missbbpepper
07-14-2006, 01:42 AM
Hey everyone,
I know its been FOREVER since Ive posted. Sorry!!!
Well heres an update on me.
Useing the wheelchair a lot these days. Still have severe back problems - Spondeloythesis (sp?) and the seizures, and now headaches and migranes more often. Went to the eye doctor the other day - and come to find out I have some things enlarged in both eyes - so will be getting more tests when I go to pick up my glasses. My bladder is still causeing problems -neurogenic bladder.
My service dog is doing great (Quincy).
I was finally put on Baclofen Oral. 20mg twice daily. The Dr. wants me up to 80mg daily. Also on Etodolac (sp?) 400mg twice a day. Among other meds for other issues.
Well thats about it for now
Amber and Quincy
I know its been FOREVER since Ive posted. Sorry!!!
Well heres an update on me.
Useing the wheelchair a lot these days. Still have severe back problems - Spondeloythesis (sp?) and the seizures, and now headaches and migranes more often. Went to the eye doctor the other day - and come to find out I have some things enlarged in both eyes - so will be getting more tests when I go to pick up my glasses. My bladder is still causeing problems -neurogenic bladder.
My service dog is doing great (Quincy).
I was finally put on Baclofen Oral. 20mg twice daily. The Dr. wants me up to 80mg daily. Also on Etodolac (sp?) 400mg twice a day. Among other meds for other issues.
Well thats about it for now
Amber and Quincy
Sponsor
Steffers2318
07-14-2006, 07:26 PM
Hello,
Good to hear you're doing well. Mind if I ask what kind of eye problems you have? I've been seeing specialists for enlarged optic nerves for about 8 years...they can't figure out why they're like that. My pressures have always been normal, but I started having eye pain about a year ago, so they put me on glaucoma drops and the pain has been better since.
But I wonder if that has something to do with CP?? Does anyone else have similar issues?
Good to hear you're doing well. Mind if I ask what kind of eye problems you have? I've been seeing specialists for enlarged optic nerves for about 8 years...they can't figure out why they're like that. My pressures have always been normal, but I started having eye pain about a year ago, so they put me on glaucoma drops and the pain has been better since.
But I wonder if that has something to do with CP?? Does anyone else have similar issues?
missbbpepper
07-14-2006, 08:12 PM
Steffers -
Right now It is all new to me - I am not sure what eye issue I have - this has been my first appointment in over 2 years - I am sure that once we find out why and what is wrong I can get on treatment - you guys will be the first to know.
It is nice to know there is hope. :)
Amber and SD Quincy
Right now It is all new to me - I am not sure what eye issue I have - this has been my first appointment in over 2 years - I am sure that once we find out why and what is wrong I can get on treatment - you guys will be the first to know.
It is nice to know there is hope. :)
Amber and SD Quincy
jomeja
07-27-2006, 10:55 PM
Amber,
Last you posted on another board, you were talking about possible scoliosis surgery? How is your curve doing deary?
Tracy
Last you posted on another board, you were talking about possible scoliosis surgery? How is your curve doing deary?
Tracy
missbbpepper
07-30-2006, 01:45 PM
Tracy,
Its not for Scoliosis - its for Spondelotheses - fractures in your spine that are degenerative. And to answer your question - I'm now only deciding when to have it done.
Thanks
Amber/Quincy
Its not for Scoliosis - its for Spondelotheses - fractures in your spine that are degenerative. And to answer your question - I'm now only deciding when to have it done.
Thanks
Amber/Quincy