cutz
08-02-2006, 01:59 PM
:confused: I would like to know if anyone out there has any symptoms of toe curling (not painful ) or no knee reflexes? I have been all over the Internet looking for information about these subjects. I'm pretty sure I have MS but I can't get diagnosised I recently had blood work and a MRI but only of the brain and upper spine not Lower spine were the pain is ...I know go figure that one out. doctor tried to said I just had low potassium. but when i asked about the toe curling, and absent reflexes, she said go see a neur- but that I had no MS...which amazed me because I found out 20% of MS patients have NO leisions on the spine or brain. thank you for any information any one can give me. thanks
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Tasia W
08-02-2006, 02:20 PM
Hi, I am not diagnosed but am "probable", when your toe curls is it due to a spasm? Does it happen frequently? I spasm and get toe cramps on a daily base and so my toes do weird things all the time and my reflexes are hyper sensitive. Ask my husband, I accidently knocked a glass out of his hand when I was stretching my leg and then lost control of it. Good luck to you, I hope that you find out what is causing this :wave:
Take care
Tasia
Take care
Tasia
cutz
08-02-2006, 02:47 PM
Thanks for the info...no i don't have them frequently. but when i do it's pretty weird i can be driving or relaxing and their jeering or moving around or curling ...I to am hyper sensitive on one side and no reflexes on the other. thanks so much for the info
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StephanieAnne
08-02-2006, 07:57 PM
I do have MS, dx'd 12/04 most of my problems are on my right side, my arm is numb from the shoulder to the fingertips, and probably will stay that way for ever. Now my toes on the right foot, sometimes the little toe curls under and my PCP said that it is not curling, but then why is my nail touching the floor?
My toe was curled under for about 2 months, and then it stopped, and who knows why? :dizzy:
When I get pedicures, and she is working on my right foot, it takes off all on it's own, I am afraid that my foot is going to smack her in the face, it just jerks all by itself and that is embarrrassing :eek:
There are alot of little symptoms that occur with MS patients, and they come and go, and this board lets MS patients and those un dx'd share these symptoms with each other and it helps to make you feel like you are not alone. At least that is what helps me ;)
My toe was curled under for about 2 months, and then it stopped, and who knows why? :dizzy:
When I get pedicures, and she is working on my right foot, it takes off all on it's own, I am afraid that my foot is going to smack her in the face, it just jerks all by itself and that is embarrrassing :eek:
There are alot of little symptoms that occur with MS patients, and they come and go, and this board lets MS patients and those un dx'd share these symptoms with each other and it helps to make you feel like you are not alone. At least that is what helps me ;)
Curly100
08-02-2006, 10:21 PM
I have had M.S. since 3/87, I still work full time but walking is difficult because of my toes curling under. Barefoot is not bad but shoes and socks are terrible.
My Dr. said it is absolutly M.S. she put me on Baclofin but I am getting off of it because it causes weak muscles and I cannot handle that.
I have been searching the internet and asking people who also have M.S. what they do.
Your post is very timely since I just sat down to search the net again rearding this subject. Hit me back if you find anything that helps.
My Dr. said it is absolutly M.S. she put me on Baclofin but I am getting off of it because it causes weak muscles and I cannot handle that.
I have been searching the internet and asking people who also have M.S. what they do.
Your post is very timely since I just sat down to search the net again rearding this subject. Hit me back if you find anything that helps.
DOXYGUY
08-02-2006, 10:56 PM
cutz-
I was diagnosed with MS 7/00 and soon after that I developed toe curling. My wife calls it foot clenching. In any event your toes curling is definitely a symptom of MS. How is your ability to walk otherwise? I went to a physical therapist and found out it was called spasticity. Do not be surprised or unduly upset if you fall. That might happen.
I was diagnosed with MS 7/00 and soon after that I developed toe curling. My wife calls it foot clenching. In any event your toes curling is definitely a symptom of MS. How is your ability to walk otherwise? I went to a physical therapist and found out it was called spasticity. Do not be surprised or unduly upset if you fall. That might happen.
duttin
08-02-2006, 11:44 PM
Cutz,
I had the last 3 toes on my right foot curl under,it was a partial lesion in the lumbar spine(partial transverse myelitis),unusual spot for lesions.It occured after a lumbar surgery in 1998.Also I lost my vision bilaterally.(devics disease)
My neurosurgeon told me I had MS ,I dismissed him and the diagnosis,the surgery had failed and thought he was covering his butt.
