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MrsQueeZ
03-07-2006, 09:13 PM
Hi all! It has been about 11 weeks since my hysterectomy/colon resection. I thought things were going pretty well. I went back to teaching last week, and although I was tired and had some pain, it wasn't too bad. On Sunday, I started getting some abdominal pain, like a sideache on both sides. And horizontally all the way across, above my belly button, I was getting heavy cramping, like diarrhea was on the way. That kind of let up, but the pain is still there, with some tenderness to the touch around the bellybutton area. I feel like I am back to the first week post surgery! It hurts to get up, like my guts are falling. It hurts to walk, like things are loose and jiggling. It hurts to cough and drive in the car, with the sudden jars. I am trying to give it a couple of days because the pain is steady, not growing worse, and I thought maybe I had caught a bug or something, or things were settling in new ways, I don't know. I am also worried that I may have an accumulation of fluid, like a hematoma, brewing, and that worries me some. Every once in awhile, I get a sharper stab of pain, anywhere from the bladder, straight down, to just about anywhere in the abdominal area. BMs are normal, not really any constipation. I feel like something is in a knot, or there is a lot of pressure building. Hard to describe exactly. And I swear I am a little more swollen than I was! I know, I need to call the doctor. I am not sure which doctor to call, and I just wondered if anything like this has happened to anyone else.

Renata

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maggiemoo
03-08-2006, 12:07 AM
Renata,

I'm sorry that you are feeling bad. I doubt if it makes much difference which doctor to call. Which one are you the most comfortable with and which one do you think will respond the quickest?

I don't know much about hematomas but would you be developing one this far post-op? I had one that I started having symptoms with about 2 weeks post-op. It was probably present from the beginning but I started developing an infection with it and that it why we discovered it.

Good luck and hope you feel better.

Maggie

gomer4
03-08-2006, 12:20 AM
Oh My.........I would call the doctor. I am sorry to hear that you are feeling this way. Maybe you should take off from school for a bit. But maybe the doctor could at least reassure you.
My surgery is scheduled for April 7. Don't I have a lot to look forward to!!! I wonder how many weeks I should take off work? You took 6, right? Maybe that wasn't enough.

Lori

Harry
03-08-2006, 02:48 AM
Renata,

After having 2 1/2 feet of my colon removed, I would get very bad cramps when eating certain foods. The worst food was Honeydew melons. It would double me over.
I found a homeopathic remedy that is great for cramping and spasms -- Magnesia Phos -- taken as needed. You can buy it at a health food store.

I have especially noticed that I get alot of trapped gas in my colon that causes pain when pressing on that area.
As you may know there are alot of foods that cause gas including swallowing air. There are alot of sites available to read about Controlling Intestinal Gas---just do a Search on the WEB at the top of this page-- on Google.

I also think you should contact your Doctor -- probably your surgeon-- just in case it is something more serious. I had a Colon Rectal surgeon but was not much help with me after surgery. I never had an infection but I did have to re-balance my friendly intestinal bacteria with yogurt and probiotic supplements.

God Bless_~~~Harry

goody2shuz
03-08-2006, 03:41 AM
Renata ~ I recall at my 5 week mark I had even more pain than when I first got home. I was worried too. Felt like a fire in the belly. :eek:

I wouldn't worry too much so long as there is no fever, abdominal distention, or vomitting involved. I think that it is just those internal sutures healing and sometimes tightening as they do along with nerves waking up so that the pain seems worse.

I just wanted to reassure you having had such pain when I thought that it should be better.

Of course, it never hurts to have it checked out since it is diffcult for us to tell what is really going on from here.

((HUGS))) ~ Goody :angel:

goody2shuz
03-08-2006, 11:13 AM
Hey, Renata :wave: Just checking in to see how you are doing. I sure hope things are going okay and that you will provide us with an update soon. Until then please know that you are in goody's thoughts & prayers.

