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robbierazz
03-08-2006, 07:22 AM
I have been experiencing light headedness for the last 5 weeks. The way I would describe the light headness is like being a bit 'spaced' out, kind of like I've had a few beers or something. I don't drink alcohol very often and haven't been drinking since I've been experiencing these symptoms.

I experience the symtpoms most days to varying degrees, although some days I feel fine. The symtoms are sometimes occompanied by mild headaches at the front of the head (forehead) and usually to one side.

I also have slight neck pain when I bend my head forwards. My head also feels like it is too heavy for my neck to support, that is how I would describe the sensation.

I have been to my GP 3 times about this. The first time he thought the problem may be related to tense neck muscles and prescribed me a muscle relaxant. This seemed to get rid of the headaches but didn't make any difference to the light headedness, and only slight difference to the neck pain.

The second time I visited him he took my blood pressure, which was normal.

The third time I visited he took my blood pressure again which was again normal, and I had a full blood count done. The results of the blood test came back fine, so I'm at a complete loss as to what could be causing the problem, or what to do next.

He is referring me to the ENT specialist at my hospital, as he thinks the problem could be related to my inner ear, as this controls balance. That could possibly explain the light headedness, but I can't see how that would explain the neck pain and headaches.

Has anyone experienced similar symptoms, or can anyone shed any light on this?

If you can then I'd be very interested to hear, as this is driving me mad.

For the record, I have also had a slight cough for the last year or so and I was diagnosed as having post nasal drip. Not sure whether this could be connected to my other problems though.

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Angela22F
03-08-2006, 09:54 AM
"For the record, I have also had a slight cough for the last year or so and I was diagnosed as having post nasal drip. Not sure whether this could be connected to my other problems though."

Yes it could all be related. IF you have an inner ear disorder.

First thing that came to my mind was an inner ear disorder actually :) Then I read that you were on the way to an ENT, so thats a good start. There is an inner ear disorder board, and may great ppl thee who would be able to help you out.

The other thing that came to mind was TMJ - temporamandolar joint dysfunction. It can cause headaches, neck pains, eustachian tube dysfunction (ear problems) lightheadedness, dizziness, brain fog (the drunk feeling you decribe) and many many other things. Do you experience any jaw pains? a clicking/popping sound when opening your mouth? It is worth looking into.

Good Luck and I hope you feel better soon.

Leela_C
03-08-2006, 11:00 AM
I have had the same problem for over three years! I am very lightheaded when I sit and can't rest my head on something. It feels like my head is going to just fall off my body - or like you said, too heavy for my neck to support. I have been to an ENT, cardiologists, neurologists and even an endocrinologist. They can find nothing wrong with me. When I explain my symptoms, the doctors act like I am totally nuts. I have also developed horrible anxiety because of the way I have been treated by the medical community. I had a doctor tell me off in her office once and told me "it is just a little light headedness, get over it!". I finally had a doctor tell me last week that she thinks it is coming from the herniated discs in my neck, but there is nothing that can be done about it. I suffered whiplash about two months before this all started and I am convinced it has something to do with that. I was getting ready to go to a chiropractor and my doctor told me not to. She said physical therapy may help. Don't let doctors treat you like you're crazy because they will eventually make you think you are. Please please please let me know if you find anything out. I check these message boards often and have never seen anyone describe the same problem I have. Take care!

robbierazz
03-09-2006, 09:01 AM
Hi Angela and Leela.

It's nice to know that I'm not alone in experiencing these symptoms, as it's
beginning to drive me mad!

With regards to Leela's comments about doctor's, I totally agree that they do try to make you feel that it is all physcological and not to make such a fuss about it. It is 'easy' for them to say as they don't have to put up with the awful symptoms! It makes my blood boil when they try to tell me it's all in my mind, as I know that problem is 'definately' physical!

Leela, do you sometimes experience a sensation in your head as though an elastic band has been put round the head, causing a pressure sensation? I have those symptoms as well at times.

With regards to the jaw clicking, my jaw does click sometimes, but seems ok at the moment. As I write this message my light headedness is quite severe and I have a mild headache at the front of my head. Incidentally, when I get the light headedness I notice that my neck also aches a bit, so quite possible a connection there. Also my co-ordination is a bit out due to the light headedness. Do you feel this way too?

Leela, it was interesting to hear that you had whiplash a while back, as I too suffered whiplash in a car accident about 4 years ago now. Maybe there is a connection.

I may have to wait a while before getting an ENT appointment (good old NHS!!) but as soon as I do have a check up I will post back on this thread to update you both on the situation.

In the meantime, hope you both feel better soon and please let me know if you manage to find out what's causing your problems. I will do likewise.

Ate least we can now suffer with our symptoms together! :)

robbierazz
03-09-2006, 09:07 AM
Hi Leela,

Following on from my previous post I forgot to mention that I also feel more light headed when I am unable to rest my head on something, and I have noticed that when I lie on the couch at home the symptoms go away quite a bit as my head is being supported by a cushion on the couch.

Just thought i'd mention this and I too am so glad that someone else is having 'exactly' the same symptoms as me, as the doctor's do try to make you feel like you are going mad.

Incidentally, do you have any major stress in your life at the moment?

I have just moved house and the problems co-incided with that so wondering whether the symptoms have been brought on/worsened by the stress!

Anyway, take care.
Robbierazz.

Leela_C
03-09-2006, 09:52 AM
Hi Robbierazz. I wouldn't wish this on my worst enemy, but I have to say I am glad I am not alone in this. Like I said, for three years I haven't seen anyone describe these symptoms.

Yes, I do get pressure in my head. It doesn't come on at any certain time, or when I am doing anything specific. It happens at random times.

When I lay on the couch, or even recline where my head is supported, I am not lightheaded. It is only when I am sitting up with nothing to rest my head on. It happens sometimes when standing too. It is the worst when sitting in front of the computer.

I forgot to mention that I also get sensations (occassionally) where it feels like my head is moving to the side, but in fact it is not. It is really hard to describe. It almost makes me feel like I am going to fall (and it too is while I'm sitting).

When this first started, I was under a lot of stress. However, that stress is gone and the lightheadedness feeling is still with me. I, too, wonder if stress didn't bring it on.

One more thing...about three months ago I hurt my neck when I reached over to turn off my alarm clock (like I pulled a muscle or something). For three days, I couldn't turn my head. The lightheadedness went away entirely. It was so nice to feel normal again. A little over a month ago I started getting headaches. For three weeks they got worse every day. I ended up at the ER. They did a CT and a spinal tap and of course they couldn't find anything. I had to lay flat the whole next day because of the spinal tap and the next day had the worst headache I have ever experienced. The day after that, the lightheadedness was back. Obviously there is something going on.

I am so sorry that you have to suffer these symptoms. We look healthy, so no one can understand what we're going through. Two doctors have told me "there are people much worse off than you, so just live with it and be glad you don't have something serious". They just don't understand. I am an accountant and work on a computer most of the day. No one realizes how hard it is just to get through the day.

Please continue to post on here. I am just glad someone knows how I feel.

Take care!

Angela22F
03-09-2006, 10:24 AM
Hi Robbierazz :)

I was just looking back through the posts and now I'm wondering, you said you had a bloodwork up done, but did they check your vitamin/nutrients for any deficiencies? I had 4 diff docs do "complete" blood work ups, and they completely missed a b12 deficiency. Just a thought. They can cause those symptoms as well.

robbierazz
03-09-2006, 12:55 PM
Angela, I'm not sure if my blood test included checking for vitamin deficiancies, as all I know is that they did a full blood count (whatever that really means!) and when I phoned for the results I was told that my sirum, cholestrol (lipid) levels were normal and that my renal functions were normal. They didn't elaborate further, suffice to say that the tests were normal.

