enie
03-01-2006, 01:07 AM
finres,
Here's the non-tech. version:
I have a really messed up heart they can't fix, Marfan joints, and chronic inner ear problems. I have to use my wheelchair when I do anything more than taking a short walk around a room. It’s a vicious circle; I can’t exercise because of the heart and my weakened muscles exaggerate the Marfan and increases my imbalance problem.
enie
Here's the non-tech. version:
I have a really messed up heart they can't fix, Marfan joints, and chronic inner ear problems. I have to use my wheelchair when I do anything more than taking a short walk around a room. It’s a vicious circle; I can’t exercise because of the heart and my weakened muscles exaggerate the Marfan and increases my imbalance problem.
enie
Sponsor
NHone
03-01-2006, 02:48 AM
finres,
Here's the non-tech. version:
I have a really messed up heart they can't fix, Marfan joints, and chronic inner ear problems. I have to use my wheelchair when I do anything more than taking a short walk around a room. It’s a vicious circle; I can’t exercise because of the heart and my weakened muscles exaggerate the Marfan and increases my imbalance problem.
enie
wow, hate to hear that. I really do think the Coq10 can do you some good. Have they ever done an intracellular test for magnesium on you?
Here's the non-tech. version:
I have a really messed up heart they can't fix, Marfan joints, and chronic inner ear problems. I have to use my wheelchair when I do anything more than taking a short walk around a room. It’s a vicious circle; I can’t exercise because of the heart and my weakened muscles exaggerate the Marfan and increases my imbalance problem.
enie
wow, hate to hear that. I really do think the Coq10 can do you some good. Have they ever done an intracellular test for magnesium on you?
enie
03-01-2006, 01:57 PM
finres,
I can ask my Doc. about CoQ10 and magnesium next week.
What is an intracellular test?
Thanks for input..
enie
I can ask my Doc. about CoQ10 and magnesium next week.
What is an intracellular test?
Thanks for input..
enie
Spin444
03-01-2006, 04:54 PM
Enie, do you know that Zetia can cause arthralgia, myalgia, back pain, myopathy and rhabdomyolysis? Have you considered that your inability to walk might have something to do with the drug? Statins aren't the only cholesterol lowering drugs that can cause a lot of pain for users, sometimes putting them in wheel chairs, or, worse yet, causing kidney failure due to severe myopathy.
NHone
03-01-2006, 05:16 PM
finres,
I can ask my Doc. about CoQ10 and magnesium next week.
What is an intracellular test?
Thanks for input..
enie
Intracellular measures the magnesium within the cell. Since magnesium is found mainly within the cells it must be done here. The blood will maintain its magnesium level at all costs, which includes robbing the magnesium for within the cells. This is why serum magnesium test are really not good. The serum can have the right amount of magnesium, while the cells are starving. You can verify this by looking up Dr. Mildred Seelig. she is the world's leading magnesium specialist. (from Emory university in atlanta). SHe also has many books, including the Magnesium Factor. Most regular doctors don't understand magnesium or CoQ10, so I wouldn't be surprised if you doctors just laughs and see you can read anything on the internet. I come back for them is "you should do more reading".. Good luck,, By the way, Coq10 is not really considered a supplement , since the body makes it own supply of it. However it can be depleted by medications, and age.
I can ask my Doc. about CoQ10 and magnesium next week.
What is an intracellular test?
Thanks for input..
enie
Intracellular measures the magnesium within the cell. Since magnesium is found mainly within the cells it must be done here. The blood will maintain its magnesium level at all costs, which includes robbing the magnesium for within the cells. This is why serum magnesium test are really not good. The serum can have the right amount of magnesium, while the cells are starving. You can verify this by looking up Dr. Mildred Seelig. she is the world's leading magnesium specialist. (from Emory university in atlanta). SHe also has many books, including the Magnesium Factor. Most regular doctors don't understand magnesium or CoQ10, so I wouldn't be surprised if you doctors just laughs and see you can read anything on the internet. I come back for them is "you should do more reading".. Good luck,, By the way, Coq10 is not really considered a supplement , since the body makes it own supply of it. However it can be depleted by medications, and age.
NHone
03-01-2006, 05:18 PM
Forget to add, Spectra cell in Houston, can do the intracellular test, as well as other hospitals. They do a special test where they use a culture and grow it in a dish. It is not as easy as a blood test, but the only accurate way to measure magnesium.
enie
03-01-2006, 08:23 PM
How did my name get on a new thread?
