Gabbygirl06
04-22-2006, 02:24 AM
I'm new to this site, new to posting and just posted in cervical and overian. I have been seeing a doctor for ovarian cyst since the beginning of the year. I am 36 years old and a mom of a 13 year old boy. I was always regular on my periods every 25 days. In Jan, I wasn't. I had my period for one day. I felt very bloated and crampy for the next few weeks. Then I had my period again and lasted 2 weeks, haven't had one since. I went my primary doctor and he sent me for an ultrasound. Found a cyst on my left ovary. Repeated the ultra sound in March to find I now have 5 ovarian cyst- 3 in left ovary and 2 in right. Stabbing pains when I sneeze, cough or yell. For the past 6 months or so I have been unusually tired, especially around the time I should receive my period. I also am very crampy, am extremely bloated- I look like I am 6 months pregnant, have a hard time sleeping, have night sweats, feel like I always have to to go to restroom- and cant hold it and never feel like I am totally relieved and its hard for me to make a bowl movement- sorry for being so graphic. I am missing a bunch of work because I am so tired and always feeling so sickly. They also found a bunch of fibroids in my uterus. Finally I saw a great new obgyn this week and he spent time understanding what was going on, I told them him most except for the bowel thing, kinda embarrassed. He said he wanted to do his own ultrasound to see where the blood was flowing to the ovaries and said it looks like for sure surgery. Just weather it was him or an oncology surgeon, he explained they are more aggressive. Have a follow up this Tuesday to go over options. Since the ultrasound I have more pain than usual. Dont know if they could have hit something, not sure but the pain is making me sick to my stomach and sweat. Taking loritabs they prescribed me, they are kinda working but still have a lot of pain. Just hoping someone knows how I feel.... I appreciate any replies, I am getting sad as I just want an end.
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PANTHERA25
04-22-2006, 07:06 AM
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PANTHERA25
04-22-2006, 07:09 AM
:wave: Hi Gabby, I am 24. I have been having pain like that when I yell, cough, sneeze on both sides of my pelvis but I know it's my Uterus.
Just want to ask you when you have your periods are they heavy when you get them because mine are and it feels as if I'm in LABOUR, it's horrible,the blood unusually a dark maroon color with a few clots and then it's bright red and heavy flow (sorry to be graphic).
I also have trouble before period time as I get moody about a week before it happens to the point of having a breakdown....it's not nice at all.
I also swell up (lots of fluid), I go up about a dress size for a week. I also feel sick, the middle of my belly just under the ribcage near my breastbone swells and is firm and tender to touch.
Then to make matters worse for the 1st day I will be constipated to the point of not being able to pass my faeces sometimes and then the day after I will have diorreah until my period finishes which is about a week. I also can't hold my bladder, slight bladder weakness (giving birth to 2 kids did that).
I would like to know what your diagnosis is so I know what to expect when I see my GP as what you are going through sounds exactly like what I am going though.
I hope it gets better for you though, I hate pain as well even though my pain threshold is high, sometimes I wish I wasn't female, males just don't understand.
Just want to ask you when you have your periods are they heavy when you get them because mine are and it feels as if I'm in LABOUR, it's horrible,the blood unusually a dark maroon color with a few clots and then it's bright red and heavy flow (sorry to be graphic).
I also have trouble before period time as I get moody about a week before it happens to the point of having a breakdown....it's not nice at all.
I also swell up (lots of fluid), I go up about a dress size for a week. I also feel sick, the middle of my belly just under the ribcage near my breastbone swells and is firm and tender to touch.
Then to make matters worse for the 1st day I will be constipated to the point of not being able to pass my faeces sometimes and then the day after I will have diorreah until my period finishes which is about a week. I also can't hold my bladder, slight bladder weakness (giving birth to 2 kids did that).
I would like to know what your diagnosis is so I know what to expect when I see my GP as what you are going through sounds exactly like what I am going though.
I hope it gets better for you though, I hate pain as well even though my pain threshold is high, sometimes I wish I wasn't female, males just don't understand.
