StephanieAnne
03-27-2006, 09:32 PM
After reading about handwriting problems, I got to thinking what bothers me the most or what frustrates me the most day to day [other than the fatigue, and numbness, and balance probs, taking med's, eating healthy, exercising] it is organizing
I find that projects or stuff that I could do before MS I am not hesitant to do? Like crafting, or creating something, or even repotting house plants?? I fear not being able to accomplish task's that I could do in a snap before. I just don't want to live with a bunch of half done projects, that is how I feel I live now :confused:
Once I get my husband packed up and to his truck, my kitchen is a mess [I try to cook for him so he can take homemade food on the road] and it takes days to get it back to normal. It is frustrating but no matter how I try to stay organized, I can't .......... WOW :bouncing: I just realized something, what it is that bugs me, not being organized :eek:
I have always prided myself w/my organization skills and now I am having a difficult time, has this happened to anyone else? I guess I feel like I have lost control, and because of that, I am hesitant to do what I like to do, hesitant because of the mess that I will make, and something more to clean up and wow, I could have just spent $$ at the therapists office to figure this out. So now what to do... maybe I should do the baby steps thing and do one project at a time, no timeline, no stress, 1 thing per day???
OK so now that I owe ya all a copay for being my therapists and giving me a outlet to figure things out, thank you
So does anybody else have the fears that I have?
I find that projects or stuff that I could do before MS I am not hesitant to do? Like crafting, or creating something, or even repotting house plants?? I fear not being able to accomplish task's that I could do in a snap before. I just don't want to live with a bunch of half done projects, that is how I feel I live now :confused:
Once I get my husband packed up and to his truck, my kitchen is a mess [I try to cook for him so he can take homemade food on the road] and it takes days to get it back to normal. It is frustrating but no matter how I try to stay organized, I can't .......... WOW :bouncing: I just realized something, what it is that bugs me, not being organized :eek:
I have always prided myself w/my organization skills and now I am having a difficult time, has this happened to anyone else? I guess I feel like I have lost control, and because of that, I am hesitant to do what I like to do, hesitant because of the mess that I will make, and something more to clean up and wow, I could have just spent $$ at the therapists office to figure this out. So now what to do... maybe I should do the baby steps thing and do one project at a time, no timeline, no stress, 1 thing per day???
OK so now that I owe ya all a copay for being my therapists and giving me a outlet to figure things out, thank you
So does anybody else have the fears that I have?
Sponsor
duttin
03-27-2006, 10:10 PM
StephanieAnne,
You're not alone.In the last year my house has went you know where real quick.I am slowly getting it back in order.I take each day at a time and try to get at least one extra thing done a day that I normally wouldn't do.Sometimes it takes me foeever to accomplish a task,after thinking about it,that don't matter.Its the sense of knowing that I accomplished it.
I also try to stay organized,somedays it just don't happen.
Toni
You're not alone.In the last year my house has went you know where real quick.I am slowly getting it back in order.I take each day at a time and try to get at least one extra thing done a day that I normally wouldn't do.Sometimes it takes me foeever to accomplish a task,after thinking about it,that don't matter.Its the sense of knowing that I accomplished it.
I also try to stay organized,somedays it just don't happen.
Toni
lestoby
03-27-2006, 11:05 PM
Ladies,
Do yourself a favor and get a "Roomba"! I just loooooooovvvvvvvvveee my automatic vacuum cleaner. With 2 dogs, I could literally vacuum my house everyday and now I can without ever getting up from the couch.
My house is messier now (and I am/was the most organized person I know) then it ever was, but now it is more of a motivational problem and lack of caring about the little things in life.
I too, try to tackle at least one task a day, so that I feel like I am contributing to my family and society as a whole. But mainly, it is getting motivated to get out of the house, but once I am out, I am glad that I did, but then I get tired easier.
Do yourself a favor and get a "Roomba"! I just loooooooovvvvvvvvveee my automatic vacuum cleaner. With 2 dogs, I could literally vacuum my house everyday and now I can without ever getting up from the couch.
My house is messier now (and I am/was the most organized person I know) then it ever was, but now it is more of a motivational problem and lack of caring about the little things in life.