That is a very good point you have raised though, and I may just phone my GP to find out exactly what tests 'were' carried out on my blood sample.

Thanks for the info, very interesting indeed....

Leela, I too get the feeling that my head wants to lean to one side and this makes me feel like I am going to fall over. Also, like yourself, my work involves extensive use of a computer as I am an Electronic Engineer who also provides IT support to members of my department. I would say that 70% of my job involves using a PC. Also, like yourself, my symptoms are worse when sitting at the computer. Incidentally, I have had an eye test and that was fine also.

One thing I meant to ask you before is do you sometimes feel as though your head/neck is twitching slightly? I get this feeling but when asking people if they notice it whilst talking to me they say that they don't notice any movement, although it feels as though it is moving to me, most strange!

Another thing I notice is that I find it hard to stare at people for long periods whilst talking to them, almost as if it is difficult to concentrate on them, and I have to look away for a second or two before looking at them again. I never used to have this problem before the light headedness started.

Any of the above symptoms sound familiar to you??

Take care!

Leela_C
03-10-2006, 10:30 AM
Hey Robbie. I don't know if I would call it twitching, but sometimes I get a feeling like everything inside my head is moving, but my head doesn't move. It is really hard to describe. It feels like I turned my head to the side and back real quick, even though I didn't. Does that make any sense?

And yes, it is difficult for me to talk to someone and look at them the whole time. I feel really lightheaded if just standing and talking to someone.

This stuff is so strange!

robbierazz
03-10-2006, 11:49 AM
Hi Leela,

Yes, I suppose that does indeed describe my symptoms. Maybe I have a different interpretation of twitching to you, but basically all my symptoms match yours. What a pair eh?! :-)

These symptoms are so strange and very occasionally my light headedness is so severe that I think i'm going to faint, even though I have never fainted before in my life!

I will keep searching on google for answers as I have become disolusioned with the medical authorities!

Have you ever had an inner ear problem, either recently or a long time ago?

I had a kind of cyst removed from my inner ear when I was a child but have not had any problems with my ears since, but maybe there is a connection with my current problems. However, I can't see how this would be related to my neck problems, so I am convinced it's not to do with my ear.

Strangely, I have noticed that I start to feel better the nearer I get to bed time, can't understand why that would be though!

Have you had a DSE assesment done on your computer workstation at work?

I had one done recently and my posture is apparently fine, but maybe I was just going by the rule book because the assesor was standing here at the time! :-)

I have just had that sensation again of a very slight pressure around my head, just above the ear on each side. It is almost like a pins and needles type sensation combined with the pressure sensation, really hard to describe though!

Anyway, if you don't mind I was thinking that it may be a good idea to report to each other on here regularly with our symptoms, particularly if either of us notice any new symptoms or symptoms that we haven't discussed on here yet. What do you reckon?

Take care!
Robbie.

Leela_C
03-13-2006, 10:08 AM
Robbie-

Yes, what a pair we are.

My lightheadedness makes me feel like I am going to faint too. I had a tilt table test and everything was fine. That test is done to see what your blood pressure and heart rate do when you stand upright. I felt like I was going to pass out, but apparently my body wasn't showing them anything. Figures, right?

I had multiple ear infections as a child. However, I saw an ENT when this first started and everything is fine with my ears. I had an ENG and the results were normal. That was awful. The blew hot air in each ear for what felt like an eternity and then I had to come up with names from A-Z. Don't ask me what that is supposed to show, but I did fine.

I have not had a DSE assesment. I have never heard of that. I know my posture is bad. I raise my shoulders up to support my head (since it feels like it is going to roll right off my neck). I'm sure that is why my neck hurts, but I can't help holding my shoulders like that. It is the only way I can get through the day.

Definitely keep reporting back. We can keep this thread going, or start new ones. It is nice to have someone to bounce ideas off of, at least.

Thanks!

robbierazz
03-14-2006, 06:42 AM
Hi Leela,

DSE stands for Display Screen Equipment and we have an assesment where I work every so often to ensure that our computer workstation and seating position/posture is adequate. Apparently, one of the most common work related injuries is Repetetive Strain Injury (RSI) and this is why DSE assesments have become a requirement in some places.

Another thing I thought of is the possibility of Diabetes, as my uncle had it and I know it can be hereditary. However, all my blood tests came back clear. Have you been tested for Diabetes?

I also had a tilt test done at the doctor's and mine was fine also, even though I didn't feel particularly steady on my feet. Strange!

Anyway, I don't feel too bad today and only have very slight light headedness, although still noticeable. However, I know that it will probably be worse again tomorow, as this is how it usually goes.

I have noticed in recent weeks that I sometimes feel a bit nauseous when in a car, almost like travel sickness type symptoms. This is worse when I'm a passenger rather than the driver. Have you noticed any other symptoms that we haven't discussed yet?

Take care!
Robbie.

Leela_C
03-14-2006, 10:40 AM
Robbie -

Yes, I have been checked for diabetes. I had a four hour glucose tolerance test. That was not fun! You drink this sweet stuff and then they take your blood every hour. One hour my level was low, but then it came back up the next hour, so they said that was fine.

I always get car sick - I have since I was a child. I usually don't feel nauseated when I am driving. I cannot sit in the back seat at all. Sometimes when I use the computer for long periods I get that car sick feeling too.

I really just think there is something going on in my neck and my neck is not communicating right with my ears and eyes. Look up the term "cervicogenic dizziness". Basically your neck, eyes and ears all have to communicate with one another. There is something going on when I sit upright. I always feel lightheaded in that position. Like we discussed before, I also feel it sometimes while standing and talking to someone.

I forgot to mention my symptoms around flourescent lights. Do you have any problems with those? Pushing the cart in the grocery store is absolute torture for me! I guess it has something to do with the flourescent lights and the aisles. I can't even go by myself any more. What a way to live, right?

If you have any ideas, regardless of how trivial they may seem, please run them by me. I have been going through this for three years, and think I have ruled everything out, but I'm sure I have missed something.

By the way - how is your heart rate and blood pressure?

Keep in touch!

robbierazz
03-15-2006, 01:16 PM
Hi Leela,

Yes, the glucose test doesn't sound like very much fun at all. I haven't actually had one of those done, so not sure whether to request one at this stage or not.

I was interested to hear that you sometimes feel Nauseas when at the computer, as I do as well. In fact, I am feeling quite Nauseas at the moment posting this message. I feel a lot better when I get up and walk around for a bit, even though my balance doesn'y feel too great at times!

Also, I have noticed that when I go shopping I can't look at the lights for long, particularly the brigther ones, and can't wait to get out of the store!
I know that I'm not supposed to be looking at bright lights anyway, as it can
be bad for the eyes, but I never used to have this problem! I do get disorientated when walking up and down the aisles, and it could, as you say, be to do with the flourescent lights.

I can't think of anything for you to try in order to ease the symptoms, except I have noticed something that seems to ease my symptoms a bit, even if just for a few seconds!

Basically, I start by facing forwards then I turn my head 90 degrees to the left, then back to the forwards position and then turn it 90 degress to the right. I do this ten times then I do the same again, except this time I lower my head so that my chin is touching (or nearly) my chest, then move my head back to the normal position and then tilt my head back and then back to the normal position, repeated 10 times. When I do this the light headedness just goes for a few secods and I have a very slightly 'cool' sensation on my neck. I was told to try this by a physiotherapist who treats sports related injuries. You could try it and see if it has the same/or any affect on you.