Gabbygirl06
04-22-2006, 02:08 PM
Thanks for the reply. :) My periods are heavy and when I get them it does feels as if I'm in labor, with the same a dark maroon color with a few clots and then it's bright red and heavy flow, but only last about 2 to 3 days. Before my period I am usually extremely sensitive and emotional and also gain about 7 pounds. How do you know the pain is your uterus? My pain now is extremely low on both sies, and very sharp. My gyn told me to go to the ER when I called yesterday, but I hate hospitals so I am doing everything possible to not go, but I dont think I can take it much longer. I will let you know what they tall me on Tuesday and I hope it gets better for you too! ;)
djl
04-22-2006, 05:59 PM
Hi Gabby
I too dealt whith ovary problems and uteris problems. I suffered with constant massive ovarian cysts and clusters of cysts, plus constant pain like I was always gonna get my period.
I see you have a history of heavy bleeding?? That does come from Fibroids. My mom had them. Also heavy bleeding can also come from Adenomyosis (internal Endometriosis) of the uteris. I also had that. You may also have Pelvic Congestion Syndrome. I had that and causes irregular blood flow and severe cramping.
I have always had problems sice I was 13. I was on naproxen Sodium 550 for my menstral pain sice I was about 22 and was also told to go on the pill. I tried the pill for a couple of months, but didnt like the weight gain and svere mood swings so I stopped. Also when I was 22 I started getting severe ovulation pain.
Eventualy I did go on the pill about 7 years ago because I was tired of taking home preggo tests all the time. I was always very irregular with my cycle.
The pill did help. It got me regulated,it stopped the severe ovulation pain and made my period much lighter. But it did absolutley nothing for the period pain, so I also had to continue taking the Naproxen.
2 years ago while still on the pill i developed severe lower left abdominal pain. It felt like I was ovulating. Was sent for a Transvaginal. It turned out I had a massive cyst on my left ovary. The cysts wouldnt stop.I was living in MRI's having Transvaginals constantly !! Then I was also developing massive pain continuesly, not just during my cycle.
My old OB was no help I suffered for 1 year straight. Found a new OB and had a Laparoscopy and D&C. Found out I had:
severe case of Pelvic Congestion Syndrome
Enlarged and Boggey Uteris (which my old OB new about 8 years ago and did nothing)
my ovaries where covered in blood from rupturing cysts.
I ended with a hyst 1 month after the lap. Actualy it will be 1 year on May 9th since my hyst. Everything removed but my cervix.
Pathology confirmed Moderate to severe Adenomyosis of the Uteris, and enlared ovaries that were full of cysts, PCOS.
I would talk to your doc about possibly the BC Pill. It might help. I would highly recomed a Laparoscopy. Even possibly a MRI. I had my MRI done 8 years ago due to a back problem and found out my Uteris was Enlarged with a mass, and my old OB blew it off saying it was nothing. Obviously it was something. It was Endometriosis of the Uteris.
Do you suffer with Ovulation pain?? Are you irregular? Not to scare you but has anyone did a CA-125 on you to help rule out cancer?? I had one done about 2 years ago when this happened. It is always good to have done especialy if you are having cycts. My old OB didnt give me that test like he should of but my gastro doc did. He was smart enough to look at all the options. My was normal thank god!!
I highly recomened these tests. Talk to your doc about this.
Like I said I suffered with problems since I was 13, I ended up with a hyst at the age of 39. Honestly i dont have any regrets !!
if you have any questions please let me know and good luck on tuesday and keep us updated.
I too dealt whith ovary problems and uteris problems. I suffered with constant massive ovarian cysts and clusters of cysts, plus constant pain like I was always gonna get my period.
I see you have a history of heavy bleeding?? That does come from Fibroids. My mom had them. Also heavy bleeding can also come from Adenomyosis (internal Endometriosis) of the uteris. I also had that. You may also have Pelvic Congestion Syndrome. I had that and causes irregular blood flow and severe cramping.
I have always had problems sice I was 13. I was on naproxen Sodium 550 for my menstral pain sice I was about 22 and was also told to go on the pill. I tried the pill for a couple of months, but didnt like the weight gain and svere mood swings so I stopped. Also when I was 22 I started getting severe ovulation pain.
Eventualy I did go on the pill about 7 years ago because I was tired of taking home preggo tests all the time. I was always very irregular with my cycle.
The pill did help. It got me regulated,it stopped the severe ovulation pain and made my period much lighter. But it did absolutley nothing for the period pain, so I also had to continue taking the Naproxen.