I too, try to tackle at least one task a day, so that I feel like I am contributing to my family and society as a whole. But mainly, it is getting motivated to get out of the house, but once I am out, I am glad that I did, but then I get tired easier.
lily1954
03-29-2006, 12:47 AM
:wave: Hi everybody. Nothing was organized at my house because of fatique so bad i didn't get off of the couch except to go to bed. My dr gave me wellbutrin and b 12 shots and off the couch and organizing. Not only did i get organized i got rid of the things i can't do now. Magazines, craft projects, needle work, and stuff i didn't want to dust anymore. I left a couple favorite projects that i may or may not do. I feel good organizing things. You see my worse symptom is a brain leison that keeps me from understanding what i am seeing or remember what i did, literly a second ago. So baking is out without help i guess cooking is out too but you won't see a better organized spice cabinet or cabinet drawers. This is also something i can do that won't cause a lot of pain and fatique. lily1954
lily1954
03-29-2006, 01:00 AM
Gosh, I made it sound like i was superwoman, :eek: well no I'm not. I took baby steps too. One drawer one day. Desk another day and then back to the other drawer i forgot i was working on them, then cereal and snack shelf and back to the other kitchen drawer. I wander around and usually organize as i see something and then one day you notice everything is done except the last two kitchen drawers. I do other chores between the little jobs and sometimes when im tired i only do one little job for the whole day. I have also been working on my plants its something i'm able to do. I'm even trying bonsai. thanks for listening. lily1954
LaLady
03-29-2006, 02:13 AM
I am so happy to read this. I became sick exactly one year ago and I had been so tired that my house was already a wreck. I had to move in with my Mom for 3 months cause I just couldn't function.
I am just now trying to get my house back together. Every night I make a list of what I want to accomplish the next day. HA! I am lucky to get one thing done on the list. Today I made cards that say FLARE to put in each room to remind me that when I relapse, I want the house to be bearable.
I too need to part with things that I will never be able to do. It makes things seem so definite but I have to simplify my life. One day at a time......
I am just now trying to get my house back together. Every night I make a list of what I want to accomplish the next day. HA! I am lucky to get one thing done on the list. Today I made cards that say FLARE to put in each room to remind me that when I relapse, I want the house to be bearable.
I too need to part with things that I will never be able to do. It makes things seem so definite but I have to simplify my life. One day at a time......
StephanieAnne
03-30-2006, 05:38 PM
Great to read that others have this problem too, I think it bugs me the most of any of my MS problems, and I also try to do one thing a day, and that does help, as long as I look at the big picture and not just one little thing that I accomplished then I don't feel so defeated.
Back in Nov 2004 after a 5 day Solumedrol Infusion and I had lots of energy, I bagged and boxed up so much stuff that we had not used in a long time and I had my hubby take it to the Rescue Mission, the following fall, when I realized that all of my work clothes were just hanging there, I decided to donate those also, I figured that there had to be someone just starting in the work force who could probably use my clothes, it was difficult to donate them, but then again I looked at the Big Picture, and I was sure that someone would be so happy to get them.
Now onto repotting my house plants :) wish me luck
Back in Nov 2004 after a 5 day Solumedrol Infusion and I had lots of energy, I bagged and boxed up so much stuff that we had not used in a long time and I had my hubby take it to the Rescue Mission, the following fall, when I realized that all of my work clothes were just hanging there, I decided to donate those also, I figured that there had to be someone just starting in the work force who could probably use my clothes, it was difficult to donate them, but then again I looked at the Big Picture, and I was sure that someone would be so happy to get them.
Now onto repotting my house plants :) wish me luck
dwallech
03-30-2006, 05:58 PM
I am new to this MS and just got out of the hospita. I too used to be able to do it all. As a single parent years ago I worked three jobs and a hundred hours a week. I find it hard to get one extra task done a day, but try to do it as I am one who was always organized. I too got rid of things and projects I know longer do. I cannot miss what I don't have and it doesn't aggravate me to have it there and not be able to do it. I have notes for just about everything for each day as I have nerve damage in the brain caused by two mini strokes and can't remember if something is on the stove. I do a lot of cooking by microwave as I can set the timer on it and it will shut off automatically unlike the stove. I am anxious for any help anyone can provide about MS. I have Mixed connective tissue disease (lupus, schleroderma etc) and Mitral Valve prolapse. The nerve damage in the brain is causing migraines and irregular heart beat (which are both rx prescriptions for), but I am tired beyond tired. I also have hyperthyroid. Does anyone else think like I do that I have one massive immune problem? Just take one thing at a time in small steps if need be as the end result is you will feel better for having accomplished it in the end. Hope this helps :wave: