Not ALS
02-02-2006, 06:02 PM
I still have trouble swallowing, my neck is still weak but i can hold it up now without a brace. my left arm and shoulder is very weak, i did some push ups today and it got very weak but somewhat recovered now. EMG test was done yesterday, no signs of ALS, completely normal as was my clinical exam. WHATS ELSE CAN THIS BE? I am scared i will never get better here.
skjcity
02-02-2006, 06:46 PM
wow...i am experiencing the same exact symptoms...I had an EMG leg/arm and both were normal and am having difficulty swallowing along with neck pain and arm/shoulder pain except mine on right side...Lot of trouble holding up my head.
Was looking at the internet and could this be Bulber ALS? They would need to do a tongue EMG. I am going to my neurologist tomorrow and asking for one. Have you been to a speech pathologist to monitor your swallowing? They can do a video screen of a test of how food/liquid passes through your throat. I plan to do that next week.
Good luck,
skjcity
ALS is a progressive disease, you do not "somewhat recover".
Sorry, i know how stressful it must be not knowing whats wrong with you, but at the end of the day we are not Dr's. If you are not happy, ask for a second, third, forth opinion, what ever it takes.
Good luck. :)