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roxieb
08-21-2006, 11:16 PM
I have partial complex seizures and getting ready to do a wada test which shuts down part of the brain and sees if the other part can function without it has anyone done this test before

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jerrytom
08-22-2006, 01:12 AM
I almost got through the WADA test but the tech got the cathador up to my coriodid artery in my neck and they found some blockage. The part of the test I went trhough wasn't a big deal. They give you an injection of a local anistetic on the inside of your thigh and put the cathador in. The biggest thing was laying still for a few hours after to make sure the artery didn't bleed. The actual test, I didn't get to. I wish I could tell you more. Good luck.

Jeff

cher1052
10-05-2006, 09:27 AM
Hi roxieb-I'm new with this-so be patient with me. I saw your comment on the wada test. I had one in Jan 2002-Iwas scared at first-all the neros that were working on my case were great-it was a easy test-they learn alot-yes you have to lay still for a while-just like someone has to do after a heart cath. :) :) The Dr. that did the test found out alot-about when the damage took place-how the opposite side of my brain took over. I went threw so many tests before they wanted me to do this-changed my meds-the time I took them-lots of EEG-MRI-CATand blood tests. All of this was worth it for me. I had surgery in May 2003-have been seizure free since Sept.2003!!:) :) :) ! I know you may of had the test since you posted this- but it will help them so much!!! Cheri

jvmtaz
08-06-2008, 12:30 AM
I recently joined this web site and find it very informative.

I have had complex partial seizures since the age of about 7. I wan't aware, at that time, I was having seizures (no aura). It was about this same time that I remember having my first EEG.

Fifty one years later and after being on the merry go round of ASMs for 31 years I decided to become proactive in my care rather than reactive. It has made all the difference in the world.

Only because I did extensive research and demanded that a different approach be implemented did I find out the cause of my seizures, via an MRI. The MRI revealed trauma to my left temporal lobe from earlier in my life. After learning this I put two and two together and recalled how I actually received the trauma. It was about the same time as my first EEG. I was hit very hard in the head, just above my left ear, by a steel bar at a playground.

I have just undergone the extended VEEG for a period of 4 days. While being deprived of my full regime of medications and exposed to sleep deprivation, I finally experienced 4 seizures. The video confirmed my type of seizure as well as indicating that the left temporal lobe was the only portion of my brain registering abnormal activity during these seizures. This has been somewhat reassuring that the left temporal lobe appears to be the sole source of my seizures. I am scheduled to take the WADA test in less than two weeks.

Until I joined this site, I have been very concerned about the test. The doctor indicates I have a very high probability (90%) of being seizure free resulting from surgery.

I am still scared to death about the uncertainties and of my condition resulting from surgery and any potential burden I could place on my wife.

I will be in greater contact with this site and would be greatful for know of your experiences in this daunting process. Likewise I would like to be of assistance in any way.

The attitude I have adopted that seems to bring ease to me is that this is life and I should enjoy the ride.

Sincerely,

Jim

RunnersDad
08-06-2008, 12:40 PM
Jim-

Congratulations on taking the initiative to be your biggest advocate. As I have learned with my son, the only way to get results is too educate yourself and proceed to petition for what you believe in.
Although he is not a candidate for Brain Surgery(his seizures come from multiple lobes) I have done plenty of research on the subject in preperation for the possibility that he might have surgery.
Good luck with the WADA test and if they proceed with surgery, I wish you a seizure free life following the procedure!

Mike

cher1052
08-09-2008, 01:52 PM
Jim,

It's been a while since I've replied to anyone-You're gonna do fine when it's time for the WADA test- just relax - lay still and listen to the Dr's - the test is fairly simple - they ask you ? talk with you and want you to repeat stories.

You then relax for a while and they then get your other side of the brain to 'sleep' and repeat everthing.
The Dr's I had with Uof M neuro clinic were great-I'm sure yours are too!

Good Luck!

Cherie
;););)

jvmtaz
08-10-2008, 06:43 PM
Hi Cherie and others:

Thank you very much for your responses.

I will aso be undergoing a cerebral angiogram on the left temporal lobe.

