im on about 7 months now, had it since sept. of 05.. anybody else like me or longer? sometimes i feel like im the only one with this crap. esecically when the nuerotologist says most people shake it in 4 to 6 months.. makes me feel just great.

scott

It's been 15 months for me.....

anybody else?

scott

Its been 10 Months for me.... But I am doing alot better. Actually it was kind of weird as I started to feel better pretty quickly..... I had stayed the same for sooooo long, then bam, I had a change.

Tummy

Hi Sco24

Its been 18 months for me since the onset of symptoms. That is, first 5 months of lightheadedness/dizziness, then nearly 6 months of 24/7 dizziness, feeling off balance, anxiety etc, then 5 months of being 95% recovered and back to work, then a decompensation period after a cold of 6 weeks, just gone back to work this week though still feeling off balance!

Dr. Rauch states something between months to Two Years...

Obviously this depends on each person, it's treatment, and additional factors suchas migraine(migraneurs take longer), anxiety(one huge factor against compensation). sinus-colds, you name it.

I started 16 months ago, on November 2004, with a quick recovery, and a 2005 almost free of symptoms, besides a mild decomp on June 2005, and now a huge one at the end of January 2006, till date... with days or hours when I fell 95%-100%, to hellish day where I feel like at 70-75%.

I blame it to leaving VRT almost completely before the initial six months, a sedentary life, my Migraine history, and my allergy-sinus-cold(chronic) history too. So as I mark the 24 months as my goal(considering all of this), And now I'm adressing each possible decomp cause one by one, to help the speeding up of my recovery.

As I told in the other post, a simple acummulation of fluids(mucus) in the inner ear, due to sinus/cold, could be all you need to have a huge decompensation, while you`re still recovering.

Hi Scott,

I've been dealing with this stuff now for 2 years and 7 months. During this time I've had two extended periods of feeling 97%. For me decompensation is a reality that I have to either wait out (ie, supposed to occur less and less over time) or see a specialist and work on VRT that eliminates the visual triggers. Every time I've relapsed, cranking up the dose of an SSRI has brought me back. I should mention that the first 97% patch was achieved after about 15 months.

Cheers...Scott :cool:

Hi Scott,

I've been dealing with this stuff now for 2 years and 7 months. During this time I've had two extended periods of feeling 97%. For me decompensation is a reality that I have to either wait out (ie, supposed to occur less and less over time) or see a specialist and work on VRT that eliminates the visual triggers. Every time I've relapsed, cranking up the dose of an SSRI has brought me back. I should mention that the first 97% patch was achieved after about 15 months.

Cheers...Scott :cool:

Hi Scott.

I was wondering what kind of VRT do you have for the visual triggers you mention. And do you only have "visual" decomp now?

And does any doctor told you why does your decompensations seem so strong, after all this time? (I´ve read your posts on them). Because it seems that in some cases(like the bike one) that kind of stimuli should function as VRT of sort, and eventually it should help you more than hurt you, am I right?

And since you got to te 97% mark, won´t you have something tampering your total recovery like subs did?

Hi Star,

>>>I was wondering what kind of VRT do you have for the visual triggers you mention. And do you only have "visual" decomp now?

I do no VRT at all other than my daily routines. But I try and do exercise and have been getting back on my bike again. Yes, it seems like the main problem is visual for me. New LCD screens are definitely out and the worst offenders. I believe this last decomp event was triggered by a return to drinking caffeinated coffee (ie, a drug really), some very brief visual input on a new LCD screen and stress over my thesis. I think I will need to pursue some sort of VRT though. Hbep was told to paly video games on her PC - maybe tracking objects on a screen will help me too.

>>>And does any doctor told you why does your decompensations seem so strong, after all this time? (I´ve read your posts on them). Because it seems that in some cases(like the bike one) that kind of stimuli should function as VRT of sort, and eventually it should help you more than hurt you, am I right?

