Does anyone think this might be a form of Simple Partial Seizures?
If these are infact Simple Partial Seizures, does anyone else get them in the patern I describe? In that cyclical fasion?
Also, again, if they are SPS's, how long after getting them do you feel strange? It takes me about 4 days after to completely feel normal again.
and lastly, can everyone descibe breif detail their SPS's?
I appreciate any feedback, thank you.
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kayakmom
04-08-2006, 09:47 AM
It is not uncommon for people with simple partial seizures only to have normal EEG and MRI. Did you have any episodes while the EEG was going on? Have you had a Video EEG or an AMbulatory that lasted a couple of days? These have a better chance of catching what it is if they occur frequently enough.
It is very tricky to figure out since all the things that occur are sensory and internal.
My son has simple partials, used to have them more often. Now he tends toward complex partials and unconsciousness.
The sensory simple partials he had included a sudden stomach ache, sick feeling, confusions, agitation as well as hand tingling. I am not sure if he ever had the deja vu often.
You mention headaches after, did you ever have an intense need to sleep?
Did the neuro feel that these could be simple partials or was he feeling something else was going on?
trial of anti anxiety med (Zoloft, Effexor to name two) might be worth a try. Celexa or Amitriptilan are anti depressents that might be worth a try. Sometimes a neuro will try a trial of a seizure med to see if the symptoms ease, even with a clear EEG. TOpamax and Lamictal have some mood stability effects....
I hope you can get answers!
bettyst
04-08-2006, 10:26 AM
I am not for sure what kind of seizures Tripp has...but he will turn his head to the left...sort of space out for a few seconds then repeat over and over...I'm okay" then he is fine and goes about what he was doing...I notice if he is eating or drinking something...it will dribble out his mouth.
He recovers rapidly!! He had 5 of these yesterday...weathe was bad...
john555
04-08-2006, 11:50 AM
Hmm, well both my Doc and Neuro both suspect a form of Migrane, but I highly dought that.
They have never mentioned SPS's until I mentioned it to them, and they still don't beleive its that.
I think I gotta give a few anxiety meds a try, see what happens.
gordie12
04-08-2006, 01:46 PM
John,
I have the EXACT same symptoms (only mine occur only once a day but like clockwork, they are exactly 30 days apart).....
I have been searching for years for an answer and I was finally diagnosed as having simple partial seizures. Interestingly enough, Tegretol used to work for me but is not working anymore....My MRI and EEG were all fine too.....
The only thing that may be slightly different is that I don't know if I quite have deja vu, mine is thoughts that rush into my head and then leave after. They are the same each time but I never remember what they are (if that makes any sense)...I get the stomach upset, the hot face and then I get a headache after, not tired but I do get a headache.
The migraine thing is very interesting because I had two days in a row of these episodes and then the other night I had the worse migraine of my life, I was up most of the night vomiting and my head felt like it was going to explode.
I don't know if this helps you because my doctor seemed reluctant to diagnose me with Simple Partials, there just didn't seem to be any other explanation.
gordie12
04-08-2006, 01:52 PM
John,
I also wanted to mention that I take Lexapro (an antidepressant) and Klonopin (for anxiety) and both aren't really working. My psychiatrist is not convinced it is simple partials, he thinks it's anxiety and panic but I don't believe him.
Actually, I felt the best when I was just on Tegretol alone as far as my anxiety goes and as someone said, it is a mood stabilizer.
Best of luck to you :)
wheezie_66
04-08-2006, 07:29 PM
I get the exact deja vu feeling.........my simples cluster......4-7 a day for 3 days. This has been going on for over 20 years for me. I do suffer from depression for which I take meds (this has had no impact on the seizures) and I also occasionally get a migraine. As I have monitored my patterns, the most common denominator for me is balance in my life. Regular sleep, ability to manage or control stress. I suffered from some pretty severe abuse as a child. My psychologists feel the seizures have more to do with me swallowing emotions as opposed to expressing/dealing with them. I am starting to have some very important therapy breakthroughs in the past month and am finally allowing the little girl inside me to feel intense emotions.
My other symptoms are extreme nausia, fatigue, loss of short term memory. I have chosen not to seek out medication to assist with my partials as I am still frightened of being 'labeled' and losing my drivers license. Ihave never lost conciousness. I too have been tested many times. Clean MRI (no abnormal vessels or cells). I have been through a million eeg's. Not much appeared except a number of years ago they were able to determine that I do have an abnormality in one of my frontal lobes. They figure it was the result of an incredibly difficult delivery (my mother and I almost died). I don't know if I am giving you any advice or assistance, other than to say.....you are not crazy..........your seizures are real.........perhaps you should try to determine if there are any common denominators in your life between the seizure periods and during them.
I wish you all the best
e.
john555
04-08-2006, 10:17 PM
Gordie and wheezy, thanks for your input.
We need to share a bit more on this topic, its really good to finaly find others with similar problems.
Im in the middle of a meeting right now, but I will be back tomorrow to talk some more,
thanks.