I have a question about the WADA test. When performing the test on the alternate(right) hemisphere, will they insert a seperate cathater into the alternate artery in the right groin area? It would seem logical that would be necessary to gain access to the artery supplying blood to the right temporal lobe. Or, am I mistaken?

Thanks again for your help.

Jim

cher1052
08-10-2008, 08:39 PM
Jim,
Yes, that is correct. They use that same side of the groin to reach both sides of the brain. There will be about 3 Dr with you during this procedure.
Think positive-they will have alot of their ? answered with this test.

Don't go jogging after the procedure!

Hope this helps you!

Cherie

IanDSamson
08-11-2008, 12:47 PM
Hey Jim, I wish you well with your WADA test. My wife has Temporal Lobe Epilepsy from 12 to 52 (40 years). Her condition is bipolar meaning that the seizures start on the right and echo from the left. She had a WADA test in 2005 and Tuesday August 12 will be the third anniversary of her lobectomy. What amazed the doctors at the WADA test was that they anaesthetized the right lobe and her hand movements continued, then they anaesthetized the left lobe and her hand movements and speech continued as normal with only slight slurring. It was then found that she was bipolar and had speech and memory centers in both lobes, right and left. Hence the reason she is ambidextrous. Following the 6-hour surgery her seizures have shown a 97% drop in frequency, but an increase in severity and it has adversely affected her short-term memory, thus making her a candidate for ill-health retirement on medical grounds. She "retired" on 3/31 and has been at home with me since. While she still has the occasional aura, her proper seizures are less frequent, and the severity of these seizures is greatly reduced when compared with pre-surgery seizures. Her medication is Carbamazepine 200mg CR 1200mg/day, Rivotril 2mg 6mg/day, Phenobarbital 30mg 90mg/day.

Please post the results of your WADA test as we would like to encourage you based on the results.

Good luck!

jvmtaz
08-12-2008, 12:51 AM
Thanks to all of you for your words of support and encouragement.

Based on your feedback I have lesser anxiety about this test. I am actually beginning to view this as more of an adventure rather than a frightful experience. It should answer a lot of questions, one way or the other, hopefully for the better.

I will be taking the cerebral angiogram and both WADA tests this Friday, August 15. I will continue to keep all of you informed about my personal experience and results.

Please keep in touch and keep all of us informed as to your experiences.

Till then I hope all bodes well for you and yours.

Jim

kashley88
08-12-2008, 10:48 PM
First off, I would like to thank Cherie, I was reading your input on the Wada test and other things and it calmed my nerves a bit. :)

I am 20 and have simple partial seizures. About 10 years ago I had severe headaches which led me to the ER at Childrens. After taking MRIs and various other tests, they were unsure of whether or not I had an AVM or a cavernous angioma in my right temporal lobe. They did not do a Wada test on me, which we are now unsure of as to why, but I went straight into brain surgery about a week after. Thankfully, they found that it was a cavernous angioma, which is not as dangerous as an AVM. However, about a year after the surgery I started having these simple seizures, I had an EEG and they caught one on the test and found out that it was coming from my right temperal lobe, where the angioma had been. They assumed that the seizures were a result of the surgery, so I had been on medication since. However, this past week they did an MRI just to check up on things. They came to find 3 more cavernous angiomas. These were not previously seen due to the enhancement of technology. What was puzzling was that one was in the exact same spot as the last, and is fairly large. This then concluded that the seizures were not from the surgery, but from the still existing angioma. The Dr. said that it looks mostly like a cavernous angioma, yet since the surgery had been done before, it is still there, and cavernous angiomas just dont appear out of no where, he wonders whether or not it is an AVM. The reasoning behind that is because it can be common in surgeries on AVMs ( not realizing there is more there). This brings me to the WADA test/angiogram. I leave for school soon and they want me to take one in the next couple weeks. They explained it to me and I am not the most comfortable in going into it. Haha making half of my brain fall asleep doesnt seem to be the most uplifting thing :) Whether or not it is an AVM or just a cavernous angioma, they suggest having surgery to cure the seizures. The medication I am on works well (Lamictal) but they say that there is a possiblilty of birth defects due to the medication, which I am highly concerned about when thinking about future family plans, bringing me to having surgery again. So those of you who might have surgery I have gone through it and can explain a bit, but this does not take away the fact that I am nervous about having another one. Cherie, thanks again. You keep me thinking positive :)