I had no other symptoms after I recovered from that until 2 years ago
I have absent reflex in right ankle.I lost it in the last year.My brain scan #1 showed cortical atrophy,most significant in occipital region plus one lesion,scan #2 lesion healed.C-spine-mild narrowing,no impingments--suspect demyelination.LP---highly elevated basic myelin protein.I don't meet the normal criteria for a diagnosis of MS.A year of testing and multiple blood draws,past devics disease led to the diagnoses.
Go to a neuro,absent reflexes and hypo reflexes are neurological in nature.Get a copy of your MRI reports ,keep copies of all test for your personal use.
The road to diagnosing MS is long,so hang on,buckle up.It took me 11 Docs to finally get my point across.I have put an excellent team together.my neurologist(MS Doc)neurosurgeon(back Doc)Electromuscular(she does all electro test EMG/NCS,keeps the MS seperated from the back issues)and my GP.They correspond with each other.
Theres a wealth of info here and great support,your not alone.
I had the last 3 toes on my right foot curl under,it was a partial lesion in the lumbar spine(partial transverse myelitis),unusual spot for lesions.It occured after a lumbar surgery in 1998.Also I lost my vision bilaterally.(devics disease)
My neurosurgeon told me I had MS ,I dismissed him and the diagnosis,the surgery had failed and thought he was covering his butt.
I had no other symptoms after I recovered from that until 2 years ago
I have absent reflex in right ankle.I lost it in the last year.My brain scan #1 showed cortical atrophy,most significant in occipital region plus one lesion,scan #2 lesion healed.C-spine-mild narrowing,no impingments--suspect demyelination.LP---highly elevated basic myelin protein.I don't meet the normal criteria for a diagnosis of MS.A year of testing and multiple blood draws,past devics disease led to the diagnoses.
Go to a neuro,absent reflexes and hypo reflexes are neurological in nature.Get a copy of your MRI reports ,keep copies of all test for your personal use.
The road to diagnosing MS is long,so hang on,buckle up.It took me 11 Docs to finally get my point across.I have put an excellent team together.my neurologist(MS Doc)neurosurgeon(back Doc)Electromuscular(she does all electro test EMG/NCS,keeps the MS seperated from the back issues)and my GP.They correspond with each other.
Theres a wealth of info here and great support,your not alone.
cutz
08-04-2006, 03:17 PM
thank you for all the info everyone :)
Curly your information was every helpful thanks! Doxyguy no i havn't fallen but I can see how it could happen and to Jenallen my other symptoms are numbness and electical pain in the right arm and hand, lower back pain, tremors on mostly the right side a little on the left, left foot and leg below the knee goes completely numb and makes it hard to walk and noticably changes my gait, extreme fatigue,muscle weakness, slurred speech, and the special one ....."i say to my husband please don't stop me when I"m talking else i will never remember what i was going to say" I say this about 10 a day to him or other people. I know it's not funny but you have to try and find a little humor in it. theres more but i can't seem to remember (haha) right now.
Hope this helps some else out there who may need this info.....and thanks again everyone
cutz :)
Curly your information was every helpful thanks! Doxyguy no i havn't fallen but I can see how it could happen and to Jenallen my other symptoms are numbness and electical pain in the right arm and hand, lower back pain, tremors on mostly the right side a little on the left, left foot and leg below the knee goes completely numb and makes it hard to walk and noticably changes my gait, extreme fatigue,muscle weakness, slurred speech, and the special one ....."i say to my husband please don't stop me when I"m talking else i will never remember what i was going to say" I say this about 10 a day to him or other people. I know it's not funny but you have to try and find a little humor in it. theres more but i can't seem to remember (haha) right now.
Hope this helps some else out there who may need this info.....and thanks again everyone
cutz :)