When I reread your initial post, I saw how the sypmtoms you described were very much like the pain that took over my belly.....I couldn't even get in the car with my hubby without every bump causing excrutiating pain. :eek: I wondered why I felt that much pan during a time I sould have been pretty much recovered. I was thinking I may have developed adhesions or something but everything went unfounded.

When I posted about it everyone told me to go to the ER and when I had it checked out everything checked out okay. Their main concern was a postop leakage/abcess and like I said all went okay. So I thought that I would pop back on here to alleviate any fears you may have.

However, with that suture line that opened up when you first get home and tha pus comig out, I would be concerned as to whether that completely resolved. That is something that does concern me and being that you had that happen I would definitely place a call to your surgeon's office or whoever followed up with you on that.

((((HUGS)))) and prayers ~ Goody :angel:

MrsQueeZ
03-08-2006, 08:47 PM
I just wanted to let you all know that I called my colon doctor and I have an appointment tomorrow. I can't tell for sure, but I swear my belly button is seeping a little!! I noticed that over the weekend, that it was sore, and when I examined it, it was oozy and rashy looking from being wet. Nasty, I know!! Well, I thought, maybe it is just like belly button lint or something, and I need to make sure it is dry, clean and not accumulating sweat. Wrong! Now I am keeping a little gauze stuffed in there, and it gets slightly wet, even when I am making sure the area is dry and clean!! And the pain continues, even though I am not having trouble peeing or having BMs. When I walk, I feel like I am carrying a 5-beer bladder after a few hours! :eek: Just generally feel like I am sloshing around inside, and like my guts are falling out when I first stand. I know I have had the munchies, and have been eating much more than I was, but I have gained 20 POUNDS since the surgery!!! I don't know if I would rather hear it is nothing, or it is something. Something would mean more tests, possible prodding, draining, antibiotics, etc. Nothing would mean pain and weight gain for no reason.

Oh, Lori, I took over 8 weeks off, but I did have the hysterectomy as well as the colon resection. I know you feel like you don't have much to look forward to, but even with this setback, I know I am better off than I was! I don't regret it for a moment, and strangely, I feel much more stable than I was!! And Goody, glad to know that I am not the only one with a sudden setback. Glad also to know yours passed without there being much of a reason really. Harry, I am lucky enough to have an awesome colon doctor, who helped me with probiotics, etc., following my surgery. (And I always enjoy hearing your posts about specific items you have found helpful for different reasons. You have sooo much knowledge firsthand!) It is my gyn that I wasn't real keen on. Not that he wasn't a pro, it's just that he was a lot more rushed and businesslike. Maggie, that's why I decided to call my colon doctor, and I got in right away tomorrow. She seems to have a lot more time for me, in my opinion. And she will take me seriously, and won't hesitate to order a scan, or whatever she thinks is needed. At least that is how she has been in the past. Thanks, all, for checking in with me, and letting me know what you think. Wish me luck! I will let you know!

Renata

gomer4
03-08-2006, 10:17 PM
I am not looking forward to any of this!!! And what is this "leakage?" My doctor listed that as a risk with a very low percentage having it, but I am wondering exactly what it is?
Renata.......good luck at the doctor!

Lori

maggiemoo
03-08-2006, 10:24 PM
Renata,

Glad you are going in. I was thinking that you were very pleased with your colon surgeon. Mine also was a woman surgeon and I was very pleased with her.

Be sure to mention your weight gain and let us know what you find out.

Maggie

MrsQueeZ
03-09-2006, 06:59 AM
Lori-The leakage can either be a seroma or hematoma, and it is fluid accumulation between different layers as you are healing. I understood it to be the body's way of filling in an air gap that is formed from surgery, or just the trauma of surgery, and the body creating a cushion. Some of the fluid bubbles or layers are simply reabsorbed by the body, some find their way out. I had one that caused my incision line to split apart with a gush of fluid that freaked me out, right after my staples came out! It turned out just fine, and the doctors reassured me that it wasn't infection. And thirdly, the fluid can get trapped and grow large, which is what I am kind of worried about right now! I guess it is not too uncommon on top of the hysterectomy site, and maybe I should be seeing my gyn, but I like my colon doctor better! :D

