Kymtnms
08-08-2006, 10:07 AM
Today is the long awaited day for my appointment at the MS Clinic. I'm really nervous about this appointment! I'm afraid the doctor is going to take away the diagnosis since I've read of others having this happen or he's going to say it's only a mild case and send me on my way with no further treatment. Not knowing what to expect has my nerves on edge to the point I sprayed hair conditioner in my eye instead of in my hair.:dizzy:
Also dreading the ride. It's 3 hours from my house to the clinic. If I'm able to walk when arriving at the clinic it will be a miracle! Guess we'll be stopping a lot between here and there. My cousin is driving me, thank goodness! If I drove myself would have had to left last week!
Well, just wanted to vent my fears hoping it would make me feel better. Everyone have a nice day. :)
Lynne
Also dreading the ride. It's 3 hours from my house to the clinic. If I'm able to walk when arriving at the clinic it will be a miracle! Guess we'll be stopping a lot between here and there. My cousin is driving me, thank goodness! If I drove myself would have had to left last week!
Well, just wanted to vent my fears hoping it would make me feel better. Everyone have a nice day. :)
Lynne
Sponsor
hkholwerda
08-08-2006, 01:13 PM
Don't be scared, be positive. Good luck and keep us posted :angel:
duttin
08-08-2006, 04:33 PM
Lynne,
I hope you get the quality of care you deserve.These big facilities are awesome.The technology is so much advanced than our small towns.The drive is hetic,but well worth it.I'm glad you found someone to drive you.
The anxiety of not knowing what to expect,can put your nerves on end.I'm sending prayers your way,for a safe drive and an excellent specialist.keep us posted.
Toni
I hope you get the quality of care you deserve.These big facilities are awesome.The technology is so much advanced than our small towns.The drive is hetic,but well worth it.I'm glad you found someone to drive you.
The anxiety of not knowing what to expect,can put your nerves on end.I'm sending prayers your way,for a safe drive and an excellent specialist.keep us posted.
Toni
Kymtnms
08-09-2006, 02:57 AM
Thank you both for your well wishes. Wish I could say it went well but it didn't! Here I sit tonight still as mad as I was when leaving the Medical Center and no relief for these spasms. I was too mad and upset to stop anywhere on the way home to get the stuff you told me about Toni. If my cousin hadn't been with me this afternoon I would still be wandering around the Center and parking garage trying to find my way out, my mind couldn't focus on anything except anger toward those stupid doctors!!!:mad:
The main problem was the doctor they scheduled me with wasn't a true "MS doctor" which I was afraid of before going. I had checked the website and couldn't find him listed with the MS department. When my neuro had his secretary call she asked for the MS department but apparently they just gave her neurology and scheduled me with a regular neuro who turned out to be a resident. I spent all day a few weeks ago typing up a list of symptoms, when they started, the treatments and tests received to date so nothing would be missed or forgotten, also thought this would make it easier for the doctor. I handed it to him first thing so he could read it and ask questions as we went. He glanced at the first page then laid it aside, never picking it up again. :mad: Won't bother to do that again, he tried to give it back to me when I left. He went through all the normal tests neuros do then took my MRI's and left the room. About 15 minutes later he and the "real" doctor returned. This is when it got bad!
The real doctor said you don't have MS, I don't understand why your neuro thinks you do. :confused: Then he goes on to explain he believes all the problems are caused from my back problems........my hearing is bad, my bladder, my balance, my body jerking is because of my back? So hey lets fix my back and I'll hear again right? :dizzy: I almost laughed outloud....what an idiot!!! So I said OK, how do you explain the O-bands on the Spinal Tap? He said we need to redo it because it's wrong and also repeat the Evoked Potentials because you were nervous and anxious the day they were done so they are probably incorrect too. Now how he knew I was nervous and anxious I don't know, first I wasn't and second, there isn't a thing on the reports that say it. Then finally he said what I was expecting to hear, "There are no lesions on your brain MRI or cervical MRI so it can't be MS." He said we don't have your spinal MRI so we don't know about it. At this point I didn't bother to tell him it was on the same disc as the cervical MRI because I know I'm dealing with a complete IDIOT!!!:mad: They left and the resident returned with a Spinal Tap consent form for me to sign which I went ahead and signed knowing I'm not going back but as I was signing told the resident I didn't agree with a single word his superior said, not a word of it and walked out of the room. I've called my neuro to tell him all this but he didn't return the call this afternoon. What a day! My neuro sent me to them for a second opinion and to get me started on one of the CRABS but instead they took away my diagnosis, stuck me back out in limboland and no telling what they have done to my chances of getting disability approved. Hope my neuro is willing to forget this second opinion thing and treat me himself after this fiasco today! If he won't then there is no other choice but to start over with a new neuro if my insurance has another one on the list. Just the thought of starting over makes me sick to my stomach!!!!
To make the day even worse received a phone call on the way home from my oldest daughter in North Carolina that my brother-in-law died this morning from a silent massive heart attack. He was only 43 years old with 2 small children. Such a tragedy!
Life is so difficult at times! I'm completely exhausted, mentally and physically, hope and pray some rest will help if sleep will come so all this can be dealt with calmly tomorrow.
Lynne
The main problem was the doctor they scheduled me with wasn't a true "MS doctor" which I was afraid of before going. I had checked the website and couldn't find him listed with the MS department. When my neuro had his secretary call she asked for the MS department but apparently they just gave her neurology and scheduled me with a regular neuro who turned out to be a resident. I spent all day a few weeks ago typing up a list of symptoms, when they started, the treatments and tests received to date so nothing would be missed or forgotten, also thought this would make it easier for the doctor. I handed it to him first thing so he could read it and ask questions as we went. He glanced at the first page then laid it aside, never picking it up again. :mad: Won't bother to do that again, he tried to give it back to me when I left. He went through all the normal tests neuros do then took my MRI's and left the room. About 15 minutes later he and the "real" doctor returned. This is when it got bad!
The real doctor said you don't have MS, I don't understand why your neuro thinks you do. :confused: Then he goes on to explain he believes all the problems are caused from my back problems........my hearing is bad, my bladder, my balance, my body jerking is because of my back? So hey lets fix my back and I'll hear again right? :dizzy: I almost laughed outloud....what an idiot!!! So I said OK, how do you explain the O-bands on the Spinal Tap? He said we need to redo it because it's wrong and also repeat the Evoked Potentials because you were nervous and anxious the day they were done so they are probably incorrect too. Now how he knew I was nervous and anxious I don't know, first I wasn't and second, there isn't a thing on the reports that say it. Then finally he said what I was expecting to hear, "There are no lesions on your brain MRI or cervical MRI so it can't be MS." He said we don't have your spinal MRI so we don't know about it. At this point I didn't bother to tell him it was on the same disc as the cervical MRI because I know I'm dealing with a complete IDIOT!!!:mad: They left and the resident returned with a Spinal Tap consent form for me to sign which I went ahead and signed knowing I'm not going back but as I was signing told the resident I didn't agree with a single word his superior said, not a word of it and walked out of the room. I've called my neuro to tell him all this but he didn't return the call this afternoon. What a day! My neuro sent me to them for a second opinion and to get me started on one of the CRABS but instead they took away my diagnosis, stuck me back out in limboland and no telling what they have done to my chances of getting disability approved. Hope my neuro is willing to forget this second opinion thing and treat me himself after this fiasco today! If he won't then there is no other choice but to start over with a new neuro if my insurance has another one on the list. Just the thought of starting over makes me sick to my stomach!!!!
To make the day even worse received a phone call on the way home from my oldest daughter in North Carolina that my brother-in-law died this morning from a silent massive heart attack. He was only 43 years old with 2 small children. Such a tragedy!
Life is so difficult at times! I'm completely exhausted, mentally and physically, hope and pray some rest will help if sleep will come so all this can be dealt with calmly tomorrow.
Lynne
fairynuf
08-09-2006, 05:44 AM
lynne, i am sorry to hear about your brother-in-law. You certainly had an awful day.
I can sympathise with you about the idiot dr because i had one of those on thursday. My employers made me an appoint. to see their dr because i have been off work on sick since dec 05. I told them i would see someone if he specialises in ms because the last one they sent me too didn't know much about it and said "your just depressed, get some anti-depressants and i will tell your employers you will be back at work in 4 wks"!
My own dr didn't agree and said he was talking @!*!.
Anyway when i went on thurs, i took a list of my symptoms which consisted of about 15 things, walked in and..OMG it was the same dr!!!
I had taken a mate for moral support (partner couldn't get out of work) and the dr looked at the list then at her chest then put the list down and and said "yes, good". I was told to walk in a straight line... i fell in to the wall! he was again looking at her chest and said "yes, good". He tested my knee reflexes, my right one didn't move. He said that was fine!
Then he said you cannot leave work on health grounds because......."ms is not a permanant illness you will find in a few months that you don't have ms" WHAT!?!?
Have i missed the boat somewhere and this illness cures itself?
Now i have to contact work again and tell them that I WANT TO DEAL WITH A DR WHO KNOWS ABOUT MS.....NOT A NUMPTY!
Sorry, rant over. Keep trying lynne. Thats what i am going to do. Best wishes and hugs to you:angel:
I can sympathise with you about the idiot dr because i had one of those on thursday. My employers made me an appoint. to see their dr because i have been off work on sick since dec 05. I told them i would see someone if he specialises in ms because the last one they sent me too didn't know much about it and said "your just depressed, get some anti-depressants and i will tell your employers you will be back at work in 4 wks"!
My own dr didn't agree and said he was talking @!*!.
Anyway when i went on thurs, i took a list of my symptoms which consisted of about 15 things, walked in and..OMG it was the same dr!!!
I had taken a mate for moral support (partner couldn't get out of work) and the dr looked at the list then at her chest then put the list down and and said "yes, good". I was told to walk in a straight line... i fell in to the wall! he was again looking at her chest and said "yes, good". He tested my knee reflexes, my right one didn't move. He said that was fine!
Then he said you cannot leave work on health grounds because......."ms is not a permanant illness you will find in a few months that you don't have ms" WHAT!?!?
Have i missed the boat somewhere and this illness cures itself?
Now i have to contact work again and tell them that I WANT TO DEAL WITH A DR WHO KNOWS ABOUT MS.....NOT A NUMPTY!
Sorry, rant over. Keep trying lynne. Thats what i am going to do. Best wishes and hugs to you:angel:
hkholwerda
08-09-2006, 11:01 AM
I am so sorry the both of you have had such difficulty finding a good dr. I can't say the same, my neuro sent me straight to a MS specialist...wish you lived in WI, I would give you his contact info, he is wonderful.
I know that each of you will find the right neuro soon. The fact that one of them said MS goes away is beyond an idiot :dizzy:
Try to stay positive, I know it isn't easy!
Thinking of both of you!
Keep me posted!
Holly :angel:
I know that each of you will find the right neuro soon. The fact that one of them said MS goes away is beyond an idiot :dizzy:
Try to stay positive, I know it isn't easy!
Thinking of both of you!
Keep me posted!
Holly :angel:
Kymtnms
08-09-2006, 11:01 AM
Hugs to you too!!! Hate to hear of anyone going through what we have experienced lately with doctors! What is wrong with these nuts? There has to be a school somewhere called the Doctors University of Idiots that turns out the majority of the doctors!
I got up extra early to contact my regular neuros office, the one who says it is MS, only to be told he's off on Wednesdays. I'll have to be patient and wait another day to fuss about being sent to that awful doctor he referred me to. I was all fired up and ready to tell him about it so that really burst my bubble!
I had similar experiences with my tests. He told me to stand up and close my eyes, lost my balance and grabbed the table behind me but then was able to steady myself. When walking heel to toe looked like a drunk but he said that was fine, also missed my nose with my right finger everytime but he said overall my coordination was really good.:confused: What do you need to do? Fall down after every few steps to have "bad" coordination. Think these doctors need to follow me around my house for a day and watch me walk into walls, fall in the yard, etc to see how my coordination really is! A simple test in an office is not a true picture. There are documented records of the falls I've taken in my yard and injured myself due to lack of coordination. Just because we pass their little test that afternoon doesn't we aren't going to be stumbling over our feet an hour later!
I'll keep pushing ahead but it's so mentally exhausting. I'm going to try to forget the appointment yesterday ever happened so I can calm down. Since my main neuro says it's MS and the one yesterday was to be a 2nd opinion then do I not have a right to choose which one to believe and trust? After thinking about it all night, (didn't sleep), if this 2nd opinion idiot didn't think it could possibly be MS then why is he bothering to repeat any of the MS tests? Why not leave it alone and dismiss me? People wonder why medical costs have gone so high, this is a perfect example, repeat testing with no justifiable reason.
Feel free to rant anytime you need to! I understand exactly where you are coming from. You ending up at the same doctor sounds so much like some of the crazy situations I've had with doctors trying to find out what is wrong with me. You sit in an exam room wondering how you could have possibly ended up with this doctor and why you are wasting what little energy you have talking to fools! Also, it's wonderful to know MS cures itself.....that will give me something else to wait for while waiting for disability to approve my claim! :D
While in town today I'm going to look for some of the homeopathic stuff with quinine in it Toni suggested for these spasms. If the doctors won't help then will have have to help myself! I don't know if it's because of being on so many different medications for various problems already or they don't believe the spasms are there but neither my neuro nor my primary doctor would prescribe anything. Both said wait until the appointment with the MS Clinic and they would prescribe something.....HA!
Since we are unable to attend my brother-in-laws funeral because it's out of town, 5 hours away, can't drive that far by myself, need to get flowers sent this morning. I feel bad worrying about doctors and MS when my sister is so devastated over the loss of her husband. This MS will take over your life if you let it. :(
Hang in there and come back to vent whenever you feel the need!
Lynne
I got up extra early to contact my regular neuros office, the one who says it is MS, only to be told he's off on Wednesdays. I'll have to be patient and wait another day to fuss about being sent to that awful doctor he referred me to. I was all fired up and ready to tell him about it so that really burst my bubble!
I had similar experiences with my tests. He told me to stand up and close my eyes, lost my balance and grabbed the table behind me but then was able to steady myself. When walking heel to toe looked like a drunk but he said that was fine, also missed my nose with my right finger everytime but he said overall my coordination was really good.:confused: What do you need to do? Fall down after every few steps to have "bad" coordination. Think these doctors need to follow me around my house for a day and watch me walk into walls, fall in the yard, etc to see how my coordination really is! A simple test in an office is not a true picture. There are documented records of the falls I've taken in my yard and injured myself due to lack of coordination. Just because we pass their little test that afternoon doesn't we aren't going to be stumbling over our feet an hour later!
I'll keep pushing ahead but it's so mentally exhausting. I'm going to try to forget the appointment yesterday ever happened so I can calm down. Since my main neuro says it's MS and the one yesterday was to be a 2nd opinion then do I not have a right to choose which one to believe and trust? After thinking about it all night, (didn't sleep), if this 2nd opinion idiot didn't think it could possibly be MS then why is he bothering to repeat any of the MS tests? Why not leave it alone and dismiss me? People wonder why medical costs have gone so high, this is a perfect example, repeat testing with no justifiable reason.
Feel free to rant anytime you need to! I understand exactly where you are coming from. You ending up at the same doctor sounds so much like some of the crazy situations I've had with doctors trying to find out what is wrong with me. You sit in an exam room wondering how you could have possibly ended up with this doctor and why you are wasting what little energy you have talking to fools! Also, it's wonderful to know MS cures itself.....that will give me something else to wait for while waiting for disability to approve my claim! :D
While in town today I'm going to look for some of the homeopathic stuff with quinine in it Toni suggested for these spasms. If the doctors won't help then will have have to help myself! I don't know if it's because of being on so many different medications for various problems already or they don't believe the spasms are there but neither my neuro nor my primary doctor would prescribe anything. Both said wait until the appointment with the MS Clinic and they would prescribe something.....HA!
Since we are unable to attend my brother-in-laws funeral because it's out of town, 5 hours away, can't drive that far by myself, need to get flowers sent this morning. I feel bad worrying about doctors and MS when my sister is so devastated over the loss of her husband. This MS will take over your life if you let it. :(
Hang in there and come back to vent whenever you feel the need!
Lynne
duttin
08-09-2006, 01:41 PM
Lynne and fairynuf,
I'm sorry to hear the crap your Drs. are putting you through.Wish they would come up with a criteria for dRs. when diagnosing this instead of the patients having to meet a criteria.It took me going to 3 different neuro's the last one is the one that had any sense and futher the diagnostic studies and looked at allthe test results and took everything into consideration.MS means multiple scaring,multiple symptoms.
Evoked potentials are not changed by anxiety.o-bands are pretty specific.Lynne be persistant with your current neuro.It seems that some neuro's have no clue and very few are even familiar with MS and read out of a text to figure it out.
Fairynuf,the DR that stated MS is not permant was a horses a**.These leg braces I wear aren't for a fashion statement.Its the progress of the disease that went undiagnosed by the ignorants of uneducated professionals.The occipital atrophy from brain lesions thats deteriorated my vision isn't gonna heal.
Ladies keep fighting for a diagnosis,you know how you feel,be persistant,keep making your list and documenting everything.My specialist enjoyed it,it cut my appointment in half and I didn't forget anything.
Lynne,talk to your neuro about the spasms,they can kick ya on your but and cause extreme pain.Insist on something.Sorry about your brother-in-law.
Keep venting it helps with this disease.
Toni
I'm sorry to hear the crap your Drs. are putting you through.Wish they would come up with a criteria for dRs. when diagnosing this instead of the patients having to meet a criteria.It took me going to 3 different neuro's the last one is the one that had any sense and futher the diagnostic studies and looked at allthe test results and took everything into consideration.MS means multiple scaring,multiple symptoms.
Evoked potentials are not changed by anxiety.o-bands are pretty specific.Lynne be persistant with your current neuro.It seems that some neuro's have no clue and very few are even familiar with MS and read out of a text to figure it out.
Fairynuf,the DR that stated MS is not permant was a horses a**.These leg braces I wear aren't for a fashion statement.Its the progress of the disease that went undiagnosed by the ignorants of uneducated professionals.The occipital atrophy from brain lesions thats deteriorated my vision isn't gonna heal.
Ladies keep fighting for a diagnosis,you know how you feel,be persistant,keep making your list and documenting everything.My specialist enjoyed it,it cut my appointment in half and I didn't forget anything.
Lynne,talk to your neuro about the spasms,they can kick ya on your but and cause extreme pain.Insist on something.Sorry about your brother-in-law.
Keep venting it helps with this disease.
Toni
Kymtnms
08-10-2006, 05:24 AM
Toni,
I did get to speak with my neuro yesterday, he must come in on his day off to catch up. I explained everything that happened at UK, about the doctor not being an MS doctor but only another neuro and only a resident doctor. My neuro was OK with all this information, said he didn't understand what I was upset about. :eek: So I started over again.....I said you gave me a diagnosis, you said it was PPMS after testing me with evoked potentials and a spinal tap which showed positive for O-bands and a high protein level. You said start deciding which CRAB I wanted to try, you said wait until you get to the MS clinic, they will give you something for the spasms so off I go to UK at your request for a 2nd opinion. I end up seeing a resident doctor and another neuro who says you are wrong, all tests are iffy, it all needs to be redone. Yes! I'm very upset! You ran tests for 3 months and finally gave me a diagnosis after 2 years of trying to find out what was wrong, I saw them for 15 minutes and they took it all away, setting me back 2 years again! :mad: He asked me if I remembered him telling me they might want to do some of their own testing? I do remember him mentioning that but as I told him didn't realize it was going to be the same tests. Also asked if a spinal tap had ever been incorrect, he hesitated, then answered no, so I demanded to know why that particular test has to be redone. His reply was it is very important to do whatever the neuro at UK asks of me, do NOT miss a single appointment. These tests need to be done while I have insurance because no one knows if they will have insurance down the road. He doesn't give me answers, only riddles to solve!!! He said he will help me out from his end but needs additional help. He has said this before but I still don't understand what he means by "he" needs additional help, either I have MS or I don't.
I did raise enough of a ruckas he finally prescribe some zanaflex capsules for the spasms and increased the lyrica. I explained zanaflex has given me headaches in the past but he believes the capsule form won't so will try it. On the part about retesting I'm ready to throw my hands up in the air and say forget it! I was so disgusted when hanging up the phone I cried for hours which gave me a horrible headache! These doctors don't realize Lexington is 3 hours away, people have to rearrange their schedules and inconvenience themselves to take me, gas prices are so high I can't afford to make multiple trips. I inquired about the letter the he was going to write on my behalf for disability, he seems less eager to help now, but said to call back in a couple of days. Then I mentioned the paperwork for a disabled parking placard. He said he couldn't help with it. He'll help with disability but won't sign the paper for the placard? What's the difference? My primary doctor won't sign for the placard either, she feels I should keep trying to walk. I do try to walk but when it hurts so bad into my hips and legs sometime it isn't possible especially after riding long distances. I'm going to really push the neuro at my next visit to sign the paperwork for the placard if he wants me to continue going to Lexington. I'm sure he's been to the parking garage and knows it's huge. The placard is really needed there most of all! Wonder if the pain clinic doctor would be a better candidate for signing that sort of paperwork?
I've ranted and raved enough, nothing is going to change the fact it's either repeat the tests through UK or drop the neuro I'm seeing now to find a new one and will possibly have to repeat all the tests anyway. This is a no win situation! :mad:
Hope everyone has a good day and doesn't have to deal with any idiot doctors!
Lynne
I did get to speak with my neuro yesterday, he must come in on his day off to catch up. I explained everything that happened at UK, about the doctor not being an MS doctor but only another neuro and only a resident doctor. My neuro was OK with all this information, said he didn't understand what I was upset about. :eek: So I started over again.....I said you gave me a diagnosis, you said it was PPMS after testing me with evoked potentials and a spinal tap which showed positive for O-bands and a high protein level. You said start deciding which CRAB I wanted to try, you said wait until you get to the MS clinic, they will give you something for the spasms so off I go to UK at your request for a 2nd opinion. I end up seeing a resident doctor and another neuro who says you are wrong, all tests are iffy, it all needs to be redone. Yes! I'm very upset! You ran tests for 3 months and finally gave me a diagnosis after 2 years of trying to find out what was wrong, I saw them for 15 minutes and they took it all away, setting me back 2 years again! :mad: He asked me if I remembered him telling me they might want to do some of their own testing? I do remember him mentioning that but as I told him didn't realize it was going to be the same tests. Also asked if a spinal tap had ever been incorrect, he hesitated, then answered no, so I demanded to know why that particular test has to be redone. His reply was it is very important to do whatever the neuro at UK asks of me, do NOT miss a single appointment. These tests need to be done while I have insurance because no one knows if they will have insurance down the road. He doesn't give me answers, only riddles to solve!!! He said he will help me out from his end but needs additional help. He has said this before but I still don't understand what he means by "he" needs additional help, either I have MS or I don't.
I did raise enough of a ruckas he finally prescribe some zanaflex capsules for the spasms and increased the lyrica. I explained zanaflex has given me headaches in the past but he believes the capsule form won't so will try it. On the part about retesting I'm ready to throw my hands up in the air and say forget it! I was so disgusted when hanging up the phone I cried for hours which gave me a horrible headache! These doctors don't realize Lexington is 3 hours away, people have to rearrange their schedules and inconvenience themselves to take me, gas prices are so high I can't afford to make multiple trips. I inquired about the letter the he was going to write on my behalf for disability, he seems less eager to help now, but said to call back in a couple of days. Then I mentioned the paperwork for a disabled parking placard. He said he couldn't help with it. He'll help with disability but won't sign the paper for the placard? What's the difference? My primary doctor won't sign for the placard either, she feels I should keep trying to walk. I do try to walk but when it hurts so bad into my hips and legs sometime it isn't possible especially after riding long distances. I'm going to really push the neuro at my next visit to sign the paperwork for the placard if he wants me to continue going to Lexington. I'm sure he's been to the parking garage and knows it's huge. The placard is really needed there most of all! Wonder if the pain clinic doctor would be a better candidate for signing that sort of paperwork?
I've ranted and raved enough, nothing is going to change the fact it's either repeat the tests through UK or drop the neuro I'm seeing now to find a new one and will possibly have to repeat all the tests anyway. This is a no win situation! :mad:
Hope everyone has a good day and doesn't have to deal with any idiot doctors!
Lynne
NataliesMom
08-10-2006, 08:25 AM
Wow Lynne:eek:
What bonehead doctors you have to deal with. I know a few members of other boards that have had the same thing happen. You have MS, Uh, No you don't, Well, it looks like MS. It really stinks that they do that to people. I am glad that my dx came as a surprise. I've had MS from what they can gather from my medical hx, since my early 20's. I got my dx in the hospital when I was 37. BAM, you have MS! OK, so I go home and deal with it.
You should come to Ohio, there is an MS institute here with a terrific doctor. I personally will never go back to the University MS clinic. The doctor there told me that my MS pain was in my head. He also told me that my legs should not be having spasms, that was also in my head, and I need to see a shrink. My hubby spoke up and said "you mean to tell us that when we're in bed watching tv or just going to sleep and her legs start jumping that that is in her head?" Yes the doc said. We left that place and I said OMG what an idiot. This guy was supposed to be an "expert" he claims he knows MS very well because he's been working with MS patients for over 25 years. My hubby and I looked at each other and said, and they come back?
