Hello everyone. I've been pretty busy with back to school and the change in routines ( you all know how much my little guy enjoys that). I'm just up late (for me) and cant sleep. We're driving to Chicago tomorrow to consult with the children's hospital about a definitive diagnosis for Turner. I know it's silly to be nervous. I'm sure there will be no surprises, but there's still that part of me that questions every decision I make for him. Why isn't there an instruction manual on how to be the best parent for your kids??:D I resisted the "label" for so long that now it seems ever so ironic to be actively seeking it. On the plus side I finally got ahold of our local Autism support group and had an amazing hour long conversation with a lovely gentleman who was full of great advice and phone numbers. I feel so much more hopeful than before. Turner is adjusting to being back in school. The bus rides sure do help. It's the highlight of his day :D Anyway I'm rambling b/c I'm stressed. Just wanted to reach out to other parents for a little reassurance. How pathetic huh? Anyway wish me luck and will keep everyone posted.

Hang in there. You are doing the right thing. Remember that Turner is counting on you to be his voice. A diagnosis will help you to accept his differences and understand what is going on with him. It will also help you decide where to go from here. Good luck to you. Most of us have been there and kow how difficult this time is. We are all here for you if you need support.

-Steph

Hi Liz!
I'll think of you next time I'm looking at the ceiling at 3am. I'm sure it will be tonight. Liam is starting school for the first time in a week. He just turned 3. He'll be taking public transit back and forth, and it will also be the highlight of his day. He loves the bus. Luckily the gov just came through (yesterday - phew) to pay some one to take him back and forth, so I don't have to do it, baby in tow. I even get to pick the someone (my aunt)

But I hear you on the sleep issues. I fall asleep ok, but I wake up around 2am usually, and just lie there and think about the fact I wish I was sleeping. I think about all of the little things, I think about what they will do if he wants his mommy, or, even worse,if he doesn't :eek: .

I know how they'll handle it, because it's what I do for a living. I even did a college placement at the school we're sending him to. That's why I chose it. It stood out to me, even a decade later as good. But, then I think. I don't hand over my child to other people for a living. I take other people's kids. It's totally different. So, I'm back to the 'Oh my god' mode. This and everything else just flies around my head.

But, today we buy new school shoes, and drink some coffee.

i'm sure I didn't really help, but it's good to know I'm not alone. I'll think of you at 3am.

Suzy

Good luck to you, Liz!

I hope your dx session goes well. Good work perservering to contact the local support group. Wonderful to hear that the start of school is positive for Turner.

Best wishes.

Hey all!Thanks for all the words of encouragement. THe session went amazingly well. It made me sad that our area doesn't have such a phenominal facility and boy do I wish it was feasible to drive 3 hrs each way 3x a week for therapy there:) However, they were very helpful and over the course of the next few months and more sessions with their staff, they fully expect to give us a diagnosis that will get TUrner the services he needs. By the way, we went up on Friday , the weekend there was no mail service obviously, Monday was a holiday and we got the results of their interview on Tuesday in the mail!!!!These people dont mess around:D It's so nice to finally be dealing with people who understand my sense of urgency! Thanks again for the support and I see a little glimmer of light at the end of the tunnel.:)

Wow! Great news!