I've been struggling with several symptoms including dizziness, trouble walking after more than 10 minutes at a stretch, and finally diahrea for months now. I was diagnosed with POTS (a problem with a very fast heart rate) and now just last week, at The Mayo Clinic, I was told my blood tested very strongly positive for Celiac Disease. I am to have a small intestine biopsy within the next few weeks. I am wondering if anyone out there could share with me their personal experiences with this disease. I'm not looking for a "textbook" answer of what celiac is, but rather a first person account of what symptoms others have had. I know this is an autoimmune disorder and that scares me to death--how bad is that? It seems weird to have symptoms such as trouble walking and vertigo and motion intolerance and tachycardia with something like this...I understand the diahrea, but do these other symptoms fit with celiac? Any help would be EXTREMELY appreciated!!! Thanks in advance.

ps) not one single person in my immeadiate or extended family has ever had this problem, yet I've heard it's inherited!?

I thought Celiac Disease was a condition in which the body can't tolerate gluten (a kind of protein found in grains). If I'm correct, it's usually diagnosed before the age of 3 due to intestinal symptoms. But, since intestinal-related symptoms can be due to many other conditions, I would think that people could be diagnosed with other ailments if they weren't specifically tested for Celiac disease, thereby not getting diagnosed properly until adulthood. I do know that there are many wheat/gluten-free foods at health food stores and in the specialty aisles of many supermarkets. My son was thought to be allergic to wheat products when he was little, so we had to buy products made with rice and soy. And many of the items we bought were geared for people with Celiac Disease. As far as I know, Celiac Disease is a chronic condition, not anything terminal, and I believe if a gluten-free diet is followed, most symptoms improve or disappear within several weeks or so. Hope this helps a little. Good luck!

Thank you all so much for your relplies, and for the great web site information! I'll check those sites out right away. It's a relief to know that celiac can cause other symptoms than the standard gatroentestinal kind. I still don't quite understand how it is that all my life I have eaten anything and everything without a single symptom or problem...then at age 29 became extremely ill with debilitating symptoms which started with vertigo and didn't include stomach upset until a year later. Perhaps those sites you mentioned may answer those questions.

Just wanted to add my experiance. I have been ill for almost 2 years now. I have had every test imaginable. I am 33 years old. I started with problems while eating. I would get a rapid heart rate and get extremely tired. After afew months I started having neuro problems. Tingling,weakness,dizziness,etc... I was tested for MS and was cleared on that. Recently I started having non-stop diarrhea which landed me in the hospital after going into shock from low potassium. Finally the doctors decided to test for celiac because they said I have all the symptoms and I look malnurished. I have not gotten the results back yet but they have started me on a gluten free diet. They tols me my neuro problems could be from celiac. I also have white spots on my brain MRI and that can also happen in celiac. I also have lost sensation in both my big toes. Consatant muscle twitches.They tell me all of my symptoms can be tied into celiac. Find a good web site on this disease and you will be amazed at all the things that can go wrong with long term untreated Celiac. My mother,grandmother and brother all have other auto immune diseases. I am currently on Zoloft for my fatigue and Acecol for the diarrhea. Was on protonix but it quit working after about 8 months of use. Was also on Torol in the begining to control my heart.

iv been on the gluten free diet for about 8 months now and, gained 50 lbs..and, still feel the need to gain..but i think iv preety much reached my normal weight..i was very weak and, always tired all my life anemia, depression, joint pains, diarheea, constipation, irritability..iv had everything..but i feel great now, iv never felt better..my diet is encredibely healthy..all natural im eating so healthy..i wish everyone could eat like this..bacuz gluten is linked to so many diseases..its not even funny..ei

make a search on the symptoms..its really sad that people are eating this stuff..it wasn't made to be eatin by humans..they test rats with gluten and, they die from it..could you imagine what it does to us.. :)..

evrything will be fine..trust me.. :)