Renata

goody2shuz
03-09-2006, 08:25 AM
Lori ~ Hi, sweetie, try not to get too overwhelmed with all of this. As a mattter of fact, when you actually go to sign the consent form for your surgery, you will see all sorts of complicationsx of the surgery listed that will make you want to bolt out of there. :eek: Please don't get overly concerned....like when the side effects are listed on a med....they have to list them all even if one person in a million has experienced something adverse to ingesting it. Try looking up a multivitamin and if you read the side effects, you may not even wish to take one!! :D

Leakage is listed as a possible complication following a resection. Unfortunately, some do undergo this complication and we still do not know what it is that is happening to Renata. The "leakage" that I was told about is from the anastamosis site (where the colon is rejoined to the rectum after the bad section of the colon is removed). Of course this is a complication of this surgery because anytime you cut something you weaken it. However, after they reattach the colon to the rectum (this is usally done with fine stappling and overlapping of tissue to really seal the deal) they flush it out with saline and check for a leak. When the docotr closes you back up he is exptremely confident that the reattached colon is free of any leakage. However, during the healing process, a small percentage of people may leak due to a staple loosening up inside. This type of leakage would have more symptoms than Renata is experiencing such as fever, chills, nausea, abdominal pain, vommiting, diarrhea etc.

In other cases, like we saw a few days after Renata's discharge, sometimes a pooling of blood or pus forms between two layers due to a weakening of one of the internal suture sites that hold things together after they had cut through it to gain access to the colon. This happened to Renata....we must remember that Renata's resection was much more involved than the usual because she had a hysterectomy as well. She had what we referred to here as a million dollar tuneup!!! :D So you must take this into account when you see her going through a complcation following her surgery.....that there will be more chances because she had multiple surgeries involved at one time.

Renata ~ glad you're going in to see the doctor today, please let us all know what the doctor says...we hope that he gets this looked into quickly and has you back on your feet again real soon.

Lori
You just try to keep yourself from worying too much......I know that you still have time before your surgery, like we have said, try to keep busy until the time comes.

Lots of (((HUGS))) before you go in and prayers that Renata is feeling better again~ Goody :angel:

MrsQueeZ
03-09-2006, 08:21 PM
Hi All! Well, another fun afternoon of doctor visits. I swear my goal this year is to NOT reach my out of pocket limit!!!! :D My doctor seemed totally stumped. She was questioning along the lines of a possible blockage, like the presence of vomiting or lack of bowel movements. Nope, everything is fine there. Then she seemed to be thinking congestive heart failure or something along those lines, like was I having shortness of breath, fluttering heart, etc. Nope. She did say she thought she could "feel something" and she agreed that I looked bigger in the stomach area. The whole time, oh man, lots of pressure from her pushing around, sort of like when you gotta pee and you feel it bending over. So anyway, 9 different blood tests, and tomorrow I have another CT scan, and I am going back to see her in a week...sigh. She said that this is NOT what people typically come back to her for, 2 months down the road. (She didn't tell me what they do come back for!) And she said that everything may come back and not show anything, and we will just have to go from there. So another week of waiting. Maybe I will deflate before then. :bouncing:

Renata

Harry
03-10-2006, 12:29 AM
Renata,
I know you are concerned and probably disappointed after the Doctor's Exam.
The checkup at 2 month is just that -- they look and say OK.

I hope you are urinating enough.? If you were a male I would say -- have your Protate checked--- I had that done recently --- a urine dynamic study-- not a good test -- it hurt.

Thank goodness for CT scans -- the Radiologist should be able to tell what it is or isn't in the report.

Please let us know?? Where I live -- I would get a copy of the reports the same day the test is read! I would not wait a week for the test results from the Doctor. Freedom of information to a patient -- I see that I get it.
I have several tests that are run every 6 months to keep tract problems. I also get a blood test every 2 to 3 weeks by perscipttion for potassium level and get the results that day. I see the Doc every 4 month. The perscrition says -- Please give results to patient and I make adjustment to my medication-- for 9 years now.