Let me know how things go.

Take care, Robbie.

robbierazz
03-21-2006, 07:14 AM
Hi Leela,

Did you try the neck excercises I suggested in my previous post? If so, did
it make any difference, even temporarily?

How are your symptoms at the moment? Mine are still pretty much the same but I have good days and bad days with regards to how noticable the symtpoms are.

Also, does your neck ache when you move your head around?

Robbie.

Leela_C
03-21-2006, 12:11 PM
Hey Robbie. The exercises didn't seem to make a difference. I wasn't lightheaded while doing it, but it came right back as soon as I started to work on the computer.

Today is a bad day for me. I have been on my PC a lot, and at this moment I feel like I am going to fall right out of my chair.

My neck doesn't ache all that much. However, when I move it around, I can hear the bones cracking and rubbing together.

I am going back to my doctor on Friday. I don't like her at all, but she said she would refer me for physical therapy and I would like to give that a try to see if it helps me at all. If not, I guess I will have to try to find a new doctor...again. This is the third one I have been to. They are all so mean. They say things like "just be glad you don't have MS or cancer or something". OK, I am glad, but I still don't want to live my life feeling lightheaded all the time. It is so frustrating!!! I have other health issues too - and now I am beginning to think it is all the anxiety I have over putting up with these doctors.

I hope you're having a good day today. Isn't it fun living in our dizzy world? :bouncing:

Keep in touch!

robbierazz
03-21-2006, 05:00 PM
Hi Leela,

That's exactly how I expected you to be whilst doing the excercises, as my light headedness goes whilst doing the excercises but comes back very soon afterwards, usually as soon as around 30 seconds.

I would be very interested to hear whether or not physical therapy goes, as my doctor says that it isn't worthwhile me having that at the moment, but
I'm not so sure!

Also, I forgot to mention before, but I have had my blood pressure and heart rate measured twice since experiencing these symtoms, and on both occasions they were fine.

I just tried moving my neck around and I too can hear that cracking sound of my neck bones, not particularly pleasant.

I am sure that one day we will find a solution to this problem once and for all, and the sooner the better I say!!

Anyway, take care and keep in touch!
Robbie.

robbierazz
03-30-2006, 03:56 AM
Hey Leela,

How's things with you? How's the lightheadedness and other symptoms?

Mine are just as bad as usual, have good days and bad days. My neck is also aching quite a bit today which is making the light headedness worse!

Anyway, just thought i'd write to see how you're getting on.

Take care,
Robbie.

stillhopefull
03-30-2006, 09:10 PM
WOW!!

I am SOOOOO glad to have found this post!!

Let me first tell you a little of how I'm feeling. It started about three months I started getting so dizzy i would fall over. went to the er and they told me that I have bppv (vertigo)

Well I always feel off balanced when I walk, dizzy lightheaded when I sit in front of the computer, CAN'T go into walmart for long periods of time as I to get disoreinted in the isles.

Just everything the two of you have described I HAVE FELT!! Docs say its ANXIETY , but I feel that its the other way around, its causing my anxiety. I hate living this way, It is truly interferring with so many aspects of my life, and would love,, absolutley love to feel good again. I am so sorry that the two of you are suffering in this way, I truly feel for you.

( I also have LOUD cracking in my neck when I move it side to side) I want to excersice like I used to, aroebics, and taboe, but I am so afraid of passing out, although I have never done it. Do either of you excersice? How does it make you feel?

Thanks in advance

JEN

robbierazz
03-31-2006, 10:55 AM
Hi Jen,

I am so sorry to hear that you're experiencing symtoms similar to mine and Leela's. It really is unpleasant and I just wish the symptoms would go so that I can do things normally again!

I play badminton once a week and also go out cycling quite often. My symptoms don't seem to stop me doing these things, but it certainly affects how good I am at them!

At this very moment my neck aches quite a bit and my light headedness is quite bad. I do have good days and bad days, and today is one of the bad ones!

Have you had any tests done, i.e. blood tests?

Regards,
Robbie.

stillhopefull
03-31-2006, 11:05 AM
Thanks for your replie,

I have had so many blood tests done, I went through a period where I was at the er 3 or 4 times a week, I was so sure something was seriously wrong with me, I went to 3 different docs and all the tests came back good , they all said that It was caused by anxiety and stress.

I do bowl on a league every week, but I have a rough time going through the night without feeling like I'm going to fall over, I end up in the bathroom splashing water on my face and talking to myself, or praying to god to please make it stop, just let me feel normal please!! I HATE THIS!! My doc said there was no reason to have mri done because all my blood work was so good.

I am just at the point where I need to find some way to cope with it, until i can find a solution, ya know?
My lightheadedness is SOOOO bad this morning, and I have to start a new job today :rolleyes:

Thats another thing, I have a hard time keeping jobs because of this crap, i havent worked in almost a year, I am EXTREMELY nervous about going back.

Well I hope you feel better soon, Keep me posted!!

Jen

stillhopefull
03-31-2006, 11:08 AM
Oh and how old are you? I am only 26 but feel like I ancient!! :p

robbierazz
04-03-2006, 12:12 PM
Hi Jen,

I am 32 but feel about 60 at the moment! My neck is aching quite a bit today and my light headedness is quite bad! I agree with you, I just wish I could find
some relief from it!! I may try physio therapy and see how that goes, I am getting to the point now where I'm willing to try anything!!

So sorry to hear that you're getting so frustrated by it all, I know how you feel.

The funny thing is, the symptoms will most probably go as quickly as they came, it's a question of how long there is to wait before it happens!!

Take care,
Robbie.

Leela_C
04-04-2006, 10:57 AM
Hey Robbie. Jen - welcome to the dizzy club. :) My dad had back surgery last Friday so I have pretty much been living in the hospital and away from my computer.

To Jen's question regarding exercising - I don't do much at all any more. I just never feel like I have any energy. I have also developed a very fast heart rate (which the docs say is from anxiety) so I am afraid to do much of anything. Just walking up my stairs at home gets it racing. But if it really is just anxiety I am certain that it was caused by this lightheadedness and the way I have been treated by the medical community.

I am 30 and I have lived with this lightheadedness for three years now. Jen - have you ever had whiplash or any type of neck injury? My problems with the lightheadedness seem to be coming from my neck, but who knows?

I am so sorry that you have to suffer these same problems as Robbie and I have been. I've been back on the computer for about an hour now and already I feel like I'm going to fall over. This is no fun!

I hope both of you have a good day. Jen, how is the new job going?

Take care!
LeeAnn

stillhopefull
04-04-2006, 12:08 PM
Sorry to hear about your father,, hopefully everything is well.

As far as the neck injury, I did injury it last summer during a softball game. Now that I think of it, that is right around the time the dizziness started.!!
Maybe I should look into that huh?

And the job is going well, I worked a double the second day on the job. I just have to sit a few times when I start getting dizzy. Man it is so frusterating but it REALLY helps to know that I am not the only one with these symptoms.

Well hope you both are doing well, and talk with you soon.

JEN

Leela_C
04-04-2006, 02:03 PM
Hi there.

Robbie - I was reading back through this thread and noticed in your first post that you said you took muscle relaxants and that helped with your headaches. I was prescribed muscle relaxants because my arm and leg go numb and they help with my headaches also. If I don't take one every night the headaches come back. I really don't want to have to take medication daily but I will for right now just to keep the headaches at bay.

