can you help do you have or know anyone with same symptoms as myself;-
5yrs ago fell asleep for 15mins waking with pins and needles in right foot then it started, went hot and swollen and painful to touch. Went to hospital, Dr did x ray. Dr did't know whether to give me antibiotics ,admit me or send me home,after another Dr looked at me was told to take painkillers and come back in 3 days. struggled to bed woke up next day, no pain but found i had lost all use in my right leg up to my hip. I was admitted to hospital had MRI, nerve conduction tests, blood tests all came back negetive. I also have had other symptoms:-

dizziness
weakness in right hand
tired
muscles in right leg wasted
bladder uncontrolled on occasions
cramps/spsams in good leg

no exact excercises physiotherapist can give me for bad leg as muscles do not work.
confined to wheelchair very frustrating really would like to know whats going on!

Pammy,

Have you had any recent testing?What type of Drs have you seen?I have had similiar problems as you have stated,not to the lenghth of using a wheel chair.Mine started 8 years ago and went into remission and have resurfaced in the last 18 months and I have been seeing a neurologist no clinical diagnosis yet,but many disorders have been ruled out.
Toni

thanks toni for replying been seeing a neurologist with mri and nerve tests coming back negetive she says its in my head ah ah. seen a phychatrist who says nothing to do with their dept it is medical feel like a yo yo between them. my occupational therapist seems to think its between my nerve junction and muscles not responding chemical or otherwise but neurologist just wont take notice of whatever i suggest and wont do anymore testing, that the british nhs.
i know how u must feel not knowing what is the matter.

So sorry for all you have been thru with docs not doing their job in finding out just what in the heck is causing all this.It is obviously not in your head.first thing that I would do would be to stop seeing the neurologist you have been and move onto an actual neurosurgeon.there is a huge difference between the two as far as knowledge and the understanding of what causes what to occur within the nerves and muscles.I have seen both types of docs over the years and as far as actually getting to the souirce of my biggest problems and aggressively treating the issues,any NS wins hands down over any neurologist.they just do not have that same in depth knowledge and understanding of these areas like a NS does,really.

just what areas have you had the MRIs done on?was it the entire spinal column?if not you need to have every area of the spine MRIed from top to bottom,or to the point where you had the other done.the types of symptoms you are describing can also come from a problem way up in the c spine,trust me there.thats where my damage is and i have problems in the same areas you do.

every area of youre spine needs to be evaluated and looked at very closely to see what may be lurking in there.There IS something that is causing this you just need to have a doc that is willing to be aggressive and do all the right things in order to find the culprit.your current neuro does not appear to want to actually do that for you.you DO deserve much better treatment than you have been getting.

if nothing shows up within the spinal column then you go to the brain and take a look in there.there IS something within your body that is actually causing your symptoms and you just have to play detective to find that out.believe me I do know how you feel.What you are experiencing could even be stemming from some form of a vascular formation within the cord itself,this was my problem.I didn't even know it was there til I just went in for an MRI to see which disc inside of my c spine was actually herniated.it was my c 6-7 but thats when they also found this little glob inside my cord as well.it was a cavernoma.

Just from my experience with all of my medical problems and my son,who has also been dealing with many rather serious medical issues of his own,I have found that the best way to deal with any doc is to be a bit aggressive and just to let them know that you are not going to take their crap and be patted on the head and told a bunch of stupid answers to your very important questions.you want and need answers here and I would jkeep pushing things along with all your docs til you can get that Dx.

but I do highly reccomend getting yourself to a good NS.if you happen to live near a good university teaching hospital this would be the best place for you to go at this point.I had my third opinion at the university of MN after being told two totally different things by the last two NSs I had consulted about just what I needed to do about the cav in my cord.I was actually treated by the head of the neurosurgery progrm there and man,this guy had over thirty years of experience behind him and knew exactly what I was dealing with.teaching hospitals would LOVE a case like yours,really.this would make a great teaching experience for all of the neurosurgeons who are being taught there.you also have the benefit of all of those fresh little minds who are hungry for more and more knowledge.

going up to the U of M for me,was the best move I ever made and the only doc who I really felt understood what I was dealing with.i do wish you lots of luck here and hope it is nothing major that is causing your symptoms.hopefully what ever it is can be treated fairly easily.but get thee to a doc who cares.please keep us posted on what you find out.marcia

thanks for being concerned wish docs were. had mri's of head and spinal colum they said ok although that was 5 yrs ago and they are reluctant to do any more. don't know where you are from but in england i think from all people i have talked to they will only do so much unless you are deaths door.
if you push too much they think you are neurotic, which i am certainly not.
getting more useful information from my animals dr (vet) he told me ask re :-
muscle biopsies and explained about nerve fibres connecting up wrong and chemical messages. Told neurologist but just got a very distainful look.
Even when i ask if inflamation in foot was anything to do with full leg not working the day after they cannot answer me properly.
will not give up thanks for your reply marcia...... pammy

Pammy,

Listen to Feelbad,she absolutly correct when it comes to the specialty of the Neurology Departments.If it isn't in one of there specs of a clear diagnosis they dismiss patients as if they are looney.
I have seen Neurosurgeons and their knowledge of the muscular and nervous system superseeds the neurology in our area.
Have you requested your medical records to reveiw what they have documented.They are very interesting.I have just received the majority of my records from various Drs. and specialist and boy does their opinions vary.No wonder I get to the bottom of this.
My prayers are with you and good luck on your medical endevors.
Toni

Please do not be alarmed by this,but you may have MS.It will go into remission and you will feel normal for a long time.It is not "in your head".It is real.I feel sorry for you.Notice I said you MAY have MS.You also may not.I am not your doctor.It can be a spinal cord problem.All I am saying is do not rule it out.Make sure you get answers.Ask these docs everything.If any doctor says it is in your head,tell him/her to go fly a kite and find a compassionate doctor.You deserve no less.