So, I tell my wonderful:angel: MS doctor what this whacko said and he put his hand up after I told him that he told me that the pain was all in my head. He said I don't want to hear any more. Geez. And turned and shook his head and we changed subjects. He did ask me why I went to another doctor? I told him I have had the appointment for 6 months and that my GP wanted me to go. Okie ***ie he said. I think he was a little insulted that I wandered away from him. That's okay though, it will NEVER happen again. I love my doc. My MS is progressing and he is really understanding about it and talks to me about things to do and not do.
That's the kind of doc you need Lynne. You should look and see if there is an MS support group in your area and go and see who some of the others in the group go to. Just get an idea, alot of times you'll find that there is a popular doctor among a group of people. I met a small group in my area and quite a few of us see the same doctor and referred him to a few in the group who were newly dx.
I wish you luck, and I'm really sorry that you have to go through all of this, I'll keep you in my prayers because I know that this has to be tough. Be strong and keep after them. If you don't get the answer you like from one doctor, make and appointment with another. If there's a long wait, call another doc and make an appointment. Aslk to be put on both of their cancellation call list and whoever calls you first, go see, keep the other appt. in case you don't like that doc. Just keep plugging away at it. Good Luck :angel:
What bonehead doctors you have to deal with. I know a few members of other boards that have had the same thing happen. You have MS, Uh, No you don't, Well, it looks like MS. It really stinks that they do that to people. I am glad that my dx came as a surprise. I've had MS from what they can gather from my medical hx, since my early 20's. I got my dx in the hospital when I was 37. BAM, you have MS! OK, so I go home and deal with it.
You should come to Ohio, there is an MS institute here with a terrific doctor. I personally will never go back to the University MS clinic. The doctor there told me that my MS pain was in my head. He also told me that my legs should not be having spasms, that was also in my head, and I need to see a shrink. My hubby spoke up and said "you mean to tell us that when we're in bed watching tv or just going to sleep and her legs start jumping that that is in her head?" Yes the doc said. We left that place and I said OMG what an idiot. This guy was supposed to be an "expert" he claims he knows MS very well because he's been working with MS patients for over 25 years. My hubby and I looked at each other and said, and they come back?
So, I tell my wonderful:angel: MS doctor what this whacko said and he put his hand up after I told him that he told me that the pain was all in my head. He said I don't want to hear any more. Geez. And turned and shook his head and we changed subjects. He did ask me why I went to another doctor? I told him I have had the appointment for 6 months and that my GP wanted me to go. Okie ***ie he said. I think he was a little insulted that I wandered away from him. That's okay though, it will NEVER happen again. I love my doc. My MS is progressing and he is really understanding about it and talks to me about things to do and not do.
That's the kind of doc you need Lynne. You should look and see if there is an MS support group in your area and go and see who some of the others in the group go to. Just get an idea, alot of times you'll find that there is a popular doctor among a group of people. I met a small group in my area and quite a few of us see the same doctor and referred him to a few in the group who were newly dx.
I wish you luck, and I'm really sorry that you have to go through all of this, I'll keep you in my prayers because I know that this has to be tough. Be strong and keep after them. If you don't get the answer you like from one doctor, make and appointment with another. If there's a long wait, call another doc and make an appointment. Aslk to be put on both of their cancellation call list and whoever calls you first, go see, keep the other appt. in case you don't like that doc. Just keep plugging away at it. Good Luck :angel:
Kymtnms
08-10-2006, 08:57 AM
NataliesMom,
Thank you for your kind words of encouragement and your prayers! It sounds like you have found the most wonderful doctor!!! I would love to come to Ohio but my insurance is KY Medicaid, my understanding is it will only cover KY doctors but I'm going to check on that. What part of Ohio are you in?
I'm uncertain there is a MS support group near my area. Living in a very rural area has it's drawbacks. The nearest larger city would be Knoxville, TN and that is 70 miles from my house but will check into it. Hadn't thought about that until you suggested it. Thank you!
Also just realized I had been told a few months ago my cousin's wife has a sister with MS that lives within 40 miles of here so maybe she can offer some suggestions of doctors or support groups. She may not know about support groups though, I recall them telling me she was still working and got around very well but hopefully she can help out with the doctor end of it. It just doesn't seem sensible to redo all the tests. Spinal taps aren't incorrect, nor are evoked potentials. Besides, the only evoked potential test that was abnormal was the Visual which coincided with what I had been telling the doctors for 2 years. I kept describing my balance problems by saying my brain and body aren't working together. Turned out my right and left eye are off from each other in the amount of time they are sending signals to my brain. It suddenly all made sense. Now these UK neuros want to separate all the different symptoms and look at them as separate issues. Have already went through that for 2 years. The doctors could always find a problem with whichever body part that was wasn't acting correctly but never could find a cause. Even bringing in documentation to show the doctors at UK this still didn't stop them from wanting to repeat everything. :mad:
I will get right on contacting the MS Society for a support group and try to contact my cousin to see if he can get me a phone number for his wifes sister. Thanks again for the suggestion.
I'll be praying they are able to stop or at least slow down your progression! Sounds like you have a wonderful support group in your hubby and your doctor, that makes everything a little easier to handle!
Take care.
Lynne
Thank you for your kind words of encouragement and your prayers! It sounds like you have found the most wonderful doctor!!! I would love to come to Ohio but my insurance is KY Medicaid, my understanding is it will only cover KY doctors but I'm going to check on that. What part of Ohio are you in?
I'm uncertain there is a MS support group near my area. Living in a very rural area has it's drawbacks. The nearest larger city would be Knoxville, TN and that is 70 miles from my house but will check into it. Hadn't thought about that until you suggested it. Thank you!
Also just realized I had been told a few months ago my cousin's wife has a sister with MS that lives within 40 miles of here so maybe she can offer some suggestions of doctors or support groups. She may not know about support groups though, I recall them telling me she was still working and got around very well but hopefully she can help out with the doctor end of it. It just doesn't seem sensible to redo all the tests. Spinal taps aren't incorrect, nor are evoked potentials. Besides, the only evoked potential test that was abnormal was the Visual which coincided with what I had been telling the doctors for 2 years. I kept describing my balance problems by saying my brain and body aren't working together. Turned out my right and left eye are off from each other in the amount of time they are sending signals to my brain. It suddenly all made sense. Now these UK neuros want to separate all the different symptoms and look at them as separate issues. Have already went through that for 2 years. The doctors could always find a problem with whichever body part that was wasn't acting correctly but never could find a cause. Even bringing in documentation to show the doctors at UK this still didn't stop them from wanting to repeat everything. :mad:
I will get right on contacting the MS Society for a support group and try to contact my cousin to see if he can get me a phone number for his wifes sister. Thanks again for the suggestion.
I'll be praying they are able to stop or at least slow down your progression! Sounds like you have a wonderful support group in your hubby and your doctor, that makes everything a little easier to handle!
Take care.
Lynne
fairynuf
08-10-2006, 12:06 PM
Hi all,
It wasn't my dr/neuro saying that i didn't have ms and that it 'disappears'....it was a jumped up little squirt that my employer hired to see if i am capable of doing my job. He gets paid about £250 for every patient he see's and from what i have been told, he tells every one they are capable of going back to work!!! Wow, what a nice little earner...i could do that job!:D
Anyway i am going to tell my employer that i want to see someone else because that guy talked crap!!
I know i have ms, so do 3 neuro's and 3 dr's (non of which have told me it goes away!). I think they are just trying to delay things......which isn't doing my stress levels much good!:mad:
Anyway, gotta keep smilin':)
Take care:angel:
It wasn't my dr/neuro saying that i didn't have ms and that it 'disappears'....it was a jumped up little squirt that my employer hired to see if i am capable of doing my job. He gets paid about £250 for every patient he see's and from what i have been told, he tells every one they are capable of going back to work!!! Wow, what a nice little earner...i could do that job!:D
Anyway i am going to tell my employer that i want to see someone else because that guy talked crap!!
I know i have ms, so do 3 neuro's and 3 dr's (non of which have told me it goes away!). I think they are just trying to delay things......which isn't doing my stress levels much good!:mad:
Anyway, gotta keep smilin':)
Take care:angel:
jlmason
08-10-2006, 03:56 PM
Wow - sorry to hear about these bad doctors. But keep at it - eventually you'll find a good one.
I started out with a quack and he offered to set me up for a second opinion. Well sure I'll take it, since we're talking about some major medical problems here. Turns out the doctor he referred me is far more agressive and wasn't happy with the neuro's thoughts on my treatment (which was no treatment). Gee and the neuro's office wonders why I won't return their calls or keep my yearly follow up appointments :rolleyes:
Wow Lynne:eek:
I personally will never go back to the University MS clinic. The doctor there told me that my MS pain was in my head. He also told me that my legs should not be having spasms, that was also in my head, and I need to see a shrink. My hubby spoke up and said "you mean to tell us that when we're in bed watching tv or just going to sleep and her legs start jumping that that is in her head?" Yes the doc said. We left that place and I said OMG what an idiot. This guy was supposed to be an "expert" he claims he knows MS very well because he's been working with MS patients for over 25 years. My hubby and I looked at each other and said, and they come back?
NataliesMom - do you mean Ohio State University MS clinic when you say "University MS Clinic" ??? I go to OSU MS clinic and just love my doctor there. Are we allowed to post the dr's name here?? (I'm new here and don't know all the rules yet) or maybe the initials or something so I can figure out which dr it is that you weren't impressed with.
jlm
I started out with a quack and he offered to set me up for a second opinion. Well sure I'll take it, since we're talking about some major medical problems here. Turns out the doctor he referred me is far more agressive and wasn't happy with the neuro's thoughts on my treatment (which was no treatment). Gee and the neuro's office wonders why I won't return their calls or keep my yearly follow up appointments :rolleyes:
Wow Lynne:eek:
I personally will never go back to the University MS clinic. The doctor there told me that my MS pain was in my head. He also told me that my legs should not be having spasms, that was also in my head, and I need to see a shrink. My hubby spoke up and said "you mean to tell us that when we're in bed watching tv or just going to sleep and her legs start jumping that that is in her head?" Yes the doc said. We left that place and I said OMG what an idiot. This guy was supposed to be an "expert" he claims he knows MS very well because he's been working with MS patients for over 25 years. My hubby and I looked at each other and said, and they come back?
NataliesMom - do you mean Ohio State University MS clinic when you say "University MS Clinic" ??? I go to OSU MS clinic and just love my doctor there. Are we allowed to post the dr's name here?? (I'm new here and don't know all the rules yet) or maybe the initials or something so I can figure out which dr it is that you weren't impressed with.
jlm
duttin
08-10-2006, 11:54 PM
Lynne,
My heart goes out to you.I wish you were in Ohio!It seems from these postings the neuro's are up to date on MS.I go to the Cleveland Clinic MS institute.Its a 3 hour drive from my house,so I can relate to the whole day being rearranged.I seen a resident DR there and told them I wouldn't be back unless I talked to an experienced MS specialist.I explained that I understand that residents need to learn,but not at my expense.All my test are scheduled on one day since it is so far.They did not do the LP it was to far of drive home.It was done locally and sent to there lab.The OSU clinic is closer,but my neurosurgeon is at cleveland clinic.
Your neuro wasn't very compationate,he can give you a temporary handicap card.What an *** excuse my language.I have a permanent one for each vehicle,on days I can walk I walk other days I use it.Talk to your pain DR.If the zanaflex gives you head aches,talk to your pain DR.He can prescribe something for the spasms.If your under a contract with the pain clinic let them know that they prescribed you zanaflex.
I can relate to your frustrations,my first neuro was a royal jerk,he sent me to a neurosurgeon,he said my symptoms were not neurological,they were skeletor and muscular do to 2 previous lumbar surgeries.I had lost my vision,numbness in my face,arm weakness,electical shocks in neck.Neurosurgeon sent me back to neuro,after 4 appointments with this jerk,he insisted I see a shrink,I grabbed him by his tie and told him I could under stand if my *** was on my shoulders,then it would explain the loss of vision and everything else.Needless to say I scared the crap out of him.(I'm 5'2 and 108 lbs)I felt good.He scheduled MRI's,I got the report and films and went to another neuro.
Hang in there,we are here to support you,many of us has had repeat test and many neuro's.Try not to stress,it will make things worse.
Prayers to you
Toni
My heart goes out to you.I wish you were in Ohio!It seems from these postings the neuro's are up to date on MS.I go to the Cleveland Clinic MS institute.Its a 3 hour drive from my house,so I can relate to the whole day being rearranged.I seen a resident DR there and told them I wouldn't be back unless I talked to an experienced MS specialist.I explained that I understand that residents need to learn,but not at my expense.All my test are scheduled on one day since it is so far.They did not do the LP it was to far of drive home.It was done locally and sent to there lab.The OSU clinic is closer,but my neurosurgeon is at cleveland clinic.