:confused: I think I must just be dumb. I can't seem to find anything on celiac that I can really understand, I'm not sure if that could be my culprit, as everything seems to be making me sick, just yesterday I had the barium test. (UGI) and the guy who done it said , reflux and inflammed doudenum, said from acid reflux ??? I don;t know what to think now, I just wish I could figure it out, I'm calling ny GI doc and demanding to be tested for celiac and h pylori!!!!!
Thanks for letting me vent here, I hope you find all you can to help you. I wouldn't know where to begin with a gluten free diet. anyone care to give the rest of us a sample menu??? Losec?? you seem to be very educated on this matter. Help us please :p
Thanks

Just curious. Could someone read my symtoms and tell me if I have Celiac's or not?
I have had ongoing stomach problems for over a month now. I have lost close to 40 pounds and it has left me tired and weak.
I have seen 4 doctors now. Each diagnosed me with something different. My insurance is so picky I can't go see a gastroenterologist unless my doctor refers me. Every doctor I have been to wants to prescribe me this or that medicine and it is not working.

I haven't been able to eat. Its like the food just sits at the top of my stomach and won't go down.
It feels like someone is taking my stomach and uppper intestines above my belly button and twisting them into a pretzel. I have very uncomfortable gnawing pains, they don't hurt but it feels just like knots or gritty feeling.
When my stomach does this, which is pretty much 24/7 I get horrible gas. I am always passing gas or burping up air.

Is it dangerous for me to be losing this much weight so fast?
My husband is so scared that one morning I'm just not going to wake up. I am scared to. I want to lose weight because I am overweight but not this way!!!!
I mean I have eaten just probably this week only 100 calories total in food.
I am always drinking tea, gatorade, water or some kind of juice, usually orange juice.
Also my mouth and the back of my throat always feels thick like my saliva is thick.

Someone help!!!!

yes of course..you can eat lots of healthy stuff very pure..

fresh meat..chicken breasts, veal, porc chops, beef, fish. shrimps all sea food..but all with natural spices..cuz spices are contaminated with flour(gluten),,yuck..
uncle bens rice..whole grain, white, basmati..
corn or rice pasta..
fruits
veggies
milk
cheese
vanilla ice cream
cottage cheese
yogurts(some)
fresh nuts
dark chocolates
GF bread
GF muffins
GF cookies
GF waffles
canned veggies
canned fruits
apple sauces
veggie bars
fruit to go bars
lays chips regular or ruffles
sun-maid raisins(little red box)
home made GF cakes
pure pop corn(real grains)
GF bars
tropicana juice100% pure
legumes
some candies
frozen veggies
frozen fruits
granita ice cream
nestle quik
some teas
coffe 100% pure
wine vinegar
rice vinegar
balsamic vinegar
dried fruits(figs, prunes, ect)
rice cakes
soja suace GF
pizzas GF
eggs
tofu
wine
tuna
sausages(get them made with your own spices)
ham(check with companies)
oil(any)
butter
salt
sugar
jello
whipped cream
seven up, sprite etc..call the companies
preztels GF
ricotta cheese
bococcinos cheese
puddings(cozy shack)

you can have more stuff to eat but thats the basics..

also check the medecations, soaps, creams, make-up, tooth paste, gum,..etc..everything that goes in your mouth or on your lips must be checked..call companies and, ask many questions...don't worry you have lots to eat...you just have to check everything..

i eat more then that, but thats a good start for you..

ps: check for crosscontamintion of certain items..ie rice cakes..etc..call the companies...ask them for questions ie: production lines..somtimes are contaminated with wheat flour(gluten)...ask them if their lines are well cleaned..
that should start you off right..gogogo.. :)

jhamilton30..
sounds like dyhidration..better go get tested real quick..in the meanwhile eat fresh meat..eggs and, veggies(steamed)..and, uncle bens rice..there is alot you can eat but, start with that.. keep us posted. ;)

Losec20,
Thank you for the sample menu, You are really a big help on these boards, Now I don't feel as scared if the docs come back with this dx!!!
Thank you soooooo much. calling companies is a great idea, I never would have thought of that... :D

forgot to mention..you will need your own toaster to avoid crumbs coming on your bread..peanut butter, jams..stuff you eat must be labelled with you name and, only you can eat those...to prevent crosscontamination of wheat breadcrumbs...the more you stick to your diet the more sensitive you will become..but the healthier you will get...a little crum can make you really sick for days...depends on your sensitivity...keep us posted.. :)

