Hi,

Looking back over past threads, I'm wondering if you have MAV? What has been your most successful treatment, how long did it take and were your symptoms constant?

Any advice you could give would be very helpful. I'm sliding backwards and am looking for anything to hold on too.

Thanks

Kat

Kat- I have told other people this, but the only thing after 2 years with this junk that has helped enormously is 600-800 mg of magnesium per day. Please give this a try and stick to it for at least a few weeks. I would be very surprised if this did not help a lot. There is a lot of research on magnesium and migraines.

good luck

JB

Hi Kat,

I'm really not sure to be honest and won't know until I see Prof Halmagyi in Sydney and possibly try some migraine meds. There's still the possibility that this is some sort of weird decompensation thing that is easily kicked off in my case but I really doubt it. In my opinion, if anyone is still dizzy after 3 years there must be something else mucking things up - like MAV. MAV or migraine variants are far more common than most realise from what I have read in the literature. And worse they may arise following VN or labyrinthitis:

Summary from:

Migraine-related vertigo: The challenge of the basic sciences.
Clinical Neurology and Neurosurgery 2005

The dysfunction of MAV could be located at the central or peripheral vestibular level.


The vestibular periphery may influence migraine pathways. There is not only significant sensory innervation of the cristae ampullaris, but also a possibility that different agents released through activation of nerve fibres contribute to MAV via paracrine actions on neural and vascular elements.


It has been shown that during motion sickness, induced by optokinetic stimulation, photophobia and scalp tenderness develop preferentially in migraine patients.


Painful trigeminal stimulation elicits a peripheral vestibular imbalance in migraine patients. The suggestion that optokinetic reflex-related nystagmus could be the link between MAV and motion sickness is attractive and has to be evaluated by basic and clinical research.


Best....Scott :cool:

Hello,

They think I have VN with the added complication of migraine. My symptoms initially looked a lot like VN, but when I didn't compensate fast enough and started to experience the odd - (3 times) visual aura and photosensitivity, they sussed migraine was a factor. I also experience spontaneous attacks of quite marked rotational vertigo way past the point where I had compensated quite a bit along with increased symptoms round my period. Throw in a grandmother with migraine and they sussed that silent (without headace - although I do get them sometimes) migraine was holding me back.

I still get relapses - often caused by work stress and/or tiredness, but I am so much better since being oin 20mg of propranonol - a beta blocker - daily.

Hang in there, if you don't feel you are getting better there are generally other avenues to try.

best,