NataliesMom
07-30-2006, 01:59 PM
OK, so my PT was here to work on the strength of my left side the other day. He said something so bizarre that I was in shock. He asked if anyone else in my family has or had MS. I said nope, but we're full of Auto-immune things, like Rhuemy and Lupus and Chrones and stuff like that. He said No, no, no those aren't like MS!!!:eek: I said what? Uh, yes they are, they are all Auto-immune related just like MS. He said no MS is a disease of the nervous system, where the mylien attacks the nerves. Well duh!! I said, yeah I know that, but it's also an Auto-immune disorder as well. He said no, it's really not, and then said to me "you should look it up on the internet"!!! OK, Now, I live with this stink disease everystinkinday. AND I have been on the internet since the day of dx. AND I've talked to my MS Specialist and my Family doctor about MS both of whom have said it is both nervous system AND Auto-immune. And now comes my PT telling me to look it up on the internet????
Um, is there something I've missed on the MS boat?:dizzy: :confused:
Um, is there something I've missed on the MS boat?:dizzy: :confused:
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sunshine149
07-30-2006, 02:08 PM
Nope, your absolutely right, that guy's an idiot! :D
FeistyOldBroad
07-30-2006, 04:40 PM
He is a nimord!!! My PT said something ingnorant also, She hhad me doing something ans then told me that I should practice at home since my health will be deteriating. Nice, huh?:blob_fire
steerpike
07-30-2006, 08:29 PM
Apparently there's still debate in the scientific community as to whether MS is autoimmune or not. I had a talk with my neurologist about it... he's really quite an exceptional doctor... a phd and a neurosurgeon. The verdict is that nobody really knows what causes the demyelination for sure-- whether it's infectious in nature or autoimmune or whatever.
Steroids just help with the swelling.
The medical community is really in the dark ages with this one. They don't even know why a lot of the medications prescribed actually work-- i.e minocycline. At the moment, they seem very interested in EBV-- the virus that causes mono, although this may be just another red herring.
That's why I'm willing to try the Lyme disease medicine. Who knows? It could be bacterial? Lyme antibiotics can actually enter the CNS and kill bacterial cysts... unlike usual oral medications. I'll let you guys know if it works. It probably won't, but it's worth a try at least.
:dizzy:
Still haven't been diagnosed.
Steroids just help with the swelling.
The medical community is really in the dark ages with this one. They don't even know why a lot of the medications prescribed actually work-- i.e minocycline. At the moment, they seem very interested in EBV-- the virus that causes mono, although this may be just another red herring.
That's why I'm willing to try the Lyme disease medicine. Who knows? It could be bacterial? Lyme antibiotics can actually enter the CNS and kill bacterial cysts... unlike usual oral medications. I'll let you guys know if it works. It probably won't, but it's worth a try at least.
:dizzy:
Still haven't been diagnosed.
StephanieAnne
07-31-2006, 12:54 AM
My mom has Lupus, I had MONO, and now I have MS, and if someone ever talked to me about what exactly MS is, and came back with the answer that your PT gave, I would say to them, walk a [frankenstein] mile in my shoes, experience the fatigue, and the numbness, and taking the shots, then tell me what MS isn't :D
I guess he was just trying to sound like a medical person, but I think he missed the boat, and telling you to look it up on the internet :eek: :eek: is that where he got his MS info? :rolleyes:
I guess he was just trying to sound like a medical person, but I think he missed the boat, and telling you to look it up on the internet :eek: :eek: is that where he got his MS info? :rolleyes:
NataliesMom
07-31-2006, 11:40 AM
I printed out a page from the NMSS to show my PT today that says MS is thought to be an Autoimmune disease that affect the central nervous system. It mentions myelin and the damage that is caused to it leaving lesions.
So for me that, and my MS doctor who is a specialist in MS and involved in many research studies, IMHO believe it is an Autoimmune disease.
I had mono as a teen also. I have had exzema my entire life as well, it was severe when I was a child. I had to get steroid shots every 2 weeks to keep the swelling down that it caused in my skin. So I'm pretty sure that I was predetermined to develop MS. Just a thought. I mean who the heck really knows, this disease is still so MySterious that it keeps us guessing.:dizzy:
So for me that, and my MS doctor who is a specialist in MS and involved in many research studies, IMHO believe it is an Autoimmune disease.
I had mono as a teen also. I have had exzema my entire life as well, it was severe when I was a child. I had to get steroid shots every 2 weeks to keep the swelling down that it caused in my skin. So I'm pretty sure that I was predetermined to develop MS. Just a thought. I mean who the heck really knows, this disease is still so MySterious that it keeps us guessing.:dizzy: