My 16 year old daughter was diagnosed with crohn's disease just recently. They put her on Pentasa. They also sent some blood away for this special test, well we got the results back today, and they were negative. The nurse said that less than 10% of people with crohn's disease come back negative. Does this mean she is among this small group, or does this mean she doesn't have crohn's disease???? Her biggest complaint is pain in her stomach all the time. She has inflamation of the small bowel and the ileum. Her pupils become dilated and won't go back to normal with light shining in them(and they hurt). She is tired all the time. Her Sed rate is high all the time. Her bowels are normal. She has been diagnosed with Lactose Intolerance and she takes pills for that. Changing her diet doesn't seem to change anything except when we increase fiber, it makes her pain WAY worse! We have taken out all milk and all gluten and there was no change. HELP!!!
If anyone has any ideas, please let me know!!!! This has been going on for a year and a half! The Pentasa doesn't seem to be helping.
Kathy