TexGuy22
03-20-2006, 02:44 AM
I was just diagnosed with Parkinson's at 24 yo...I am devastated :( I dunno what to do. It means that by the time I am 34 I will be incapacited, since meds only work for 5-7 years. I am thinking about living life to the fullest from now on and by the time I am at my 30's committ euthanasia. I just hope my parents aren't alive to see me die. I can't live with these tremors...I can not hold a magazine anymore. It is horrible. I will soon have to start on meds and hope they alleviate the symptoms. Do u all think that god can help me? Thanks for the answers in advance
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angelkissesx5
03-20-2006, 02:58 PM
My heart broke when I read your post. I do not have Parkinson's Disease but I take care of my Mom who was diagnost in July. I know that I can't say, "I know how you feel" because I think unless you are the one living with this disease, you don't know how it feels. The one thing I do know is that the medications will help you a lot, you will feel better, it will control your symptoms. I also know that God has a plan for everyone and yes he can help. He can give you the courage and the strength you need to fight this disease, He can help you use this disease to helps others, raise money for a cure.........They are so close to finding a cure for PD. You may be the one person that could make a difference in finding a cure. Don't give up, don't let this disease win.........Fight it and fight it hard. Don't look to the future that your life will be over in 10 years. Be hopeful that they will have a cure in the next 10 years and you may be the one to prove it works. Your life it not over..........You need to fight this and not give up.
Pray, Pray, Pray and then pray some more.
God Bless,
Kristine
Pray, Pray, Pray and then pray some more.
God Bless,
Kristine
NHone
03-21-2006, 01:40 PM
Start taking 1200 mg of Co Q10 immediately. Look up Coq10 and parkinsons. It has been shown to stabilize parkinsons. Start now and maybe you can prevent the additional brain damage.
sparrow13
03-24-2006, 04:14 PM
My husband was diagnosed at 49 and his short term memory...well...he has none! Can the CQ10 really make a difference?
Willapp
04-06-2006, 08:32 AM
Can you really get PD that young? I'm only 23 myself and my grandad passed away last year and had PD. I though it was almost impossible to get until late 30's at the earliest.
Are there many reported cases of younger people developing PD?
Are there many reported cases of younger people developing PD?
arva
04-11-2006, 01:53 PM
Sorry to hear your diagnosis. But for someone young like you there are MANY options today and will be in the future. There are more meds tehn ever before, and more surgeries too. and stem cells may be an option by the time you are in your 40s. Many ppl leave with Pd for more than 20 years, those who were diagnosed young, that is. If you are diagnosed in your 70s than the possibility of the 10year window is definitely there.
I would exercise, weight train, keep your muscles active and strong, take your meds, find the best doctor and be an informed Parkinsonian, and live the best life you can.
I would exercise, weight train, keep your muscles active and strong, take your meds, find the best doctor and be an informed Parkinsonian, and live the best life you can.
xpo
04-15-2006, 12:24 PM
Government agency is studying 3 substances possible delaying PD progression. Male, 69, PD 5+ years i take daily 4- l00mg Q-Gel Mega 100 equal to 1200 mg coenzyme Q10, less than $2 daily. My PD is mild and has not seemed to worsen in 5 years. Google for more information.
6foot3
04-16-2006, 09:48 PM
Don't give up !! Too much research going on with lots of clinical trials going on here in USA and in other countries.The goverment has a site ''NIH.GOV'' that list all the clinical trials and also the Pharma /Biotech companies working on this.......
