gina9871
08-06-2006, 09:51 PM
Hello everyone,
I've posted here a bit in the last few months but I read most everything that gets posted. This board has been a great resource and you Senior Veterans are so wonderful to devote so much of your time to help the rest of us that are learning.
I finally had a bit of a diagnosis last week and I am still sponging up information.
I was confirmed with SERONEGATIVE SPONDYLOARTHOPATHY and we're still determining the type. (I don't have prevailing IBS symptoms - so we're thinking probably ANKYLOSING SPONDYLITIS) I've tested positive for the HLA-B27 gene. So that basically puts me in a UCTD category for now.
I also had a marginally high eosinophil count (10%) and had a positive ANCA (Anti-Neutrophilic Cytoplasmic Antibodies) which looks like possible VASCULITIS. I had a slightly elevated WBC, 1:80 ANA Titre, negative RH factor, but otherwise normal CBC. Churg-Strauss Syndrome is being discussed and the CSS symptoms look quite similar to my 8-month long trail of symptoms.
I was placed on 20mg prednisone 10 days ago but was bumped up to 40mg this week upon these lab results. (Also taking 75mg Lyrica 3x/daily for nerve pain)
My rheumatologist is not yet sure if the two conditions are necessarily related. I don't have a diagnosis of lupus, but there sure seems to be a bit of similarities (even though my rheumie says there is not usually an overlap of Seronegative spondyloarthropathies with Vasculitis...but it could happen).
Can anyone share there experience and/or knowledge on either/both of these conditions?
Thank you!
Gina
I've posted here a bit in the last few months but I read most everything that gets posted. This board has been a great resource and you Senior Veterans are so wonderful to devote so much of your time to help the rest of us that are learning.
I finally had a bit of a diagnosis last week and I am still sponging up information.
I was confirmed with SERONEGATIVE SPONDYLOARTHOPATHY and we're still determining the type. (I don't have prevailing IBS symptoms - so we're thinking probably ANKYLOSING SPONDYLITIS) I've tested positive for the HLA-B27 gene. So that basically puts me in a UCTD category for now.
I also had a marginally high eosinophil count (10%) and had a positive ANCA (Anti-Neutrophilic Cytoplasmic Antibodies) which looks like possible VASCULITIS. I had a slightly elevated WBC, 1:80 ANA Titre, negative RH factor, but otherwise normal CBC. Churg-Strauss Syndrome is being discussed and the CSS symptoms look quite similar to my 8-month long trail of symptoms.
I was placed on 20mg prednisone 10 days ago but was bumped up to 40mg this week upon these lab results. (Also taking 75mg Lyrica 3x/daily for nerve pain)
My rheumatologist is not yet sure if the two conditions are necessarily related. I don't have a diagnosis of lupus, but there sure seems to be a bit of similarities (even though my rheumie says there is not usually an overlap of Seronegative spondyloarthropathies with Vasculitis...but it could happen).
Can anyone share there experience and/or knowledge on either/both of these conditions?
Thank you!
Gina