Katis2home
03-04-2006, 12:29 PM
In the recent news reports, I've heard about hopeful results from using creatine to help people with PD. This is some of what I've heard:
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Has anyone talked to their Neurologist regarding the use of creatine? I am curious if creatine can be taken with other drugs and how much is recommended for posative results. I am currently on .5 mg of mirapex 3 x per day. I also take 1200 mg of Co Q10 per day. I was diagnosed a year ago with early onset PD. I have an upcoming appointment with my Neurologist (April 7th) and I will report back with what he said. He's supposed to know a great deal about PD (Mayo Clinic doc).
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Has anyone talked to their Neurologist regarding the use of creatine? I am curious if creatine can be taken with other drugs and how much is recommended for posative results. I am currently on .5 mg of mirapex 3 x per day. I also take 1200 mg of Co Q10 per day. I was diagnosed a year ago with early onset PD. I have an upcoming appointment with my Neurologist (April 7th) and I will report back with what he said. He's supposed to know a great deal about PD (Mayo Clinic doc).
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imad
04-07-2007, 10:35 AM
I am 63. I was diagnosed 5 months ago after noting tremors. My symptoms are still mild but I am worried about progress of it. My specialist said it was too early to start PD medicines but never mentioned COq10 or creatine? surely slowing progress is a major issue. What should I do? wait until when thse medicines are proved when perhapse it is too late? any feed back will be gratly appreciated :confused:
jeremy1972
04-17-2007, 12:24 AM
34 diagnosed 8 months ago...now up to 1.5mg mirapex 3x day, eldapryl 5mg 1xday.... just started CO Q 10 300mg 3xday... the tremors and stifness/cramping have returned and just increased dose of mirapex 3 weeks ago..feel more energy and more relaxed since starting CO Q 10 a week ago...don't know what all it should be helping ,but i do feel better...i have enrolled in a nationwide trial for creatine, it is to start within the next few months. gonna do my part to help pd research...hope the creatine will help me and many others with this disease
imad
04-17-2007, 11:33 AM
Thank you all who are sharing their experiences on this topic :wave:
I started taking about 3 to 5 mg/day of creatine powder since about a week without consulting my doctor ! I do feel that I have more energy since without any side effects. Ofcourse I don't know for sure if this is a placebo effect.
I am considering taking Q10 also but the snag is that it is expensive and said to have side effects :confused: : any more feed back ont this will be greatly appreciated.
I started taking about 3 to 5 mg/day of creatine powder since about a week without consulting my doctor ! I do feel that I have more energy since without any side effects. Ofcourse I don't know for sure if this is a placebo effect.
I am considering taking Q10 also but the snag is that it is expensive and said to have side effects :confused: : any more feed back ont this will be greatly appreciated.
ttwarrior1
04-25-2007, 06:11 PM
im a weightlifter and been taking creatine for years, creatine won' help a bit in my opinion and could even make it worse
davos
04-27-2007, 09:23 PM
The only alternative supplements for PD ive read about in recent APDA
newsletters gave a maybe to coQ10 and a more definite yes to creatine. creatine is inexpensive. i spend $2 per day for 4-100 mg Q-Gels equal to 1200 mg of regular coQ10 the amount used in study of the enzme to slow progression of PD. ****** for information on the study and sources to obtain the products prescription not required.
My neurologist said ok to the coq10 " if i dont mind the cost".
my PD of 6 years has not worsened that i can tell. I dont feel any different taking it. I assume it is supposed to help the muscles. i would like to get in clinical trials for creatine.
newsletters gave a maybe to coQ10 and a more definite yes to creatine. creatine is inexpensive. i spend $2 per day for 4-100 mg Q-Gels equal to 1200 mg of regular coQ10 the amount used in study of the enzme to slow progression of PD. ****** for information on the study and sources to obtain the products prescription not required.
My neurologist said ok to the coq10 " if i dont mind the cost".
my PD of 6 years has not worsened that i can tell. I dont feel any different taking it. I assume it is supposed to help the muscles. i would like to get in clinical trials for creatine.
oldvet
06-17-2007, 11:39 PM
I am a 58 yo male. Last year I was found out I have PD. I take Mirapex 1mg 3 times a day. I started taking coQ10 400 mgs twice a day. I found that the coq10 in vit E oil works better for me than soy or rice or other mediums.
I also have high blood pressure, so I plan to ask my doctor to try isradipine. There is a possiblity that this drug could help protect the dopamine cells.
I am also considering trying azilect but am not sure about this yet.
I receive a treatment of accupuncture in my ears that helps with the stiffness in my neck. They use little gold pins that stay in your ears. You might look like an old hippy. But it works for me, has allowed me to move my head in a full range of motion.
Any comments or suggestions about any of these is welcome
I also have high blood pressure, so I plan to ask my doctor to try isradipine. There is a possiblity that this drug could help protect the dopamine cells.
I am also considering trying azilect but am not sure about this yet.
I receive a treatment of accupuncture in my ears that helps with the stiffness in my neck. They use little gold pins that stay in your ears. You might look like an old hippy. But it works for me, has allowed me to move my head in a full range of motion.
Any comments or suggestions about any of these is welcome
davos
09-14-2007, 05:11 PM
Equal to 1200 mg coQ10 costs less than $2.00 per day (Q-Gels). my neuro said ok. creatine is thought to be helpful for PD, national study going on. northwest is doing further study on isradipine. Neuro patches is new now sold in the usa. my insurance said try mirapex or something else. patches run about $10 to $20 per daily patch and with my elite medicare D so far paying nothing. the $3600 to $7300 yearly would not even count on the donut.