Could anyone tell me if anyone has felt burning sensations in hands and feet a week to 10 days post exposure which later turned into prickling/brning/tingling sensations on hands and feet(neuropathy). I came up +ve for hsv2 at 12 weeks igg tests but if these sensations were due to hsv2 then, i understand that igm test would have been at least weak +ive or high -ive which was not the case. I am extremely stressed for last 6 months. Inputs will be highly appericiated...
Thanks
i_messed_up
09-15-2006, 11:33 AM
c'mon guys......somebody got to say something....please
chadster1041
09-15-2006, 12:41 PM
Okay I am going post,but, I need to hear why you are asking about Neuropathy???I am HIV Positive...why do you think you have HIV because of this?Let me guess you searched the net for it???Regardless, I need to hear about your status before I answer your question. No, I don't believe Neuropathy happens after a couple of weeks. I am no Doc...but...you should get a check-up:jester:
i_messed_up
09-15-2006, 12:59 PM
hey...thnx for replying..
actually i have posted before on this forum.. i had a condom break issue with a SW on 19th march.. I have been feeling sick ever since. I am depressed and not enjoying anything in my life. I had urinary discharge, pain in abdomen, burning hands and feet, change in bowel movements...
I did Qualitative PCR Proviral on 20th and 60th day which came negative. I did ELISA IIIon 9th, 80th and 84th day which came negative.
My herpes IGG on 84th day came positive and hep B also came negative. Ihave been feeling heat gushes in my feet throughout and sometimes i feel lymph nodes under my jaw swollen...
My WBC was arounf 15.6 12-14 days after exposure when normal range should be not more than 11.
I have heard that if WBC is heightened, it taes more times for anti-body reproduction... Say what Chadster...i have been freaking out for last 6mnths.....
Take care
Ronnie99
09-15-2006, 10:21 PM
WBC is not a way to diagnose HIV inection although I have read that WBC generally falls in primary HIV infection (not rise).
I know where you are coming from guy in terms of not feeling well for a long time after a possible exposure. My stupid mistake was the first week in February and that event has literally changed my life for the worse. I have never felt well starting 2 weeks after the encounter with swollen glands, fatigue, some skin issues, etc. since. That being said, all tests I have taken have been negative, and I've taken a lot of them believe me.
All I can say is best of luck to you and try to keep a good attitude since depression can have very negative ramifications on your overall health.
Ronnie
i_messed_up
09-16-2006, 09:23 AM
hey Ronnie....
Thanks for replying. I have been following your posts over the place for last 6 months. I hope u feel better sometime soon if you r not already.
WBC's include lymphocytes, neutrophils and couple other things. When u say, WBC's go own in acute infection, do u mean the total WBC count or just the lymphocytes. In my case neutrophils were in range of 77.5, lymphocytes were less at around 16 (normal shoud be over 20). And overall total keukocyte count(which i understad is WBC) was 15.6 (way high). Don't know what to make out of it.
And I am also really worried bout these hot skin feeling i get in my feet and hands everyday along with nerve twitching and other neuropathy sensations.
Also, I understand that herpes antibodies show up later as compared to hiv antibodies (take more time to develop). With that fact in mind, can i rest assured that my immune syste is working ok as it gave me herpes antibodies at 84 days post exoposure but not hiv antibodies which may mean i am not hiv infected.
I will look forward to your replies guys as to what do u guys think.
Also, 1 question that bothers me is if there is any conclusiveness to the data suggested at thebody.com and other places over internet stating that no one has taken more than 12 weeks to seroconvert ever since 2000. This is a big statement. Do u guys know if it holds any truth.
Than for the time to read out my post. ks Do reply guys.....and share ur knowledge with me.
Take care
i_messed_up
09-16-2006, 10:38 AM
thnx Ronnie...
guys anyone got insight on neuropathy, hot skin feelings in feet and hurting soles.....pls share...anybody....and this all is not psychosomatic or anxiety related....i am sick of docs having attributed each of these right from the time i started having them to anxiety. This is real and i hate medical community for screwing with actual information coz they dont have any explanations...I am frustrated with myself, docs and the amt. of money i have spend till now to figure out to get some peace of mind.
Also, WHO says 12-13 weeks test is conclusive. Now even CDC says that. What generations of test they are talkig about. Mine was 3rd gen ELISA for HIV-1/2. Are they the same throughout the world and do they pick up all the strains??
thebody says 12 weeks test is conclusive unless the immune system is majorly f'ed up. What are the signs of f'ed up imune system so antibodies are not reproduced till the end of 12 weeks.
thebody , CDC & many other internet resources say that there hasnt been a case of late serconversion beyond 12 weeks recorded after 2000. How come 1 of the mods of healingwell tested +ive on antibody test only on 113th day....
Is all ths misinformation or what. With my current condition it has completely screwed up my head. I can not work, can not have fun. The only freaking thing i do is sit infron of the computer and get my *** kicked off from 1 forum or another as i can not accept my repeatedly emphasized negative status - or tats wat they say....
Pls kep talking..never know when the last breath arrives....