Your neuro wasn't very compationate,he can give you a temporary handicap card.What an *** excuse my language.I have a permanent one for each vehicle,on days I can walk I walk other days I use it.Talk to your pain DR.If the zanaflex gives you head aches,talk to your pain DR.He can prescribe something for the spasms.If your under a contract with the pain clinic let them know that they prescribed you zanaflex.
I can relate to your frustrations,my first neuro was a royal jerk,he sent me to a neurosurgeon,he said my symptoms were not neurological,they were skeletor and muscular do to 2 previous lumbar surgeries.I had lost my vision,numbness in my face,arm weakness,electical shocks in neck.Neurosurgeon sent me back to neuro,after 4 appointments with this jerk,he insisted I see a shrink,I grabbed him by his tie and told him I could under stand if my *** was on my shoulders,then it would explain the loss of vision and everything else.Needless to say I scared the crap out of him.(I'm 5'2 and 108 lbs)I felt good.He scheduled MRI's,I got the report and films and went to another neuro.
Hang in there,we are here to support you,many of us has had repeat test and many neuro's.Try not to stress,it will make things worse.
Prayers to you
Toni
Kymtnms
08-11-2006, 01:14 AM
Hi all!
Can't express how much I appreciate all the support I'm getting from this board! Yesterday I had completely given up but today after reading the posts written I was ready to start fighting again. Had my first battle with the pharmacy and Medicaid which I lost but at least I'm fighting, right? :) The Zanaflex he's prescribing is capsules which is different from the tablets. He said it won't cause headaches like the tablets did. I looked it up, it's
prescribed for MS spasms so he's on the right track but he's not in the right price range. Medicaid will only cover 4 prescriptions a month and I have already reached the limit for this month, the zanaflex capsules cost $345. UGH!!!! Can't afford those! I'm prescribed 10 medications now, sat down tonight with all of them and decided there are 3 that can be stopped but this still leaves me 3 too many each month. The next step is to figure out if any of the medications have any kind of manufacturer financial assistance. Bet Ohio has a better medical system too!
Checked for a MS support group in my area today, as expected there wasn't one but did find a neurologist nearby who specializes in MS that I didn't know about. Now I have to figure out how to talk my primary into referring me to him. Don't know if this will be possible since my neuro already sent me to UK for a 2nd opinion but I'm going to push for an appointment for a 3rd opinion since not being satisfied with anything happening, besides that was his choice for a 2nd opinion not mine. I see my primary doctor again the 28th, she's going to hate to see me coming this month.
I will take the paperwork for the parking placard to the pain clinic first and ask him if he will sign it, if that doesn't work will hand it to my neuro at the next appointment to see what he does with the paperwork in his hand and me standing in front of him. I don't need it all the time either but when I do would like to know it's there. Don't know why the neuro is being difficult about this when he knows there were back and leg troubles already present before becoming his patient. It's only gotten worse and my hips are involved now too but no one has checked them even though I keep bringing it up. Will have to get tough with them about that at some point but dealing with the MS issue is about all I can handle presently.
Thank you all for your support! Each of you are in my prayers!
Hugs,
Lynne
Can't express how much I appreciate all the support I'm getting from this board! Yesterday I had completely given up but today after reading the posts written I was ready to start fighting again. Had my first battle with the pharmacy and Medicaid which I lost but at least I'm fighting, right? :) The Zanaflex he's prescribing is capsules which is different from the tablets. He said it won't cause headaches like the tablets did. I looked it up, it's
prescribed for MS spasms so he's on the right track but he's not in the right price range. Medicaid will only cover 4 prescriptions a month and I have already reached the limit for this month, the zanaflex capsules cost $345. UGH!!!! Can't afford those! I'm prescribed 10 medications now, sat down tonight with all of them and decided there are 3 that can be stopped but this still leaves me 3 too many each month. The next step is to figure out if any of the medications have any kind of manufacturer financial assistance. Bet Ohio has a better medical system too!
Checked for a MS support group in my area today, as expected there wasn't one but did find a neurologist nearby who specializes in MS that I didn't know about. Now I have to figure out how to talk my primary into referring me to him. Don't know if this will be possible since my neuro already sent me to UK for a 2nd opinion but I'm going to push for an appointment for a 3rd opinion since not being satisfied with anything happening, besides that was his choice for a 2nd opinion not mine. I see my primary doctor again the 28th, she's going to hate to see me coming this month.
I will take the paperwork for the parking placard to the pain clinic first and ask him if he will sign it, if that doesn't work will hand it to my neuro at the next appointment to see what he does with the paperwork in his hand and me standing in front of him. I don't need it all the time either but when I do would like to know it's there. Don't know why the neuro is being difficult about this when he knows there were back and leg troubles already present before becoming his patient. It's only gotten worse and my hips are involved now too but no one has checked them even though I keep bringing it up. Will have to get tough with them about that at some point but dealing with the MS issue is about all I can handle presently.
Thank you all for your support! Each of you are in my prayers!
Hugs,
Lynne
fairynuf
08-11-2006, 03:58 AM
Many thanks from me too for all your support.
I have written to my employers yesterday and told them what a *&!@ the Dr was and that i want a second opinion on leaving work on health grounds from someone who actually knows about ms (not someone who thinks its fine to have no reflexes and fall into a wall etc...)
They won't let my neuro give information about me unless their dr says that i am not well enough to do my job.
Anyway, i will see how far i get with them this time!
Lynne, you go girl! I'm sure Dr's think we only ask for these things for a laugh? These idiots need a kick up the posterior!:D Good luck.
Big hugs to everyone.:angel:
I have written to my employers yesterday and told them what a *&!@ the Dr was and that i want a second opinion on leaving work on health grounds from someone who actually knows about ms (not someone who thinks its fine to have no reflexes and fall into a wall etc...)
They won't let my neuro give information about me unless their dr says that i am not well enough to do my job.
Anyway, i will see how far i get with them this time!
Lynne, you go girl! I'm sure Dr's think we only ask for these things for a laugh? These idiots need a kick up the posterior!:D Good luck.
Big hugs to everyone.:angel:
duttin
08-11-2006, 05:24 AM
Lynne,
Many pharmacutical companies have med programs for low income people at little or no cost,google the med ,it should have the pharmacutical companies name and go from there.
Ohio's medicaid,as far as I know is not limitted on meds,I have Ohio medicaid and it hasn't denied any of my expenses yet.Lynne stay firm.
Toni
Many pharmacutical companies have med programs for low income people at little or no cost,google the med ,it should have the pharmacutical companies name and go from there.
Ohio's medicaid,as far as I know is not limitted on meds,I have Ohio medicaid and it hasn't denied any of my expenses yet.Lynne stay firm.
Toni
NataliesMom
08-11-2006, 10:27 AM
lynne, in a little town southeast of Columbus. I'm not sure about Ohio medicaide, but like Toni, I've not known them to limit you on the amount of prescriptions. My Mom is on it and the only problem she has had is the drug itself isn't in their "covered" program so her doc has to call her in something else. I'm glad you found an MS specialist in your area. I'll keep my fingers crossed for you that your doc gives you the referral. You take care as well:angel:
jlm: yep that's the one and all I'm going to say is it was a male doc, I don't want to tarnish any reputation this guy may have all I want to say is that he was horrible to me and I will never go back to him. I am glad though that you are having a positve experience there, that's what counts. We have to find a doc we are comfortable with. We are putting our brains and CNS in the hands of these doctors so comfort and trust are pretty big things. Take Care :angel:
fairynuf: GEEZ louis, what a bunch of bunk you're having to put up with. I'd keep on top of these quacks and make sure they report what REALLY going on with you. Go for that second opinion and if you don't get it, go over someone's head and demand one. There's no sense in them sending someone to monitor you who has absolutely no idea about what you have (MS). Some staff employee just doesn't cut it. That's ridiculous!! I hope you can get everything worked out in your favor. I'll keep my fingers crossed for you too!:angel:
jlm: yep that's the one and all I'm going to say is it was a male doc, I don't want to tarnish any reputation this guy may have all I want to say is that he was horrible to me and I will never go back to him. I am glad though that you are having a positve experience there, that's what counts. We have to find a doc we are comfortable with. We are putting our brains and CNS in the hands of these doctors so comfort and trust are pretty big things. Take Care :angel:
fairynuf: GEEZ louis, what a bunch of bunk you're having to put up with. I'd keep on top of these quacks and make sure they report what REALLY going on with you. Go for that second opinion and if you don't get it, go over someone's head and demand one. There's no sense in them sending someone to monitor you who has absolutely no idea about what you have (MS). Some staff employee just doesn't cut it. That's ridiculous!! I hope you can get everything worked out in your favor. I'll keep my fingers crossed for you too!:angel:
jlmason
08-11-2006, 11:47 AM
fairynuf: You've got to remember that these dr's that the companies pick are paid by the company. The company wants you to work as at least they get some work out of you while they are paying you rather than paying disability while you are out. My work background is in plaintiff's personal injury cases and when I see certain dr's for the defense I just roll my eyes as I know that the majority of their practice is from the defendant and therefore the dr. will say almost anything that the defendant wants in order to keep on the defendant's good side and keep the money rolling in!
NataliesMom - Yep, I think that's the doctor I go to. It's funny how someone can like a doctor and others don't. My kid's EX-ped is this way - you either love him or you hate him! My case might have been a little more obivous and easier to DX than others so maybe that has something to do with the likablity factor. I had no medical problems what so ever, woke up one day to have no vision in one eye, got an MRI and I've got MS. I didn't have any pre-existing symptoms or problems that doctor's had to weed out other causes for before giving the MS diagnosis. Glad you found someone you like - it makes a big difference when you trust who is taking care of you!
NataliesMom - Yep, I think that's the doctor I go to. It's funny how someone can like a doctor and others don't. My kid's EX-ped is this way - you either love him or you hate him! My case might have been a little more obivous and easier to DX than others so maybe that has something to do with the likablity factor. I had no medical problems what so ever, woke up one day to have no vision in one eye, got an MRI and I've got MS. I didn't have any pre-existing symptoms or problems that doctor's had to weed out other causes for before giving the MS diagnosis. Glad you found someone you like - it makes a big difference when you trust who is taking care of you!
NataliesMom
08-11-2006, 03:35 PM
Oh wow jlm, that is too bizzare! I too though had the wham bam method dx of MS. Woke up one day my whole left side was numb and couldn't move my leg. Went to the ER and a CT, 2 MRI's later my Neuro came in and said "well, it looks like MS, you think you can handle a LP?" WHAT??? Turns out based on medical hx, I've had MS since at least my early 20's. So this doc knew that I'd had a dx of MS for 6 months and was coming to see him only to please my GP. He did the usual test, and that's what I left with, the pain and leg jerks are all in my head.
I'm really glad though that you like him. That is important. I totally know what you mean. I refered my Mom to my GP. I've been seeing him for nearly 18 years and I love him to death. After seeing him for about 6 months, my Mom decides that he's not for her because he refers her out to other doctors instead of treating her himself. I told her there's a reason for that. He's family medicine, he is a specialist the physical care of a person. If it's beyond his scope, he refers out rather than to treat and end up doing something he has no experience on.
Well, sorry to be so long. I tend to ramble off at the keyboard. My cognitive skills are affected big time. That's where all my little lesions like to hang out, well there and balance. Take Care!:)
I'm really glad though that you like him. That is important. I totally know what you mean. I refered my Mom to my GP. I've been seeing him for nearly 18 years and I love him to death. After seeing him for about 6 months, my Mom decides that he's not for her because he refers her out to other doctors instead of treating her himself. I told her there's a reason for that. He's family medicine, he is a specialist the physical care of a person. If it's beyond his scope, he refers out rather than to treat and end up doing something he has no experience on.
Well, sorry to be so long. I tend to ramble off at the keyboard. My cognitive skills are affected big time. That's where all my little lesions like to hang out, well there and balance. Take Care!:)
Kymtnms
08-11-2006, 10:28 PM
After reading everything ya'll (you can tell I'm from the south :)) have written, sounds like those lesions are the key to an easier and quicker diagnosis. I don't have a single lesion, not even a speck that might possibly be a lesion, which is one reason it has taken so long in getting a diagnosis. Finally found the neuro I'm seeing who didn't believe you have to have lesions to have MS, he did the right tests but instead of trusting himself sends me on to the UK neuro for the 2nd opinion who says you do have to have lesions.....so make up your mind already will you!!!:mad:
Tried to get a partial out-of-pocket prescription filled on the Zanaflex capsules today but now the pharmacy is refusing. The pharmacist said he special ordered them for me, once he broke the seal he couldn't return them. He didn't want to take a chance on me not filling the whole prescription and him losing money on them. My neuro must prescribe weird medications because everytime I bring in a prescription from him they have to special order it. I understood where the he was coming from but it was still aggravating.