Oh well,,, maybe I pushed the wrong button.
Spin444,
I didn't know Zetia could be dangerous. When I first started taking it two years ago, befor my pharmacy would fill the prescription for me they had to get special permission from the Doc. My Doctor felt I needed to try it because my cholesterol was dangerously high. Even with the faithful moderately low cholesterol diet I was on for years, it kept going higher, (I still think it was because I couldn't take walks any more). Anyway, they said because I couldn't exercise and couldn't take Statins, I should try it. I was not in good shape and couldn't exercise when I started taking zetia, so I don't think it has affected my walking. I'll read up on the rest of the side effects. Thanks for the input.
finres,
I do read a lot but it doesn't stick as well as it used to (It might be from the nitro patches). I'm always investigating something though. Now a’ days if I want to keep something important that I have found, I make a copy and lay it on my desk. That's my brain's hard drive...HA HA.
In the past I’ve asked the Doc about taking natural meds that might help me, but she said it would change the way my meds would be absorbed. Just an extra note: I'm on a LOT of meds.
I don't know if I'm able to take CoQ10, but I will check it out. By now I think I know what all my heart meds do (when I am taking too much or not enough), so if I can, I'll try it. Last year my Doc gave me permission to adjust my heart meds to have the maximum effect with the least side effects.
I will investigate the info you have given me and see if I can get that test somewhere when I ca afford it. It sounds important. I know how important magnesium is. I know they have checked mine but I don't remember if they told me what the results were.
enie
Oh well,,, maybe I pushed the wrong button.
Spin444,
I didn't know Zetia could be dangerous. When I first started taking it two years ago, befor my pharmacy would fill the prescription for me they had to get special permission from the Doc. My Doctor felt I needed to try it because my cholesterol was dangerously high. Even with the faithful moderately low cholesterol diet I was on for years, it kept going higher, (I still think it was because I couldn't take walks any more). Anyway, they said because I couldn't exercise and couldn't take Statins, I should try it. I was not in good shape and couldn't exercise when I started taking zetia, so I don't think it has affected my walking. I'll read up on the rest of the side effects. Thanks for the input.
finres,
I do read a lot but it doesn't stick as well as it used to (It might be from the nitro patches). I'm always investigating something though. Now a’ days if I want to keep something important that I have found, I make a copy and lay it on my desk. That's my brain's hard drive...HA HA.
In the past I’ve asked the Doc about taking natural meds that might help me, but she said it would change the way my meds would be absorbed. Just an extra note: I'm on a LOT of meds.
I don't know if I'm able to take CoQ10, but I will check it out. By now I think I know what all my heart meds do (when I am taking too much or not enough), so if I can, I'll try it. Last year my Doc gave me permission to adjust my heart meds to have the maximum effect with the least side effects.
I will investigate the info you have given me and see if I can get that test somewhere when I ca afford it. It sounds important. I know how important magnesium is. I know they have checked mine but I don't remember if they told me what the results were.
enie
Stumper
03-01-2006, 10:22 PM
How did my name get on a new thread?
Oh well,,, maybe I pushed the wrong button.
I think they ended the other thread because it was getting to long. I think you were the last one to post in the older thread, so I guess you are the new owner :)
Oh well,,, maybe I pushed the wrong button.
I think they ended the other thread because it was getting to long. I think you were the last one to post in the older thread, so I guess you are the new owner :)
NHone
03-02-2006, 01:06 AM
How did my name get on a new thread?
Oh well,,, maybe I pushed the wrong button.
Spin444,
I didn't know Zetia could be dangerous. When I first started taking it two years ago, befor my pharmacy would fill the prescription for me they had to get special permission from the Doc. My Doctor felt I needed to try it because my cholesterol was dangerously high. Even with the faithful moderately low cholesterol diet I was on for years, it kept going higher, (I still think it was because I couldn't take walks any more). Anyway, they said because I couldn't exercise and couldn't take Statins, I should try it. I was not in good shape and couldn't exercise when I started taking zetia, so I don't think it has affected my walking. I'll read up on the rest of the side effects. Thanks for the input.
finres,
I do read a lot but it doesn't stick as well as it used to (It might be from the nitro patches). I'm always investigating something though. Now a’ days if I want to keep something important that I have found, I make a copy and lay it on my desk. That's my brain's hard drive...HA HA.
