I went to a derm Dr because I thought I had some kind of alergy reaction from something, the Dr did a biopsy, and the test came back as lupus, I have never heard of this before and have been searching the net to find out more about this.
I have I guess what they call a flare, I cant go outside, I have had the flares going on for 4 months now, I was told that they come and go, but mine is all over my face and scalp, and still gettting more leisions, I'm sick all the time,so I called a hospital in our area to have blood work done, they told me because I have medicade, that if someone with blue cross and blue sheild come in behind me they would be treated first,and I would be placed on the back burner, I could not beleave this so I dont know what to do, can someone give me some ideas....:confused:

Dear Beckus, I'm sorry you are facing these worries. But you've found a group here who can sympathize, lend their ears, & hopefully also share insights that will help.

Can your hospital provide names of rheumatologists who would accept you as a patient? It would make sense to try to see this type of specialist.

Lupus can affect "mainly skin", when it's the mildest type of lupus called "discoid lupus", or sometimes even a less mild type called "subacute cutaneous" lupus. But the thing is, people with systemic lupus (the bigger type), can ALSO get widespread rashes. Another way to say this is you can't tell the extent of lupus based on the lupus rash.

So once you know a rash is a lupus rash, you should, just like you said, try to get bloodwork done, urinalysis done, etc. to see if any major organs are being affected beyond your skin. These tests also get you closer to the appropriate treatment, meaning any medications you might need.

In the meantime, you probably should avoid sun exposure. Many (probably MOST) people with lupus rashes are photosensitive, which can result in overall flares, both skin & whatever else is being affected. Wear hats with brims, long sleeves & leg covering, and avoid especially midday sun (10-4).

To read more, right from this site, click the "Resources" tab above, and go into the sites provided and search on "lupus".

I hope you keep posting. The people here have a huge variety of experience and are always willing to share. Bye for now. Best wishes, from Vee

Vee,

Thank you for your response, I'm in the process of getting INS, as far as wearing hats it doesnt help, because even the sweat causes more leasions on my face, and weird, but thats the only place I'm broke out, I cant even go out when its raining, the leasions turn even more red, I get a new mark like every other day, and none have disappeared, hopefuly I can get these test done soon, its driveing me crazy not knowing how sever this is.
But again thank you........Becky

Becky,
Have you tried cortizone 10 cream? It helps me with my lesions and itching. It's the only thing, Rx or otherwise that I have found to help. I get the stongest, anti-itch, with aloe version.

Also, wear sunscreen all the time. Indoors (especially with flourescent light) and out. Strong stuff! I also have a UPF50+ shirt I got from REI. Any camping/hiking type store carries sunblocking clothing.

I too got diagnosed via a rash I thought was an allergy. You have a ways to go before you get any answers; but in the meantime maybe these things will help.

~Angie