duttin
02-27-2006, 10:32 PM
polyneuropathy,has anyone dealt with this?
What treatments do they use to lessen it?
Surface emg/ncs shows this.Having deep muscle emg/ncs in 2 weeks.
any thoughts would be helpful
Toni
What treatments do they use to lessen it?
Surface emg/ncs shows this.Having deep muscle emg/ncs in 2 weeks.
any thoughts would be helpful
Toni
Sponsor
golfer7
03-03-2006, 07:12 PM
Toni,
I can't answer to polyneuropathy, because I don't know for sure. When my neurologist diagnosed me after my emg/ncv, he just put down sensory peripheral neuropathy. My muscles are fine. It's just the sensory nerves.
Since Poly means more than one and mono means one, I don't know if I can assume since both my feet/legs/hands/arms are affected, if it is polyneuropathy or not. I've read on both an found one article that said "Polyneuropathy implies a widespread process that usually affects both sides of the body equally." Both sides of my body are affected. When it started though, it started with my left foot, but progressed to my right not too long after. When it started in my hands, it was at the same time. Oh well, enough of that. I will just have to call my neurologist.
I do know that I don't have any of the common causes (diabetes, Lupus, MS, lymes disease, thyroid malfunction, heavy metal poisoning. And I have no motor loss. I had a DNA test that confirmed it wasn't hereditary. My has been labeled auto-immune of unknown origin.
As far as treatments, read my new post I did this week. It is about IVIG, which is a treatment, not a cure, since there is no cure. I also had corresponded with someone who told me about “The Rebuilder System”. Don’t know anything about it besides what I read on their website.
(removed)
As far as pain management, I take 3600mg/day (900mg 4 times/day) of gabapentin (neurontin) and 120mg of Cymbalta. I've been taking meds since Nov of last year, but have been suffering since March of 2003 (mult. Drs.s and mis-diagnosis). I have to have one of them upped about 1-2 times a month. Haven't gotten to a point yet where I have no pain/burning/numbness. Not sure If I ever will get there.
( removed )
I don't know if I helped you at all, but Good Luck to you. I hope everything works out OK for you.
Tony
I can't answer to polyneuropathy, because I don't know for sure. When my neurologist diagnosed me after my emg/ncv, he just put down sensory peripheral neuropathy. My muscles are fine. It's just the sensory nerves.
Since Poly means more than one and mono means one, I don't know if I can assume since both my feet/legs/hands/arms are affected, if it is polyneuropathy or not. I've read on both an found one article that said "Polyneuropathy implies a widespread process that usually affects both sides of the body equally." Both sides of my body are affected. When it started though, it started with my left foot, but progressed to my right not too long after. When it started in my hands, it was at the same time. Oh well, enough of that. I will just have to call my neurologist.
I do know that I don't have any of the common causes (diabetes, Lupus, MS, lymes disease, thyroid malfunction, heavy metal poisoning. And I have no motor loss. I had a DNA test that confirmed it wasn't hereditary. My has been labeled auto-immune of unknown origin.
As far as treatments, read my new post I did this week. It is about IVIG, which is a treatment, not a cure, since there is no cure. I also had corresponded with someone who told me about “The Rebuilder System”. Don’t know anything about it besides what I read on their website.
(removed)
As far as pain management, I take 3600mg/day (900mg 4 times/day) of gabapentin (neurontin) and 120mg of Cymbalta. I've been taking meds since Nov of last year, but have been suffering since March of 2003 (mult. Drs.s and mis-diagnosis). I have to have one of them upped about 1-2 times a month. Haven't gotten to a point yet where I have no pain/burning/numbness. Not sure If I ever will get there.
( removed )
I don't know if I helped you at all, but Good Luck to you. I hope everything works out OK for you.
Tony
duttin
03-03-2006, 08:15 PM
Tony,
Thanks for the info.
This is what the Nueromuscular specialist is looking at---chronic inflammatory demyelinating polyradicular neuropathy.A rare disorder origin ---autoimmune.It affects the nerves ,then the muscles.
I've tried neurotin,lyrica,cymbalta have allergic reactions.
I was told this is relapsing and remitting,usually can be controlled by steroids.Had allergic reaction 7 years ago to decadon and stopped breathing,steroids are out of the question at this point.
Thanks for replying
Toni
Thanks for the info.
This is what the Nueromuscular specialist is looking at---chronic inflammatory demyelinating polyradicular neuropathy.A rare disorder origin ---autoimmune.It affects the nerves ,then the muscles.
I've tried neurotin,lyrica,cymbalta have allergic reactions.