In the past I’ve asked the Doc about taking natural meds that might help me, but she said it would change the way my meds would be absorbed. Just an extra note: I'm on a LOT of meds.
I don't know if I'm able to take CoQ10, but I will check it out. By now I think I know what all my heart meds do (when I am taking too much or not enough), so if I can, I'll try it. Last year my Doc gave me permission to adjust my heart meds to have the maximum effect with the least side effects.
I will investigate the info you have given me and see if I can get that test somewhere when I ca afford it. It sounds important. I know how important magnesium is. I know they have checked mine but I don't remember if they told me what the results were.
enie
I'm glad someone else has their "brain" laying out on top of their desk. Hope things work out well for you.. Never know you might hit on something that will improve your condition.
Oh well,,, maybe I pushed the wrong button.
Spin444,
I didn't know Zetia could be dangerous. When I first started taking it two years ago, befor my pharmacy would fill the prescription for me they had to get special permission from the Doc. My Doctor felt I needed to try it because my cholesterol was dangerously high. Even with the faithful moderately low cholesterol diet I was on for years, it kept going higher, (I still think it was because I couldn't take walks any more). Anyway, they said because I couldn't exercise and couldn't take Statins, I should try it. I was not in good shape and couldn't exercise when I started taking zetia, so I don't think it has affected my walking. I'll read up on the rest of the side effects. Thanks for the input.
finres,
I do read a lot but it doesn't stick as well as it used to (It might be from the nitro patches). I'm always investigating something though. Now a’ days if I want to keep something important that I have found, I make a copy and lay it on my desk. That's my brain's hard drive...HA HA.
In the past I’ve asked the Doc about taking natural meds that might help me, but she said it would change the way my meds would be absorbed. Just an extra note: I'm on a LOT of meds.
I don't know if I'm able to take CoQ10, but I will check it out. By now I think I know what all my heart meds do (when I am taking too much or not enough), so if I can, I'll try it. Last year my Doc gave me permission to adjust my heart meds to have the maximum effect with the least side effects.
I will investigate the info you have given me and see if I can get that test somewhere when I ca afford it. It sounds important. I know how important magnesium is. I know they have checked mine but I don't remember if they told me what the results were.
enie
I'm glad someone else has their "brain" laying out on top of their desk. Hope things work out well for you.. Never know you might hit on something that will improve your condition.
NHone
03-02-2006, 11:52 PM
Hi ernie... did some more research on Marfan's, found that 85% of patients with mitral valve prolapse have latent tetany due to chronic magnesium deficiency. also acetyl-l-carnitine is an amino acid that acts as a shuttle for fat that is required for cellular metabolism and also acts to strengthen the heart. recommended dosage suggested is 120 mg three times a day. Also Coq10 enhances the pumping action of the heart, output of blood, speed of heart muscle contraction and general cardiac efficiency. Says dosage of 60-120 mg per day....but mother takes 600 per day. 3000 mg a day have shown no side effects. This was all on Mitral Valvue Prolapse which I suppose with Marfan's is part of your problem. Ask on of Mother's doctors and he said that this is all exactly right. He is a homeopath, an alternative medicine doctor...and ALSO and M.D. He has helped her more than the specialist at Washington University (st. louis) and Mayo.
enie
03-03-2006, 01:46 PM
Thanks finres,
Wow, I'm looking on the wrong web pages. I don't think I've ever received that much vital info befor without paying for it. It really explains some stuff.
Extreme tetany was/is one of my problems. But because my old Doc would always say it’s fibromyalgia or CFS and then stop looking for any heart problem, I learned not include it in my symptoms. The Doctor knew I had Marfan but didn’t know much more than, ‘They are tall aren’t they?’ I needed major help for my disabling heart symptoms so when I went to a different Doc, in 97, I left that symptom out.
I am going to get me some acetyl-l-carnitine and CoQ10, but what type of magnesium absorbs well? Are they all alike?
I remember five years ago when I broke my leg and it wouldn’t heal I was trying different calcium tabs hoping to find one that wouldn’t hurt my stomach, and I tried some calcium & magnesium but it hurt my stomach also.