Ashley

IanDSamson
08-13-2008, 06:44 AM
Ashley, thank you for sharing your concerns. My wife, Beverley, tells me the most painful part of a WADA test is the initial injection into the Femoral Artery. The rest is painless. We are unsure of what an AVM is (could you please inform us) and we will look up what a "cavernous angioma" is. Beverley had a craniotomy for lobectomy, removal of the hippothalamus and other such medical curiosities performed by the most highly respected Neurosurgeon in South Africa. Apart from the actual surgery that had me on a blade-edge, the WADA test did not worry me - it was the run-up to the WADA test that did - she was taken off of Tegretol, deprived of sleep, was allowed only 4 hours sleep a night. While she was relaxed and cheerful, I showed all the symptoms of emotional stress and sleep deprivation to the extent that even the nursing staff at the hospital expressed their concern about my health. Once all of that was over and Beverley came home, life returned to a form of normality. The surgery was performed 3 years ago yesterday (12 August) and because the surgery point was so close to her speech and memory centers, I was worried that she may not know who I was when she regained consciousness. Anyhow, I was very relieved when Beverley knew me and could carry out an intelligible conversation. Post-surgery she has had a 97% reduction in seizures, but a marked decline in short-term memory. Other than that we wish you every success with your tests and possible future surgeries. You are very courageous to have all this done. As far as future family plans, please see a Geneticist to determine hereditary factors with your condition. Although doctors assured us that Temporal Lobe Epilepsy is not hereditary, her family all have various abberations of the condition. Her father had one form, her cousin has another form, her niece has another form - all direct family. As far as birth defects is concerned, it is highly possible that the medication can cause a uterus defect - when Beverley had a hysterectomy in 1996, the doctor had to go hunting for the uterus as it was totally deformed that pregnancy would have been impossible. Your OBGYN will be able to determine this in your case.

cher1052
08-13-2008, 06:39 PM
Jim and Ashley,

You're welcome!
I've had epilepsy since I was a kid. It's been determined that it began when I was about 4-6 mths. And kept under very good controll until I hit my teens.
My seisures were always blank stares-I never had auros.
Then xmas of 1999 had my first grand mal seizure.
Was admitted to the hospital-my regular neuro came to see me the next day-and was stunned!

I went to see her a few weeks later after all basic tests were run and she had no answer for me-suggested a few hospitals to go to-I chose the UofM-she sent my file to them-and I was there in a few weeks.
We talked over my life-the type of seizures etc. We began dropping the meds they added to the ones I was taking. And then cutting back and and dropping 2 I was taking. That took time-and was hard.

I went through tons of blood tests and MRI-CT-and EEG tests.

They then approached me on the WADA test-I was scared about it too-they gave me the name/number of someone who had the test-we talked about it-it helped me alot!

Just be as calm as possible for the test-and lay as still as you can. You will be stiff/sore after the test-like I said b4-you won't be doing any jogging/running for a while!

It all helped me get to where I am now-I had surgery in 2003-and have been seizure free since then.

I'll keep you in my thoughts-let me know how you did with the test!

lol,
Cherie

jvmtaz
08-16-2008, 11:28 PM
I just got home from having undergone my cerebral angiogram with WADA tests on the Left and Right Temporal Lobes. Things look very promising. Needless to say, it was a unique experience.

To cut to the chase, the tests reveal that my speech center is located in my Left Temporal Lobe. The test also revealed that I perform memory functions in both the Left and Right Temporal Lobes.

While my Left Temporal Lobe was anesthetized, I would be shown pictures and items and asked to identify and describe what was being shown to me. I recognized every thing shown me but had a very difficult time trying to verbalize what I saw. After awakening my Left Temporal Lobe, the doctor would ask if he showed me specific items. I confirmed all of the items shown to me. This established that my Right Temporal Lobe performs memory functions and that my Left Temporal Lobe performs language functions.

