courtenaynt
01-30-2006, 09:45 AM
Does anyone on this board have CLL? I'm very young (only 28) to have it, and was wondering other people's experiences...
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Sponsor gemmax 09-21-2006, 03:04 PM Hi, my fiance is 34 and has just been diagnosed with CLL. we have also found it hard to meet other around his age with this condition. I would be interested in talking more. it would be great to have support from a peer. I look froward to hearing from you soon and i hope you are doing well. beckyb46 09-23-2006, 02:59 PM Look on the lymphoma board. That where most people who have CLL posts. I have it. It is more of lymphoma type cancer. But alot of people have it. Most usually find out when going for testing for other conditions. They used to call it the old man's disease because it doesn't usually show up till around 60 or so. But that is changing. beckyb46 10-04-2006, 10:29 AM I have CLL.Doc sent to 2 different labs, confirmed cll low grade, but he still thought hairy cell. I started rutaxin 2 weeks ago. Then CHOP yesterday, so far so go. My Bloodwork bottom out quickly also. Perfect at end of June. All over the place by middle of Aug. My Hemocrit was 14 I had to get 3 units of blood. All of my white cell were out of whack. Apparently my bone marrow is pack with lympocytes. But Chemo will clean them out and start making the red cells again. I am taking 40 of prednisone daly (:eek: alluprinol to protect my kidneys. lots of water and more water. Right now I feel good. I don't what to expect in the way of tireness and nausea. I know they give me anti sick stuff. Doc won't let me go back to work yet. If you want to compared. Give me a post Take care bruben 10-30-2006, 06:42 PM just received diagnosis last week stage zero but slightly swollen spleen If you can provide any information about diagnosis or support groups please let me know ariajohn 11-11-2006, 09:20 PM Does anyone on this board have CLL? I'm very young (only 28) to have it, and was wondering other people's experiences...ou have You are young! I have CLL but I'm 52. Most people w/ this are 50 and over. There is some good news about CLL, you can have this for decades and never feel the affects. What symptoms do you have? Did you have a Zap 70 test yet? John |
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