While I got you on a roll;
Besides my oatmeal, are there any cholesterol lowering OTC’ers that don’t affect the liver? The Docs say that my liver acting up is probably why I can’t take statins. Personally I think it is my gallbladder that doesn’t like the statins.
A note on Marfan: Because of all the disease around the outside of my heart that took forever to cut away plus the five bypasses, the Doctor that did my exploratory surgery ran out of time to fix everything he wanted to fix and opted to treat the Marfan related problems by keeping my BP under normal and antiarrhythmics meds. He said that the pacemaker will help me a lot also. He had said it didn’t look critical and he would rather not try going in to fix it right away because of all the other heart diseases I have. And if I was very careful, maybe I would not have to have the repair surgery done for awhile yet.
enie
Wow, I'm looking on the wrong web pages. I don't think I've ever received that much vital info befor without paying for it. It really explains some stuff.
Extreme tetany was/is one of my problems. But because my old Doc would always say it’s fibromyalgia or CFS and then stop looking for any heart problem, I learned not include it in my symptoms. The Doctor knew I had Marfan but didn’t know much more than, ‘They are tall aren’t they?’ I needed major help for my disabling heart symptoms so when I went to a different Doc, in 97, I left that symptom out.
I am going to get me some acetyl-l-carnitine and CoQ10, but what type of magnesium absorbs well? Are they all alike?
I remember five years ago when I broke my leg and it wouldn’t heal I was trying different calcium tabs hoping to find one that wouldn’t hurt my stomach, and I tried some calcium & magnesium but it hurt my stomach also.
While I got you on a roll;
Besides my oatmeal, are there any cholesterol lowering OTC’ers that don’t affect the liver? The Docs say that my liver acting up is probably why I can’t take statins. Personally I think it is my gallbladder that doesn’t like the statins.
A note on Marfan: Because of all the disease around the outside of my heart that took forever to cut away plus the five bypasses, the Doctor that did my exploratory surgery ran out of time to fix everything he wanted to fix and opted to treat the Marfan related problems by keeping my BP under normal and antiarrhythmics meds. He said that the pacemaker will help me a lot also. He had said it didn’t look critical and he would rather not try going in to fix it right away because of all the other heart diseases I have. And if I was very careful, maybe I would not have to have the repair surgery done for awhile yet.
enie
NHone
03-03-2006, 05:21 PM
Mother takes Mag Ox. It is one suggested by doctor mildred seelig. You need to make sure of the elemental magnesium in a product. For example Mag ox tabs are 400 mg...however only 244 mg elemental magnesium... the elemental is what to look for on any product. Watch taking too much calcium, you HAVE to have magnesium to absorb the calcium into the cells. You might want to read Dr. Seelig's book "the magnesium factor" Also talks about CFS and Fibromyalgia,,,all associated with low magnesium. mother takes 2 400 mg. magnesium (mag ox) per day. It is behind the counter in the pharmacy. Have to ask the pharmacist. However it is not a prescription. rule of thumb is take 1/2 of what you take in calcium , as magnesium. ex: 1000mg. calcium/ 500 mg (elemental) magnesium/ 1/3 of the 1000 mg of calcium as vit d.. ALso look up spectra cell in houston.. they do the intracellular tests..they test the function of how well you cells are working, not just whats in your blood. (might be plenty of gas in the car, but if it doesn't get to the engine, you've got a problem)..... if you're low in magnesium , your cholesterol will be high... Mother gets her cholesterol to drop a lot when she eats blueberries...problem is she doesn't eat them all the time.
enie
03-03-2006, 05:52 PM
finres,
(might be plenty of gas in the car, but if it doesn't get to the engine, you've got a problem).....
That is reel good advice...
I used to tell my bible students 'You might have a nice fine car and plenty of gas, but without oil you are not going to get very far without over heating'.
By the way, could you think of any cholesterol lowering OTC’ers that don’t affect the liver?
Thanks for the input,
Good stuff,
enie
(might be plenty of gas in the car, but if it doesn't get to the engine, you've got a problem).....
That is reel good advice...
I used to tell my bible students 'You might have a nice fine car and plenty of gas, but without oil you are not going to get very far without over heating'.
By the way, could you think of any cholesterol lowering OTC’ers that don’t affect the liver?
