My neuro put me on three times the dose of Trileptal (I moved, and wound up in the ER from stress and being over medicated), he asked me why I lowered my dosage,I was taking previously, had some bad reactions to that, so he suggested taking the normal dose one day, and the raised dose the next day. Because of this I've had problems sleeping, so I've been drinking a lot of energy water, caffiene...Didn't have a problem with it until yesterday. My boyfriend brought home an energy drink and within five minutes of finishing it, my face started tingling and it progressed to the rest of my body...Lasted well into the night. That's always been a sign of seizure activity. Anyone else ever have this problem? Any help would be greatly appreciated.

And yes, I know I need a new neuro!!!

some of the herbs in the energy drinks can cause problems. Check the bottle and see whats in it. Ginsing is a common ingredient. the RED drink, or a clone of it may be problamatic. Some may use Echinacea, even Black Sampson. All effect a person diffrently and different parts of the bodies chemistry.

AVOID the herbal supplimented drinks if you are unsure if you can take them.

--Travis

I can't take any herbal or energy pills without having problems. Most meds come from some sort of plant source, that is broken down and the key ingredient isolated from it. A very common cardiac drug comes from foxglove flowers, and belladonna (used in some gut meds) comes from deadly nightshade.... not stuff to play with.

I don't touch energy drinks with a 10 foot pole lol. I drink Gatorade during the summer if I'm outside, I seize more when I'm dehydrated.

Hubby is allergic to engery drinks, they aggravate his arrythemia.

Kat

Yeah, Gatorade is about as 'strong' as I drink- lol- the other stuff just isn't regulated (the herbs, by the FDA), so you really don't know what you're getting.

Thank you all for the help. I saw my neuro on Wednesday to have an EEG done. My sodium and protein levels are low, so he wants me to start taking an herbal supplement. I read the posts on here and felt like throttling him...'course that might also have something to do with the fact that he doesn't remember how much medicine he put me on, and lost an EEG from last year...Anyway. That's one of those times when I have to go against medical advice.

Maybe ask your neuro some pointed questions, about the FDA not regulating anything herbal, your concerns about interactions, etc...you have the right to that info from the doc. Some may be fine (valerian is the mirror opposite of the drug in valium- not the same, but has some similar properities). But I'd be nervous too.

Before you jump on the herbal regiment, My doc ran a test when they did blood levels a few years back. We found out I had low levels in a few catagories, and boarderline in one I think. Others came out satisfactory.

What he suggested was a VITAMIN. He told me to take a daily vitamin, left it up to me to pick the brand, to make up the diff that the medications may be draining from my system. The brand I bought said to take 2x a day.

Now stating this, have you been taking a daily vitamin? (one of those all catagory types)

Ask your Doc if THIS concept may help your situation.

--Travis

Yeah, vitamins have to have the amounts speicified.....as far as sodium and potassium, get some chips and orange juice ! !! :) But I'd be very leery of the herbal stuff that isn't regulated, just because of interactions with regulated "real" medications. Herbal stuff has real effects, and some you don't want.