rosie19
04-19-2006, 04:40 PM
Dear TexGuy, It is very normal for you to feel devestated by this kind if diagnosis. I remember being the same way, it will subside and things will become a little clearer. The best approach is a positive one, eventho that may not be your initial inclination. Did you go to a neurologist? Or a specific neurologist that is a "movement disorder specialists", there is a difference. If you have a "National Parkinson's Clinic" at a University near you, make an app there now. 1. They are the most knowlegeable about the most recent of events surrounding medications and clinical trials that may be available in your situation. 2. Don't compare your self to anyone else that also has the disease, the symptoms and progression are sooooo individual no one, not even the best qualified can tell you, this is the way it will be. Exercise will help alot to keep any depression that creeps up at bay. Ok, who is this that seems to think she knows what to do? Yikes, it would take pages to let you know. I will be a brief as I can. I was diagnosed 8 years ago at age 44, 1 year after my father died at 78 from the progressive symptoms of PD that he had for years and years. I am one of seven children, one of my brothers was diag. at age 45, six years before I. I saw first hand the incredible differences between them, and now me. My GP told me to go the USC and their "National Parkinson's Clinic" and I started a clinical trial that I have been in for 8 yrs. the drug is not on the market yet. It is one of many that are in trials, hopefully it will soon will. "Rasagiline" is the one I have taken, indicators have shown that it is slowing the progression of the disease, that's not to say I have no symptoms. I'm not anywhere near being incapacitated as you are fearing in 10 yrs time. I have 3 boy, that I still chase around and take care of as always. My brother fathered a child several years after his diag. so the future should not look so bleak for you, challenging, yes, but certainly hopeful. As you get older you'll see that there are very few people that aren't given challenges in their lives and some do incredible things when faced with adversity. Chin up and check for a clinic near you.!
smitho
04-23-2006, 08:35 PM
My farther has pd.hes had it for almost 10yrs.it has,nt really progressed all he has is a shaking hand. ive heard its really inportant to stay active.it helps slows down the progression.he dosnt take any medication.the only thing he takes is nutricional supplement.he gets it from the usa.its called
essential seven.i dont know if its that.that helping him.but he swears buy it.
smitho.
essential seven.i dont know if its that.that helping him.but he swears buy it.
smitho.
doogie48084
05-02-2006, 06:32 PM
I have a very dear friend that was misdiagnosed for years but had Parkinsons from the time he was 29. he is now 40 and just went in for a battery pack replacement. he has the implant in his brain and has been working near full time for me.
He has also fathered 3 children since being diagnosed.
His early problems were traumatic. He is one of the youngest diagnosed with Parkinsons. Michael J Fox is another that was diagnosed at 30.
He has also fathered 3 children since being diagnosed.
His early problems were traumatic. He is one of the youngest diagnosed with Parkinsons. Michael J Fox is another that was diagnosed at 30.
Poppy03
05-12-2006, 09:57 AM
Hi ,
Don't disspear i was diagonsed at 43 ive had it seven years and still working... I am convinced my postive attitude has helped...im on a drug called carbergaline,and sinmet plus had several changes but we must remain postive for a cure
Don't disspear i was diagonsed at 43 ive had it seven years and still working... I am convinced my postive attitude has helped...im on a drug called carbergaline,and sinmet plus had several changes but we must remain postive for a cure
Canadiangal
07-25-2006, 12:31 PM
Hnag in there buddy. My father in law who is 68 has it. He was diagnosed a few years ago. There are options available to you. Have you looked into any type of surgery? I am still learning about the disease.
My heart goes out to you. Hang in there and be positive.
You are in my thoughts...
My heart goes out to you. Hang in there and be positive.
You are in my thoughts...
mkwll7
08-13-2006, 10:01 PM
sorry to hear. I understand how you feel. I was pretty much disabled from MD at 21.5 years old. Came out of no where basically. I have seen people improve off taking the COQ10 and Phosphatidylserine for Parkinsons. Good luck to you and I wish you the best. I don't know how commonly know it is to take PS but I personally know of a 92 year old who was walking better within 2 weeks of taking PS. No negative and no known side effects as of right now. You might want to give it a try and see what happens. I used it for MD and I'm doing amazing.
Good luck,
Mike
Good luck,
Mike
AtomAnt
08-22-2006, 09:12 AM
Hey TexGuy22,
I am 21 and was diagnosed a few months ago, but I have had symptoms for 3 years. It is tough to deal with at first, but meds do help. It just takes time to get used to taking them and finding what meds/dosage is right for you. Hang in there!
