocket for private therapy. BTW, thank you for the warm welcome.
Just an FYI, my caseload is huge, pushing 85 students but I still manage to see several children 4 times a week for a total of 2 hours and that's just for severe articulation problems. There isn't a single student 3k and above that I don't schedule for less than 1 hr/wk or else I wouldn't be in compliance and the district would have to pay back the big bucks speech therapy generates. Some of my 3 and 4k students don't even attend school and I'm still obligated to provide services 1 hr a week. The only autistic child that I see at school gets individual therapy (he can't function in a small group) 2 times per week. I need to increase the time to 4 days but his schedule won't allow it at this time. We're also pushing to get him OT. I'm sure I'll be picking everyone's brains here on some of the issues surrounding this particular child. The children I see after school through the state's Babynet program receive services for 1 hour a week, too. I'm not tooting my own horn but these times are federally and state regulated in order to receive the funds and for the life of me, I can't see how districts can get away with less if operating under an IEP for speech.
9CatMom
04-16-2006, 09:34 AM
SMW73,
Your school experience was almost exactly like mine. I did well academically, but hated physical education. I was terrible at sports (ironically, I can memorize a large amount of information on figure skating, track and field, and the Olympics), and hated getting dressed for P.E. class. My strong subject was English. I also excelled in anything involving a lot of reading and study.
I always remember having some obsession or other, and reading everything I could get my hands on about that subject. Currently, it is Roger Bannister. I found his story interesting because he also reported having problems fitting in at school, even though he was academically very advanced. He was teased and even bullied by the less motivated members of his classes. His story is a great source of inspiration to me. He achieved all of his academic, athletic, and career goals despite being "different," and was successful in his personal life as well. In some ways, I think he was able to accomplish so much because he wasn't typical.
As for me, I have managed to live a good life, despite a difficult time in my teens. I obtained a Master's in English, taught English in college, edited, worked as a proofreader at my local newspaper, and now work at the library, a job I have had for nearly four years and greatly enjoy. As for my personal life, I have not really had a lot of success, but I will try. I am thinking of joining a book club, because I feel that is a place I could find someone with common interests.
Good luck to you in the future.
9CatMom
04-16-2006, 12:09 PM
Roger Bannister's success in life makes me wonder if people with Asperger Syndrome actually did better in life in an era before labels, medications, and all the predictions about the future that evaluators tend to give, many of them, sadly, negative. In the movie, "Four Minutes," Roger was described as being, "A bit of the rum sort." Was this an early term for Asperger's before this syndrome was diagnosed? Was it a bit more typical for an Englishman of his day to be quiet, introverted and serious? I believe that Roger Bannister was atypical in an age even when his traits were, one would think, more acceptable.
As a young runner, he didn't conform to the press' idea of the ideal athlete. He trained in his own way, concentrated on his academics and his future career as a physician, and "didn't train enough." It seemed that the press darlings were the empty-headed athletes who did nothing but sports. I'm more inclined to follow Roger Bannister's example. I guess that makes me a bit of the "rum sort" myself. Oh well, I don't care.