Hi, jhamilton,

I am sorry that you have been having such a difficult time lately. I would strongly recommend that you go back to your primary care doctor and refresh his/her memory about your symptoms over the last month or so. The kind of weight loss you have been experiencing (no matter how overweight you might be) is not normal, and is potentially very dangerous to your overall health. (Obviously, you are losing the weight because you are unable to eat, but the factors underlying your GI tract's reaction to food must be explored and treated.) As someone else pointed out, you are probably severely dehydrated, too, or very close to it, and that alone should be treated asap.

At a very minimum, you need to have a complete blood work-up, including a CBC and CMP (comprehensive metabolic panel). It might be a good idea to do an EKG to make sure that the rapid weight loss/possible dehydration hasn't caused any cardiac arrhythmias. I would also ask your doctor about checking your stool for parasites (you can prepare the specimen at home).

It is unfathomable to me that you have been allowed by four different doctors to be "let loose" in your current state. If you can't get into see your PCP by Tuesday, or if you do see him/her and you are not taken seriously, then I would recommend that you go to the ER. It's possible that you might need to be admitted in order to run some tests. (I don't know what tests you have already had, nor what were the various "diagnoses" you have received, but something is still very wrong with your body.) I'm sorry if I'm sounding so clinical about your situation (and please note that I have no medical background, just a lot of health problems of my own - lol) or if I'm frightening you, but I do want to impress upon you the urgency of getting some definitive answers.

You might want to start your own thread with a post similar to the one posted here, in the hopes that more people will see it and respond to it. But first, please call your doctor's office tomorrow (Monday) morning and insist that you be seen that day or, at the latest, on Tuesday. Again, if you are not given an appointment within that time frame, then please go to the ER.

All the best of luck to you. Please let us know what happens as soon as you are able to do so.

Best,
Pat

I too have started to have nuero issues as well and have been treated for Lyme disease. Well after 9 months I still have the symptoms.

Along with Crohns the blood test reveal that I may have Celiac disease.
I am trying a gluten free diet for a couple of weeks to see if it helps.

Does anyone have a good list of foods to avoid? And what foods are OK?
I have seen some things on the web, but I am having a hard time understanding the actual ingredients.

Thanks for your help.

I am just searching for a reason for all of the symptoms I am having. I have had IBS as long as I can remember. About every six months I would have an attack of upper abdomen pain that radiates all the way through to my back. It seems to happen more often (lately VERY often) if I have had pizza, donuts...things with wheat. I don't know if I have a food allergy but I am also aniemic, tingling hands, memory problems, and now this awful pain that won't go away without a pain pill and sleep. I don't have a doc who is one for thinking outside the box. she pretty much has me Rx my self. HELP :bouncing:

Oh, I forgot to add I have a rash across my cheeks and nose and my mouth gets very sore. The doc's best guess was acid reflux. I am taking previcid but it is not helping.

hi shays..I have been on sooooo many PPI's..not even funny..but, ever since iv gone on this diet..my gutt has healed on all of the damage that was caused by the GLUTEN.. is healed..I feel great. This is a very healthy diet..I love to eat like this..all the things I couldn't of aten' before, I can eat them all now.. :).. its a very complex diet, cuz wheat is in everything..I have a dictionary of all of the ingredients im allowed to have..heh.. you feel so good on this diet :) :)..i made a short list on the other page :)

no more PPI's
no more antidepresants
no more pills..just a multivitamine and, my diet :)

Hi, I wish there was a simple list of what to stay clear of. I don't know what additives I can and can't have. I know if I have had a good day or not by how I go to the bathroom in the morning. since I am new to this gluten free diet, I hate to say I have had more bad days than good. I am so discouraged. If any one has some answers or advice I would really love it-I'm sick of feeling lousy!

