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lilbear1978
08-05-2006, 04:08 PM
Well my doc and I are trying to figure out what I have. He did a RA test it was neg. He did a MS test it was neg. Now I have to have a LUPUS test and if this is neg. he said that it is FM. These are my symptoms I want to know if it sound like LUPUS i am sooooo scared:

Headaches at least for about 21/2 weeks out of a month but very strange headaches.

open sores that appear from nowhere and take forever to heal

Pain from the top of my head to my feet: mainly though in my neck, shoulders, back, hips, wrists, fingers, knees, ankles and feet. Pain is like a burning, trobbing aching pain. hard to explain.

Rash on my hands( looks like little blisters everywhere but really really itchy to the point that i'm ripping my skin open)

Constant kindney infections

constant high white blood count, high blood platelet count, high neut abs count, high neut lymp count, and very low magnesium levels

there is always protein and bacteria in my urine test but no bladder infection

sever bowel and abdominal problems ( eg. cramping, undigested food in stool, blood in my stool and haven't had a normal solid bowel movement in 3 years)

In the winter my fingers and toes go a white grey colour and i loose the feeling in them when they get cold.

Prone to infection

I have outburst of anger or i could be sitting there and all the sudden i'm crying and i have no idea why.

I just don't know what to think of all these symptoms I am certain I forgot a few but my memory is going. I am really scared to get my blood results back. I have 2 children and i'm only 27 and don't know what to do. Thank you bye:angel:

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rudysmom
08-08-2006, 03:21 AM
what you do is once you get your results is you start to deal with it. its never easy receiving a diagnosis of something but at least you will know what it is if it is Lupus they can start treating you properly for it. there is a lot of information out there for lupus. read but not to much. hang in there and keep us posted!

best of luck.

teachergirl64
08-13-2006, 07:00 PM
I hope you are fortunate enough to find a doctor who will treat you and not just the lab report. 2 years ago I changed primary doctors and he diagnosed me with ANA negative lupus. 5% of people with lupus with always be ANA negative. My rheum concurs, saying that bloodwork doesn't necessarily mean anything. He is treating me for both RA and lupus. Good luck to you.

 
 
 




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