Jen - you said you hurt your neck playing softball. You should try to get your doctor to send you for an MRI of your c-spine. I have two bulging discs and two narrowed discs. The neurologist that I used to see told me that was normal for someone my age and wouldn't cause any lightheadedness. What a bunch of crap! The new PCP I have now thinks that it is possible but there isn't much we can do about it. She said no surgeon would touch me because of my age. (Now that I saw what my dad went through last weekend with his back, I don't know that I would want surgery anyway.)

Do either of you have any tingling or numbness in your arms or legs? I had to sit in the hospital waiting room for like 8 hours while my dad was in surgery and the next day my whole left side was pretty numb. I didn't take my muscle relaxer that night so that could have been part of the problem also.

Maybe between the three of us we can get this figured out!

robbierazz
04-09-2006, 06:39 PM
Hi Leela,

I have stopped taking the muscle relaxant drugs, as I don't like taking the same drug for too long. I guess I get paranoid about the long term effects of such drugs, and of course getting paranoid doesn't help my anxiety, which in turn doesn't help my light headedness! :-) My headaches have not been too bad for the last week or so, in fact I haven't had a headache for the last 3 days. I have also noticed that my light headedness hasn't been too bad for the last couple of days, so I know there is definately a connection between this and my headaches.

Anyway, with regards to tingling numbness, I haven't really suffered with this as such, although I do have pins and needles (tingling and numbness) in my feet and lower part of my leg from time to time. I have noticed this recently but didn't think much of it really. However, it could well be connected to the problem.

As far as I am aware, all of the problems that us three have been experiencing point to circulation problems. This would explain the light headedness and certainly the tingling and numbness sensation. The circulation problems could be caused by inflammation of discs at the top of the spine, which could be pressing against a nerve/blood vessels or something. Just a thought really, but I reckon I'm not far off of what's causing the problem.

Incidentally, I have also observed that when my neck doesn't ache, I am also free from the lighheadedness sypmtoms. A definate connection there I think!

Anyway, that's my current thoughts on the situation. What are your thoughts?

Also, what are your thoughts on what I've written Jen?

Hope you are both ok.
Speak soon!
Robbie.

stillhopefull
04-09-2006, 07:02 PM
Hi,, Glad to hear you are feeling better robbie,

Well as far as me the headaches and lightheadeness is gone as well, well at least they have been for about a week!! :bouncing: :bouncing: :bouncing:

Since I started work actually, I havent been sitting in front of the tv or my computer either so my neck hasn't hurt at ALL. So I do think there is a connection between the two.
I remember a time awhile back, I could barely walk for two days, because my legs and lower back HURT so badly, I thought tthen I could've had a pinched nerve or something, so I am beginning to think that the pinched nerve is in my neck.

leela, My mother a few years back had surgery for a pinched nerve in her neck, and I feel the same way as you do, I don't think I could go through all of that.
As for the tingling, I have had it in my feet, in my hands as well, but mainly in my feet, I notice that when my neck is hurting I get the tingling feeling.

I sure wish we could exchange emails on this site!!!!
Well hope you both are well, and I'll be thinking of you.

JEN

Leela_C
04-12-2006, 10:18 AM
Hi Robbie and Jen. I agree with Robbie that these problems have to do with the discs in the c-spine. I think that when I am sitting there is something going on with the nerves or a blood vessel or something. I was off most of last week taking care of my dad and I wasn't lightheaded at all. As soon as I came back to work Monday (sitting in front of the computer all day) the lightheadedness was back in full force. Just getting through the day anymore is torture for me. Jen - what kind of work are you doing? It is funny that most people seem to experience lightheadedness while standing, and for us it is while sitting. If I didn't have to sit in front of this computer all day I think I would feel a whole lot better. By the time I get home at night I am completely exhausted.

I hope you both are feeling well. I, too, wish we could exchange emails on this site.

TTYL

stillhopefull
04-16-2006, 12:01 PM
Hi all, hope you both are doing well!!!!

HAPPY EASTER..

I have to be off to work, so I'll make this quick, as for your question leela, I work at a gas station, so I stand all day, well in my case all night!! :yawn:

Anyway, I hope you both have a good easter and hope to hear from you soon :wave:

robbierazz
04-18-2006, 01:22 PM
Hi There,

Hope you both had a good easter. My light headedness is still here (unfortunately) and I have had a mild headache all day today. I'm sure the headache is directly connected to the light headedness symptoms.

I am going to see an Ear, Nose and Throat specialist next month so will let you know if they discover anything. I'm sure that the problem is with my neck and upper back though, even though my doctor is not convinced for some reason - most frustrating!!!

I can't understand why the doctor is discounting this as the possible cause of my problems, even though I have told him that my neck aches!!!

How are the symptoms with you both?

Speak soon!
Robbie.

Leela_C
04-19-2006, 09:58 AM
Hello to my dizzy friends. Everything is the same here with me.

Robbie - I totally understand your frustration over your doctor not wanting to listen to you. It is good that you are going to an ENT, but chances are they probably won't find anything. I'm not trying to be discouraging, but I have been through all the specialists out there.

Jen - You said you started feeling better since you started your new job. Any lightheadedness when you're on the computer at home? I know I would feel so much better if I didn't have to sit in front of the computer all day.

I have a follow up with my PCP next week. She had me get some bloodwork done to test for Lupus. I am sure that will all come back negative. I will push some more to try to get these neck issues looked into. She did say that these problems could be coming from my neck, but didn't offer any solutions to the problem.

I hope you both have a wonderful day! Robbie - keep us posted on the ENT visit.

LeeAnn :wave:

robbierazz
05-02-2006, 05:20 AM
Hi Leela and Jen,

I have a couple of questions for you regarding your symptoms.

Do either of you have neck ache, particularly when having the light headedness symptoms? Also, do you have an aches in other parts of the body?

Do you have mild headaches? I tend to have one most days and it is at the front of my head (forehead) and is always to my righthand side. My doctor reckons they are probably tension headaches, caused by tense neck muscles.

I have found that I have aches in my chest, not centrally, otherwise I would
be very worried! No, these aches are more in the pectoral region and wondered whether there could be a connection to my neckache, mild headaches and light headedness. These aches are not there 24/7 like
the ones in my neck, but are irritating none the less.

If either of you have experienced/are experiencing this then I'd be very interested to know? Likewise, if you're experiencing and aches elsewhere then I'd be equally interested.

Take care, and hope to hear from you both soon.

Robbie.

Leela_C
05-02-2006, 10:03 AM
Hi Robbie. Yes, I have neck aches and headaches. When they get bad, I take flexeril at night and that helps. I also have pains in my chest. I have had a bunch of heart tests, so I know it isn't heart related. I think it could definitely be referred from my back. My doctor is sending me for another C-Spine MRI. Now she is trying to tell me that the dizziness isn't coming from my neck. I told her to look up the term "cervicogenic dizziness". One of these days someone will give me some answers. I hope you are doing well.

LeeAnn

stillhopefull
05-03-2006, 05:55 AM
HI to both of you :wave:

Robbie,
It is so weird that you would mention the headache and neck ache of all times!! For the past 24 hours I have had a headache in the FRONT of my head and on the right side, along with stiffness in neck, when I move it , it cracks SO BADLY!! I thought that maybe I was a bit dehydrated but I've been drinking water ALL DAY and still feel horrible.

Leela,

Sorry your having such difficulties with the docs.. I completley understand!! :rolleyes: And I am with you on hoping we find some ease and comfort from this!! It is SOOOOO frusterating, and getting worse. It just seems that I'll have some good days and have high spirits about things, then days like these come and it all goes downhill. Ya know?