Not only is medicaid denying any prescriptions over 4 but they are also denying my tests now too. Received notice in the mail today the Gallbladder CT scan with biopsy was denied with no reason given. They said I could appeal within 30 days and get a lawyer if I chose to. My doctors office was closed so it will be Monday before finding out what the doctor wants me to do or if they can get it through some way. Kentucky medicaid doesn't want to do anything, Ohio insurance sounds a lot better!
Fairynuf: Hope you are able to see someone who knows something about MS instead of uninformed idiots! We shouldn't have to go through so much to get things accomplished when we already feel bad to begin with! Good luck and keep us posted.
Well, it's back to bed for me. My youngest daughter has managed to already catch and give me a cold. She's only been back in school 2 weeks. We usually don't start getting sick from school related illness until at least December. It may be a long school year!
Hugs to everyone!
Lynne
Tried to get a partial out-of-pocket prescription filled on the Zanaflex capsules today but now the pharmacy is refusing. The pharmacist said he special ordered them for me, once he broke the seal he couldn't return them. He didn't want to take a chance on me not filling the whole prescription and him losing money on them. My neuro must prescribe weird medications because everytime I bring in a prescription from him they have to special order it. I understood where the he was coming from but it was still aggravating.
Not only is medicaid denying any prescriptions over 4 but they are also denying my tests now too. Received notice in the mail today the Gallbladder CT scan with biopsy was denied with no reason given. They said I could appeal within 30 days and get a lawyer if I chose to. My doctors office was closed so it will be Monday before finding out what the doctor wants me to do or if they can get it through some way. Kentucky medicaid doesn't want to do anything, Ohio insurance sounds a lot better!
Fairynuf: Hope you are able to see someone who knows something about MS instead of uninformed idiots! We shouldn't have to go through so much to get things accomplished when we already feel bad to begin with! Good luck and keep us posted.
Well, it's back to bed for me. My youngest daughter has managed to already catch and give me a cold. She's only been back in school 2 weeks. We usually don't start getting sick from school related illness until at least December. It may be a long school year!
Hugs to everyone!
Lynne
NataliesMom
08-12-2006, 07:45 AM
Geez Louise Lynne! Could they put you thru any more crap? Have you thought about moving to OHIO?:D You could still keep that southern accent if you move on the southeastern or southwestern boarders. And we're chock full of small town"s. Pretty temping ya know.:jester:
OK, just a silly suggestion. I just feel so bad for ya. I really do. It seems like you are running into brick walls wherever you turn. And no, you do not have to have lesions to have MS. What is probably happening on the MRI, is the lesion(s) is pretty deep, or the way the magnent captures the view. What happens with that is it take and slices(images)of your brain, and heck you may have a tiny lesion that is in between 2 slices and just simply doesn't show up. Also, did you have an open or closed MRI, that would make a differnce too. Open MRI's are not as strong as closed ones and are not as able to pick up lesions as well as the closed tombs,:eek: I hate the closed ones, I have to be drugged to do a closed MRI. I've got clausterphobia and my doc gives me valium before my MRI to chill me out, or knock me out rather.
Anyhoo, I wouldn't put too much stock in your first MRI. For your gallbladder, I'd have your doc put together all the medical info he has about the times you've come to see him in regards to your gallbladder, or possible gallbladder problem and appeal that denial on your own.
Let us know. Good luck to you. Take care and don't give up!!!:angel:
OK, just a silly suggestion. I just feel so bad for ya. I really do. It seems like you are running into brick walls wherever you turn. And no, you do not have to have lesions to have MS. What is probably happening on the MRI, is the lesion(s) is pretty deep, or the way the magnent captures the view. What happens with that is it take and slices(images)of your brain, and heck you may have a tiny lesion that is in between 2 slices and just simply doesn't show up. Also, did you have an open or closed MRI, that would make a differnce too. Open MRI's are not as strong as closed ones and are not as able to pick up lesions as well as the closed tombs,:eek: I hate the closed ones, I have to be drugged to do a closed MRI. I've got clausterphobia and my doc gives me valium before my MRI to chill me out, or knock me out rather.
Anyhoo, I wouldn't put too much stock in your first MRI. For your gallbladder, I'd have your doc put together all the medical info he has about the times you've come to see him in regards to your gallbladder, or possible gallbladder problem and appeal that denial on your own.
Let us know. Good luck to you. Take care and don't give up!!!:angel:
duttin
08-12-2006, 10:25 AM
Lynne,
You been through to much,Ohio medicaid has not denied any of my medical claims nor prescribs.
I ask my neuro yesterday about a spinal tap being wrong and he gave me a stupid look and said O-BANDs when present do not disappear and very few labs make mistakes.As far as VEP test anxiety and stress do not alter the out come.He said you needed a real Dr.My neuro is a real good guy,even has a sense of humor.
I talked with my neuro yesterday,I have 1 lesion,borderline vep and ssep and high MBP.He stated this is an individual disease and many neuro's don't step out of the criteria box.He stated that the symptoms I have and every possible disorder has been ruled out twice.This is his diagnoses and other neuro's would take the wait and see approach.He said if you moved to OHIO he'd take you on as a patient.:) He always tells me it is old age,I had explained thats what a neuro and my optometrist told me on my second appointment with him.I actually seen him as an emergency patient as a referral from my neurosurgeon,they thought I had myopathy.I wasn't gonna go back,glad I did.
When your Dr prescibed zanaflex was it in generic form(tizanadine)its a little cheaper.
Appeal your gallbladder test,these are essential test.
Lynne did your neuro just do an MRI of the brain?My neuro would like to send me to a bigger clinic and have a newer MRI,he explained that the majority of MRI machines are T(telsa)1.5 and usually 5mm slices,he'd like to get a T7 or
T8 with 1mm-3mm slices.I told him after the first of the year,kids going back to school,I need time to get my house in order and relax.
You take care
Toni
You been through to much,Ohio medicaid has not denied any of my medical claims nor prescribs.
I ask my neuro yesterday about a spinal tap being wrong and he gave me a stupid look and said O-BANDs when present do not disappear and very few labs make mistakes.As far as VEP test anxiety and stress do not alter the out come.He said you needed a real Dr.My neuro is a real good guy,even has a sense of humor.
I talked with my neuro yesterday,I have 1 lesion,borderline vep and ssep and high MBP.He stated this is an individual disease and many neuro's don't step out of the criteria box.He stated that the symptoms I have and every possible disorder has been ruled out twice.This is his diagnoses and other neuro's would take the wait and see approach.He said if you moved to OHIO he'd take you on as a patient.:) He always tells me it is old age,I had explained thats what a neuro and my optometrist told me on my second appointment with him.I actually seen him as an emergency patient as a referral from my neurosurgeon,they thought I had myopathy.I wasn't gonna go back,glad I did.
When your Dr prescibed zanaflex was it in generic form(tizanadine)its a little cheaper.
Appeal your gallbladder test,these are essential test.
Lynne did your neuro just do an MRI of the brain?My neuro would like to send me to a bigger clinic and have a newer MRI,he explained that the majority of MRI machines are T(telsa)1.5 and usually 5mm slices,he'd like to get a T7 or
T8 with 1mm-3mm slices.I told him after the first of the year,kids going back to school,I need time to get my house in order and relax.
You take care
Toni
Kymtnms
08-20-2006, 08:14 AM
Finally made it back to the boards....what a week!!! Hope everyone is doing well! I'm so far behind with e-mails and reading posts will have to sit here all day to catch up. My laptop died so this means having to sit up at the desktop which is not possible for long periods so that will slow me down more. Have added replacing the laptop up there with top priority things and pray for a money tree to grow in the backyard!
Accomplished something this week! Went to the pain clinic and DID get my permanent handicap parking placard!!! :bouncing: My doctor didn't ask a single question. He saw the form laying on the exam table beside me when he entered the room, asked me to hand it to him, filled it out and handed it back to me. It took 15 seconds. Carried it to my cousin for notarization and had the placard in my hand within 24 hours. Now what my neurologist was carrying on about I don't know! He said something about having to be almost dead to get it approved by the county.....after getting it thought maybe the county and my pain dr know something I don't? :eek: Anyway, went to Walmart and the grocery store by myself knowing getting back to the car wouldn't be a problem being parked so close. This gave me back some lost confidence. What a feeling! :D
Toni, the Zanaflex, which I did finally get filled Friday, is the new capsule form. Internet information says it's a new form that is prescribed for MS spasms. I took it Friday night and last night but still had spasms. Believe it's the highest dosage they make so don't know what they will give me next if this doesn't work. It could be it takes a few days to kick in too. At least it didn't give me a headache like the tablet form does so that was a relief. The pharmacist claimed it was the same medication only time-released so it would still cause the headaches.
Still having a difficult time with Medicaid and the pharmacy. This time they have denied the Topomax and Amanadine. The Topomax because it's being prescribed for tremors and a mood stablizer instead of for headaches and the Amanadine because it's being taken as an energy booster instead of for a viral infection. One of the pharmacists will stretch the truth to override the system so Medicaid will approve certain medications but the pharmacist who was on duty Friday wouldn't do it and actually called Medicaid to make certain they knew why I was trying to fill these particular prescriptions. What a jerk!!!:mad: I'm going back tomorrow to see which pharmacist is on duty and trying again. Need to figure out the work schedule of the other pharmacist.
NataliesMom, moving for insurance purposes is not a silly suggestion at all! Have been looking around for a new husband with good insurance, this is his main requirement so moving doesn't sound silly at all. Would much rather move than marry for insurance. :) The guy I had been talking to (old high school sweetheart) has great insurance but isn't interest in pursuing a new relationship immediately since he wants to get his life together first. I thought Darn! of all the times to find a man who I really like and actually is responsible enough to want to take care of all his obligations before pursuing new ones. He talks like he expects me to wait around on him. I've explained my situation and told him the biggie....about the MS. That was SCARY!!! He didn't seem to have a problem with the MS, not sure he understands what it is, but he's been around me so he knows some of my disabilities. Still it looks like I'll have to pass on him and look elsewhere as finding new insurance and starting a new relationship has become a top priority. Since I'm not getting any better nor younger and it takes time to start a new relationship to see if things are going to work out, there isn't time to wait around on someone to get his life in neat order. My gosh, that could take years! Thinking back, believe this is one of the reasons I broke it off in high school. He was so busy getting his life in order I got bored and decided living life was a lot more fun than trying to get one's life in order. He takes things too seriously, I'm a free spirit or at least I was before the MonSter took over. :( Relationships and MS are another big problem I've been dealing with. This is all new and there is so much uncertainty and a lack of self-confidence I've never dealt with before. My plan had been to wait until my daughters were out of high school before even considering a new relationship but in 5 years no telling what kind of shape I'll be in so waiting 5 years doesn't sound like such a good idea anymore.
My primary doctor did find a way to get Medicaid to approve the other gallbladder scan which makes me very hopeful she will also find a way to get me into see another neurologist. Realized the other day the neurologist is the one who promised to write a letter to SSI stating I was unable to work anymore so can't part company with him until that letter is in my hand. I called his office last week to see what the status of the letter was but they couldn't tell me anything. My appointment is tomorrow afternoon so maybe it's ready and in the file. Tomorrow is also his last chance to straighten out the mess out at UK. If he and I still don't see eye to eye it will probably be my last appointment with him.
He agreed spinal tap tests are not wrong and neither are evoked potentials. He also said the MRI is very possibly not strong enough to pick up the lesions. This is what really puzzles me. He knows all this yet he is insistant I see and follow all directions of a resident doctor at UK. It just doesn't make sense!
I do wonder if I could come up with the money to see a neurologist in Ohio if the prescriptions could be filled in Kentucky? If I ever get a chance to sit down long enough with a quiet moment I plan to call Medicaid to find out what the options are as far as doctors with the MS situation. Did find out Medicaid allows orthodontic patients out-of-state treatment so why not MS patients?
This is terribly long but much has happened this week. Hope no one falls asleep reading it! :)
Hugs,
Lynne
Accomplished something this week! Went to the pain clinic and DID get my permanent handicap parking placard!!! :bouncing: My doctor didn't ask a single question. He saw the form laying on the exam table beside me when he entered the room, asked me to hand it to him, filled it out and handed it back to me. It took 15 seconds. Carried it to my cousin for notarization and had the placard in my hand within 24 hours. Now what my neurologist was carrying on about I don't know! He said something about having to be almost dead to get it approved by the county.....after getting it thought maybe the county and my pain dr know something I don't? :eek: Anyway, went to Walmart and the grocery store by myself knowing getting back to the car wouldn't be a problem being parked so close. This gave me back some lost confidence. What a feeling! :D
Toni, the Zanaflex, which I did finally get filled Friday, is the new capsule form. Internet information says it's a new form that is prescribed for MS spasms. I took it Friday night and last night but still had spasms. Believe it's the highest dosage they make so don't know what they will give me next if this doesn't work. It could be it takes a few days to kick in too. At least it didn't give me a headache like the tablet form does so that was a relief. The pharmacist claimed it was the same medication only time-released so it would still cause the headaches.