I am 21 and was diagnosed a few months ago, but I have had symptoms for 3 years. It is tough to deal with at first, but meds do help. It just takes time to get used to taking them and finding what meds/dosage is right for you. Hang in there!
loboo
10-03-2006, 04:50 PM
Texguy 22 ...don't give up. My Dad had Parkinson's for nearly 30 years before he became unable to walk .... and that was due to a stroke not the parkinson's. Dig deep find some inner strength and keep going. If you can - don't let it win
Dania1
10-04-2006, 12:36 AM
Listen, you have an excellent chance of being around for a cure since you're so young. Researchers are so close. You need to give yourself more time to deal with the shock of the diagnosis. Consider yourself lucky that you don't have terminal cancer - because that can happen at 24, too. You can do this. You're not being punished or tested - crap happens, and it happens to all of us. Let the people who love you help you through the rough times - and don't stop praying.
kathybourinot
10-29-2006, 02:38 PM
I am soo, soo sorry Sweetie,
It just isn't fair to get this disease so young. When I was diagnosed two weeks ago, I too was devastated; Please have hope!!! This message board will help. We know how you feel, you are not alone. I sat outside the doctors' office and said to God, you know I had plans. I was so angry; but I know God doesn't give us this disease. He can help us through it, I promise. I sent for a C.D. on relaxation and prayer, it really calms the body and spirit down. I am on medication. Before I was on it I was in severe pain every day; but now it is every other day. I have noticed that the people on this board are on much higher doses so tomorrow I am going to call the neurologist and ask him to increase the dose. Please don't give up and don't think about euthenasia. Some people don't get all the bad symtoms and live a long life. Just in two weeks my tremors have subsided a lot. Others don't even notice. I will pray for you and my heart goes out to you. Please rest on days it is bad and the other days have fun!! I joined a movie club where they send movies to your home. It doesn;t cost very much. I just watched "The God's must be Crazy" and found myself laughing out loud and forgetting about the pain. God bless you and take care of yourself. I am sure your neurologist will give you meds to help. I am stubborn and I want you to get stubborn too. Do as much as you can yourself!! Get tough!! God will get you through.
Hugs, Hugs and more Hugs, Kathy
It just isn't fair to get this disease so young. When I was diagnosed two weeks ago, I too was devastated; Please have hope!!! This message board will help. We know how you feel, you are not alone. I sat outside the doctors' office and said to God, you know I had plans. I was so angry; but I know God doesn't give us this disease. He can help us through it, I promise. I sent for a C.D. on relaxation and prayer, it really calms the body and spirit down. I am on medication. Before I was on it I was in severe pain every day; but now it is every other day. I have noticed that the people on this board are on much higher doses so tomorrow I am going to call the neurologist and ask him to increase the dose. Please don't give up and don't think about euthenasia. Some people don't get all the bad symtoms and live a long life. Just in two weeks my tremors have subsided a lot. Others don't even notice. I will pray for you and my heart goes out to you. Please rest on days it is bad and the other days have fun!! I joined a movie club where they send movies to your home. It doesn;t cost very much. I just watched "The God's must be Crazy" and found myself laughing out loud and forgetting about the pain. God bless you and take care of yourself. I am sure your neurologist will give you meds to help. I am stubborn and I want you to get stubborn too. Do as much as you can yourself!! Get tough!! God will get you through.