Well I'll be praying for the both of you,,'
Keep in touch,, and hope to hear from you soon

JEN

robbierazz
05-04-2006, 12:17 PM
Hi Leela and Jen,

This is all so weird.

Jen, it is strange that you also have a headache in exactly the same place as mine, which shows the headaches and neckache 'must' be connected, regardless of what my doctor says!!!!!

Also, my neck makes a faint crunching/cracking sound when I move my head from left to right, just like Jen is experiencing.

Leela, I am very reassured to hear that you also have experienced aches in your chest area, as it is obviously a bit worrying usually if there is any pain/ache in that area. Just like Jen's point about the headaches, this proves again that the chest aches and all the other symptoms are interrelated some how. It is now quite obvious that all three of us are suffering from the same problem. All we have to do now is find out what it is, and that's the hard part particularly as the doctors don't seem very sympathetic towards us!!

Leela, I would be very interested to hear that outcome of your C-Spine MRI scan.

I play badminton and this is badly affecting my game which is really getting me down! After playing for about 30 mins I feel disorientated and find it difficult to concentrate on the shuttlecock - not good at all!!!

Also, I've noticed that when I drink alcohol I get drunk much quicker than I did, which must be due to the light headedness I guess, as I feel a bit tipsy before I've even started drinking! :)

Another thing I have noticed is that I am starting to get travel sickness when in the car, something I used to suffer from as a child but haven't had any problem with for years now! Most strange!

I really do hope we all find a solution to this as it is almost controlling my life at the moment and affects most things that I do!

Anyway, take care and hope to hear from you both soon!
Robbie.

Leela_C
05-04-2006, 12:31 PM
Hey Robbie & Jen. Have you seen how many views this thread has had? Almost 1200 at this time. I wonder if there are other people out there that suffer from this too that just aren't posting? If there are others out there, please join our little club! :wave:

Robbie - I do have the same headaches and neck crackles too. Just the other day my doctor was having me move my neck around and it didn't really hurt so much, but the crackles were really loud.

I know what you mean about this controlling your life. It was controlling mine too. Now I have just found out that I have a blood clotting disorder, so I guess that is controlling me now. Don't get me wrong, I'm still having all the lightheadedness, but now I'm more afraid of getting a blood clot. Isn't life fun? :yawn:

Hang in there!

LeeAnn

robbierazz
05-08-2006, 06:47 AM
Hi LeeAnn,

I'm so sorry to hear about the blood clotting disorder that you've been diagnosed with. The positive thing is that they have very good methods of
dealing with the problem these days.

Do you think there is a connection between this and your lightheadedness?

Anyway, it's weird as I barely had any symptoms over the weekend, and yet
this morning the symptoms are back, although only slightly today! It is soooooo frustrating!!!

I really hope they manage to sort your problems out, which I'm sure they will.

Take care of yourself,
Speak soon!
Rob.

Leela_C
05-08-2006, 10:03 AM
Hey Robbie. No, I don't think there's any connection between this blood disorder and the lightheadedness stuff. And unfortunately they won't treat me for it until something happens. I feel like I'm just waiting around to get a blood clot - or worse.

Anyway - I hardly ever feel lightheaded on the weekends. That is why I am so certain is has to do with sitting in front of this computer all day!! On Monday mornings I usually feel OK, and by the end of the day I am absolutely miserable. Then I feel horrible until the end of the week and on the weekends I am usually OK. Maybe sitting all day compresses something in my neck? I don't know. I sure wish someone would figure it out.

I wonder is there any way to get an MRI in a sitting position? I think I heard something about that, but I'm not sure.

Have a good week!
LeeAnn :wave:

robbierazz
05-12-2006, 04:54 AM
Hi LeeAnn,

I've noticed something very interesting recently. Basically, for the past week I have been cycling to work most days and am not sure whether it's just coincidence, but I have had very little, if any, light headedness since I've been cycling to work! Strange eh?

The only thing I can think of is that perhaps I am excersising my neck in a particular way which is stopping the symptoms.

Anyway, just thought i'd share that with you in case you were interested. It may provide a few more clues as to the cause of our problems.

Hope you are ok, and keep posisitive! :-)

Robbie.

Lynn1973
05-13-2006, 02:17 PM
Hello,
Reading your post was like reading exactly what I would say, I got the exact same problem, have had it for 2 months now, the headaches lightheaded, im going to see a specialist but not till June 13th, so ive still got over a month till I figure out what is wrong with me. Im so glad im not the only one experiancing this, Its a scary thingto go through. I can hardly make it through the day at work, Hoe you start to feel better soon, .Lynn

Leela_C
05-15-2006, 09:54 AM
Hi Lynn and welcome to our little group! :wave: I am so sorry you are having to suffer with this also. Please let us know what your doctor has to say and keep us posted with anything else you may find out. Thanks for posting!

LeeAnn

robbierazz
05-22-2006, 12:11 PM
Hi again,

I've just had my appointment with the ENT consultant and he can find no problems with my ears at all. He is convinced that my problems are nothing to do with this. I didn't honestly think there would be a connection, but I suppose it's good to be able to rule it out.

Therefore, it's back to the drawing board again!!

Anyway, how are you all?

Thanks,
Robbie.

Leela_C
05-22-2006, 03:06 PM
Robbie - I'm glad you went to the ENT, it is better to rule that stuff out. I guess that is the only thing we can do - rule things out. Are you going to try to see a different type of specialist now? You haven't had an MRI of your C-Spine yet have you? I am going this Friday for mine. This will be my second one. I am anxious to see if anything has changed since my last one.

I have been having pains all throughout my back lately, rather than just my neck. The chest pain has been a little worse too. I have also been extremely tired lately. I have a four day weekend this weekend, so hopefully I can relax some and feel a little better.

I hope you're feeling well. I will let you know about my MRI.

Take care!

LeeAnn :wave:

robbierazz
05-22-2006, 07:22 PM
Hi LeeAnn,

I haven't had an MRI of my C-spine done yet, but will try to organise one of these to be carried out. The problem with our health service though is that I'll probably have to wait months for it to happen!! :confused:

Anyway, sorry to hear that your pain is getting worse. I do have occasional pain in my middle and lower back, but the pain is generally confined to my neck. I am still having the occasional aches in the chest area too. My symptoms have been very up and down for the last few weeks, which is most frustrating! :eek:

Also, it's funny that you mention the tiredness as this is something that's really starting to affect me now. Normally I can be awake until at least 11pm at night and still feel quite alert and active, but lately I have been feeling really tired by around 9pm and wanting to go to bed by 10pm!! Maybe there is a connection there too then!

Anyway, hope you feel better soon and keep me posted on your MRI.

Goodnight for now from your dizzy friend!
Robbie.
:wave:

Leela_C
05-23-2006, 10:02 AM
Well I received a letter yesterday from my health insurance that they won't cover my MRI. They said "it is not medically necessary". Can you believe it? Now insurance companies get to decide if something is medically necessary? Unbelievable!!! I am so irritated about this. My doctor's office is closed this week because they are moving but I will call next week and see if I can't get a referral to a spine doctor or neurologist. I really think our health care system just likes to see people suffer. I just couldn't believe I received that letter yesterday.

Robbie - sorry you're feeling tired. I just think that we've become exhausted with all of this. It is hard to feel motivated to do much of anything any more.

Take care!

robbierazz
05-24-2006, 08:21 AM
Hi LeeAnn,

That's terrible, I can't believe that your health insurance won't cover an MRI!