As you may know bloating in the intestines can cause alot of spasms, cramping along with pain.

I certainly wish you well~~~Harry

MrsQueeZ
03-10-2006, 06:59 AM
Harry-Other than that night of cramping waves, the intestines have felt very calm, and my bms are pretty much back to the way they were before my surgery even! As far as urine, I guess I will have to notice more whether I think I am putting out my normal amount. I haven't noticed that as well because I have been going more because of the sloshing, pressure feeling. I just stop in and go, hoping it will help with that. Ugh, the urodynamics test!! Yuck! I went through that whole humiliation and expense before my surgery. And the test was inconclusive, as they turned off the machine after pumping me full to the max and not leaking a drop! My bladder symptoms pretty much went away with the hysterectomy. Until recently, where I am feeling like it is under pressure again.

If nothing else, I can give the gyn a try if things continue. On my hysterectomy web site, there are a lot more messages about this type of thing happening. One woman said she lost 17 pounds in 16 hours when they started draining her! Lots more talk about "swelly belly" too, which doesn't seem like much of a complaint with colon surgery alone.

At school, some people are telling me I am growing a stress bubble. :) The kids have been pure animals as spring break approaches. It is scary what happens to teens with raging hormones as spring comes. They fight, cry, giggle...they smart off more than normal, trip each other, throw things. And this is the kids who are normally the GOOD ones!! They are shocking and scary at times. But I have been through it 18 times, each year. Perfectly normal. I swear that any child between the ages of 12 and 14 could qualify in some way for emotional disability, and benefit from counseling. :eek: Or their teachers could!!! Sometimes I feel like asking them if it is time for their medication or mine! But I have to say, for the most part, I enjoy the little monsters. They are very tiring though, especially with what I have been through this year!

Renata

maggiemoo
03-11-2006, 12:14 AM
Renata,

Did you find out anything today from your scan? Call the doctor on Monday if you don't want to wait until next Friday.

Are you off this next week? Hopefully, you can get this figured out. I am on Spring Break :D -planning to paint some indoors, get my hair highlighted and generally relax.

Have a good weekend.

Maggie

MrsQueeZ
03-11-2006, 09:20 AM
Maggie-I didn't find anything out about the scan. I didn't want to ask the technician because they always seem really uncomfortable making comments about any results. One thing that REALLY bothers me is that the imaging center gave me this note saying not to take my diabetes medicine for 2 days following the use of the contrast in the CT. And she said it was VERY important. I asked why, and was told it could cause kidney failure!! Funny that I wasn't told this the other two times I have been through a CT at the emergency room!!!

My spring break is the first week of April, so we still have a few to go. It's going to be a long haul, but that is the time I pull out projects and put them to work on something fun. Keeps them out of my hair and less nagging them that way.

My baby got engaged last night!! So that is cheering me up, even if I am somewhat depressed and a bit cranky about going back to doctors and tests.

Renata

MrsQueeZ
03-16-2006, 07:25 PM
Well, back from the doctors. NOTHING. Blood tests look normal, and everything is within the range, other than platelets, which she said can be high following surgery. NOTHING on the CT scan that looked unusual. No fluid, not even more fat than the last time! The only thing she could offer was maybe things are rearranging themselves. And she wants me to see a liver specialist, because I still have my "funky liver," as she called it. Yeah, I was going to head that way soon anyway probably. It is double the normal size, and I have that hemangioma, or blood birthmark, on it, as well as being fatty throughout. So I got a round of hepatitis tests, and will see someone for that in a month. Kind of relieved that there is nothing showing, but a little depressed because I feel like I am turning into an Easter egg!!! :eek:

Renata

maggiemoo
03-19-2006, 09:41 PM
Renata,

Just checking in to see how you are feeling? I know that the tests didn't show anything--other than your liver but was wondering if you're feeling better.

Congrats on your daughter's engagement. Have they set a date? That will keep you busy :)

Back to work for me tomorrow---9 weeks to go.