2 years ago while still on the pill i developed severe lower left abdominal pain. It felt like I was ovulating. Was sent for a Transvaginal. It turned out I had a massive cyst on my left ovary. The cysts wouldnt stop.I was living in MRI's having Transvaginals constantly !! Then I was also developing massive pain continuesly, not just during my cycle.
My old OB was no help I suffered for 1 year straight. Found a new OB and had a Laparoscopy and D&C. Found out I had:
severe case of Pelvic Congestion Syndrome
Enlarged and Boggey Uteris (which my old OB new about 8 years ago and did nothing)
my ovaries where covered in blood from rupturing cysts.
I ended with a hyst 1 month after the lap. Actualy it will be 1 year on May 9th since my hyst. Everything removed but my cervix.
Pathology confirmed Moderate to severe Adenomyosis of the Uteris, and enlared ovaries that were full of cysts, PCOS.
I would talk to your doc about possibly the BC Pill. It might help. I would highly recomed a Laparoscopy. Even possibly a MRI. I had my MRI done 8 years ago due to a back problem and found out my Uteris was Enlarged with a mass, and my old OB blew it off saying it was nothing. Obviously it was something. It was Endometriosis of the Uteris.
Do you suffer with Ovulation pain?? Are you irregular? Not to scare you but has anyone did a CA-125 on you to help rule out cancer?? I had one done about 2 years ago when this happened. It is always good to have done especialy if you are having cycts. My old OB didnt give me that test like he should of but my gastro doc did. He was smart enough to look at all the options. My was normal thank god!!
I highly recomened these tests. Talk to your doc about this.
Like I said I suffered with problems since I was 13, I ended up with a hyst at the age of 39. Honestly i dont have any regrets !!
if you have any questions please let me know and good luck on tuesday and keep us updated.
PANTHERA25
04-23-2006, 04:02 AM
Thanks Gabby for the info, I will be going to my doc within the week for a PAP SMEAR and to tell her what's been going on and probably have a few tests to see what's going on....I will also keep you up-to-date on what my diagnosis is when I get it.
:bouncing: HOPE YOU BETTER.
:bouncing: HOPE YOU BETTER.
Gabbygirl06
04-29-2006, 04:20 AM
Hi Again... Went ot my dr on Tuesday, had surgery Laparoscopy fo both ovaries and uterus on Wednesday. YOu were correct, Enlarged and Boggey Uteris my ovaries where filled with multipe cyst, more than what showed up on the ultrasound. Surgery lasted 2 hours and my doctor was able to get each and every one. Surprised to learn hje did not find Endometriosis, but did find Moderate to severe Adenomyosis..
I do suffer with Ovulation pain and have been irregular for only past few months. I have been very tired though, almost to the point of falling asleep at work. We did a CA-125, but showed inclusive. Doc kinda scared me when he said their was blood in the cyst which did not look normal to him. Have you ever heard of that? Of course now I am waiting for pathalogy and am a little stressed waiting. I do feel a lot better, no more stabbing pain. Just surgery feeling now. :rolleyes: I feel bad you suffered for so long. This is really awful, time confusing, and I cant wait for it to be over. My doctor is wanting a hyst and also wants to remove my overiaes, Im just not sure. I only have one son, thought I may want more, but time is getting away from me. How do you feel now after the hyst? DO they have you on daily meds? I really appreciate your reply, sorry it took so long to reply myself, just was really sick there for a while. :wave:
I do suffer with Ovulation pain and have been irregular for only past few months. I have been very tired though, almost to the point of falling asleep at work. We did a CA-125, but showed inclusive. Doc kinda scared me when he said their was blood in the cyst which did not look normal to him. Have you ever heard of that? Of course now I am waiting for pathalogy and am a little stressed waiting. I do feel a lot better, no more stabbing pain. Just surgery feeling now. :rolleyes: I feel bad you suffered for so long. This is really awful, time confusing, and I cant wait for it to be over. My doctor is wanting a hyst and also wants to remove my overiaes, Im just not sure. I only have one son, thought I may want more, but time is getting away from me. How do you feel now after the hyst? DO they have you on daily meds? I really appreciate your reply, sorry it took so long to reply myself, just was really sick there for a while. :wave:
djl
04-29-2006, 02:26 PM
Hi Gabby
I am glad you had the Lap done. At least you got some answers.
