Can anyone help me?

I have been sick for over a year now. My symptoms are dizziness, fatigue, tremors in my legs when laying down and sitting down. My eyes seem to have tremors in them at times also. I also get rapid heart beat at times. My legs are getting worse!!! I have been to a lot of doctors and no one seems to know what is wrong. They just tell me that I am a mystery patient. I have also had some swallowing problems at times. Can anyone help me?
Thanks
Peggy1

Not sure if this is ALS or not but, I would go to a Neuro who specializes in ALS. I have also heard that you should get shecked for lyme disease. Also, go to a specialist in this as it is easily missed if not experienced with it.

I hope you get your answers. It's hard not knowing what is happening with your own body!

Pam

I have Lyme disease and other tick-borne illnesses - Ehrlichia and Babesia.

I had all of the symptoms that you are experiencing and more. I had three negative tests for lyme through LabCorp and Quest. The test through Quest was through Johns Hopkins and that was even negative.

Went through IgeneX Labs in Palo Alto, CA and saw an LLMD (lyme literate M.D.) and I tested extremely positive for the above infections.

There are lots of politics with these infections. Go to the Lyme board here at Healthboards and you will learn a lot.

I have been treated long term with antimalarial treatment for the Babesia (two months worth) and antibiotics for the lyme and ehrlichia - I am much better then I was two years ago.

I was having darting with my eyes, I couldn't read more then two sentences at a time, severe fatigue, muscle pain and fatigue, intolerances to alcohol and exercise, severe weight loss...the list goes on forever...also had this buzzy sensation in my legs especially at night accompanied by insomnia.

I saw over 15 doctors in 6 months who all wrote me off except for two. I finally found my LLMD and started to get better.

Take care and don't give up. Try to find an LLMD even if you have to travel to see him or her.

-NCgirl88

I, too, have been experiencing a lot of weird symptoms that my doctor can’t attribute to anything. I've had a lot of blood work done that came back within in normal limits. I had an MRI to rule out MS, which was fine.

As far back as 4 years ago I noticed periodic numbness and tingling in my limbs. This would come and go throughout the day with no apparent reason. I would also occasionally wake up in the middle of the night or first thing in the morning with body parts still "asleep" I thought perhaps I had slept wrong or pinched a nerve. Fast forward to 2 years back, while walking with a group of friends, I stubbed my toe on the sidewalk and went crashing to the ground, leading with my cheek and chin.....arms at my side! Nothing was broken, I was able to get up and walk away. Then a few months later I started getting cramps in my left foot. I'd start out walking and within a few feet my foot and toes would be in a painful ball at the end of my ankle. The doctors told me I was "stressed out", "depressed", having anxiety attacks. They prescribed Prozac and another anti-depressant when taken at low doses helps alleviate pain. I was still experiencing the numbness, spasms in my foot and muscle weakness but could for the most part sleep through the night. Most of my symptoms occur only on the left side of my body. I have noticed recently that my left arm wants to curl when resting in my lap. Buttoning shirts is a chore, brushing my teeth causes my brushing arm to cramp...so I went to a battery operated one.

I was on the Atkins diet for much of the last 2 years but abandoned that fearing maybe that was causing my symptoms or at least making them worse. Since I've added 2-3 glasses a week of milk to my diet the foot spasms have subsided
Should I request to see a Neurologist?

I sure would. I saw a neurologist when I had a attack of numbness,smelling sensation,sweaty palms, etc. The neuro did EEG,MRI and decided I was having panic attacks which fit. I now take medicine for them and they are much better. However, women are very hard to diagnois with heart problems and they are often overlooked. They can be very subtle but, serious!

Good luck. Push the docs. They are so quick to say panic attacks or stressed out!! Thanks to them.

Pam

Peggy,
Have they checked you for parkinsons? It doesn't sound like ALS.