Yeah, it does seem unusually strong. But then the sort of decomp Tesss and Firechick have described may be similar to mine. The problem that seriously complicates mine though is the clinical anxiety that eventually kicks in with it. I just seem to descend further and further into it. Even though I know it all well and don't fear it, my body still ends up in a heap with these decomp events. The bike event was a more normal reaction for me...in the end it burned off after about 6 hours. The second time I road my bike (a week later) I had no effect apart from some dysequilibrium. So perhaps that has begun to lock in again and it has helped.

>>>And since you got to te 97% mark, won´t you have something tampering your total recovery like subs did?

For the last 8 weeks I have been getting numerous herpes attacks from the long hours of sitting at the PC. It's a catch 22 for me here. One SSRI side effect I get is increased and easily inflamed muscle tissue. So sitting causes me to get a sore butt after about 6 hours (depending on the chair). That, in turn, starts a herpes attack almost immmediately which throws big decomp at me for days (I feel alien and vision becomes messy). So given the non-stop herpes attacks of late (they came weekly) and the stress of hitting the deadline have all held me back in a big way. Now that I am out of that situation, there's no reason I should not achieve 97% again. I'll keep you posted!

Where are you at presently on a percentage scale?

Cheers....Scott

Hi again Scott.

Well it seem that you have a lot of offenders which are hindering your total recovery, that could explain all the situation very well. Obviously anxiety is your worst enemy.

Answering about my case, I´m currently "unlocked" because on top of my actual decomp, wich started at the end of january, I've been on and off, but actually recovering, until a food poisoning about 15 days ago, mixed with my perennial allergy-sinus trouble, which aggravated since last week, I believe by the beginning of the spring.

So I'm feeling like 80-90% right now, with brief lapses during the day when I'm a-ok, and some others where I feel like hell. Curiously I tend to feel worse in an "unchallenging enviroment", like home, and sometimes even sitting, but I can cope quite fine both driving(even at night), at the mall, at grocery store, and such.

My neoroto gave me an appoinment with the ENT, so I'm taking the usual "dizzy route" backwards, since she said that my main offender is this allergic-sinus-cold stuff, which is my main injury suspect, and my main tampering factor for recovery, so I need to adrress this.

So as I'm all clogged up in my head, nose, and throat, this obviously is giving me hell right now... Curiously enough, as I presume(unfortunately there is no certainty on this) that my vestibular injury started on November 2004, and even as I 've had some mayor cold-sinus-stuff last year, and another food poisoning(sounds like a trend for me) I've only experienced mild decomp episodes last year, nothing as strong and enduring like this one.

The only real difference betweeen years is that I was much more active last year, exercising and all, so I believe that was a factor for feeling better, but since time is a healing factor, and unless this decompensation factors have an accumulative effect, I'm clueless in knowing why my actual decomp feels quite worse than last year's episodes...

All the stress related to this has already produced me some TMJ symptoms, wich also pushed my recovery down, and since I'm also a migraneur(even as I've been free from headcaches for years), is something that adds up to my tampering equation, so now I don't want to get into the anxiety bandwagon, to make things worse.

Lastly as I've read on what Hbep was encouraged to do, I'm playing videogames, and aside of the fun of doing it, I can tell that even as visually challenging as they seem to be, I've never felt dizzy playing, and I even got the feeling that they helped me to "take out" my dizziness during the time I'm playng, and I feel a mild relief afterwards.

That's my current situation right now.... ;)

HI...I have had for 16 months. A lot better now, but I still get the occasional swaying and nausea, but it doesn't last for as long as it used to. I also still feel wierd in grocery stores and busy carpets. I find that exercise helps and keeping stress down. Beleive me when we all say that anxiety plays a big role. My problem over the past 16 months (more so in the first 12 months), I was convinced I had something worse (like MS or something) and didn;t believe the drs. But I got second opinions and kept pushing for tests and keep going on this board and it helps. I never went to VRT, but maybe would have felt better if I did sooner...

that's interesting star, when i play video games too i normally feel better after im done for a little while..

scott