As for the blood in the cyst, yes I have had that. I am sure it is nothing, but like anything else it should be checked out.
As for the hyst....well it depends. Adenomyosis is Internal Endometriosis. It is one of the most damaging diseases of the Uteris. Honestly it does not go away unless you remove the Uteris. My doc told me it is worse the Endo. I guess because it realy is Endo, but since it is inside the Uteris you cant burn it off like you can Endo outside of the Uteris. So when they said there was no Endo, actualy you do have it INSIDE the Uteris.
I know my Adeno did damage my Uteris. It looked like I had 2 or 3 c-sections, :eek: yet I never had any c-sections.
I have a question, did you have any problems with your pregnancy?? I did.
As for the cysts, they can be controlled with the BC Pill as well as the ovulation pain too. But the pill only worked for about 4 years for me. Then again everyone is different. I would talk about that option. Also since you do have Adeno (at least that is was the doc thinks and is probably right) I dont know if this could cause any problem with the pregancy. Also if you are so cystic and along with the possible Adeno this may cause infertility problems. Like I said in my previos post, I was so irregular and was always taking the home prego test,(this was going on for YEARS) they would always come back negative. I was most likely having fertility problems. There were plenty of times I should have been preggo and wasnt. Thank god I have my 2 kids at a young age.
Also, the only TRUE way of DX Adenomyosis is through a hyst. The Uteris has to be removed and sent to pathology.
As for how I am feeling?? Well on May 9th it will be 1 year ago since my hyst. I am doing great. Yes I am on meds. I am on 0.05mg Estroderm. This is a low dosage Estrogen HRT patch that I chane 2x a week. I was also eventualy put on 0.25mg of Xanax when needed. I ended up with Anxiety attacks a couple of months after the surgery. I wasnt sure what was happening to me..I though I was having a heart attack, but I was checked out and it was anxiety attacks. They said it is common especialy for woman who are sugicaly forced into Menopause at a young age. The Xanax even seems to help the Hot Flashes too.
If you have any qiesyions what so ever just ask !!! I am happy you had the Lap done!! I am here for yah!!
Debbie
I am glad you had the Lap done. At least you got some answers.
As for the blood in the cyst, yes I have had that. I am sure it is nothing, but like anything else it should be checked out.
As for the hyst....well it depends. Adenomyosis is Internal Endometriosis. It is one of the most damaging diseases of the Uteris. Honestly it does not go away unless you remove the Uteris. My doc told me it is worse the Endo. I guess because it realy is Endo, but since it is inside the Uteris you cant burn it off like you can Endo outside of the Uteris. So when they said there was no Endo, actualy you do have it INSIDE the Uteris.
I know my Adeno did damage my Uteris. It looked like I had 2 or 3 c-sections, :eek: yet I never had any c-sections.
I have a question, did you have any problems with your pregnancy?? I did.
As for the cysts, they can be controlled with the BC Pill as well as the ovulation pain too. But the pill only worked for about 4 years for me. Then again everyone is different. I would talk about that option. Also since you do have Adeno (at least that is was the doc thinks and is probably right) I dont know if this could cause any problem with the pregancy. Also if you are so cystic and along with the possible Adeno this may cause infertility problems. Like I said in my previos post, I was so irregular and was always taking the home prego test,(this was going on for YEARS) they would always come back negative. I was most likely having fertility problems. There were plenty of times I should have been preggo and wasnt. Thank god I have my 2 kids at a young age.
Also, the only TRUE way of DX Adenomyosis is through a hyst. The Uteris has to be removed and sent to pathology.
As for how I am feeling?? Well on May 9th it will be 1 year ago since my hyst. I am doing great. Yes I am on meds. I am on 0.05mg Estroderm. This is a low dosage Estrogen HRT patch that I chane 2x a week. I was also eventualy put on 0.25mg of Xanax when needed. I ended up with Anxiety attacks a couple of months after the surgery. I wasnt sure what was happening to me..I though I was having a heart attack, but I was checked out and it was anxiety attacks. They said it is common especialy for woman who are sugicaly forced into Menopause at a young age. The Xanax even seems to help the Hot Flashes too.
If you have any qiesyions what so ever just ask !!! I am happy you had the Lap done!! I am here for yah!!
Debbie