frenchie77
09-03-2003, 10:29 AM
Okay, here is my story...
26 yr old female-
My mother has Lupus, sister Crohns, and several uncles have intestinal problems. Yesterday I went in for a colonoscopy and upper endoscopy because I have been having strange symptoms for over 2 years- severe diarrhea, stomach cramps, nausea, and vomiting, extreme hair loss (about 50%), body aches, headaches, fatigue, dizzy spells, and tooth decay. My blood tests have shown that I am severely low in calcium and iron and this is why the doctor assumed I may have Crohns or a malabsorbtion problem. Well, after the colonoscopy yesterday he said that my colon, stomach, and all looked normal and that I would now have to wait to see the results of the biopsies. I am very confused as to what else could be going on with me and really want to get my symptoms taken care of as soon as possible. He did say that I may need to have another exam where he gives me a pill/camera thing to swallow (don't remember the name) that can take pictures of my small intestine to make sure that there is not a problem there. Does anyone have any advice, ideas, or suggestions? Some of my symptoms are strange and I would like to know if anyone else is suffering the same thing. I am currently living in France and want to be sure that I am having the best treatment possible, though I do feel that the doctor I am seeing is very thorough. Another thing I should add is that I was diagnosed with PCOS- Polycystic Ovarian Syndrome, about 4 years ago and take multiple meds for this- Glucophage, Spironolactone, Mircette, and then Paxil and Xanax. Would any of these meds be causing such symptoms. Thanks bunches for any info...
26 yr old female-
My mother has Lupus, sister Crohns, and several uncles have intestinal problems. Yesterday I went in for a colonoscopy and upper endoscopy because I have been having strange symptoms for over 2 years- severe diarrhea, stomach cramps, nausea, and vomiting, extreme hair loss (about 50%), body aches, headaches, fatigue, dizzy spells, and tooth decay. My blood tests have shown that I am severely low in calcium and iron and this is why the doctor assumed I may have Crohns or a malabsorbtion problem. Well, after the colonoscopy yesterday he said that my colon, stomach, and all looked normal and that I would now have to wait to see the results of the biopsies. I am very confused as to what else could be going on with me and really want to get my symptoms taken care of as soon as possible. He did say that I may need to have another exam where he gives me a pill/camera thing to swallow (don't remember the name) that can take pictures of my small intestine to make sure that there is not a problem there. Does anyone have any advice, ideas, or suggestions? Some of my symptoms are strange and I would like to know if anyone else is suffering the same thing. I am currently living in France and want to be sure that I am having the best treatment possible, though I do feel that the doctor I am seeing is very thorough. Another thing I should add is that I was diagnosed with PCOS- Polycystic Ovarian Syndrome, about 4 years ago and take multiple meds for this- Glucophage, Spironolactone, Mircette, and then Paxil and Xanax. Would any of these meds be causing such symptoms. Thanks bunches for any info...
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gillian30
09-03-2003, 01:47 PM
When you are biopsied in your small intestine, make sure you are tested for Celiac Disease. It is a malabsorbsion disease which can cause a lot of symptoms similar to yours. A blood test is usually done first, then the biopsy. If you're positive for it, you'll be told to follow a strict gluten-free diet for the rest of your life, to heal your intestine. The diet is very complicated but works well in improving symptoms in most people. Good luck.
Reflux_Jan
09-06-2003, 01:18 AM
Have you ever heard of fibromyalgia? Most of the symptoms you have described are very similar to the ones for this condition. Vomiting can also be a symptom of reflux, which is also a symptom of fibromyalgia.
Refluxing stomach acids can cause tooth decay, it is very common. Also people with reflux get stomach cramps, chest pains and nausea.
A Mobility problem can cause reflux, this is when the food takes too long to go through the digestive system, it can also cause vomiting and nausea.
I hope you feel better soon
Refluxing stomach acids can cause tooth decay, it is very common. Also people with reflux get stomach cramps, chest pains and nausea.
A Mobility problem can cause reflux, this is when the food takes too long to go through the digestive system, it can also cause vomiting and nausea.
I hope you feel better soon
hepatitiscure
09-06-2003, 05:16 AM
frenchie,
your condition is definitely not fybromyalgia. Acid reflux doesn't cause tooth decay, but a manifestation of an underlying cause.
your condition is definitely not fybromyalgia. Acid reflux doesn't cause tooth decay, but a manifestation of an underlying cause.
Ginger9708
09-06-2003, 08:56 AM
Have you had your thyroid checked? It can cause these symptoms especially the hairloss, tiredness, achiness, etc. Also if you are not eating a very healthy diet it may also do this.
frenchie77
09-09-2003, 10:55 AM
I got my blood results back today, but still have to wait for the biopsies from the colonoscopy. Trying to get an appointment with the doctor to get these interpreted, but thought I would post them to see if anyone understands-
eosinophiles- high at 14%
total iron binding capacity- high
coefficient of stauration of iron- low
albumin-low
globulin alpha 1- high
globulin alpha 2- high
globulin beta- high
globuline gamma- normal
globulin A\G ratio - low
Thanks to everyone for the replies to my initial post! I have been doing some online investgating and have found them helpful. I want to make sure that i get tested (if i haven't already been) for all the problems suggested. I have not asked what he has tested me for bc I am assuming the names are different here in France. He seems pretty thorough. Will post again when i have my final results.
eosinophiles- high at 14%
total iron binding capacity- high
coefficient of stauration of iron- low
albumin-low
globulin alpha 1- high
globulin alpha 2- high
globulin beta- high
globuline gamma- normal
globulin A\G ratio - low
Thanks to everyone for the replies to my initial post! I have been doing some online investgating and have found them helpful. I want to make sure that i get tested (if i haven't already been) for all the problems suggested. I have not asked what he has tested me for bc I am assuming the names are different here in France. He seems pretty thorough. Will post again when i have my final results.