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romanch
06-10-2006, 03:33 PM
Share my story
Hi to all,

My name is Roman and I am a 50 year old man. Approximately in the year 1991, I was diagnosed with an eye disease called Stargardts, which is a kind of Macular Degeneration.
At the beginning, I started to lose my night vision which affected my driving ability and I voluntarily gave up night time driving. I went to all the known hospitals in the city of Toronto and was looking for any kind of treatment, but there wasn’t any available. At the beginning I went into depression and was afraid I was going to get totally blind, but then I decided to fight this terrible disease and was ready to try any conventional and unconventional treatment. I was meditating to reduce the stress level and I was also taking 40 different vitamins a day.
In the year 2000, I went twice to San Francisco for self healing school, where I was introduced to a little device to treat my eyes and a color therapy lamp, I tried them all.
I was researching about any available treatment around the globe: American continent, Europe, Middle East and etc. In April 2004, I went to Israel to see an eye professor which told me that my vision would not get any worse, unfortunately for me my vision got really bad to a point were I had to leave my job and had to struggle with my new condition.
Luckily I live in a great country like Canada where vision impaired people have an organization like CNIB-Canadian National Institute for Blind, where I have been educated with how to cope with the disease as well as providing me with some accessories to make my life easier.
An elderly woman, who I consider an angel, told me about an eye surgeon in the middle of nowhere in Russia, I was very sceptical about him and this place. I didn’t put too much into it and just said in my heart: “No way Russia”. There is nothing available in North America why would there be something available in Russia and in the mountains of Ural-NO WAY.
Six months later, I met a man from Brooklyn, NY who is a medical doctor himself and has RP - eye disease and he encouraged me to join him on the upcoming trip to Russia. In March 2005, I went to Russia and was very much impressed, firstly with the clinic and state of the art equipment and secondly with the professionalism of the staff.
After undergoing intensive tests, I finally met the legendary professor of the eye clinic.
I was told that there is a good chance of preserving my remaining vision and I underwent a small surgery on each of my eyes.
In June 2005, I went again to the same place for a second surgery, but this time two more people went with me to Russia. At the clinic, I met people from different countries and my attention was especially drawn to an 80+ years old woman from Korea, who was a real encouragement for me and my friends.
Doesn’t matter how old you are, every one wants to be able to see.
My two friends and I underwent eye surgeries and rehabilitation treatment in the clinic.
A week later we went through another set of tests and to my own surprise, there was an improvement in my right eye.
I would like to mention that after my first visit to the clinic in Russia, I analysed how I use to live and decided to change my view on life. I am more spiritual that I have ever been before. I believe the science in conjunction with the spiritual energy helped me a lot. The test for Energy level in my body performed at the clinic on my second trip to Russia did show a significant improvement.
After all those years of struggling and loss of vision, there is finally a real hope to stop the progression of vision loss. I believe it is very important to spread the word. There are thousands of people who suffer from different eye diseases and aren’t aware about the hope of stopping vision loss.
If you know some one who has any eye disease, please tell them my story and I’ll be more then glad to share my experience and guide them.

Regards,

Roman email: REMOVED.
Toronto, Canada

P.S. (April 2006)
Since I wrote this letter in July 2005, I went once more to Russia in March 2006 and this time 4 people with different eye diseases went with me.
I’ll be more then glad to share my and my friend’s experience.
If anyone is interested, I will help with the arrangement of the Invitation to the clinic, with getting a Visa to enter the Russian Federation, Accommodation and a Pickup from the Airport and if needed a full escort in Russia.

P.S. (June 2006)
I was informed that one of the persons with very bad condition of RP that had joined my group in March 2006, had an eye check up in his country, Israel. The doctors were very surprised to see a 50% improvement in his angle vision.





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KeelaC
06-11-2006, 08:09 AM
Hello Roman. I'm familiar with Stargardt's from my research of my own similiar eye condition. (I'm also familiar with Toronto and the CNIB :))

Anyway, the most important thing you could have told us, you didn't. What did the surgery involve? What is the doctor doing to patients' eyes to help restore vision? Stargardt's is a genetic disease, so is RP. Surgery for these conditions might not be permanent.
So, please tell what revolutionary methods the doctors there are using.

Keela

romanch
06-11-2006, 10:12 AM
Hi Keela
The main purpose of this letter was to give people some hope..
I was depressed and more then ones I was thinking about to end my life and just because of fear getting total blindness. Some doctors might say you won’t get blind, but I do know personally people that lost all their vision from AMD.
Specifically to your questions:
This Russian professor in 1970 developed a material called Alloplant, they implant the material into the macula.
This procedure won’t bring back lost vision but it will regenerate bad cells in the macula.
By doing this you getting improvement in your vision and the main purpose is to stop the progression of the disease.
Till this day they treat more then 1000000 eyes with different eye diseases.
To me and to my friends, first time that some one gave us hope based on facts and not words.
I will gladly send you more info by email about the clinic and if you have additional questions please let me know.
Regards,
Roman


Please read the posting rules which explain that offering or asking off board contact is not permitted. The boards are to be used for on board sharing, only. The email and private message features are turned off so that use of the message boards remain anonymous. The only contact you may make with members is to post on the board.

moderator2
06-11-2006, 10:14 AM
Please read and follow the posting rules.

 
 
 




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