annieloo
06-13-2006, 01:11 PM
Hi,, I usually post on the ms board.. because all my syptoms seem to point to that.. which is why i went to doc in first place... I have dizziness and fatigue and pain in hips, knees, and arms.. twitching in legs and wierd feelings in head... like chills or static in my head... also bad sinus pain and ear pressure.. I cant sleep at nite because of all the pain in my leg.. all tests so far neg.. brain mri came back showing a small benign cyst in center of brain..nuero says its nothing to worry about and all my symptoms will go away on their own... he doesnt think i have ms... im gonna get another opinion, but just courious if anyone has ever had cysts on the brain and what typer there are.. and if i should be worried or not!! i cant find much info on web.. thanks, annie
cookie415
06-15-2006, 11:23 PM
Hi -- I have to say, without a thorough explanation of his reasoning, I would find it very strange for a neurologist, or any dr, to tell you that a cyst on your brain is "nothing to worry about."
I am going in for an mri tomorrow, neurologist suspects acoustic neuroma (benign tumor) which typically start within the internal auditory canal but can grow to move into the brain cavity. From what I have read, about 25% of the cases of diagnosed acoustic neuroma are "watched" to determine if they continue to grow or cause other problems for the patient.
That being said, I would most definitely seek further explanation of exactly WHAT type of cyst you have and why your dr feels that it is ok to simply not worry about it. And, if it were me, I would seek a 2nd opinion. Come on, it's your brain!!
Cookie
Ga Lady
06-17-2006, 10:38 AM
Hi,, I usually post on the ms board.. because all my syptoms seem to point to that.. which is why i went to doc in first place... I have dizziness and fatigue and pain in hips, knees, and arms.. twitching in legs and wierd feelings in head... like chills or static in my head... also bad sinus pain and ear pressure.. I cant sleep at nite because of all the pain in my leg.. all tests so far neg.. brain mri came back showing a small benign cyst in center of brain..nuero says its nothing to worry about and all my symptoms will go away on their own... he doesnt think i have ms... im gonna get another opinion, but just courious if anyone has ever had cysts on the brain and what typer there are.. and if i should be worried or not!! i cant find much info on web.. thanks, annie
AnnieLoo,
When I was 19 years old my Papa passed away from a malignant brain tumor. Afer his death, I went through a hypochondria spell thinking I had onealso. So to give me peace of mind, my dr, sent me for a CT scan. I have one of the largest brain cysts that Emory Univeristy Neurosurgeons have ever seen. I was born with it. No symptoms, no problems, no swishing of the brain or pressure, and his exact words were "NOthing to worry about..." This came from one of the top notch Neurosurgeons in the States. So after 18 years ( I am now 37) I do not worry about it. Mine is an arachnoid cyst. It's approx 8 cm large. So yes it is very large. My head (skull) as a child must of grew to capacitate it. I do not think about it anymore. It has fluid in it, usually spinal fluid is whats in the cysts. And mine isn't "connected" to any tissue. So do as your dr said, Do not worry. Of course every time you're head hurts or your leg hurts you are going to "think" its the cyst. God Bless...and Prayers for you!
nccarol
06-19-2006, 08:13 AM
As the other poster said anything i the brain is something to not just leave alone. My boyfriend was told he had a cyst and we saw the neuro surgeon it is a benign epidermoid tumor and he will have surgery Wed. It is on the left side of the brain stem. I would definately see a neuro surgeon. They can monitor it as our doc said till it become symptomatic which it has with headaches, double vision and facial numbness. Check into it before you get more serious symptoms. Good luck
annieloo
06-19-2006, 03:02 PM
thanks for all your help... I did get a copy of the report and it said it is a small benign pineal cyst... it doesnt really sound bad.. I did some research and they dont seem to cause any trouble...does anyone have any info on a pineal cyst?? I do have a appt. with a new neuro in cpl weeks so i will see what he thinks... I just dont feel good i feel flu like and am in lots of pain plus i get headaches and wierd feelings in head arms and legs... some days my left arm just doesnt seem like it wants to work anymore!! hope new doc can figure out what is going on with me!! Thanks again!
Annie