Does Anyone Have As Many Peti~mal Fits As Me? [Archive]

PINKY1

08-09-2006, 07:25 PM

neurowreck

08-09-2006, 08:33 PM

Sounds like you need meds adjusted, and to see your neuro....:)

PINKY1

08-10-2006, 07:20 AM

Sounds like you need meds adjusted, and to see your neuro....:)
HI IVE HAD EVERY MED YOU CAN THINK OF. IVE ALSO HAD THE VNS FITTED WHICH IS NOW SWITCHED OFF. I AM CURRENTLY ON DEXADRINE WHICH DOES HELP A BIT,BUT IM LOOKING FOR ANYONE WHO'S IN A SIMILAR POSITION WHO MIGHT BE ABLE TO UNDERSTAND HOW I FEEL.
PINKY1

mbarletta

08-21-2006, 04:55 PM

HI, IM TRYING TO FIND OUT IF I'M RARE AS I HAVE ON A GOOD DAY ABOUT 50 PETI~MAL SEZIOURS A DAY AND ON A BAD DAY I HAVE THEM EVERY 20 SECS OR LESS

ON A BAD DAY I CAN'T STRING THREE WORDS TOGETHER. (LITRALLY)
I AM JUST TRYING TO FIND OUT IF THIS IS RARE OR QUITE A REGULAR THING?

PINKY1:blob_fire
Hi, they say my son, who is 7, was having 100's a day. He has tried 9 medications and is now on 3 meds 3 times a day. He still has 1 an hour on a good day and on a bad day has clusters every 15 minutes. As parents we are frustrated and running out of medications to try. You are not alone.

tatie

09-27-2006, 08:06 AM

hi iam 28 years old and at the moment going through a bad spell i dont have as many as you .....
no where...
but mine work differently.......
sometimes i can have a very mild one go on and off for hours and i dont notice until i do something stupid like look for the milk and i cant find it cause i placed it in the pantry the last time....
some days i will have several .......
some days none....
sometimes weeks with none..........
then i will have a few days in a row where it is hell....... one after the after the other..... in a loop......
I can have more severe ones where they are more then just absentee i have been absent for up to ten mins sitting or jolting standing........

I am on four meds....... topamax tegretol cr, tegretol and lamictal,
and still it is happening.....
i am looking at being cased for surgery