I thought our health service here in the UK was bad, but you really are unlucky with your situation!

It does make my blood boil when insurance companies start trying to 'play god' and making decisions that they shouldn't, all to save a few bucks!!! :mad:

I really hope you sort the situation out ok and get a refferal to see a spine specialist or something. Keep positive, that's all we can do to prevent us from
going insane!! :D

Take care!
Robbie.

Worried1977
06-11-2006, 09:59 AM
Anyone figure this out yet?

i have had had the same thing for a week now and no one knows whats going on with me.

robbierazz
06-12-2006, 06:48 AM
Hi There,

I'm convinced the problem is associated with the upper back/neck. Do you have any neck or upper back pain or even an ache?

My theory is that inflamed discs could be pushing against veins/arteries that carry oxygen to the brain, thus restricting the flow and causing the light headedness sensation. I'd like to point out that I am not a doctor or involved with the medial profession in any way whatsoever, it's just a theory that I have come up with that seems to make sense. Of course, I could be way out with my diagnosis and advise you to get checked out by a doctor if you haven't already.

What I can tell you is that I've had tests done to check brain activity and they are all fine, I've also had my ears checked out in case it's an issue with balance, but again they're fine.

Anyway, hope you feel better soon,
Rob.

bweb
03-25-2007, 07:06 PM
Hey is this thread still open? I have throughly read it, as I have similar lightheadedness and mild headaches, especially over the left eye, and over the bridge of my nose.

Robbie, maybe cycling and the way you are holding your head could have been a cause of your neck problems...bweb.:confused:

chikkie14
03-26-2007, 08:29 AM
Hi, well if its close lets open it again as I am having exactly the same thing as robbie and leela.. its terrible and scary... I can even see my eyesight throbbing sometimes... my right eye is also having the same pressure and poor viewing... sometimes I feel like I am leaning over one side but then when I ask my husband he said im not... the pressure is worse at the temple, back of the ear and top pf my head as well as insid emy ear its just every where :dizzy:

Leela_C
03-26-2007, 10:08 AM
Hi bweb and chikkie14. This is an old post, but I'm glad you found it. I am still suffering with this nonsense. It actually went away for a while last year, but in January it came back even worse. I have no idea why. There is another post you should check out. It is on the headache board and the subject is "chronic tension headaches". You can also search by my name to find that post and many others relating to this lightheadedness. I have other issues too, so you may have to weed through those posts. I hope you both feel better soon. It is sheer torture to have to live like this...it has been over 4 years for me! :mad:

bweb
03-27-2007, 06:02 PM
Leela,

Thanks, will check it out...have you ruled out anxiety affecting your veins and nerves to the head?
BWEB

Leela_C
03-27-2007, 06:43 PM
I suffer from anxiety, but I do not believe it is causing the lightheadedness. I have had two psychologists tell me that. Rather, the lightheadedness and stupid doctors are causing my anxiety. I'm sure the anxiety doesn't help matters, but when you feel like this for as long as I have, you can't help but develop anxiety.

chikkie14
03-30-2007, 04:10 AM
I also dont think its anxiety since I dont feel anxious at all when I feel well from time to time... the anxiety only comes when I really feel bad... like now I am having this sudden clicking like pain at the right side of my head down to the right side of my neck when I swallow.. anybody experience that? my right eye is also somewhat worse than the left geez its a nnoying... my doc said its my throat, she gave me a swelling meds and somehow it helps... the pain is now bearable... :rolleyes:

tina2367
04-03-2007, 10:56 PM
hi,
I am a newbie on here and too alot of my symtoms and REALLY need help and to know if anyone knows what it can be i just don't believe it's only panic and anxiety attacks it has to me more. There are so many pysical things i feel. Where do i begin. I get lightheaded all the time and dizzy especially if i have to be with people to long outside my home. I am nauseate all the time even though i don't vomit. My eyes sting and burn,my heart races and feels like it's going to come out of my chest, I am SOO emotional,I am easily upset, I always feel like i am dying, I going to sleep and wake up frightened to death, My stomach hurts like lower around both kindneys i was back pain constantly especially if i am like trying to do the dishes, I get dizzy and feel like i am going to pass out all the time, my breasts hurt like heck, sex is so PAINFUL and i always feel like i am going to pass out while having it and never wake up again... I am SO SCARED of dying.my bones ache especially if i bump something. i feel like my legs and neck is going to fall off and sometimes like i just can not support my head anymore.I feel like i'm unable to breathe,my heart will beat so hard and fast if i open my mouth i can hear it,i am either never sleeping or always sleeping,i have a dry mouth always and sore thoart, (I do have very very very BAD teeth). I have dry hair that does not grow and brittle nails, i get shooting pains in my whole body and very bad headaches,i have i feeling of doom all the time, i am always stressed.I am not able to lose weight no matter what i do and if i move fast i can sometimes feel like a huge bump in my right lower ab.
whew i think i covered everything the reason the list is so long is i am so hoping someone CAN help me. I have been to 6 different hospitals and doctors noone knows what to say other then they find nothing and send me home.
I am so scared that i am going to die my husband just says relax and rest you'll be okay and leaves me in a closed room without even comeing back to check on me,what if i stop breathing then. I am scared. I need help PLEASE.
If anyone can help me so i can be healthy or at least torerate this illness please do so i have 2 small grls 13, and 4 and want to be the mom they need and deserve. This started at 33 i am now 40...It wasn't so bad then but keeps getting worst.
thank you,
tina2367

chikkie14
04-04-2007, 09:08 PM
Tina I really feel for you... I could have well been the one who typed in your message as it is exactly the same as mine .... just a couple of nights I was crying to my husband and really at the verge of giving up ... I am only 26, newly married and just starting out my new life but this sickness set in before I can evn enjoy my honeymoon! All your symptoms are exactly like mine... I have been diagnosed with GERD though (reflux disease) and my doc said the acid had caused my throat to be inflamed specialy inside my ear.. making me drwosy all the time... my drowsyness feels like I am just going to fall flat on my face and stop breathing.. thats why i am so scared to sleep all the time... I took some sinus meds and somehow I feel better.. exept for the little chest pressure and the ticking pain in the side of my neck and head...there are times I feel that I am going to have aneurysm and just die... I am not working and lives alone with my husband who has to stay at work from 7am - 10pm... by the time he goes home I am nervous wreck I may look like a schitzophrenic to him...

But through all this I learned that if I just succomb to it all nothing will happen to me... I will lose all that is dear to me and I am just not ready for that... now I am still in the process of teaching myself not to be afraid... its hard but I am taking one breath at a time instead of one step... trying to relax as much as I can... learn to have a breathing technique.. slowly and surely... eventually you will see you can feel your body like the thirst is being quenched... try to research for alternative medications.. this meds usually just makes our body stronger emotionally and physically... I know its hard.. trust me Iknow.. its hard to divert your mind from the thought of impending doom... but try hard, think happy thoughts.. think of what you will do ones you get well... give yourself something to anticipate for... that will give you strength... and if your still not sure or appeased that there is nothing wrong with your body... go tell your doctor.. talk to him that ones and for all you want to make sure everything is clear... have him run some blood tests or anything he suggest, you might want to look at sleep disorder by the way, this is also known to cause this symptoms and physical tests wont show it.. but ones the result came back normal you have to start living ... you have to draw the line somewhere...

easier said than done... I am also in the process... I have 2 GP and 1 GI and 1 chinese doctor and have been to the ER countless of times... Just dont give up... help your self up and youll see we can pull through ... :)

tina2367
04-05-2007, 01:21 AM
Hi,
thank you so much for your kindness it helps to talk about it and to hear from others dealing with whatever this is. I am sorry for you going through all of this i know it really scares me to death and the more i tell myself nothing;s wrong the wrost i get. I have been to the doctor's and have had many tests but i think they should do more...something is not right i know my body. I have anxiety and panic attacks but this is different there is too much happening now....I just want my life back and to be happy.....................tina2367

linda88
04-22-2007, 07:21 PM
I have been experiencing light headedness for the last 5 weeks. The way I would describe the light headness is like being a bit 'spaced' out, kind of like I've had a few beers or something. I don't drink alcohol very often and haven't been drinking since I've been experiencing these symptoms.

I experience the symtpoms most days to varying degrees, although some days I feel fine. The symtoms are sometimes occompanied by mild headaches at the front of the head (forehead) and usually to one side.

I also have slight neck pain when I bend my head forwards. My head also feels like it is too heavy for my neck to support, that is how I would describe the sensation.

I have been to my GP 3 times about this. The first time he thought the problem may be related to tense neck muscles and prescribed me a muscle relaxant. This seemed to get rid of the headaches but didn't make any difference to the light headedness, and only slight difference to the neck pain.

The second time I visited him he took my blood pressure, which was normal.

The third time I visited he took my blood pressure again which was again normal, and I had a full blood count done. The results of the blood test came back fine, so I'm at a complete loss as to what could be causing the problem, or what to do next.

He is referring me to the ENT specialist at my hospital, as he thinks the problem could be related to my inner ear, as this controls balance. That could possibly explain the light headedness, but I can't see how that would explain the neck pain and headaches.

Has anyone experienced similar symptoms, or can anyone shed any light on this?

If you can then I'd be very interested to hear, as this is driving me mad.

For the record, I have also had a slight cough for the last year or so and I was diagnosed as having post nasal drip. Not sure whether this could be connected to my other problems though.
I have been experience the same exact symptoms for the past 2 weeks. Mild headaches and lightheadedness. I also feel as though my neck and upper back are tight and tense. I thought it possibly could be that my vision had changed and so I visited the eye doctor, but everything checked out ok. My GP suggests that I see a massage therapist at least twice a week. She thinks it may be stress related. I plan to visit one in a few days. Did you ever find out what it was that was making you feel this way?
Thanks so much
Linda

Jimkel
05-07-2007, 10:30 AM
Hi all, I too have suffered from exactly the same symptoms described, there is no need for me to go into great detail as you all have already, so in short my my symptoms: Lightheadedness, headaches, foggy mind, drunken feeling, balance problems, and tense neck, I know exactly what your alll talking about with the head feeling like its leaning to 1 side or too heavy for you to hold up without support, Trust me your all not alone. I also know whats wrong with me as I have been through this before, lasted 4 years untill i recovered fully. It resurfaced recently after I was going through a stressful period. So i've something to say to you all, you might not like to hear it but here it is.

Generalised anxiety disorder.
symptoms, derealisation, tense neck, headaches, depression, raised heart rate, physical discomfort, aches and pains, tingling and numbness in body, visual disturbances, tremors, Inability to relax, feelings of doom, belief that you are very ill or something terrible is wrong. Gastro intestinal upsets, anxiety disorder isnt like the normal anxiety feelings everybody has, it feels different and can last for years or life unless delt with. The important thing is to ignore the physical and start concentrating on the mental . Trust me you sort out your head and your body will return to normal. It takes months to years, and may require antidepressents, it will require willpower and some soul searching . Plenty of exercise helps no end, It was joining a Karate club that saved me in the end. Stress and anxiety can do untold things to your body, you may not even know your stressed you may think your relaxed but subconciously you have unresolved issues. The trauma of believing something is terrably wrong, going back and forth to doctors unsatisfied etc only re-enforces the belief that your stuck like this. Believe me you can all heal and live normal lives it just takes time and the ability to admit there is something wrong inside. See when your stressed your body goes into a fight or flight state causing blood flow to be redistributed to vital organs and the rest of your body only gets enough to survive, hence the tingling and aches. What happens with GAD(Generalised anxiety disorder) is you become stuck in this state, you can be happy on the surface, relaxed in tought but still suffer all the symptoms of stress, panic, depression and anxiety .Its a PHYSICAL illness an imbalance of neurotransmitters in your brain caused by deep seated emotional upset usually brought on by a percieved threath. Its a self propelling illness, the anxiety caused by the illness only makes it worse, You have to break the cycle, 1st rule Stop googling things you think are wrong with you, the answers are inside not on the net. you will not get better searching for a reason, Anxiety can lead sufferers to believe they have an illness to the point where they develop real symptoms.Kind of Like a Phantom pregnancy. Whatever psychologists told you that anxiety is not the cause are obviously incompetent Stress and anxiety can cause almost ANY symptom you can imagine. A horrible illness.Only a change of lifestyle can help.
stop thinking about it, stop worrying, Accept how you feel and tell yourself that from now on your taking a new approach to healing. Exercise, It builds up your neurotransmitters better then any Antidepressent, twice a week at least, Hard physical exercise like a martial art or swimming, don't give in to feeling horrible, When you get that dreaded tiredness just go to sleep, the reason you feel aches and paind stiff neck and off balance is because your body has been in an extended state of stress and anxiety , if you believe somethings seriously wrong you will get ill, its as simple as that.

I'm not saying there is nothing wrong and its all in your head. , far from it, I would rather be shot before going through what I went through before.

So when you feel bad just say to yourself its all stress and anxiety, every pain, every discomfort, every weird feeling of imbalance or vertigo, just ignore it and get on with your life, Having a purpose or goal to concentrate on really helps but only if its enjoyable and not stressful. Get your mind of things, realize that you might be so out of it with this illness you might not even realize it. Believe you are healing from this day forth, you need to let your subconcious know its ok to return to normal, its safe. Its over.

Good luck with getting better. This is my opinion based on my own experience but think about it and see how you feel, It worked for me! Peace

tina2367
05-07-2007, 11:20 PM
hi,
Thank you i will try what you say..but have been trying everything for 7 yrs now and no matter what i do it keeps getting worse(my is so bad that i can't ven go to work). I just don't know. I am
now leaning towards thyriod but my doctor won't test me he says NO. So i am stuck big time. The problem is thing atre getting so worse and more scary. So now i am just depressed too. But i will continue to try everything you said....thank you....

tina2367
05-22-2007, 07:52 AM
Hi,
Me again with some new information...Is anyone else feeling like this or gonig through this? I am now almost daily getting heart palipations and sweating ,dizziness,light headedness , dry mouth, no energy or it's through the roof,gloomy feeling of death, too much sleep or not enough, diareaha or cosapation,losing focus, throat is swelling, and now i have been taking my temp regularly it is crazy...it will be as low as 96.2 and that's when i will be so cold and ghave xchills and shakes...Or in the 99's and that's when i am sweating. I have feelings of passing out in the stores in the shower in the school. Sex is scary because when i start to reallly get into it now i feel like i can't breathe
and i am going to pass out.
I am still being told this is anxiety!....But everyday and to this extreme...someone PLEASE help me....................tee

npkallergy
06-02-2007, 02:29 PM
I haven't read the entire thread so I am not sure if this was suggested before.
Have you considered that this could be caused by allergies? The symptoms seem to be like it. Try taking some allergry medication for a couple of weeks before trying to judge the effect. See if that helps.

tina2367
08-20-2007, 06:31 AM
I did try this ..thank you for suggesting it but
it didn't work..I'm still suffering probably til the day
i die, No doctor seems to care much..........tina2367

jools182
08-20-2007, 01:01 PM
These are my symptoms:

My symptoms started about 7 years ago when I was sat at work. I suddenly felt as though I was falling backwards off my chair along with the same falling kind of feeling you sometimes get when you are falling asleep. These feelings only lasted a few seconds and I seemed to be able to snap myself out of it. About 2 or 3 weeks after these symptoms I had a really bad dizzy spell, I just felt like I was losing consciousness, felt really confused and scared. I went home and went to bed for about a week, feeling like I had flu or something. Really weak and shaky and cold and dizzy.

