cactus wren
07-16-2006, 12:12 AM
My neurologist started out diagnoising me w/essential tremors, two months ago. (a few years back family doctor diagnoised the same) Then a month later he said I show signs of PD, but he is sticking with ET. I was treated w/beta blocker it did no good. Now I am on primidone. Not yet helping much. (we keep increasing the dose) My MRI showed low calvarial marrow. (doctor not sure why) Blood work fine. I get muscle cramps in my legs & hands. I'm always tired and don't sleep well. The tremors are in my legs & hands. I have always been active and healthy. I am 47. I am not sure what to do next. Any suggestions would be greatly appreciated.:angel:
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debbiem425
07-16-2006, 11:23 AM
I was just recently diagnosed with Parkinson's so I don't know a lot about what combinations of symptoms are or are not Parkinson's. Regardless, I think you should get a second opinion. I have been to a general neurologist, then a movement disorder neurologist and am now waiting for an appointment at second movement disorder neurologist. This disease involves a lot of medication and I want to be sure I get the best care possible.
Good Luck!
Good Luck!
solution
07-17-2006, 04:13 PM
My neurologist started out diagnoising me w/essential tremors, two months ago. (a few years back family doctor diagnoised the same) Then a month later he said I show signs of PD, but he is sticking with essential tremors. I was treated w/beta blocker it did no good. Now I am on primidone. Not yet helping much. (we keep increasing the dose) My MRI showed low calvarial marrow. (doctor not sure why) Blood work fine. I get muscle cramps in my legs & they hurt, my hands hurt too. I'm more stiff in the mornings. I'm always tired and don't sleep well. The tremors are alfull, mostly hands. I have always been active and healthy. I am 47. I am not sure what to do next. Any suggestions would be greatly appreciated.:angel:
I've found the following combination of vitamins and supplements to help greatly:
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.
Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.
I've found the following combination of vitamins and supplements to help greatly:
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.
Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.
cactus wren
07-26-2006, 10:39 PM
[Thank you for the suggestion. Have you been using the vit. for awhile. ]I've found the following combination of vitamins and supplements to help greatly:
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.
Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.[/QUOTE]
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.
Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.[/QUOTE]
solution
07-31-2006, 07:13 PM
[Thank you for the suggestion. Have you been using the vit. for awhile. ]I've found the following combination of vitamins and supplements to help greatly:
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.
Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.[/QUOTE]
Several years, but for cdp-choline (recently).
-vit. B1: 200-250 mg three times daily, with breafast, lunch and dinner
- vit. B2: 30 mg three times daily, with breafast, lunch and dinner
- vit. B complex, once daily, with breakfast, lunch and dinner (B1 and B2 will be duplicated some, but never mind)
- vit C: 1000 mg three times daily, with breafast, lunch and dinner
- melatonin, 10 mg, once daily, half an hour before bed time
- A multivitaminic: once daily, with breakfast
- CDP Choline: 250 mg, twice daily, with breakfast and lunch.
Get them cheap at your local pharmacy and/or on the internet.
In my experience, benefits are felt immediately.
Let me know if they help.[/QUOTE]
Several years, but for cdp-choline (recently).
Oldbat
08-19-2006, 01:12 AM
Hi, I was treated for Essential tremours for 4 years and just in April I finally found a Neurologist who proved I had
adult stage parkinsons by watching me walk, by checking arms for cogwheeling, by testing brain (MRI) and starting me on low dose Mirapex from 0.125mg 3x/day to current dose of 0.50mg 3x/day and I use Parcopa 25mg/100m sometimes between. Some symptoms are, walking without swinging arms, shuffling feet, short steps, pokerface, monatone voice, hard to keep balance when walking. But i have gained in somethings with Mirapex. I now eat corn and peas with a fork instead of a spoon by taking dose before eating and I don't have to use a cane except on long walks, But I still get scared about stairs and I just get depressed. Parkinsons affects my typing too.I also have an ID bracelet. hope I helped witth the symptoms. Good luck.
adult stage parkinsons by watching me walk, by checking arms for cogwheeling, by testing brain (MRI) and starting me on low dose Mirapex from 0.125mg 3x/day to current dose of 0.50mg 3x/day and I use Parcopa 25mg/100m sometimes between. Some symptoms are, walking without swinging arms, shuffling feet, short steps, pokerface, monatone voice, hard to keep balance when walking. But i have gained in somethings with Mirapex. I now eat corn and peas with a fork instead of a spoon by taking dose before eating and I don't have to use a cane except on long walks, But I still get scared about stairs and I just get depressed. Parkinsons affects my typing too.I also have an ID bracelet. hope I helped witth the symptoms. Good luck.
JCitron
08-22-2006, 06:37 PM
CactusWren,
I'm 45 and I have similar symptoms. My doctor says I have dystonia because of the cramps, but I also I have the other symptoms including the tremors (very slight), the cogwheeling in my arms and legs, and the stiffness and slowness. I sometimes freeze when I move, and this has caused me to trip a few times. The last time I did this I thought I broke my left foot, but I had only bruised the toes instead.
I take regular Sinemet 4x per day plus 1 Sinemet CR for night along with Mirapex, which was recently increased to 2x per day. I've tried to stay positive, even though it's very difficult at times, and I am grateful that I can still move around rather well, and don't dwell on what I can't do or may never be able to do.
This magic mixture has helped me gain back a lot of what I lost. Prior to this, I had stopped playing the piano, which is something I have always done because I was too stiff. I don't play a lot of fast things like I used to, but now enjoy the slower works that I can play accurately. In general this mixture has made me feel almost normal again, and there are days when I question whether I really need it.
John
I'm 45 and I have similar symptoms. My doctor says I have dystonia because of the cramps, but I also I have the other symptoms including the tremors (very slight), the cogwheeling in my arms and legs, and the stiffness and slowness. I sometimes freeze when I move, and this has caused me to trip a few times. The last time I did this I thought I broke my left foot, but I had only bruised the toes instead.
I take regular Sinemet 4x per day plus 1 Sinemet CR for night along with Mirapex, which was recently increased to 2x per day. I've tried to stay positive, even though it's very difficult at times, and I am grateful that I can still move around rather well, and don't dwell on what I can't do or may never be able to do.
This magic mixture has helped me gain back a lot of what I lost. Prior to this, I had stopped playing the piano, which is something I have always done because I was too stiff. I don't play a lot of fast things like I used to, but now enjoy the slower works that I can play accurately. In general this mixture has made me feel almost normal again, and there are days when I question whether I really need it.
John
cactus wren
10-05-2006, 01:04 AM
Thank you, I have finally found an MDS dr. I can't get in till Jan. I really feel the Specialist opinion is needed. My symtoms have not improved at all. I am being treated for ET only. Thanks for your reply. (sorry for the late response)