I was wondering with all your experience with doctors, has anyones doctor say why this reflux thing is so resistant to meds? It seems that mayn of us suffereing no matter what we take or have to try so many meds before we find something that will help. I have been looking since Feb.

Tlily

Least im not alone im looking into the surgey option cant find the right med..Plus last scope showed minor damage good luck..

meds don't help me, but i will not consider surgery. even the association of gastroenterologists does not recommend surgery for gerd under any circumstances. i would consider one of the endoscopic procedures but i hear they're not effective.

Yeah there not effectie I think surgery in the future might be a great advacement right now there working with something from 1951.At the same time how long do you want to suffer and think how much damage etc..

If you can figure it out, you will be a millionaire, lol

I am wondering myself about what is causing so many people to end up with this illness and why we our bodies are resistant to meds. One conclusion I have is that we have all been exposed to the same substance or something.

I have thought what if it is pollution or dish soap or flu shots or something like that. I am not saying it is any of these things but what if it is something?

How many of us just woke up one day with reflux? Or in my case when I went to bed. I can name the exact date and time reflux hit me for the 1st time ever! Why? Who knows. I had only ever had heartburn during pregnancy and i mean only during, other than that I have never had heartburn or indigestion to full blown reflux 24/7 for 2 years. No meds will touch it and the meds cause it to get worse or cause severe side effects.

Katt

Hi,
I think one of the most effective ways to help control acid reflux is to elevate the head of your bed 3 to 4 inches so stomach acid stays in your stomach and does not come up your esophagus while you are sleeping.

We spend 1/3 of our lives laying down sleeping-- well alot of us do?

I also think--- we eat more food that is acidic instead of non acidic foods like fruits and veggies.

Harry

HI Harry

I wish elevating the bed would help those of us with LPR, but ironically we reflux the most whenever we are not lying down. Just walking around actually causes us to reflux at our worst. It doesn't make any logical sense, but one of these days some enterprising MD/PHD may come up with a mechanism for how it works.

In the meantime, no surgery for me if I can avoid it. My docs are really down on the Nissen and alternatives right now - they want to see at least an 80% success rate in any one procedure before they recommend it. They said to hold off for another 5 years, because they are hoping the experimental surgeries will eventually panout.

I was wondering with all your experience with doctors, has anyones doctor say why this reflux thing is so resistant to meds? It seems that mayn of us suffereing no matter what we take or have to try so many meds before we find something that will help. I have been looking since Feb.

Tlily

here is what happend to me i looked for 5 years for drugs that would work i was on 160 mgs of protonix a day it was still out of control and yes i tried ever drug they had out there i had surgery on nov 9th 2005 i will never do it again i had really bad complications i couldn't get much of anything down for six months
my weight went down to 83 pounds i still till this day have pain in my stomache i can never throw up again just dry heave i can't burp i have spasm's in my espougus now i didn't have that before the surgery i have to take pilss to stimulate my intestines now so they work i didn't have this problem either before my surgery so please if anyone is considering this surgery think real hard about it

Spider

OMG Sorry that you have to suffer that much. I will never have that knod of surgery. Others have suffer as well. I just think that there has to be something other than all of this. Maybe I should say hoping that there is something out there soon to help all of us.

Tlily

Katt,
I think you are on to something. this is just too prevalent to not have some cause behind it; that's the mystery..

Spider,
sorry to hear you had such a bad outcome from your surgery, and i pray that better days are ahead for you and that we can all find some peace from this terrible condition.

i just want people to consider what i have been through before they go have the surgery i wouldn't wish this kind of suffering on my worst enemy they never told me that it was six months to a year recovery time they made it sound like it was just a simple thing they also never told me of all the complications that i could have or even of the ones i did have and yes i straight out asked them what are the complications and they didn't tell me much of anything

You know, I've been kind of curious about how this disorder (LPR in my case) became so ubiquitous, so quickly; I'd never heard of it until about 1999. The sheer array of drugs--and their considerable costliness--makes me even more unnerved.

I feel as if Nexium worked for me for about a month--it kept my main symptom, which is the lump in throat sensation/constriction--at bay. But now I feel is as bad as ever. And it seems like I need more and more Nexium all the time.

Conspiracy? I'm not a big conspiracy theory person, but I never just write them off without having first judged the evidence. It's an interesting point you brought up. We should all compare notes about our lifestyles, ages, etc. and see if there's anything in common!:confused: :yawn:

very well said, Mackey-
I have LPR also and never heard of it till 2006! I was told I had acid reflux last year and GERD and never even heard of that! So I've since done a lot of researching and reading on my own and talked to several doctors, and my niece is a nurse so compare notes with lots of people not to mention all the folks on this Board. Where did this come from in such a mass outbreak it seems?? what's going on here?? is it something in the water?? I'm mean seriously, it is a bit troubling. and so many young people, not that I consider myself old ;) but in my 20s I was living a healthy life!

I don't know about a conspiracy but pharmaceuticals are going to capitalize when there's a need or a demand.
I just wish they worked, and for so many of us that's not the case,and like you said the cost is prohibitive when many as well aren't covered.
So there I guess I've had my say.
I think we should compare notes but I bet we find a huge variety across the board in all areas.

You know, I've been kind of curious about how this disorder (LPR in my case) became so ubiquitous, so quickly; I'd never heard of it until about 1999. The sheer array of drugs--and their considerable costliness--makes me even more unnerved.

I feel as if Nexium worked for me for about a month--it kept my main symptom, which is the lump in throat sensation/constriction--at bay. But now I feel is as bad as ever. And it seems like I need more and more Nexium all the time.

Conspiracy? I'm not a big conspiracy theory person, but I never just write them off without having first judged the evidence. It's an interesting point you brought up. We should all compare notes about our lifestyles, ages, etc. and see if there's anything in common!:confused: :yawn:
ok lifestyle i do smoke i cut out all the food that is supposed to make me sick which doesn't leave the menu looking to great my age is 38 i was 32 when i woke up sick one day out of the blue i live in maine not a real busy place so stress of a big city was not the factor neither is pollution my meds were costing me over a 1000 a month i have had so many test and different doctors makes me wonder if there is no cure for this and they are just in it for the money because surgery wasn't even a fix

From what I read reflux is due to the esophagus spincher at entry to stomach being relaxed and allowing stuff to back up into the esophagus. Meds help keep the acid reduced but not necessarilly the contents from backing up.

Yes, some medications for other things can cause relaxation of this spincher.