Still having a difficult time with Medicaid and the pharmacy. This time they have denied the Topomax and Amanadine. The Topomax because it's being prescribed for tremors and a mood stablizer instead of for headaches and the Amanadine because it's being taken as an energy booster instead of for a viral infection. One of the pharmacists will stretch the truth to override the system so Medicaid will approve certain medications but the pharmacist who was on duty Friday wouldn't do it and actually called Medicaid to make certain they knew why I was trying to fill these particular prescriptions. What a jerk!!!:mad: I'm going back tomorrow to see which pharmacist is on duty and trying again. Need to figure out the work schedule of the other pharmacist.
NataliesMom, moving for insurance purposes is not a silly suggestion at all! Have been looking around for a new husband with good insurance, this is his main requirement so moving doesn't sound silly at all. Would much rather move than marry for insurance. :) The guy I had been talking to (old high school sweetheart) has great insurance but isn't interest in pursuing a new relationship immediately since he wants to get his life together first. I thought Darn! of all the times to find a man who I really like and actually is responsible enough to want to take care of all his obligations before pursuing new ones. He talks like he expects me to wait around on him. I've explained my situation and told him the biggie....about the MS. That was SCARY!!! He didn't seem to have a problem with the MS, not sure he understands what it is, but he's been around me so he knows some of my disabilities. Still it looks like I'll have to pass on him and look elsewhere as finding new insurance and starting a new relationship has become a top priority. Since I'm not getting any better nor younger and it takes time to start a new relationship to see if things are going to work out, there isn't time to wait around on someone to get his life in neat order. My gosh, that could take years! Thinking back, believe this is one of the reasons I broke it off in high school. He was so busy getting his life in order I got bored and decided living life was a lot more fun than trying to get one's life in order. He takes things too seriously, I'm a free spirit or at least I was before the MonSter took over. :( Relationships and MS are another big problem I've been dealing with. This is all new and there is so much uncertainty and a lack of self-confidence I've never dealt with before. My plan had been to wait until my daughters were out of high school before even considering a new relationship but in 5 years no telling what kind of shape I'll be in so waiting 5 years doesn't sound like such a good idea anymore.
My primary doctor did find a way to get Medicaid to approve the other gallbladder scan which makes me very hopeful she will also find a way to get me into see another neurologist. Realized the other day the neurologist is the one who promised to write a letter to SSI stating I was unable to work anymore so can't part company with him until that letter is in my hand. I called his office last week to see what the status of the letter was but they couldn't tell me anything. My appointment is tomorrow afternoon so maybe it's ready and in the file. Tomorrow is also his last chance to straighten out the mess out at UK. If he and I still don't see eye to eye it will probably be my last appointment with him.
He agreed spinal tap tests are not wrong and neither are evoked potentials. He also said the MRI is very possibly not strong enough to pick up the lesions. This is what really puzzles me. He knows all this yet he is insistant I see and follow all directions of a resident doctor at UK. It just doesn't make sense!
I do wonder if I could come up with the money to see a neurologist in Ohio if the prescriptions could be filled in Kentucky? If I ever get a chance to sit down long enough with a quiet moment I plan to call Medicaid to find out what the options are as far as doctors with the MS situation. Did find out Medicaid allows orthodontic patients out-of-state treatment so why not MS patients?
This is terribly long but much has happened this week. Hope no one falls asleep reading it! :)
Hugs,
Lynne
duttin
08-20-2006, 11:50 AM
Lynne,
Glad that you got the zanaflex!The zanaflex didn't work alone for me So my neuro added the baclofen.Both are for spasm meds for MS.
Glad you got some confidence going to the store.I don't understand why your Neuro wouldn't give you the handicap placard.It will give you some mobility back.
Lynne, Ohio has a good medicaid program,I have never had a problem or questioned about meds.I hope you succeed in finding a good man with a good insurance plan.Theres lots of eligible's here in my little town plus housing is cheap.
As far as MRI machines not picking up lesions your Neuro is correct,most facilities are still in the stone age on technology,most still use T1.5 the higher the T(telsa) the stronger the image , the better picture.The Cleveland Clinic has a Telsa 7 and I'm pushing for my neuro to send me there for my next MRI,even though its 3 hours away it would be worth it.
I'm calling my neuro tomorrow,he needs to get this internal buzzing slowed down.I feel like I have swallowed a bee hive,it has been non stop for a week now.It is terrible,it feels like my nerves are being short circuited,it starts in my neck and buzzes down my spine and down my right leg and then it starts all over.Valium seems to slow it down some.I had a cyst removed off my lower right leg on friday and soon as the injected my leg with the numbing stuff(brain fog)the whole foot and leg started buzzing and the general surgeon ask if I was aware of it.He had to literally hold onto my foot,to remove the cyst from my leg.He said he was going to call my neuro.I know this should pass soon,but dang its kicking my butt this time around.
Keep firm with your neuro,don't brake ties to soon.He knows in the back of his mind you have MS,he just following the guide lines that a bunch of idiots set up.(McDonald Criteria's)some neuro's still use the poser criteria's.Like my neuro states nothing is ever black and white and not always is MS a full clinical picture.He states that ya have to look at the whole picture,its like a puzzle,not all peices fit together at once,once you start peicing everything together then you have a picture.My neuro is warped,and I know he's colored blind his cloths never match(lol).He's got a great personality and very kind to his patients.He once ask my during an exam if I knew what it felt like to have a cramp in my hands,he got a cramp in his hand examming me.I just laughed.He stated that was a stupid question,since he has me maxed out on spasm meds.
Wish you were closer,you would like this guy.
Hang in there.How old are your girls?My last one will graduate in 5 years also.
Toni
Glad that you got the zanaflex!The zanaflex didn't work alone for me So my neuro added the baclofen.Both are for spasm meds for MS.
Glad you got some confidence going to the store.I don't understand why your Neuro wouldn't give you the handicap placard.It will give you some mobility back.
Lynne, Ohio has a good medicaid program,I have never had a problem or questioned about meds.I hope you succeed in finding a good man with a good insurance plan.Theres lots of eligible's here in my little town plus housing is cheap.
As far as MRI machines not picking up lesions your Neuro is correct,most facilities are still in the stone age on technology,most still use T1.5 the higher the T(telsa) the stronger the image , the better picture.The Cleveland Clinic has a Telsa 7 and I'm pushing for my neuro to send me there for my next MRI,even though its 3 hours away it would be worth it.
I'm calling my neuro tomorrow,he needs to get this internal buzzing slowed down.I feel like I have swallowed a bee hive,it has been non stop for a week now.It is terrible,it feels like my nerves are being short circuited,it starts in my neck and buzzes down my spine and down my right leg and then it starts all over.Valium seems to slow it down some.I had a cyst removed off my lower right leg on friday and soon as the injected my leg with the numbing stuff(brain fog)the whole foot and leg started buzzing and the general surgeon ask if I was aware of it.He had to literally hold onto my foot,to remove the cyst from my leg.He said he was going to call my neuro.I know this should pass soon,but dang its kicking my butt this time around.
Keep firm with your neuro,don't brake ties to soon.He knows in the back of his mind you have MS,he just following the guide lines that a bunch of idiots set up.(McDonald Criteria's)some neuro's still use the poser criteria's.Like my neuro states nothing is ever black and white and not always is MS a full clinical picture.He states that ya have to look at the whole picture,its like a puzzle,not all peices fit together at once,once you start peicing everything together then you have a picture.My neuro is warped,and I know he's colored blind his cloths never match(lol).He's got a great personality and very kind to his patients.He once ask my during an exam if I knew what it felt like to have a cramp in my hands,he got a cramp in his hand examming me.I just laughed.He stated that was a stupid question,since he has me maxed out on spasm meds.
Wish you were closer,you would like this guy.
Hang in there.How old are your girls?My last one will graduate in 5 years also.
Toni
jlmason
08-20-2006, 07:32 PM
I do wonder if I could come up with the money to see a neurologist in Ohio if the prescriptions could be filled in Kentucky?
You might want to check on that as I think it varies state to state. My experience is that I left for vacation with an IV port in my arm and 2 days of steriods left to take. The doctor forgot to tell me that the steriods would send me into overdrive. After staying awake for about 36 hours straight I was begging for some sleeping pills. I called my neuro in Ohio who agreed to call in a script. We were close to the NC/SC line and were trying to figure out where to get the script filled. NC would fill it but SC wouldn't. But I don't know if maybe it was the call in part and that they would take a written out script maybe??? So I guess the point of the story is too check :)
Glad you got some good news at your dr's appt :)
You might want to check on that as I think it varies state to state. My experience is that I left for vacation with an IV port in my arm and 2 days of steriods left to take. The doctor forgot to tell me that the steriods would send me into overdrive. After staying awake for about 36 hours straight I was begging for some sleeping pills. I called my neuro in Ohio who agreed to call in a script. We were close to the NC/SC line and were trying to figure out where to get the script filled. NC would fill it but SC wouldn't. But I don't know if maybe it was the call in part and that they would take a written out script maybe??? So I guess the point of the story is too check :)
Glad you got some good news at your dr's appt :)
Kymtnms
08-21-2006, 11:21 AM
Toni, Sorry to hear you are buzzing. My head has been doing that this past week, decided it must be another crazy symptom. It's like thousands of bees have landed in my brain vibrating my head and ears. It's a terrible feeling and sure wouldn't want it all over my body!!! Hope your neuro is able to do something for it. It gets old fast having new symptoms all the time.
I take back what I said about the Zanaflex, woke up with a horrible headache yesterday afternoon after taking the 4th pill. Thought at first maybe it was sinuses so went ahead and took another last night. Woke up this morning with the same headache. I didn't take the dose this morning and the headache is finally wearing off. It's the same type headache the pill form gave me. :mad: The neuro is going to say.....keep taking it to give it time. He has wasted one of my precious "4 for the month" prescriptions so even if he did prescribe something else it will be next month before I can fill it. OOOOOHHHHHH I HATE MEDICAID!!!!!
Think the neuro didn't want to give me the parking placard because he keeps telling me my leg and back aren't that bad. He said he's seen the MRI and doesn't see anything wrong. He's not treating me for that problem so he needs to stay out of it. I have a bulging disc at L-5 and S-1 and sciatia running into my right leg that keeps me down 90% of the time. I've been having facet injections every other month for over a year with very little relief. The pain doctor said you can't go by the MRI, you have to treat the symptoms. This also why the neuro is always telling me to stop taking the pain medication. I just laugh at him.
It sounds so crazy to look for a partner that specifically has good insurance but I'm at a loss about any other way to escape Medicaid so figured since I'm going to start looking around now instead of waiting until the kids are out of the house might as well set the standard of what I'm looking for. My girls are 13 and 14. They don't receive new men into my life well at all which is why I had made the decision to not date until they were through high school. They created so much havoc with the last man I tried to see it made it not worth the effort. I sat them down last week to make the announcement I was going to start dating again, if anyone would have me, and explained why doing it now was in my best interest. Also told them they would not cause problems as they had done in the past. They didn't have much to say about it. They were decent acting when meeting my old high school sweetheart for coffee in October but that was in public place. Not only do I have to deal with MS issues, also have to deal with my daughters issues when it comes to relationships. Life could get very interesting!!! :dizzy:
Seems like a big university hospital would have a more advanced MRI machine that would pick up the smaller lesions but that is the one test those silly doctors didn't want to repeat. My neuro is the kind that looks at the whole picture but he's making me very angry insisting I must go through all these tests again because UK says so. I keep thinking if they don't think I have MS then why are they repeating the tests, look for something else instead of doing these over. I'll get a chance to speak my mind today at 1:30. I'm looking forward to seeing my neuro in person instead of a phone call!
Let me know what your neuro does about the buzzing.
jlmason, I will definitely check before trying to fill prescriptions from another state if I end up going to an Ohio doctor. Kentucky is strange about all their rules and regulations anyway so they may not let me fill something from an out-of-state doctor.
Take care,
Lynne
I take back what I said about the Zanaflex, woke up with a horrible headache yesterday afternoon after taking the 4th pill. Thought at first maybe it was sinuses so went ahead and took another last night. Woke up this morning with the same headache. I didn't take the dose this morning and the headache is finally wearing off. It's the same type headache the pill form gave me. :mad: The neuro is going to say.....keep taking it to give it time. He has wasted one of my precious "4 for the month" prescriptions so even if he did prescribe something else it will be next month before I can fill it. OOOOOHHHHHH I HATE MEDICAID!!!!!
