Hi there, my name is Lisa. I have a 16 year old son with CF. He was diagnosed at birth, he had meconium ileus and was salty like crazy. We had to wait until he was 3 months old to get the sweat test. Anyway, he has done well, hospitalized just once, and that was last year (Christmas time! yuk). His cough has grown a bit though in the past year or two. A visit to Childrens is coming due soon.

I've been reading a few posts here and notice a large majority of you have young ones, and are that stage of giving the enzymes in applesauce and all that good stuff. Wow, I remember those days. My heart goes out to you, it's not easy.....but you're good parents and it will get easier as time goes on. It all just becomes second nature. :)

Anyway, this is my introductory hello. I'm gonna go read a bit more about what you all have to say here. ;)

Lisa

Hello Lisa, my nephew is 6 and has CF. He is in great shape but has his struggles. He wasn't diagnosed with CF until 2 and should have been when he was an infant but his Pediatrician failed to notice his signs and instead diagnosed him as a baby failing to thrive. It cost my nephew serious problems, but once he was diagnosed things got better. He has had his scares and actually stopped breathing in the middle of the night and went into respiratory failure when he was 4 and nearly died. My sister just happen to be checking on him about the time he had stopped breathing. To this day they don't know why it happend to him.

Anyhow, this board is not very busy but I stop by to read posts now and than. I'm glad to see you have posted. Hope to hear more about your son as time goes on.

Hi Lisa!

Welcome! It was nice to hear that after a rough start your son has done pretty well. That is encouraging. Has he had a hard time maintaing a healthy weight?