First post here we are looking for aswers anywhere. Our 3 year old 10 days ago came down with what we thought was the flu for about 2 days he was having stomach cramps then vomiting just as you would with the flu but had no fever or diareaha but after the 2 days it went away and was happy as always well later that night he started having severe pain in his tummy and vomited again we didnt think much of it thinking it just hadent passed yet that episode only lasted about 4 hrs and he slept threw the night the next couple days he was fine and suddenly it came back again same thing severe abdominal pains and vomiting so now we are concerned so we take him in to the urgent care where they ran some test all blood work was normal so they said probably just a bug but said if it returns again bring him back for more blood work and x rays. So after that he was fine for another 2 days and we left town for a family trip well as soon as we get there it starts back up again so we take him into the ER in the town so we tell them whats going on so they ran more blood work all was normal and they took some xrays all is also normal, they did a stool sample to check for blood no blood all was normal so since the trip began 2 days ago things have changed up its not completly going away like it was before he still has periods of a few hrs here and there where he is happy and playing normal and eating and drinking normal but then it will just be as he hit a brick wall and he's again rolling around in abdominal pains and getting sick we cut our trip short and came home today and brought him to the pediatrician today they did a throat culture to check for strep but all clear on that, they ordered a outpatient ct scan but dont think its severe enough for an inpatient ct scan so we will have that done in couple of days, everything i have thought it could be has been ruled out such as the appendix, becuse blood work is good stomach is soft and not tender, and when he is having his episode it helps him for me to rub his tummy and lower back with pressure so it definitly not hurting him to the touch, sorry this is so long just wanted to give all the info i had. any info would be much appreciated if anyone has seen or heard of this, its gonna be a long 2 day wait for that ct scan.
Thank you

so sorry your little guy is having to go thru all this.my sone had to go thru a ton of crap too way back when.

I am just kind of wondering since my son,but at a slightly older age,would do the same vomiting thing with tummy pain and we could nebver really find a cause.well ,move up a few years and lo and behold,here it had been his liver and kidneys that had been behind all of this.our son had been born with polycystic kidney disease along with some bizarre mutation of a gene that also caused him to eventually go inot total liver failure and require a transplant.I know this is a very very remote possibility in your son,but just wanted to mention to you that they may want to do some really in depth testing of the liver and the kidneys,despite having totally normal kidney and liver labs,you can still have some pretty incredible things going on within these organs but the level of damage has not gotten tothe point where it actually would show up in changes inthe actual bloodwork.haveing that CT would really be a wonderful idea.an ultrasound of those organs could tell you alot too.

i am really hoping that whatever is causing your sons vomiting and tummy pain is not something major,really.but just to be on the totally safe side here,just make sure they really look closely at these organs.never ever rely totally on any blood tests for actual damage to any organ.my kidneys(because I also have the same PKD that my son has)are just huge from all of the cystic development and also my healthy kidney tissue is being very much displaced.my kidneys are both over three times the normal size,but believe it or not,all of my actual bloodwork is STILL within the totally normal range and actually midrange,not even close to the high end of normal yet.it just totally boggles my mind to look at the films done on my kidneys and actually see these huge(some are actually around 6 CMs)cysts like everywhere and then to look at my totally and completely normal blood work.if you just looked at my bloodwork alone,you would think I have two wonderful normal healthy kidneys.just freaky really.

the human body also can compensate when a particular organ 'goes down"or starts to rapidly deteriorate,the other organs amazingly will kick in and actually take over for the deteriorating one and can do quite nicely til the actual damage to that particular organ just is too much.then and only then will you actually see the changes in bloodwork.my son was actually down to having only 20% of his actual liver function left whn he was finally Dxed at age 12,despite the fact that the deterioration of his liver actually had started in utero.and quite honestly,we had no clue that he was even sick til he just started vomiting blood one day at school.scarey crap let me tell ya.

the thing is,when he had been much much younger,he would have alot of tummy aches and intermittant unexplainable vomiting that his ped just would somehow explain away.but this stuff would just come and go and he would be fine again so no huge red flags ever really went up ya know?if at any time during the time he had been dorn til the day he had been Dxed they had actually done just an ultrasound on his liver,they would have known.there just was never a real solid reason to have one done.

i am hoping i am not totally freaking you out here believe me,that was not my intent.I just wanted you to know the ins and outs of blood tests and the really small value that really have in the overall picture when there could be an underlying condition going on.even docs place way too much actual value on blood tests,really.if my primary had just gone by my bloodwork alone i would have no clue that i even had PKD until my son got sick and since this is an inherited disease,my hubby and i both had to be tested because one of us just had to have this in order to be able have actually passed it on to our son.of course,that was me.

just make sure the docs are thorough.sometimes you may have to really push things with the "medical professionals" out there but quite honestly,when it comes to your childs health,hey i really didn't care if I knocked someone ego or stepped on a few toes.this was my son who was sick and I really didn't care as he was counting on me to stand up for him and to make sure everyone taking care of him was doing their jobs.you ARE your childs only real advocate you know?