Think the neuro didn't want to give me the parking placard because he keeps telling me my leg and back aren't that bad. He said he's seen the MRI and doesn't see anything wrong. He's not treating me for that problem so he needs to stay out of it. I have a bulging disc at L-5 and S-1 and sciatia running into my right leg that keeps me down 90% of the time. I've been having facet injections every other month for over a year with very little relief. The pain doctor said you can't go by the MRI, you have to treat the symptoms. This also why the neuro is always telling me to stop taking the pain medication. I just laugh at him.
It sounds so crazy to look for a partner that specifically has good insurance but I'm at a loss about any other way to escape Medicaid so figured since I'm going to start looking around now instead of waiting until the kids are out of the house might as well set the standard of what I'm looking for. My girls are 13 and 14. They don't receive new men into my life well at all which is why I had made the decision to not date until they were through high school. They created so much havoc with the last man I tried to see it made it not worth the effort. I sat them down last week to make the announcement I was going to start dating again, if anyone would have me, and explained why doing it now was in my best interest. Also told them they would not cause problems as they had done in the past. They didn't have much to say about it. They were decent acting when meeting my old high school sweetheart for coffee in October but that was in public place. Not only do I have to deal with MS issues, also have to deal with my daughters issues when it comes to relationships. Life could get very interesting!!! :dizzy:
Seems like a big university hospital would have a more advanced MRI machine that would pick up the smaller lesions but that is the one test those silly doctors didn't want to repeat. My neuro is the kind that looks at the whole picture but he's making me very angry insisting I must go through all these tests again because UK says so. I keep thinking if they don't think I have MS then why are they repeating the tests, look for something else instead of doing these over. I'll get a chance to speak my mind today at 1:30. I'm looking forward to seeing my neuro in person instead of a phone call!
Let me know what your neuro does about the buzzing.
jlmason, I will definitely check before trying to fill prescriptions from another state if I end up going to an Ohio doctor. Kentucky is strange about all their rules and regulations anyway so they may not let me fill something from an out-of-state doctor.
Take care,
Lynne
duttin
08-21-2006, 12:19 PM
I wish your neuro would of put you on the baclofen,I'm trying to get off the zanaflex,I think the zanaflex is causing some of my muscle weakness.
I'll tell ya,MS and back problems feed off of each other.I have had 2 lumbar surgeries,L5-S1 and have been screwed up ever since.
Your girls are just being protective of mom.They have seen you hurt in the past and now with only a possible diagnosis of MS and the lumbar problems,they are your little protectors.When the gentleman(with great insurance) comes around they'll be receptive.
Lynne,I didn't like the idea of repeat test either,but if it will help get you an answer,you might want to reconsider.Goodluck with neuro today
Toni
I'll tell ya,MS and back problems feed off of each other.I have had 2 lumbar surgeries,L5-S1 and have been screwed up ever since.
Your girls are just being protective of mom.They have seen you hurt in the past and now with only a possible diagnosis of MS and the lumbar problems,they are your little protectors.When the gentleman(with great insurance) comes around they'll be receptive.
Lynne,I didn't like the idea of repeat test either,but if it will help get you an answer,you might want to reconsider.Goodluck with neuro today
Toni
Kymtnms
08-21-2006, 08:39 PM
Toni
Went into neuros office with the attitude there was nothing to lose since I considered it my last visit to him if he wouldn't listen and explain why I was seeing the idiot at UK. Got through to him today and accomplished even more than I could have hoped for! :bouncing:
First, he added the Baclofen to my list of medications. I'm keeping the Zanaflex but only to be taken if the spasms get so bad the Baclofen doesn't help. The down side of this is I can't fill the Baclofen until the 15th of next month because I have exceeded the "4 a month" Medicaid prescription rule.:mad:
Secondly, he took me off Lyrica since my feet have started burning constantly since he upped the dosage and my psy had put me on Topomax anyway. He said to increase the dosage of Topomax and we would use the same medication for the tremors and as a mood stablizer.
Third, he gave me the letter stating I could no longer work due to the multiple sclerosis diagnosis and symptoms so that can be handed to the pokey lawyer and forwarded onto disability maybe rushing them up a little.
And last but not least.....the biggie!!! He called UK himself to find out why on earth they had me see a neurologist who specializes in seizures instead of someone at the MS Clinic. He didn't understand what I was telling him over the phone about who I had seen, he thought I was telling him the MS Clinic wanted to repeat all the tests. I told him if the MS Clinic wants to repeat all the tests I will gladly check myself into UK for however long it takes, never say a word and take them all but I'm not doing it for a regular neurologist and his resident trainee. The computers at UK were down this afternoon so he is suppose to call me back tomorrow to let me know what he finds out. This was the most productive doctors visit ever! Knowing it didn't matter what happened with the relationship between me and him after today made it easier to talk to him. Guess I work best under extreme pressure. :D
What did your neuro say? Was he able to do something to help the buzzing? Let me know.
Lynne
Went into neuros office with the attitude there was nothing to lose since I considered it my last visit to him if he wouldn't listen and explain why I was seeing the idiot at UK. Got through to him today and accomplished even more than I could have hoped for! :bouncing:
First, he added the Baclofen to my list of medications. I'm keeping the Zanaflex but only to be taken if the spasms get so bad the Baclofen doesn't help. The down side of this is I can't fill the Baclofen until the 15th of next month because I have exceeded the "4 a month" Medicaid prescription rule.:mad:
Secondly, he took me off Lyrica since my feet have started burning constantly since he upped the dosage and my psy had put me on Topomax anyway. He said to increase the dosage of Topomax and we would use the same medication for the tremors and as a mood stablizer.
Third, he gave me the letter stating I could no longer work due to the multiple sclerosis diagnosis and symptoms so that can be handed to the pokey lawyer and forwarded onto disability maybe rushing them up a little.
And last but not least.....the biggie!!! He called UK himself to find out why on earth they had me see a neurologist who specializes in seizures instead of someone at the MS Clinic. He didn't understand what I was telling him over the phone about who I had seen, he thought I was telling him the MS Clinic wanted to repeat all the tests. I told him if the MS Clinic wants to repeat all the tests I will gladly check myself into UK for however long it takes, never say a word and take them all but I'm not doing it for a regular neurologist and his resident trainee. The computers at UK were down this afternoon so he is suppose to call me back tomorrow to let me know what he finds out. This was the most productive doctors visit ever! Knowing it didn't matter what happened with the relationship between me and him after today made it easier to talk to him. Guess I work best under extreme pressure. :D
What did your neuro say? Was he able to do something to help the buzzing? Let me know.
Lynne
duttin
08-21-2006, 09:08 PM
Kynne,
Finally he listened,sometimes getting a "I don't give a crap " attitude does us wonders.Its like its the only time they actually here us.Its about time he called the UK and get to the bottom of it.i think you'll like the baclofen!I'm trying to get off the zanaflex,I think its contributing to the loss of muscle tone and my fatigue.I've been on it 4 times a day for a year and I'm having some minor with drawls.Once its out of my system they are going to increase the baclofen.I found out the zanaflex has a mild anti-depressant.
Yes,I talked to my neuro's office,he wants me to cut out all caffine and to quit smoking and see if some of my symptoms will subside.It ain't gonna hurt me to stop smoking,but I want my caffine,it helps with the fatigue.My target date is wensday(cold turkey).My neuro wants to do another LP,he thinks the myelin basic protein is to high again.
You had a very productive day,no one wants to read the diagnosis of MS,but not knowing is worse than having the disease.Take a deep breath , absorb and treat yourself to something nice.You deserve it.
Toni
Finally he listened,sometimes getting a "I don't give a crap " attitude does us wonders.Its like its the only time they actually here us.Its about time he called the UK and get to the bottom of it.i think you'll like the baclofen!I'm trying to get off the zanaflex,I think its contributing to the loss of muscle tone and my fatigue.I've been on it 4 times a day for a year and I'm having some minor with drawls.Once its out of my system they are going to increase the baclofen.I found out the zanaflex has a mild anti-depressant.
Yes,I talked to my neuro's office,he wants me to cut out all caffine and to quit smoking and see if some of my symptoms will subside.It ain't gonna hurt me to stop smoking,but I want my caffine,it helps with the fatigue.My target date is wensday(cold turkey).My neuro wants to do another LP,he thinks the myelin basic protein is to high again.
You had a very productive day,no one wants to read the diagnosis of MS,but not knowing is worse than having the disease.Take a deep breath , absorb and treat yourself to something nice.You deserve it.
Toni
Kymtnms
08-24-2006, 11:45 PM
Toni,
Good luck with the Cold Turkey approach for quitting! This is the only way I've ever known of anyone be successful and staying that way. If given the choice between caffeine and cigarettes would have to choose to let the caffeine go because I enjoy smoking too much even though it's bad for me. I have bronchiatis right now and know smoking is making it 200% worse! They say once you get past the first few weeks you'll be fine so I'll be praying for you!
So much for the neurologist getting through to UK to get things straightened out. They wouldn't put him through to the MS Clinic because he isn't my primary doctor. Medicaid will only let primary doctors make referring appointments effective July 1st. UGH!!!! I'll probably end up with the wrong doctor again like the first time and no amount of explaining will get the primary doctors office to understand. You can't even talk to the appointment scheduler there, she will only contact you through letters so this is going to be a frustrating, waste of time. Since there are no other options but to go this route will try to get things started next Monday when going for a follow up appointment. If there was any kind of communication from doctor to doctor or doctor to patient medicaid might find out they are wasting a lot of money! Believe my neurologist is finished with me as far as anything else. He was prescribing my blood pressure medication but told me at the appointment this week my primary really needed to be doing this. He did prescribe the baclofin but guess my primary could be doing that too. He also didn't schedule a follow-up appointment so even though he was trying to get through to UK to straighten things out think he knew he had done all he could or was going to do. Don't know if my primary is going to be very cooperative about any of this because she was the one who made fun of me for thinking I had such an awful disease like MS. Do you ever feel like you take 1 step forward and 3 steps back?
Hate to hear you have to have another spinal tap! No one should have to have more than 1 of those! Can they not do some kind of blood test to check the protein level? Seems like with all the modern technology they could come up with a way to do it without having to have spinal fluid to tell if your protein levels were high.
May tomorrow be a better day for all of us!
Take care,
Lynne
Good luck with the Cold Turkey approach for quitting! This is the only way I've ever known of anyone be successful and staying that way. If given the choice between caffeine and cigarettes would have to choose to let the caffeine go because I enjoy smoking too much even though it's bad for me. I have bronchiatis right now and know smoking is making it 200% worse! They say once you get past the first few weeks you'll be fine so I'll be praying for you!
So much for the neurologist getting through to UK to get things straightened out. They wouldn't put him through to the MS Clinic because he isn't my primary doctor. Medicaid will only let primary doctors make referring appointments effective July 1st. UGH!!!! I'll probably end up with the wrong doctor again like the first time and no amount of explaining will get the primary doctors office to understand. You can't even talk to the appointment scheduler there, she will only contact you through letters so this is going to be a frustrating, waste of time. Since there are no other options but to go this route will try to get things started next Monday when going for a follow up appointment. If there was any kind of communication from doctor to doctor or doctor to patient medicaid might find out they are wasting a lot of money! Believe my neurologist is finished with me as far as anything else. He was prescribing my blood pressure medication but told me at the appointment this week my primary really needed to be doing this. He did prescribe the baclofin but guess my primary could be doing that too. He also didn't schedule a follow-up appointment so even though he was trying to get through to UK to straighten things out think he knew he had done all he could or was going to do. Don't know if my primary is going to be very cooperative about any of this because she was the one who made fun of me for thinking I had such an awful disease like MS. Do you ever feel like you take 1 step forward and 3 steps back?
Hate to hear you have to have another spinal tap! No one should have to have more than 1 of those! Can they not do some kind of blood test to check the protein level? Seems like with all the modern technology they could come up with a way to do it without having to have spinal fluid to tell if your protein levels were high.
May tomorrow be a better day for all of us!
Take care,
Lynne
duttin
08-25-2006, 12:36 AM
Lynne,
Glad you posted,I was wondering how things were going with ya.
I'm a pro with the LP's.I have had so many done.I take a 5mg valium before I go.I have screws loose :eek: litterally in the lower lumbar.So they do a mylogram (dye is ran thru the spine,then a mri is done)once or twice a year to check the status on them.They check the fluid,so this time they are gonna do the MS panal as well.Speaking of blood test for proteins I've insisted on the Myelin Basic Protein Serum test.Over seas they have had great success with this test being positive for MS.Its been proven 99% conclusive in early stage MS.Beings I have only 1 lesion and a handful of borderline test.I want a conclusive diagnosis.I've been diagnosed on all borderline testing.
I truelly wish you were in Ohio.I can make as many appointments I wish to whom ever.Theres lots of single honeys here!!!!!