After anesthetizing my Right Temporal Lobe, I was shown new items. I could verbally describe items shown to me. This confirmed that my speech center is in my Left Temporal Lobe. After awakening my Right Temporal Lobe, I was shown the same new items and asked if they had been shown to me. I confirmed all but one of the items. The doctor was pleased with the results and believes the area in need of surgery, in my Left Temporal Lobe, is not located near my speech center.

Immediately following the test, my doctor, who performed all of the quizzes, and I discussed the events in detail. In closing, I expressed my great appreciation for the beauty and gift that is life. Needless to say, my emotions came to surface as a couple of tears rolled along the side of my face. The doctor was very comforting as he gently wiped them from my face.

I am looking forward to the next tests and meeting again with my doctor.

The following is information about my procedural experience. It is primarily intended to reassure those of you who might be contemplating undergoing a WADA test. In short, you need not have any fears. It is a relatively painless procedure.

With regards to pain, it was not a major factor in these tests. There is a little bit of pain with the administration of the local anesthesia in the groin area where the catheter would be inserted into the “Femoral Artery”. I would liken it to getting novocaine at your dentist’s office. At first, it burns a little and then as the area numbs you feel pressure of the fluid being injected rather than any pain.

The most discomfort I experienced was the actual penetration of the “Femoral Artery”. It was more of a dull pressure type pain. It was more an annoying factor rather than any highlighted pain. Shortly thereafter even that subsided. After this process, I felt completely relaxed and comfortable.

Throughout the setup process for the angiogram, the first doctor would described what he was about to do and what sensations I should expect to feel. He injected the “Contrast Medium Dye”. This dye allows the doctor to view the arteries and guide him in maneuvering the catheter through the arteries. Just as he described, I felt a warming sensation from my buttocks to my foot. After that, he would maneuver the catheter through my arteries up to the “Carotid Artery”. This would allow access to the blood supply to the Temporal Lobe.

Upon injection of the anesthetic into the artery servicing each Temporal Lobe I would feel a warming flow across the side of my face and head.

That is all there was to it. Therefore, you need not have fear of a painful experience. Just relax and lay perfectly still. The doctors will guide you all the way. You have nothing to fear.

My thanks to all of you for your help and guidance reguarding the WADA test.

Jim

cher1052
08-17-2008, 08:51 AM
Jim,

I'm happy to hear you're home and the test went well!

Amazing the things they can find out about our brain!

Keep us informed on what happens next!

Cherie

jvmtaz
09-03-2008, 10:48 PM
Hi Cheri and others:

I had my Neuro-psychological test done today. It was an all day test.

The test was very challenging! While much of the test would seem hard, other parts were relatively easy. My hardest tests involved memory. I would be asked to describe ALL of the events of a short stories read to me moments before. Later I was wondering if I should have mongloid tatooed on my forehead, LOL. While I knew there were items I left out, I could respond appropriately to questions about the content of the story, go figure.

I was not a dull test! It covered the whole gammit of mental processing.

Now I await word from my Neurologist as to what lies ahead. I am starting to get a little bit more nervous as I approach a point in time where decisions need to take place.

Best to all of you.

Jim

030free
09-04-2008, 01:38 PM
Hi Jim and Cherie, Its been a while Cherie since I heard from you or Ann. Its Laura, and it's been 16 months since my Right Anterior Lobectomy, and so far still seizure free :) How are you? Jim I know how you feel about the Neurospych, I just had my post surgery eval, a few months ago and you wont believe the difference between the pre- and post results. I never had to do the WADA test since my neuro surgeon knew where he was cutting and it didnt effect me. But the post surgery spych eval, showed improvement results. My memory has improved and especially my hearing memory, plus I feel the improvement. Are you planning surgery soon? which type?
Laura

cher1052
09-05-2008, 09:05 AM
Jim,

I know where you're coming from in regards to the psych test!
I was asked tons of ??? Asked to do/write things...

I remember being asked to write my name for what seemed to be forever! And do math problems-work with wood to make shapes etc.

Yes mine was a all day event too!

I remember when I saw my Dr after all the tests and was told that when all the Drs' discussed my case it was decided that I'd be a candidate for surgery-my heart dropped! I was so happy!

Take care!

Cherie :):)


PS) Laura-yes I'm still around-just don't post as much as I used to! cherie





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