Thanks for the input,
Good stuff,
enie
NHone
03-03-2006, 06:01 PM
Ernie as for as over the counter... nothing more than fiber (fiber con), the oatmeal, cinnamon, the magnesium...and naicin... Although I don't like cholesterol medications, naicin is a natural product. It does a lot more for you than lower cholesterol... In fact its B (3) i believe..(its one of the B's)
enie
03-04-2006, 10:34 PM
Hey finres,
Got the oatmeal down pat and I'm going to try the magnesium. Fresh Blueberries are only in our area one month out of the year, so that doen't help much. I didn't know about cinnamon (?) or fiber con, and am not able to take naicin...shes not good to me...
My buddy loves naicin and has been helped a lot by taking it. She won't go near statins.
Thank you so much for your help,
enie
Got the oatmeal down pat and I'm going to try the magnesium. Fresh Blueberries are only in our area one month out of the year, so that doen't help much. I didn't know about cinnamon (?) or fiber con, and am not able to take naicin...shes not good to me...
My buddy loves naicin and has been helped a lot by taking it. She won't go near statins.
Thank you so much for your help,
enie
JJ
03-04-2006, 11:32 PM
Hey finres,
Got the oatmeal down pat and I'm going to try the magnesium. Fresh Blueberries are only in our area one month out of the year, so that doen't help much. I didn't know about cinnamon (?) or fiber con, and am not able to take naicin...shes not good to me...
My buddy loves naicin and has been helped a lot by taking it. She won't go near statins.
Thank you so much for your help,
enie
WE don't get fresh veggies or fruits too often here either, best bet is to buy the frozen bags. When we are out of season, which is alot, I always go for the frozen or some fruits I will get canned in LITE syrup.
About 8 months ago I started adding the 1/4 to 1/2 tsp. of cinnamon, stuff U get from the groc. store, runs about 1.29 a jar, and I also added Bigelows green tea. Next blood test after 4 months of this, plus 500 C twice a day, got my TC to 198 from 232 and LDL from 161 to 126. Have no idea if it is a fluke or not, as I haven't been tested since, but hey, it got the dr. off my back for a lil while anyway.
Good luck....... :wave:
Got the oatmeal down pat and I'm going to try the magnesium. Fresh Blueberries are only in our area one month out of the year, so that doen't help much. I didn't know about cinnamon (?) or fiber con, and am not able to take naicin...shes not good to me...
My buddy loves naicin and has been helped a lot by taking it. She won't go near statins.
Thank you so much for your help,
enie
WE don't get fresh veggies or fruits too often here either, best bet is to buy the frozen bags. When we are out of season, which is alot, I always go for the frozen or some fruits I will get canned in LITE syrup.
About 8 months ago I started adding the 1/4 to 1/2 tsp. of cinnamon, stuff U get from the groc. store, runs about 1.29 a jar, and I also added Bigelows green tea. Next blood test after 4 months of this, plus 500 C twice a day, got my TC to 198 from 232 and LDL from 161 to 126. Have no idea if it is a fluke or not, as I haven't been tested since, but hey, it got the dr. off my back for a lil while anyway.
Good luck....... :wave:
enie
03-05-2006, 12:27 PM
Thanks JJ, I didn't think frozen or canned would work the same as fresh,
and I was wondering how much cinnamon and how to take it.
thanks again,
enie
and I was wondering how much cinnamon and how to take it.
thanks again,
enie
JJ
03-05-2006, 11:45 PM
Thanks JJ, I didn't think frozen or canned would work the same as fresh,
and I was wondering how much cinnamon and how to take it.
thanks again,
enie
Well when ya live in the NE and have nasty weather for at least 6 months, it is a lil tuff getting the fresh stuff. Glad the cinnamon doseage helped... :)
and I was wondering how much cinnamon and how to take it.
thanks again,
enie
Well when ya live in the NE and have nasty weather for at least 6 months, it is a lil tuff getting the fresh stuff. Glad the cinnamon doseage helped... :)
lane413
03-09-2006, 11:13 PM
I was told by my nutrition professor that frozen was just as good. Because we can't get fruits/veggies in season, it was ok to eat frozen. My mom is now taking artichok supplements to lower her cholesterol and it is working just fine. She takes 3 capsules daily. Her cholesterol dropped from 287 to 250.
She has started doing her brisk walks since the weather permits.
She has started doing her brisk walks since the weather permits.