I see my family Dr on monday,routine,he likes to keep updated.If he laughed at me ,him and I would have problems,but he has seen me at my worst.
I quit taking the Zanaflex,I'm suffering from the spasms,but I researched further and some of the long use side effects were starting.It reduces muscle tone and my arms and legs were starting to reduce,plus I have six pak abs.At 40 its not flattering maybe at 16 it would of been.
I'm hoping he'll adjust my baclofen and give me something for the chronic buzzing that has taken up residency in my spine.Also something to help my stress level.
I love my cigs to,but its time I'm smoking way to much to cover up the pain and symptoms.The higher the pain and stress the more I smoke and thats trouble.
Get your test done at UK and then tell that GP,I told you so.
Yes,I do feel that I take one step forward and three back,oh heck thats my walking pattern.Walk like a drunk.
Keep striving for a DX,you know your symptoms and how you feel
Toni
Glad you posted,I was wondering how things were going with ya.
I'm a pro with the LP's.I have had so many done.I take a 5mg valium before I go.I have screws loose :eek: litterally in the lower lumbar.So they do a mylogram (dye is ran thru the spine,then a mri is done)once or twice a year to check the status on them.They check the fluid,so this time they are gonna do the MS panal as well.Speaking of blood test for proteins I've insisted on the Myelin Basic Protein Serum test.Over seas they have had great success with this test being positive for MS.Its been proven 99% conclusive in early stage MS.Beings I have only 1 lesion and a handful of borderline test.I want a conclusive diagnosis.I've been diagnosed on all borderline testing.
I truelly wish you were in Ohio.I can make as many appointments I wish to whom ever.Theres lots of single honeys here!!!!!
I see my family Dr on monday,routine,he likes to keep updated.If he laughed at me ,him and I would have problems,but he has seen me at my worst.
I quit taking the Zanaflex,I'm suffering from the spasms,but I researched further and some of the long use side effects were starting.It reduces muscle tone and my arms and legs were starting to reduce,plus I have six pak abs.At 40 its not flattering maybe at 16 it would of been.
I'm hoping he'll adjust my baclofen and give me something for the chronic buzzing that has taken up residency in my spine.Also something to help my stress level.
I love my cigs to,but its time I'm smoking way to much to cover up the pain and symptoms.The higher the pain and stress the more I smoke and thats trouble.
Get your test done at UK and then tell that GP,I told you so.
Yes,I do feel that I take one step forward and three back,oh heck thats my walking pattern.Walk like a drunk.
Keep striving for a DX,you know your symptoms and how you feel
Toni
Kymtnms
08-25-2006, 07:15 AM
Toni,
I asked my regular neuro if he had changed his diagnosis or if he still thought I had MS? He said he still believes I do. He is certain enough that he wrote a letter to SSI stating my "current clinical diagnosis is Multiple Sclerosis". That resolves the diagnosis issue as far as I'm concerned and should resolve it on the disability end too. The neurologist I saw at UK has been forgotten, especially after finding out he's a neurologist who specialized in seizures instead of MS. If my primary doctors office makes the next appointment no telling what kind of speciality the neurologist they set me up with will have but I bet it won't be multiple sclerosis. There must not be many people in this area with MS because I haven't been able to contact anyone who has it or knows anyone who has it.
I cancelled all the repeat tests the UK neurologist set up since my neurologist also felt they were unnecessary after finally understanding that I never got to the MS Clinic. He thought all this time I had been fussing at him because the MS Clinic wanted to repeat the tests and he couldn't understand why I this upset me so badly. It took me telling him 6 times to get him to finally realize what was upsetting me. Thought I was going to have to jump up and down, turn flips and cartwheels to get him to comprehend! Once he did get finally get it you could see the wheels in his mind turning and the complete look of confusion on his face. This had to be similar to the look I had the day that idiot neurologist at UK was talking to me!
The problems with my back are one of the biggest reasons I don't like lumbar punctures. Those darn every other month facet joint injections are about all I can handle, sure don't want any extra needles stuck in my back.
My old high school sweetheart showed up in KY Tuesday afternoon. He managed to change his truck route so he came back through KY when returning from the north. Guess I was more impressed with him than he was with me though. Haven't heard from him since he left, darn it! Find one I like and he doesn't return the feeling. Oh well, it was still nice to see him again and spend some time reminiscing. May have to come to Ohio to find a honey and a decent doctor! :D
I'll get my baclofen around the 15th of next month unless I'm not calculating the day correctly on the prescription coverage. Medicaid doesn't run month end to month end but instead from the date of the last prescription and only 26 days instead of 31 so it keeps me confused. I'm hesitant to take anymore of the Zanaflex because I hate those headaches. I'm trying to hold out until the spasms get to the point I can't stand it before taking anymore.
I do the same, smoke more to cover the pain and symptoms. Think this is why the bronchiatis is so bad this time. I've been up all night coughing but the thought of quitting right now is more than I can handle. Someday when the time is right I'll consider it. The only way to quit is to want to and do as you are, cold turkey! You'll succeed!!!! I'm your cheerleader!:D
Gotta get my girls up for school.
Have a good day.
Lynne
I asked my regular neuro if he had changed his diagnosis or if he still thought I had MS? He said he still believes I do. He is certain enough that he wrote a letter to SSI stating my "current clinical diagnosis is Multiple Sclerosis". That resolves the diagnosis issue as far as I'm concerned and should resolve it on the disability end too. The neurologist I saw at UK has been forgotten, especially after finding out he's a neurologist who specialized in seizures instead of MS. If my primary doctors office makes the next appointment no telling what kind of speciality the neurologist they set me up with will have but I bet it won't be multiple sclerosis. There must not be many people in this area with MS because I haven't been able to contact anyone who has it or knows anyone who has it.
I cancelled all the repeat tests the UK neurologist set up since my neurologist also felt they were unnecessary after finally understanding that I never got to the MS Clinic. He thought all this time I had been fussing at him because the MS Clinic wanted to repeat the tests and he couldn't understand why I this upset me so badly. It took me telling him 6 times to get him to finally realize what was upsetting me. Thought I was going to have to jump up and down, turn flips and cartwheels to get him to comprehend! Once he did get finally get it you could see the wheels in his mind turning and the complete look of confusion on his face. This had to be similar to the look I had the day that idiot neurologist at UK was talking to me!
The problems with my back are one of the biggest reasons I don't like lumbar punctures. Those darn every other month facet joint injections are about all I can handle, sure don't want any extra needles stuck in my back.
My old high school sweetheart showed up in KY Tuesday afternoon. He managed to change his truck route so he came back through KY when returning from the north. Guess I was more impressed with him than he was with me though. Haven't heard from him since he left, darn it! Find one I like and he doesn't return the feeling. Oh well, it was still nice to see him again and spend some time reminiscing. May have to come to Ohio to find a honey and a decent doctor! :D
I'll get my baclofen around the 15th of next month unless I'm not calculating the day correctly on the prescription coverage. Medicaid doesn't run month end to month end but instead from the date of the last prescription and only 26 days instead of 31 so it keeps me confused. I'm hesitant to take anymore of the Zanaflex because I hate those headaches. I'm trying to hold out until the spasms get to the point I can't stand it before taking anymore.
I do the same, smoke more to cover the pain and symptoms. Think this is why the bronchiatis is so bad this time. I've been up all night coughing but the thought of quitting right now is more than I can handle. Someday when the time is right I'll consider it. The only way to quit is to want to and do as you are, cold turkey! You'll succeed!!!! I'm your cheerleader!:D
Gotta get my girls up for school.
Have a good day.
Lynne
duttin
08-25-2006, 11:52 PM
Lynne,
I hope your neuro gets it all straightened out.
I'm being kicked on my *** today,put call into neuro,he called back and my 17 year old didn't see me so she told him she didn't know where I was at.Oh I was angry,if its not better tomorrow I'll be at the ER after my son's football game.I've had no sleep do to the full body buzzing.Now I can hardly lift my arms.This isn't gonna be good.They can't do steroids,I'm highly allergic.
Toni
I hope your neuro gets it all straightened out.
I'm being kicked on my *** today,put call into neuro,he called back and my 17 year old didn't see me so she told him she didn't know where I was at.Oh I was angry,if its not better tomorrow I'll be at the ER after my son's football game.I've had no sleep do to the full body buzzing.Now I can hardly lift my arms.This isn't gonna be good.They can't do steroids,I'm highly allergic.
Toni
Kymtnms
08-26-2006, 11:37 AM
Toni,
I've threatened numerous times to have the phones completely removed from our house since I can't get my calls anyway, my kids do this to me constantly. If I'm not standing right in front of them when they answer the phone they tell whoever it is they can't find me. Can't tell you how many important phone calls I've missed because of them! I know it doesn't help your situation but might make you feel better to know you aren't the only one who has to put up with teenagers who don't look for people when the phone rings. No amount of explaining the importance of an expected call seems to matter either. Since I can't outrun them to the phone anymore all I can do is scream out whenever the phone rings to bring it to me if it's for me. It's absurd when adults can't get their phone calls! If we had done this to our parents when growing up we would not be here posting on these boards today!
Hope your buzzing gets better on it's own so you don't have to go to the ER. Are there no alternatives to steroids? I haven't had to take them through IV yet but have had no problem with oral steroids or the steroid injections for my back so I'm assuming I'm not allergic. They just make me moody and mean as a rattlesnake.
My feet, hands and arms are "falling asleep" constantly, with my feet having a burning sensation in between sleeping sessions. The neurologist stopped the Lyrica hoping it was the cause but it's getting worse instead of better. Wonder if Topomax causes this problem too? He increased the dosage of the Topomax but only by 25mg. I'm only up to 50 mg so it shouldn't be having much of an impact yet. Hope this isn't an exaberation coming on. He also wants to do a diabetic fasting test to see if that could be the cause. I don't think it is but I'll humor him. They have tested for diabetes so many times it's ridiculous.
Take care and keep me posted on your condition. We're going to survive all this, teenagers included!
Lynne
I've threatened numerous times to have the phones completely removed from our house since I can't get my calls anyway, my kids do this to me constantly. If I'm not standing right in front of them when they answer the phone they tell whoever it is they can't find me. Can't tell you how many important phone calls I've missed because of them! I know it doesn't help your situation but might make you feel better to know you aren't the only one who has to put up with teenagers who don't look for people when the phone rings. No amount of explaining the importance of an expected call seems to matter either. Since I can't outrun them to the phone anymore all I can do is scream out whenever the phone rings to bring it to me if it's for me. It's absurd when adults can't get their phone calls! If we had done this to our parents when growing up we would not be here posting on these boards today!
Hope your buzzing gets better on it's own so you don't have to go to the ER. Are there no alternatives to steroids? I haven't had to take them through IV yet but have had no problem with oral steroids or the steroid injections for my back so I'm assuming I'm not allergic. They just make me moody and mean as a rattlesnake.
My feet, hands and arms are "falling asleep" constantly, with my feet having a burning sensation in between sleeping sessions. The neurologist stopped the Lyrica hoping it was the cause but it's getting worse instead of better. Wonder if Topomax causes this problem too? He increased the dosage of the Topomax but only by 25mg. I'm only up to 50 mg so it shouldn't be having much of an impact yet. Hope this isn't an exaberation coming on. He also wants to do a diabetic fasting test to see if that could be the cause. I don't think it is but I'll humor him. They have tested for diabetes so many times it's ridiculous.
Take care and keep me posted on your condition. We're going to survive all this, teenagers included!
Lynne
duttin
08-26-2006, 02:39 PM
Lynne,
Oh, I'm still upset with my daughter,she's clueless unless it comes to her.She's 17 I guess its normal.
I'm still feeling like crap and can't put no weight on my right leg.I did manage to get a couple of hours of sleep.I told my kids today is not the day to make me mad.
I went to the Varsity football game last night and today the JV.I should not of went to either.But I'm not getting any better sitting at home.The internal buzzy has taken over my face and my vision.I love the bouncing of every thing I see.It puts a new meaning to distorted vision.
Hubby tried to get me to go to ER,theres not a whole lot they can do,if it gets worse,I'll go.
I know this will pass and teenagers will grow up eventually.
Toni
Oh, I'm still upset with my daughter,she's clueless unless it comes to her.She's 17 I guess its normal.
I'm still feeling like crap and can't put no weight on my right leg.I did manage to get a couple of hours of sleep.I told my kids today is not the day to make me mad.
I went to the Varsity football game last night and today the JV.I should not of went to either.But I'm not getting any better sitting at home.The internal buzzy has taken over my face and my vision.I love the bouncing of every thing I see.It puts a new meaning to distorted vision.
Hubby tried to get me to go to ER,theres not a whole lot they can do,if it gets worse,I'll go.
I know this will pass and teenagers will grow up eventually.
Toni