Shays mom,
with a rash across your face and mouth sores (ulcers?) have you been checked for Lupus? Those are 2 of the 11 symptoms to diagose. There appears to be a higher incidence of Lupus (along with other autoimmune diseases) among celiacs.
-Amy

amybee is right!! sounds like u might have Lupus....But it is reversible, like most chronic illnesses...Get the book "dangerous grains".. most autoimmune diseases are caused or complicated by gluten...You probably have some chronic infections also...I had 2 of them...Nasty little buggers....Find a functional medicine doc, who has the proper testing....best of luck

Hello to all,
Prior years I noticed the bloat after eating wheat but never related it to CD. 12/04 I noticed I was not the same person such as keeping up w/ the gym,work,housework etc. While on the treadmill I stumbled off it. My body felt as if I had weights on me. Fatiuge was overwhelming.3/04 I suffered a seizure(non epi).I was diagnoised as psuedo seizure. Hospitalized for observation. They found that I was anemic. Looking for the source I had a scope ran in july. Positive for CD.Since then I have put on lbs from 188 to 223.The doctor did change a medication re: seizures that might be causing some of the lbs problem. I have read cd can cause seizures, anemia infertility,short stature,and a few other. My Neuro I feel thinks it's anxiety/panic attacks. My GI don't really say seizures are from CD. I also was told CD would show up as a child. The thing that made mine show up per my primary md as a adult was extreme emotional stress. I have lost 3 parents in 5 yrs & 2 miscarriages.
The diet can be hard to get on track, but it is worth it. I do fall off at times not aware of some ingredients.Boy it lets you know. Don't lick an envelope(gluten). I do have a rash down my arms and legs.
sorry to go on and on! hope it helps
Debbie

I haven't been tested for celiac yet but after a friend alerted me to it I intend to ask my gastroenterologist about it when I see him in 2 weeks. I to have been tested for just about everything else imaginable with no results. I have many of the listed symtoms of celiac from (celiac.com). I'm 53 y/o, and my health has been going steadily down hill the last few years at a progressive rate.

Originally the doctor put me on prednisone because my alkaline phosphotase level was elevated to 1700+, the highest he said he had ever seen. The prednisone brought the alka phos back down, but only until he weaned me back off the prednisone when they started to elevate again.

The alka phos in my blood was determined to be coming from my liver rather than my bones. Does anyone know if this is a chacteristic of celiac? The only reference I've found pertaining to akla phos and celiac has been bone related.

I also have beta thalassemia, is anyone aware of a relationship between this anemic disease and celiac disease?

From what I've read about celiac disease, many doctors are not all that familiar with it. I'd like to know as much about it as possible before seeing the doctor. Any helpful info would be appreciated. Thanks, Larry

Hi, Larry,

I'm very sorry to learn about your elevated ALP levels. I hope that further testing will not indicate that something very serious is going on.

On the WebMD Health site, I found the following reference to celiac disease and ALP:

Low values

Conditions that lead to malnutrition (such as celiac disease) or are caused by a lack of necessary nutrients in the diet (such as scurvy) can result in low ALP levels.

I guess you can rule out celiac disease as the cause of your elevated levels.

All the best of luck to you.

Pat

EDIT: Duplicate posts on different forums are not allowed, but once you've seen the gastroenterologist, you might want to start a thread on the Liver Disorders forum.

Hi Pat
I understood CD could cause adverse effects on other organs than just the digestive tract. The liver, spleen, and gall badder particularly. High blood counts of alp can come from different sources like the bones and liver, mine is definitely coming from the liver. I think it has something to do with the bile ducts not functioning properly in regard to the liver.

In a way I hope you're wrong. :) My gastro doc is running out of ideas as to whats causing this. Thanks for the info, Larry

Hi, Larry,

You are absolutely correct that celiac disease can affect organs other than the small intestine, but its effect on the liver do seem to be related to malnutrition.

I found the following online in a PowerPoint presentation. I regret that I was unable to find an author or other source for attribution. I include this excerpt because of its reference to Vitamin D deficiency.