After that I had occasional bouts of dizziness and feeling unsteady on my feet but eventually seemed to return to some normality although I never really felt 'right'.

A year or so later I started getting dizziness along with feeling flu like symptoms. I could usually tell in the morning if I was going to have a bad day, just a feeling. My symptoms then started with cold feet and lower legs and just feeling generally grotty.

I have had periods where I felt ok, but not anymore. I remember feeling ok for a good few months then one day I had stabbing pains in the front of my left shoulder and I was feeling clammy. I went to the cinema and while I was sitting there I suddenly felt like the room had been turned upside down and almost fell of my seat. After that I didn't feel good again for a long time.

Since then it seem like I have a constant level of dizziness which never really goes away along with nausea, chest pain etc

Over the years I have often thought there might be a heart problem because I have had chest pains since being about 16, but the tests that have been carried out so far have been negative. I even remember asking my parents when I was about 8 if children could have heart attacks, not sure why!

I used to be fairly active, mountain biking , walking, gym. I even did a bungy jump in New Zealand which I thought I'd never do, but these days I don't do anything because I feel so bad

During this time I have been checked for Marfans Syndrome, have had ECG's blood tests, exercise tests and echoes of my heart, and tilt tests for blood pressure. I recently saw a neurologist who suggested I may be suffering from Basilar Artery Migraine. He put me on beta blockers which seemed to help a little bit for a while but then I think I passed out, I was so scared I went to the Emergency dept who said there was nothing wrong with me. I went to see my GP and he took me off the beta blockers.

I have been to the Emergency Dept about 4 or 5 times over the years because I have felt so bad like I was about to pass out

My symptoms seem to be getting more frequent these days and lasting for much longer periods of time. I have this constant dizziness, and worse still this feeling of being unreal, dreamlike, numb, somehow detached from reality

I have not had a full week in work since last October when I had a really bad episode of feeling like I was losing consciousness; I was really pale and cold.

I feel like crap the whole time and my GP doesn't seem interested in my symptoms or how scared I am.

I used to be quite sociable and I like the outdoors life and going to the gym etc, but now I am scared to go anywhere. Last time I went a decent walk I got the same symptoms again, feeling like I was passing out and feeling numb, and it also happened last time I went out on my mountain bike, so now I don't do any exercise.

I have lost my girlfriend of 2 and a half years because of this and I think I will lose my job

I have trouble leaving the house these days as I am worried about having a bad attack when I am out somewhere

I went back to see a cardiologist as my Mum has contacts and got another tilt test which proved negative, however he now wants to do an Angiogram soon just to make sure, but I am so scared about this test. I have read about the risks and you can have a stroke, heart attack, kidney failure etc. My GP has expressed reluctance in letting me have this test and I don't know what to do. I had a stress echo about 2 weeks ago but that didn't show anything.

I have also been to see an ENT and have had balance tests which seemed negative

I have been feeling really bad the past few weeks. Feeling lightheaded as though I am about to pass out almost constantly. I am also getting pains in my left arm and shoulder that can last a few hours or even days. along with occasional chest pains and back pains and jaw pain. I am falling apart. I feel like no-one is taking me seriously

Leela_C
08-20-2007, 01:36 PM
Tina and jools...I am right there with both of you. I have been feeling like total crap for over 4 1/2 years now. I, too, thought it was cardiac related, but my cardiologist says no. So I just live with it. I am so sick of feeling like I can't hold my head up. It stinks. I am now pregnant and everything is worse. Sorry I don't have any good advice, I just want you guys to know that you're not alone. :(

tina2367
08-20-2007, 11:15 PM
Hi,
sorry to hear you too OMG i would go crazy with being pregnant
with this again i did go through alittle of it with my daughter 6 yrs ago
but nowhere near as bad as now........tina2367

Tina and jools...I am right there with both of you. I have been feeling like total crap for over 4 1/2 years now. I, too, thought it was cardiac related, but my cardiologist says no. So I just live with it. I am so sick of feeling like I can't hold my head up. It stinks. I am now pregnant and everything is worse. Sorry I don't have any good advice, I just want you guys to know that you're not alone. :(

uhlhouse
10-07-2007, 05:50 PM
I found this thread and thought I would post to see if anyone is better and to tell you about me.

I am 50 years old and a cardiac nurse. About the beginning of June I started feeling sinus pressure headaches, spacey, brain fog and dizziness, all of which I had throughout my life when the weather changed. Then it would always stabilize. This time it didn't. It is going on 4 months and I am having these symptoms 24/7. I had to quit my job because being a nurse is a serious business and if you can't take care of yourself, you can't take care of others. I could barely make it through a day. Now I am faced with losing my health insurance and no doc can figure out what is wrong with me. My family Dr labeled it "anxiety" as usual (with no tests, mind you) because I have had anxiety in the past. I guess people with anxiety can't get other things, huh? I told her that I believed that I had anxiety BECAUSE of my symptoms. What can I say. I am left with having no desire to do anything anymore, including eat. I miss my life terribly. My hubby is only 35 and physically and mentally fit as can be. This is taking a considerable toll on his life as well.

I have had a neck injury abou 14 years ago in a car accident. I have no other allergy symptoms. Just a sinus pressure in the front, behind the eyes/nose and forehead, back of neck from tension. Dizzy, depersonalization...the whole gambit. I hate this.

tina2367
10-11-2007, 01:19 AM
I found this thread and thought I would post to see if anyone is better and to tell you about me.

I am 50 years old and a cardiac nurse. About the beginning of June I started feeling sinus pressure headaches, spacey, brain fog and dizziness, all of which I had throughout my life when the weather changed. Then it would always stabilize. This time it didn't. It is going on 4 months and I am having these symptoms 24/7. I had to quit my job because being a nurse is a serious business and if you can't take care of yourself, you can't take care of others. I could barely make it through a day. Now I am faced with losing my health insurance and no doc can figure out what is wrong with me. My family Dr labeled it "anxiety" as usual (with no tests, mind you) because I have had anxiety in the past. I guess people with anxiety can't get other things, huh? I told her that I believed that I had anxiety BECAUSE of my symptoms. What can I say. I am left with having no desire to do anything anymore, including eat. I miss my life terribly. My hubby is only 35 and physically and mentally fit as can be. This is taking a considerable toll on his life as well.

I have had a neck injury abou 14 years ago in a car accident. I have no other allergy symptoms. Just a sinus pressure in the front, behind the eyes/nose and forehead, back of neck from tension. Dizzy, depersonalization...the whole gambit. I hate this.
Hi,
OMG you sound like me but i am only 40.......I just went to the doctor's and i cried like a baby,threw a fit and rufused to leave til he would order blood testing for hormonal and thyroid...Well i got my way but he also took my illness now from anxiety/panic attacks to...Bi-polar.....Drugs xanax and depacoke..........lol........let you know what happens...tina





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