Hugs, Hugs and more Hugs, Kathy
mimgregg
11-03-2006, 02:00 AM
God never gives us more than we can handle. I watched a special with Katie Couric the other night with Michael J. Fox. He alone has helped to raise awareness and 80 million dollars for private research into this disease. There are advances being made. This may just be a wake up call for you to make the most of the life you are given and leave the rest in God's hands. I pray for a cure. My boyfriend's father has Parkinsons as well as 1/2 of his aunts and uncles. I am taking him for testing next week as it is tremors are starting to affect him (age 35, a welder). I have suffered a brain injury in the last year that has ended my teaching career and ability to function like I used to. ANY major life change will rock your world. How you deal with it is up to you. You have your life ahead of you, no one knows if they have tomorrow though. So live your life like you dream of and enjoy it! You might be on here 30 years from now leading groups in how to stay healthy and maintain while dealing with this disease. Stay positive, pray/talk with God and let him know you need him and thank him for walking with you. He is right beside you, just invite him in. Take care sweetie, you will not be the same as before, but you will be ok.
MimGregg :wave:
MimGregg :wave:
blessedw/yungpd
12-08-2006, 05:05 AM
I was just diagnosed with Parkinson's at 24 yo...I am devastated :( I dunno what to do. It means that by the time I am 34 I will be incapacited, since meds only work for 5-7 years. I am thinking about living life to the fullest from now on and by the time I am at my 30's committ euthanasia. I just hope my parents aren't alive to see me die. I can't live with these tremors...I can not hold a magazine anymore. It is horrible. I will soon have to start on meds and hope they alleviate the symptoms. Do u all think that god can help me? Thanks for the answers in advance
Hey dude,
I have had mine since I was 26... Not as young, but I understand where you are coming from.. I first denied it and used it as an excuse to go buck wild. I figured I.ll be a wheel chair before you know it.. If you take life slow eat right get rest don't stress as hard as it is and find a good doctor.. you will be fine... I am 41 now, I have had the DBS and it helps but I am pretty severe.. But, if I take care of myself and take my meds on time.. I still go dancing, mow the grass and whatever I want.. For me , it takes trusting in the Lord and a spunk that it aint gonna beat me... I strongly feel its from the devil and he trying to convince us God has Forsaken us.. But, God loves us enough to give us no more than we can handle.. And if you knew my past and the way I thought aboout God you know that He opened my eyes..
This passage made me think .. Hope it helps u 2
Life's Struggle
Author: Unknown
A man found a cocoon of an emperor moth. He took it home so that he could watch the moth come out of the cocoon. On the day a small opening appeared, he sat and watched the moth for several hours as the moth struggled to force the body through that little hole.
The moth seemed to be stuck and appeared to have stopped making progress. It seemed as if it had gotten as far as it could and it could go no farther. The man, in his kindness, decided to help the moth; so he took a pair of scissors and snipped off the remaining bit of the cocoon. The moth then emerged easily. But its body was swollen and small, its wings wrinkled and shriveled.
The man continued to watch the moth because he expected that, at any moment, the wings would enlarge and expand to and able to support the body, which would contract in time. Neither happened! In fact, the little moth spent the rest of its life crawling around with a small, swollen body and shriveled wings. It never was able to fly.
The man in his kindness and haste did not understand that the struggle required for the moth to get through the tiny opening was necessary to force fluid from the body of the moth into its wings so that it would be ready for flight upon achieving its freedom from the cocoon. Freedom and flight would only come after the struggle. By depriving the moth of a struggle, he deprived the moth of health.
Sometimes struggles are exactly what we need in our life. If we were to go through our life without any obstacles, we would be crippled. We would not be as strong as what we could have been. Give every opportunity a chance, leave no room for regrets, and don't forget the power in the struggle.
POWER OF THE LORD
Hey dude,
I have had mine since I was 26... Not as young, but I understand where you are coming from.. I first denied it and used it as an excuse to go buck wild. I figured I.ll be a wheel chair before you know it.. If you take life slow eat right get rest don't stress as hard as it is and find a good doctor.. you will be fine... I am 41 now, I have had the DBS and it helps but I am pretty severe.. But, if I take care of myself and take my meds on time.. I still go dancing, mow the grass and whatever I want.. For me , it takes trusting in the Lord and a spunk that it aint gonna beat me... I strongly feel its from the devil and he trying to convince us God has Forsaken us.. But, God loves us enough to give us no more than we can handle.. And if you knew my past and the way I thought aboout God you know that He opened my eyes..