Extra-Intestinal Manifestations (of celiac disease--P)
Nutritional deficiencies:
Iron deficiency anemia
Folate/B12 (anemia, glossitis, peripheral neuropathy,
Vitamin K (coagulopathy, purpura)
Vitamin D which can lead to hypocalcemia/tetany, elevated ALP, and osteoporosis
Protein (edema, ascites)
Vitamin A (night blindness)


The next excerpt is from an article found on Medscape. The passage includes a reference to CD and the liver. As I read it, elevated ALP levels can occur in celiac patients, but its effects are implicated in bone disease, not liver disease. This seems to be consistent with the information that you have already found on the topic.

http://www.medscape.com/viewarticle/500797_1

In a study of 67 patients with abnormal liver biochemistry and coeliac disease, five patients were noted to have a raised alkaline phosphatase. All were found to have osteomalacia. Secondary metabolic bone disease was also found as a cause for isolated alkaline phosphatase (ALP) elevation in six of 12 patients with untreated coeliac disease.


What other tests have you had to date? Have all forms of liver disease been ruled out?

Hope you and your doctor can get to the bottom of this soon.

Best,
Pat

P.S. I just reread your first post and saw that you mentioned that you have beta thallassemia. Anemia is a common symptom of celiac disease, but I am pretty sure that it is the iron-deficiency kind, due to malabsorption. My understanding is that the thallassemias result from rare genetic mutations. I hope you're seeing a hematologist for that disorder.

I have a white, almost pasty substance always on the back end of my tongue. Is this Gluten?
I noticed that whenever I eat at fast food places the bread kills me for two days. I am totally done with Subway and Arby's!
I still haven't gotten tested for Celiac, but I did have my stool tested for parsites which came back negative.
I stopped taking PPI's (pepcid,prilosec, etc.) becuase I read about the many side-efects they can cause. They actually can do more damage than good.
I started taking a liquid multi-vitamin in the morning along with a Magnesium supplement.
I'm tellin ya, forget doctors and try seeing a nutrionist instead. Drink plenty of water and eat more veggies and fruits!
I'm still not 100% better, but Rome wasn't built in a day.

just to let you know, that if you are following a gluten free diet, it will take some time to adapt, and, the healing of the gutt can take 1 to 3 years of strict dieting..but be careful because you can put on wieght very quickly..i did put on wieght 65lbs in 15 months..just telling you...im a very succesful celiac and, i can eat just about all of the best foods out there.. good luck to everyone.. :)

The white area on the back of your tongue sounds like yeast (candida). In the mouth it is often referred to as thrush. You'll probably need to see your doctor about getting some anti-fungal lozenges or a mouth rinse to clear it up.

Pat

Hey Wolfman,

Why eat bread if it makes you sick? It's so obvious that your gluten intolerant. You're playing with your life if you keep eating junk..The reason you tested negative for parasites is because they are not detectable until the gut heals.. stay away from gluten and check for parasites in 4-6 months. Make sure you get tested for parasites around a full moon...

hi thomas, why are you saying around a full moon.?? i know you know your stuff.

I guess I wasn't sure what kind of bread was bothering me the most.
Another thing I seemed to have a problem with was an apple I ate today. A big red one. It felt like it was swimming in my stomach. For lunch I ate a veggie burger on gluten free bread and then someone gave me some chicken chow mein. I ate it and only seemed to burp about three times later in the day. I put some extra hours in at work becuase I felt so energized. I know I haven't been getting many carbs lately.
I am going back to keeping track of my food intake after a two day absence.

just to let you know, that if you are following a gluten free diet, it will take some time to adapt, and, the healing of the gutt can take 1 to 3 years of strict dieting..but be careful because you can put on wieght very quickly..i did put on wieght 65lbs in 15 months..just telling you...im a very succesful celiac and, i can eat just about all of the best foods out there.. good luck to everyone.. :)

Why did you gain weight?

cuz im finally absorbing the foods that i eat..plus i eat alot..and, also i was very underwieght sooooo, i needed to put on wieght..now im at 172lbs im 5'9" 39years old male. :).. im doing really well ;)

oh PS: I look really good ;)