I certainly hope that he is actually just suffering from some wierd viral thing or some other minor medical issue.make sure they are thorough,that is really the best advice I can give you.please let me know how things are going,K? good luck,marcia

Hi, I just wanted to add that I have a 2 year old daughter, and earlier this year she had RotaVirus. I thought she just had the flu. She was vomiting, and having diarrhea for a few days and it went away.. then about 2-3 days later it all started over again. She did this for about 12 days total. When I took her to the doc, they found out that she had Rotavirus. I guess it is normal for it to seem like it gets better, then "attack" again. It is also normal to last 7-14 days. Just when she started getting better, I got it too. And let me tell you, it was HORRIBLE!! There were awful stomach pains.. I ended up in the hospital for dehydration and needed IV fluids! I can't believe my little girl had to go through it! It was hard for me to bare it. No wonder she was so upset and crying/irritable. I just wish there was more I could have done to make her feel better!
They did a stool culture to diagnose the Rotavirus...

Thank you for the post, we finally got him in for the CT scan everything looks normal from the scan so that is a good thing but still we have no answers on what this could be basically the Doc said that sometimes when you get sick you have some lymph nodes in the lower tummy area that can become enlarged and cause great pain and the vomiting part is the bodys natural way of trying to heal itself when the tummy area has great pain, now im wondering has anyone heard of this or experienced this or is this a way for the doc to say I dont know what the heck is going on here so I will diagnose him with this. He prescribed a tylenol with codine for the pain but its just not working he has not actually gotten sick from this mysterious pain for 4 days now but is still awaken in the middle of the night and crys and curls for anywhere from 20min to 2 hrs then the next day he is once again perfectly fine with his normal diet doc says if after a week on the pain med if still not better he will refer us to a GI Doc,
If anyone has experieced or heard of this lymph node in the tummy region diagnosis causing this sort of pain and vomiting please let me know about it and also how long did it last we are on almost 3 weeks now. Or any other ideas are appreciated,Oh ya and the doc was saying before the CT scan that they will be focusing on the lymph nodes in the ct scan then after we were done with it he was saying they arent able to see them in a ct scan, we will probably be changing docs in the process of this.

yep,new doc asap.this one really doesn't sound like he knows what the heck he is even doing.what a stupid thing to do,a ct for lymph nodes??A Ct will usually only give the more "solid' type of structures since it only uses an x ray.you cannot possibly get the more soft tissue structures with only an x ray type of test,duh.he should no better.really

so moving onto another doc would really be in your best interest at this point.also getting to that GI doc is really really what you need to do in order to possibly find the actual cause of all this.they have a very extensive overall knowledge of everything GI.my sons 'team" of GI docs at the university of MN were all wonderful and very very knowledgeable too.

if you happen to live near any sort of actual teaching hosp,this would really be the place to take him.they just approach things much differently and you actually will be seen by all of the residents who are working under the actual head professor who is teaching them their specialty.what I liked the most tho,is that when some other strange thing would pop up with my son while he was in that hosp,they would just call in the best next 'team" of docs in that specialty.

belive me.we had our GI team,our infectious disease team,our nephrology team.hepatology team,transplant team...you get the idea?these types of hospitals are also 'up' on all the newest and latest research and ways of treating illnesses and conditions,and diagnostic tools that other hospitals just cannot even begin to compare to,at least from what I have seen in having to be in and with my son in,like all the flippin hospitals within a 50 mile radius of our home.

Given the really bizarre nature of your sons symptoms I really do think it is going to take some very experienced and knowledgable people to try and come up with the correct Dx of what he has going on.just keep pushing things if you don't feel his treatment is enough or if you feel someone isn't actually doing the job they were hired to do.

also,keep track of any and all symptoms that your son may be exhibiting no matter how little or really not important you think something may actually be.its usually the "little' things that end up filling in those "missing pieces to the diagnostic puzzle you are trying to complete.in this type of a situation,everything matters ,you know what I mean?

I do wish you luck with this and hope they can find out what is causing all of this crappy hell your son is having to go thru,as well as what this is doing to you.I have been there way too many times with my son,the one who has used up like three of his nine lives already.whew.I do think getting a new doc would really be the way to go here.I would get that referral to the GI doc asap,and then drop this doc asap.you need answers and he is not going to help you with that at all.what a putz.

good luck and please continue to keep us posted.hang in there.marcia