sooty
06-04-2006, 10:50 AM
My son is due to start school in September, should I tell his teacher and the headmaster I have MS? and what about the parents of the children in his class? I'm filling out forms and we have a couple of pre-sessions beforehand so I need to be prepared!! I don't want to alienate myself and my son because people don't understand, but also if I am required to help out as a volunteer for activities maybe they should know?, I just don't know.
Sometimes I think it is like my asthma, I don't go round saying 'hi I'm sooty I've got asthma' but do I need to say that with MS??
What would you do, what are your experiences, any advice appreciated.
Thank you so much.
P.S. like alot of MSers, unless I tell someone, no-one would know to look at me that I had MS!!
Sometimes I think it is like my asthma, I don't go round saying 'hi I'm sooty I've got asthma' but do I need to say that with MS??
What would you do, what are your experiences, any advice appreciated.
Thank you so much.
P.S. like alot of MSers, unless I tell someone, no-one would know to look at me that I had MS!!
Sponsor
duttin
06-04-2006, 12:30 PM
Sooty,
Telling your sons teacher and headmaster would benifit both of you.As far as the other parents I don't know.I had told my daughters teacher that I was going through the testing for MS and I was limited on what I could help with.She was very understanding.I helped with what I could.I done concession stands on saturday mornings for football with a friend who has MS.Just the 2 of us what a pair.on some days we moved very slow.I contribute where I can.Cooking for wrestling matches,feeding the cross country team.I help out when I can go at my own pace.I don't tell anyone that I have MS unless they ask if I hurt my leg,I limp really bad even with the leg braces,then I explain.
Goodluck to you and your son,I remember those days,my second child will be graduating next year.Now I'm showing my age(lol)
Toni
Telling your sons teacher and headmaster would benifit both of you.As far as the other parents I don't know.I had told my daughters teacher that I was going through the testing for MS and I was limited on what I could help with.She was very understanding.I helped with what I could.I done concession stands on saturday mornings for football with a friend who has MS.Just the 2 of us what a pair.on some days we moved very slow.I contribute where I can.Cooking for wrestling matches,feeding the cross country team.I help out when I can go at my own pace.I don't tell anyone that I have MS unless they ask if I hurt my leg,I limp really bad even with the leg braces,then I explain.
Goodluck to you and your son,I remember those days,my second child will be graduating next year.Now I'm showing my age(lol)
Toni
LaLady
06-04-2006, 01:27 PM
I think it depends on what your limitations are. I feel it is no one's business if I have MS. I help with the things I can and if I can't, I find another way to contribute. So I don't stand in the hot sun all day with the bake sale; I bake a few extra things and just say I am not available.
My daughter doesn't want me to tell people, she says they might think I am "using" MS. First and foremost, I do what makes her comfortable. Her close friends know and are great to offer her a ride when I am not up to driving; I give them gas money 'cause it is such a help to me.
I have MS; it doesn't have me.
Good luck! :)
My daughter doesn't want me to tell people, she says they might think I am "using" MS. First and foremost, I do what makes her comfortable. Her close friends know and are great to offer her a ride when I am not up to driving; I give them gas money 'cause it is such a help to me.
I have MS; it doesn't have me.
Good luck! :)