Losec20mg,

Thanks for your reply. I'm glad to hear that you're doing well. If you didn't have CD, would you not eat gluten? Just curious b/c there seems to be some controversey over whether gluten poses health risks.

now that i know what gluten is, I will never eat it again even if the docs would tell me i could eat it..the gluten found in wheat is not as friendly as the gluten found in corn or rice..it is very sticky..it gives the impression that you are well nurioused but, you are not.. like I said I have great success without the gluten...all of the symtoms that iv lived forever have vanished for good.. :).. gluten is not an ingredient, it is a preservative..also found in most MSG's and, sulfites may contain gluten as well..so food can gain more shelf life..and, i know most of the foods containing gluten are dead foods..certain low gluten breads are ok..the rest gotto go

the ones that are better for the health are
kamut
spelt
sprouted
buckwheat

im eating 5 grain bread

rice, tapioca, buckwheat, corn, millet

also eat whole grain rice pasta
and, home made pizzas with my special flours.. ;)

i always feel lite and, have alot of energy somtimes i dont even sleep..LOL

I really enjoyed hearing about your success. I need to consider your diet. I really appreciate the info. :)

it can take time to adjust to a new diet but, once you know, you know. :)

So, what I'm wondering is how do you GAIN weight back once you lost it?

you gotta eat alot of the right food..you know some people eat so much and, never gain, thats because they are not eating the right foods. :)..

I am eating so much better than I was, but my skin looks so transparent! If I pull my skin away from my body it "snaps" back. I can see veins running along the side of my ribcage that were never visible before.
I have strength to exercise but should I ease off of lifting weights? I just bought a bunch of fruit and I have been making my own shakes with Egg Protein powder mixed in. I'm still taking my enzymes to help me with digestion too. I was also informed from the GNC sales guy that I should take a Multi-Oil formula conatining Omega 3 ,6, and 9 Fatty acids. Sheesh...I just have a feeling I am missing the mark on this. That maybe it's not a malnutrition problem afterall.
Could I have cancer?

you are right Ben, ive been celiac for the past 16 months and, feel great..i eat very healthy never cheat..gained like 70bls..im happy..and, the variety is great.. thanks :) oh and, no more acid reflux..and, no more pills :)

Well, I don't understand how I can jump up and down in weight per day!
Now I weigh 120 lbs. but two days ago I was 123.
Yesterday I was tested for HIV just to be safe, and I'm in the clear! But I am finding difficulty breathing some days and my neck seems to have pressure in it. I also have bouts of depression. I am drinking protein shakes since Saturday and I am still exercising. I don't get it.

now that i know what gluten is, I will never eat it again even if the docs would tell me i could eat it..the gluten found in wheat is not as friendly as the gluten found in corn or rice..it is very sticky..it gives the impression that you are well nurioused but, you are not.. like I said I have great success without the gluten...all of the symtoms that iv lived forever have vanished for good.. :).. gluten is not an ingredient, it is a preservative..also found in most MSG's and, sulfites may contain gluten as well..so food can gain more shelf life..and, i know most of the foods containing gluten are dead foods..certain low gluten breads are ok..the rest gotto go

the ones that are better for the health are
kamut
spelt
sprouted
buckwheat

im eating 5 grain bread

rice, tapioca, buckwheat, corn, millet

also eat whole grain rice pasta
and, home made pizzas with my special flours.. ;)

i always feel lite and, have alot of energy somtimes i dont even sleep..LOL

Losec,
I just started trying to eat a gluten free diet. Is ok to eat sprouted wheat bread?

You mentioned that you are eating 5 grain bread...isn't there wheat in 5 grain bread?

What about oats...can and do you eat oat products?


I've read a lot of your posts in various threads and have learned a lot from you. Sounds like your life/health is awesome!

