tinkerbaby21
03-04-2006, 01:24 PM
Hi,
I just wanted to introduce myself, I have been readind the postings so here it goes. My name is Helen and i am 24. about two years ago I stated to have reall bad back trouble. I went to the doctors and they told me I had Scolosis, that's why i have been having back pain. I said ok and kept workingand going to classes until on day the pain got so bad that I just left work. (I worked in a deliy, Bakery and had to make donuts on sunday) lets just say the donuts were late getting out. I called someone in to cover me but I didn't wait for her to get to work. I left and went to convenent Care, the doctors pulled me out of work. When I got home my Parents were really mad b/c I left work. ( yes 24 and living at home, college was five minutes for home) I told them the doctor told me to call a neuro surgen. I had to wait a whole month before the doctor could see me. I was in a living hell called PAIN. The day after I saw the doctor I went back to the hospital (by the way this hospital was a hour away) and had emergency surgery. Not b/c the doctor said to but b/c I could not move with out crying and my back hurt so bad that I couldn't even get up to go to the bathroom. Following the surgery I was left with permenet Bladder and Bowl Incontenence. I left the hospital with the hope that everything would return and a catherter. About a month later I finally had the cateriter removed, but still no need to use the bathroom. I saw my doctor who did the surgery when I had my staples removed. (not fun) and he told me "give it time everything will return" Yeah right. No one told me that I had Cauda Equina Syndrome, and that everything would be permenet.
Not that I had enough to deal with, when my Uroligst was doing a ultra sound of my bladder, he accidently moved the Stick thingy(don't no the name of the object they use) over and Yeah discoverd that I had three huge cyst on my left ovary. and that that needed to be removed. so about two months after the back surgery I had anouther one. then four months later I had a lump removed form my left breast. After the second surgery I started to go to therapy, I became very depperesd and thought about killing myself. But I listed to my mother and got help. so dealing with everything was getting to hard and no body knew what to do for me or how to help me, Because I didn't know how to help myself. so the following year in May I had another surgery to remove another lump in my right breast. Then in June I had my appendix removed. (It sounds kinda stupid but the pain I had, I thought that it was gas until it got really bad and my mother drove me to the hospital and b/c of my "complacations" the did a CT and discovered that I had to have it removed.)
I love my family but sometimes dealing with everything, like finding out that everything is permenet and there is no way that it will ever change is deppressing. My doctors never told me it would be permenet they said give it time to heal, they never told me that it was Cauda Quinq. It sucks but I am dealing with it. I have my bad days and good, right know I am talking with doctors about my last resourt a calopasy bag. :confused:
thanks for letting rant.
Helen
I just wanted to introduce myself, I have been readind the postings so here it goes. My name is Helen and i am 24. about two years ago I stated to have reall bad back trouble. I went to the doctors and they told me I had Scolosis, that's why i have been having back pain. I said ok and kept workingand going to classes until on day the pain got so bad that I just left work. (I worked in a deliy, Bakery and had to make donuts on sunday) lets just say the donuts were late getting out. I called someone in to cover me but I didn't wait for her to get to work. I left and went to convenent Care, the doctors pulled me out of work. When I got home my Parents were really mad b/c I left work. ( yes 24 and living at home, college was five minutes for home) I told them the doctor told me to call a neuro surgen. I had to wait a whole month before the doctor could see me. I was in a living hell called PAIN. The day after I saw the doctor I went back to the hospital (by the way this hospital was a hour away) and had emergency surgery. Not b/c the doctor said to but b/c I could not move with out crying and my back hurt so bad that I couldn't even get up to go to the bathroom. Following the surgery I was left with permenet Bladder and Bowl Incontenence. I left the hospital with the hope that everything would return and a catherter. About a month later I finally had the cateriter removed, but still no need to use the bathroom. I saw my doctor who did the surgery when I had my staples removed. (not fun) and he told me "give it time everything will return" Yeah right. No one told me that I had Cauda Equina Syndrome, and that everything would be permenet.
Not that I had enough to deal with, when my Uroligst was doing a ultra sound of my bladder, he accidently moved the Stick thingy(don't no the name of the object they use) over and Yeah discoverd that I had three huge cyst on my left ovary. and that that needed to be removed. so about two months after the back surgery I had anouther one. then four months later I had a lump removed form my left breast. After the second surgery I started to go to therapy, I became very depperesd and thought about killing myself. But I listed to my mother and got help. so dealing with everything was getting to hard and no body knew what to do for me or how to help me, Because I didn't know how to help myself. so the following year in May I had another surgery to remove another lump in my right breast. Then in June I had my appendix removed. (It sounds kinda stupid but the pain I had, I thought that it was gas until it got really bad and my mother drove me to the hospital and b/c of my "complacations" the did a CT and discovered that I had to have it removed.)
I love my family but sometimes dealing with everything, like finding out that everything is permenet and there is no way that it will ever change is deppressing. My doctors never told me it would be permenet they said give it time to heal, they never told me that it was Cauda Quinq. It sucks but I am dealing with it. I have my bad days and good, right know I am talking with doctors about my last resourt a calopasy bag. :confused:
thanks for letting rant.
Helen