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curiousforever
02-10-2006, 02:00 AM
I've noticed that when I'm tired I have double vision. I have to read with one eye closed.

Not so much during the day - I don't think anyway...

Is this something neuro call wise worthy?

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lestoby
02-10-2006, 03:17 AM
Hi,

I have been waking up with one eye closed since August, (when I had my 1st attack) and must almost always read the paper with one eye closed. Not so much because of double vision, but because R eye is blurrier and sometimes see grey spots. Sometimes, I have to see at distances with one eye closed too. I have been having eye problems for over 3 years and it is NOT optic neuritis.

I decided to keep a "pain journal" regarding body parts affected, symptoms, and level of pain 1-10. I have a tendency to ignore my problems and never go to the doctor, but I mainly wanted to see if I could find an underlying cause regarding my eye symptoms. There does not seem to be a definitive connection, but the opthomologist found my list very helpful. My friend who is a psychologist recommends his patients keep a pain journal, which helps him write reports and monitor a patients history. So, I highly recommend pain journals.

For the past month, I have been having 50-75% blurriness in my R eye, but it only lasts for 3-4 hours at a time and it has happened about 6 times for the past month.

My symptoms are mainly, pain at the bridge of my nose and across the eybrows, pressure/bulging feeling in R eye, light sensitivity, and a "cold" feeling. I do not have all of these symptoms at the same time, seems to be a traveling kind of thing.

My eye problems began about 4 years ago (warning sign, but didn't know it) and went to an opthomologist. He diagnosed blepharitis, but that is because I wore contacts for 21 years. Obviously his prescribed rx of Patinol (very expensive) did not cure my symptoms.

Had a severe attack in August, 2005 and discovered 2 lesions in my R occipital lobe. The occipital lobe is the part of the brain that controls your eyes.

I went to my opthomologist today (because of the recent "blurriness" problem) and he said that my optic nerve was fine (not inflamed). We are both of the opinion that my eye problems are due to the location of my lesions being in the occipital lobe. I also discovered that my vision decreased significantly in my R eye and my blind spots increased in size since my attack. I have had the same prescription for eyeglasses for over 20 years and now I have a change in my Rx primarily due to my lesions.

While I wish my doctor had a magic wand to make my eye problems go away, I do at least seem somewhat validated that I do not have some kind of stress-related tic. I almost wish it was optic neuritis, so that I could be prescribed steroids to make the problems go away, but I guess there is no cure for my particular problem.

By the way...... I have not received a diagnosis of MS - I am still in limboland. Do you have a dx of MS yet? Do you know if your lesions are in your occipital lobe? I too am looking for somebody that I can relate with who has this problem. Most people with MS can blame there eye problems on ON, but that is not my problem.

But.... in answer to your question, a highly-rated opthomologist can help you with your eyes. You do not necessarily need to see a neuro. My neuro is almost impossible to get an appointment with, but my O.D. can get me in within 2-3 days.

:D

lilc
02-10-2006, 06:49 AM
I've had "vision problems" for the past 3 years now, but also no ON. I kept getting my eyes checked (no change), kept getting new glasses (expensive) with no help. I have been dx'd, but no explanation for the vision trouble. I have not seen an opthomologist, however. Sigh. Guess I'll need to find one if I want to keep driving...

curiousforever
02-10-2006, 12:48 PM
lilc -- you mean sometimes seeing double?

lilc
02-10-2006, 01:48 PM
Not really double, but can't focus. I've tried to explain it but keep failing. I just can't see right. Hmmm, now that I'm thinking about it, I suppose if you can't focus but things aren't blurry it might qualify as "double-vision"!

kelpie
02-10-2006, 01:58 PM
I haven't heard of double vision associated with MS. I have blurry vision but have also had eye surgeries.

Double vision would happen if the eyes weren't tracking together or if the image is hitting somewhere off-center in the retina of one or both eyes. This is the kind of problem corrective lenses can fix, unless it is due to the MS, then it might be a temporary condition. Either way, you should definitely get checked out by an opthalmologist.

Take care,

k.

curious11
02-10-2006, 06:07 PM
Curious... I too get double vision if I am on my feet for too long, or doing too much physical activity. Unfortunetly "too much" isn't what it used to be. I notice it everytime I cook dinner, by the time everything is all set and I sit down to eat, I can't read the clock across the room, my vision is doubled/ blurred.

I went and saw the neuro-opthamologist a few days ago and one of the questions he asked me was "Do you exercise" I laughed and said minimally. Then I told him whenever I do too much, my vision gets blurred and he seemed to expect that answer from me. I didn't ask why that was, but I am sure it is along the same lines as most every other MS symptom. If you push yourself too far, you're symptoms intensify (mine do anyway).

I do remember just as I was recovering from my last bout with ON, I was in the mall and had to sit because I had been on my feet shopping and it seemed to have effected the recently healed lesion, causing blurred vision. It now takes alot more for my vision to get doubled than it did before, so I guess it just tells me that I am aggravating the area.

lestoby
02-12-2006, 09:09 PM
I completely agree with this quote:

Not really double, but can't focus. I've tried to explain it but keep failing. I just can't see right

Sometimes I can't explain why I wake up with one eye closed either. Sometimes, it seems like there is a "film" over my eye, other times, it seems like I am trying to read "cross-eyed", sometimes there appear to be grey floaters, and other times, it definitley is "blurry". Kind of like I don't have my glasses on and the whole world is blurry. When my vision definitley is blurry in one eye, I start looking for my glasses and wah la...... they are already on my nose. Or, I will start rubbing it frantically, trying to get the blurriness (like a film) out, but no success. It disappears as quickly as it appears.

I only had double vision during the first 3-4 days after my attack. If i was trying to read, the line looked like this

__________/
/__________

Every written line was jagged.

StephanieAnne
02-12-2006, 09:50 PM
I too have vision problerms, mostly blurry to where I can't read the clock from across the room. I blink hard, and that sometimes help's, or to read small print in daytime even with my glasses on I haveto turn on a light or hold the item under a light to be able to read it.

Been to a a Opth and he noticed that one eye does not focus as well as the other, but he says everything is find, nerves look good.

I gusss that this is another one of those MS symptoms, like the MS hugs :confused:

It is so nice to hear that other people have this too, I think that if I had never found this site, that I would be feeling way worse than I do, it is knowing that others have these symptoms too that help's me greatly
Thank You all :)

Steph

lilc
02-13-2006, 06:24 AM
I do know that some of my vision problems are age-related (49 next month), at least that's what the eye doctors say. I've worn bifocals since I was 35 but have given up on wearing my glasses on the computer. When I sit down at a computer, I take them off, it's automatic now.
But my trouble focusing bothers me more when I'm outdoors. It's like if you looked through binoculars and kept turning the focus thing constantly. Drives me crazy sometimes.
I revisited the MS Society website last night. It all makes much more sense to me now when I look at the list of sx! They mentioned 2 types of vision problems: ON and non-ON, double-vision.





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