Thanks

Losec,
I just started trying to eat a gluten free diet. Is ok to eat sprouted wheat bread? ....... What about oats...can and do you eat oat products?


thebluedog,

Inserting my two cents here even though your question wasn't addressed to me. :)

If you truly wish to eat a gluten-free diet, then please realize that spelt and kamut are forms of wheat and therefore have gluten in them. Sprouted wheat is wheat that has been sprouted, but it's still wheat and therefore has gluten in it. Celiac associations advise avoiding spelt, kamut and any other form of wheat.

PURE oats are usually ok for those with celiac, but you need to purchase your oats from a source that says "gluten-free" on the package, and says that they TEST for gluten to ensure that their oats are indeed pure. The problem with oats is that they are often grown in the same fields as wheat, and often a few wheat stalks grow up during the oats season and are harvested along with the oats, and then everything is stored in warehouses with wheat and trucked in vehicles that weren't cleaned between shipments, and and and. So make sure it says "gluten-free".

Basically, you need to ask yourself just how gluten-free you want your diet to be. A person with true celiac disease will have to be more finicky than someone who wants to cut down drastically. If you don't have celiac, then you might be fine using spelt and kamut and sprouted wheat and regular oats, which MAY have less gluten than regular wheat. But even then, it's advisable to use it in small quantities and find other grains to make your bread from, like buckwheat, as Losec says -- yum! Buckwheat is my personal favorite grain.

--Rheanna

thebluedog..
I did mention above many grains that contain gluten.. personally i dont eat those because i cant... My diet is very healthy compaired to many. I do have true celiac, therefore excluding wheat gluten from my diet is a must. But, there are so many breads out there that are 'Gluten free' such as Buckwheat, Rice, Corn..etc.. it must say gluten free on it, or it is not totally gluten free. Also just about any food found in your grocery store has gluten in it, soo be prepared and, ready..cuz it is a challenge..for me its not tho, cuz i learnt all the tricks. Im very healthy just like rheanna and, my acid reflux is gone for good and, no more meds, no more depression..etc.. :) :) :)


ciao ;)

I believe that my DH has CD. He shows the classic gastro symptoms of CD. In 15 years of being sick not one doctor has ever brought this up (although it looks like he will be missing work tomorrow and having to go to the Dr. I may have to bring it up myself). The problem is that it seems like things that should make him sick don't always make him sick and the things that shouldn't make him sick do (I can't guarantee that it's GF though). Does anyone know of anything else that could be causing similar symptoms? He's been checked for everything else under the sun it feels like. We've been to numerous general practitioners and several GI experts, had his gallbladder removed and he's still getting sick.

Hey, Losec...just out of curiosity, what do you weigh now, and what did you weigh before you went totally GF?
Celiac has over 200 symptoms. What were your main symptoms just depression and reflux?
Every morning I wake up, it's like one big sinus allergy attack. My sinus passsages all drain out from lying flat in my bed to standing up.
Fall is pretty, but it sure doesn't help my allergies. I was told I don't have CD my gastro, he said I simply have IBS, and I should "eat whatever I want"...do you believe that? Yeah, OK...I have IBS and I guess I can eat spicy foods, fast food, donuts....he said I should put some weight back on and then we can re-test me for CD. Oh brother.
Does this guy even have a clue? He asks me a couple personal questions (stress-related) then chalks it up to IBS. Oh, I forgot to mention he did press on my stomach a few times and check my blood pressure. Wow.
Sorry, maybe I should have started my own thread....

Thanks Rheanna and Losec for your responses! I'm not sure if I have CD, but either way I want to reduce or eliminate gluten from diet.

What were your symptoms and how long did you live with them before you discovered you had CD?

Thanks Rheanna and Losec for your responses! I'm not sure if I have CD, but either way I want to reduce or eliminate gluten from diet.

What were your symptoms and how long did you live with them before you discovered you had CD?


**bump**

hey you guys, my symptoms were, depression, anxiety, anemia, floating stools.. anyhow im doing so good, wow what a diference a healthy diet can do to you.. :).. as for my weight well i was somthing like 105lbs 0r 107lbs when i was at the hospital, this was about 2 years ago. Now im at 170lbs. Im very healthy and, very strong.. never sick. ;)

see you guys later.