This passage made me think .. Hope it helps u 2
Life's Struggle
Author: Unknown
A man found a cocoon of an emperor moth. He took it home so that he could watch the moth come out of the cocoon. On the day a small opening appeared, he sat and watched the moth for several hours as the moth struggled to force the body through that little hole.
The moth seemed to be stuck and appeared to have stopped making progress. It seemed as if it had gotten as far as it could and it could go no farther. The man, in his kindness, decided to help the moth; so he took a pair of scissors and snipped off the remaining bit of the cocoon. The moth then emerged easily. But its body was swollen and small, its wings wrinkled and shriveled.
The man continued to watch the moth because he expected that, at any moment, the wings would enlarge and expand to and able to support the body, which would contract in time. Neither happened! In fact, the little moth spent the rest of its life crawling around with a small, swollen body and shriveled wings. It never was able to fly.
The man in his kindness and haste did not understand that the struggle required for the moth to get through the tiny opening was necessary to force fluid from the body of the moth into its wings so that it would be ready for flight upon achieving its freedom from the cocoon. Freedom and flight would only come after the struggle. By depriving the moth of a struggle, he deprived the moth of health.
Sometimes struggles are exactly what we need in our life. If we were to go through our life without any obstacles, we would be crippled. We would not be as strong as what we could have been. Give every opportunity a chance, leave no room for regrets, and don't forget the power in the struggle.
POWER OF THE LORD
mlwallin
12-09-2006, 01:52 AM
Pull yourself up, or find an optomistic friend to help you. You might be one of the lucky ones. I was diagnosed almost 8 years ago, and am on minimal drugs today. Every day, you have to wake up in the morning, and be happy about what you CAN do today - not worry about what you may NOT be able to do tomorrow. My favorite Parkinson's doc said attitude and outlook are everything. I might add laughter and faith to that mix. Think outside yourself. The ability to put others first will breathe life into you. And above all, remember that doctors and other health care givers are there, not to manage your life, but to give you advice. Learn as much as you can from reliable sources, but remember - it's ultimately you that are in control of your health.
chasecandy
12-14-2006, 02:54 AM
Hi,
I am sorry to hear about your dx. I was dx in 1996 at 44yr. My mother also had pd. Whe was dx at 36 and lived to be 76. Only the last few years of her life was she incapacitated. First off, go and see a motion disorder specialist, they are more specialized than neurologist. Educate yourself about the disease, talk with other parkies. PD is not a death sentence, you can live a pretty full life. Mental attitude is also very important. Depression comes along with this, do not be afraid to get something for depression.
Best of luck to you
Candy
I am sorry to hear about your dx. I was dx in 1996 at 44yr. My mother also had pd. Whe was dx at 36 and lived to be 76. Only the last few years of her life was she incapacitated. First off, go and see a motion disorder specialist, they are more specialized than neurologist. Educate yourself about the disease, talk with other parkies. PD is not a death sentence, you can live a pretty full life. Mental attitude is also very important. Depression comes along with this, do not be afraid to get something for depression.
Best of luck to you
Candy
Bionicmatt
01-04-2007, 06:49 PM
Hey, that must have come as quite a shock but all is not doom and gloom. I'm 38 and have had pd for 30 years. I work full time and have recently had deep brain stimulation which has helped me be mobile nearly all day. We are all capable of amazing things if we believe! good luck
barb70
01-05-2007, 07:19 PM
I'd like to suggest that I found it very helpful to both me and my husband who had PD for over 25 years to join a support group. They are located all over in almost every city. We both learned so much from that group listening to various speakers and when we found there was a cruise every year for PD patients we managed to go on several and make friends from all over the country. My husband joined one of the PD walks that traveled all along the East coast. We raised money on our own for research and went to several National conventions. There is nothing like support from others in the same boat you are in. Hang in there and do what you can to not only help yourself, but others. You will find it very rewarding. I wish you the best.