I was told this is relapsing and remitting,usually can be controlled by steroids.Had allergic reaction 7 years ago to decadon and stopped breathing,steroids are out of the question at this point.
Thanks for replying
Toni
moderator2
03-03-2006, 08:22 PM
Please read and follow the posting rules
Tomorrow
03-04-2006, 09:02 PM
Hello Nuffs3 :wave:
I was diagnosed with polyneuropathy a couple of years ago. They found that I had this through both an emg and my symptoms. I take Neurontin, trileptal and Requip as I also have widespread tremors. I do take a lot of other meds for other illness as I am not a healthy person.
The polyneuropathy has affected both my feet, calves and hands. At one time I was in such severe pain, but the meds have helped to mask some of the pain.
:angel: (¯`'·.¸..(¯`'·.¸ Jeanne ¸.·'´¯)..¸.·'´¯) :angel:
____________________
~LUMBAR~
Degenerative Disc Disease (DDD)
Posterolateral Fusion & Infuse (BMP) with Laminectomy & Discectomy
on L4,L5,S1 June 2003
Instrumentation = 2 Rods, 6 Screws, 2 Disc Spacers
FBSS-Failed Back Surgery Syndrome
Re-Herniated Disc's, L4-5, L-5 & S1
~CERVICAL~
Straightening of the Normal Cervical Lordosis.
Mild Congenital Narrowing of the Spinal Canal.
Degenerative Disc Disease (DDD)
Disc Osteophyte Complex
Compression Deformity & Spinal Lithiasis
C4-5, C5-6, C6-7 Herniated & Bulging Disc's
C4-5 & C5-6 , Cord Flattening at these levels.
Fusion & Discectomy on Level C5-6 - September 2005
Instrumentation = Titanium Plate & Screws
Bilateral Chronic L4 versus L5 Radiculopathy
Bilateral Frozen Shoulder - MUA 2/7/05
Slap Injury's of Bilateral Shoulders
Hyperlipidemia, Fibromyalgia, Osteoarthrosis, Bursitis, Tendonitis,
Tendonosis, Type ll Diabetes, Anemia, Asthma, Acid Reflux, IBS,
Migraine's, Sleep Apnea, Urinary Incontinence, Polyneuropathy,
Edema of Bilateral Legs & Feet.
I was diagnosed with polyneuropathy a couple of years ago. They found that I had this through both an emg and my symptoms. I take Neurontin, trileptal and Requip as I also have widespread tremors. I do take a lot of other meds for other illness as I am not a healthy person.
The polyneuropathy has affected both my feet, calves and hands. At one time I was in such severe pain, but the meds have helped to mask some of the pain.
:angel: (¯`'·.¸..(¯`'·.¸ Jeanne ¸.·'´¯)..¸.·'´¯) :angel:
____________________
~LUMBAR~
Degenerative Disc Disease (DDD)
Posterolateral Fusion & Infuse (BMP) with Laminectomy & Discectomy
on L4,L5,S1 June 2003
Instrumentation = 2 Rods, 6 Screws, 2 Disc Spacers
FBSS-Failed Back Surgery Syndrome
Re-Herniated Disc's, L4-5, L-5 & S1
~CERVICAL~
Straightening of the Normal Cervical Lordosis.
Mild Congenital Narrowing of the Spinal Canal.
Degenerative Disc Disease (DDD)
Disc Osteophyte Complex
Compression Deformity & Spinal Lithiasis
C4-5, C5-6, C6-7 Herniated & Bulging Disc's
C4-5 & C5-6 , Cord Flattening at these levels.
Fusion & Discectomy on Level C5-6 - September 2005
Instrumentation = Titanium Plate & Screws
Bilateral Chronic L4 versus L5 Radiculopathy
Bilateral Frozen Shoulder - MUA 2/7/05
Slap Injury's of Bilateral Shoulders
Hyperlipidemia, Fibromyalgia, Osteoarthrosis, Bursitis, Tendonitis,
Tendonosis, Type ll Diabetes, Anemia, Asthma, Acid Reflux, IBS,
Migraine's, Sleep Apnea, Urinary Incontinence, Polyneuropathy,
Edema of Bilateral Legs & Feet.
duttin
03-04-2006, 11:37 PM
Tommorow,
I've also had 2 previous lumbar surgery's.Classified failed back surgery x2.
Plus they have not ruled out MS.
If they could just manage the pain.
Toni
I've also had 2 previous lumbar surgery's.Classified failed back surgery x2.
Plus they have not ruled out MS.
If they could just manage the pain.
Toni