Maggie

MrsQueeZ
03-20-2006, 06:45 AM
Thanks for checking in with me, Maggie. I don't know, I feel a lot better at the beginning of the day than I do at the end. Same with days of the week. As the week drags on, I get tired!! So that must mean it is Monday morning, I should be feeling great? NOT!! :) I think I might need a tune-up on my depression medicine. Just not up to much of anything at school or at home. Just want to crawl in a hole really. :confused:

Renata

goody2shuz
03-20-2006, 09:32 AM
Hey, Renata :wave: I am so sorry that this all has you feeling down. You must remember that you have had two major surgeries and the hysterectomy has your hormone levels all of wack as well so you do need to take that inot consideration too. You need to realize that you have been through alot even before the surgery and it may have had a delayed effect. Be sure to discuss your mood with your doctor...you are right to feel that you may need an anitdepressant to help you out. I have chronic back problems and I know there are times that I need the help of antidepressants to get me through too. Don't worry about having to rely on them at this time.....you need to take care of your mental health as well.

Please keep us posted about your enlarged liver....I hope that they figure out exactly what is going on there.

We are here for you. Please always remember that.

(((HUGS))) ~ Goody :angel:

Marmex
03-20-2006, 12:39 PM
Hi Renata-So sorry that you aren't feeling up to par. Like others have said- you have had two major surgeries packed into one. Follow what your body tells you and get help w/ the down feeling if you need it. Hormones are certainly out of whack from the hysterectomy. sure hope you feel much better soon. Work is hard when feeling in top shape- you have been thru so much and then facing work everyday has to be hard on the body and mind as well. It is hard to find any down time while teaching that is for sure. I hope you get some help soon.

I'm going thru healing pains I guess for a better word. Lots of pulling and throbbing that moves from side to side and all over- every day is different. Thought I'd be free of this by now- 3 weeks post op- but seems it will be with me for a while yet. Had blood work the other day- platelets were high like yours. X-ray was negative- so put up w/ it is the deal here. Lost so much weight it is scary. Not too hungry but forcing myself to eat. Better times are coming !!! Take care and I'm praying for you- Stackie

maggiemoo
03-20-2006, 07:03 PM
Renata,

You are less than 3 months post-op from 2 major surgeries. You are back to work full-time at a very demanding and stressful job. It is going to take awhile to get everything back to 100%. Fine tune your meds if need be, take care of yourself in the evenings and weekends as much as you can.

In many countries you would still be off work with the same operation. Our society seems to think that people should recover from surgery in no time. :mad: That is a disservice to everyone.

Hang in there and remember we are here for you.

Maggie

MrsQueeZ
03-20-2006, 08:51 PM
Thanks so much for the kind words, all of you! :) It's been hard, and people have told me I seem different. I can tell it too. I feel crankier, not quite as patient, or as interested, and to be honest, I think I was much more of a doormat before the surgery. I think that is what some have noticed! It's hard to put into words, but I have been somewhat aloof, into myself a little more maybe. I resent thoughtless infringements to my time and energy more, etc. I really do think this surgery is a life changing event, and not in a bad way at all! I am seriously thinking of trying to get out of my school this year! There is some major reshuffling of teachers, thanks to the good ol' government seeing fit to force us to "close" a school and reopen it as a magnet. My current school would probably be next in line to become Title 1, and then taken over by the government as a "failing" school. Well anyway, this has gotten off the topic! My liver appointment will not be for another month. I see my gp this Friday for med. updates, so I will talk to her then about the anti-depressant. I am already on Effexor, and I don't think it is a megadose or anything, so maybe I could up it a bit, or switch. I don't like to mess around with those matters too much!! I have been around through two suicides on the staff at my school, and more than one teacher has left after practically being put in a straight jacket to go in for electric shock therapy! I don't think I am anywhere near there, but still. One lady, I never would have imagined, but after her hysterectomy, she fell into this funk that she never really came out of. She put herself out of it under her tailpipe!! You just never know.

Renata





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