Ronnie99
09-16-2006, 12:21 PM
Talking about symptoms will lead you down a road you don't want to travel. I had most of them. I did not have the nerve related ones but had hot feeling skin very strongly. Keep in mind that there are hundreds and perhaps thousands of viruses and bacteria that you can catch in this world and that many/most of them give symptoms that are often similar or related to many other conditions. This is why symptoms are hard to go by and the tests are the only way to know.
i_messed_up
09-17-2006, 02:30 PM
u r right Ronnie...
but when i experience hot red feet almost everyday for last 6 months(time since exposure) and read content from sites like body.com, it completely points to peripheral neuropathy. i lift my legs while watching TV for few mins above my waist level, the fall asleep. Does anyone have any idea about peripheral neuropathy starting during acute phase of an infection. There was a time when i was not able to wear shoes also(almost 20 days post exosure) as it would feel very uncomfortable. Now, I feel heat and redness many times in my feet during the day and also nerves twitchig in my palms and feet. Please guys share your experience with me.. My exposure could not have been for more than a minute(most probably notmore than 30 secs). I got herpes from it and maybe HIV too...Everyone say female to male is more diffficult to accomplish. I guess I am the one that made is so simple for the records to be re-written. And look at the luck also, feeling like hell I am scared to death.
1. condom break - max 30 secs exposure
2. -ive to 12 weeks including 2 HIV-1 Proviral DNA PCR and 4 HIV -1/2 AB test from 9th day onwards to 84 days.
3. Managed to get + ive for herpes at 84th day in 30 secs of exposure
4. breaking seroconversion(time) record in recent times.
5. female to male transmission when male topping in 30 secs of max exposure
Don't u think these facts will make me 1 of a kind. How much more ****ed up luck can get. Guess, brother's time was really up...pretty much must have run out of last bit teeny meny luck as well...The games this life plays on u is beyond comprehension. I use to be the heart of parties. Now, I just see myself trying to avoid them or sitting alone...Why me?????????
Thanks
i_messed_up
09-18-2006, 01:02 PM
hi guys....
don't anyone have anything to add? I am sure a lot of people here has lot more experience in dealing with testing, symptoms etc than me. It will be really good to hear something from u guys.....
Thanks
chris_eco
09-18-2006, 01:23 PM
I haven't read the entire thread, but to me it doesn't sound like you have had a 6 months test. Is that true? If not, you might want to consider getting one.
That being said, my understanding is that HIV symptoms do not last for months and months. They appear 2-4 weeks after exposure and stick around for one or two weeks.
You also had negative PCS and antibody test after 13 weeks. I couldn't accept negative at 13 weeks myself, but everything out there makes it seem like 3 months really is conclusive.
My guess? It's not HIV. Perhaps part of the problem is that you seem to be convinced that you do have HIV? Anyway, either way, I'd get a 6 month test.
i_messed_up
09-18-2006, 02:07 PM
Hey Chris...
thanks for replying. Just saw u got ur 6 mo.s result back. Congrats!!!!
However, I would like to ask you if your posting is motivated as a result of your 6 mo.s result or is it based on science behind anti body development. With what you are saying, do I consider that the 6 mnth test is to emotionally satisfy u that u r negative or does it hold any scientific weight behind it.
I am actually not in the country right now - on a long business trip in europe so can't get tested here for reasons beyond comprehension.
Also, does people who have gtten PCR's done - 1 question - mine were HIV-1proviral DNA PCR's. What is your understanding of strain/clade coverage by PCR's.
And, I would really want to know if anyone has experence peripheral neuropathy right from acute infection stage.Please share with me. It is my understanding that HIV can cause GBS (Guillian Barre Syndrome) which results in neuropathy during PHI as well. Well resources on web say so. However, docs say tat neuropathy is generally seen in later stages. How come this information is conflicting?
Please share info regarding PN with me. I will really appericiate it.
chris_eco
09-18-2006, 03:40 PM
Hey Chris...
thanks for replying. Just saw u got ur 6 mo.s result back. Congrats!!!!
However, I would like to ask you if your posting is motivated as a result of your 6 mo.s result or is it based on science behind anti body development. With what you are saying, do I consider that the 6 mnth test is to emotionally satisfy u that u r negative or does it hold any scientific weight behind it.
My posting was based on everything I've read. A 6 month test, from my understanding, should be just for peace of mind. I've read that enough from reliable sources that I now feel like I can put this whole ordeal behind me.
Also, does people who have gtten PCR's done - 1 question - mine were HIV-1proviral DNA PCR's. What is your understanding of strain/clade coverage by PCR's.
I don't know. All I do know is that the problem with PCR testing is potential for false positives. While I suppose it's possible, I haven't read anything, ever, about false negatives. From that, I infer it doesn't or rarely happens.
And, I would really want to know if anyone has experence peripheral neuropathy right from acute infection stage.Please share with me. It is my understanding that HIV can cause GBS (Guillian Barre Syndrome) which results in neuropathy during PHI as well. Well resources on web say so. However, docs say tat neuropathy is generally seen in later stages. How come this information is conflicting?
Please share info regarding PN with me. I will really appericiate it.
Peripheral neuropathy can be caused by herpes. In an earlier post, you stated that test came back positive. Are you being treated for it?
Neuropathy can also be caused by diabetes.
Here's my "I'm not a doctor, but I've read everything out there over the past 6 months" take on this: Being the male in a m/f encounter, with someone of unkown status, while possible, it seems you were at pretty low-risk. You tested negative at 3 months, which is considered to be conclusive.
If I were you, I'd look at Herpes as being the culprit. You don't have HIV.
That being said, as I'm well aware, it can be hard to accept a negative result. I knew all this information for the past 6 months, and yet I had a hard time putting my full faith in the 3 month negative test and the negative PCR test.
i_messed_up
09-18-2006, 03:50 PM
hey chris...
with what u have written in ur previous post... had u been in germany right now.. i would have for sure bought u a beer n may be celebrated ur result at the oc(k)toberfest...thnx for replying and i am really happy for u...ciao...
i_messed_up
09-19-2006, 02:50 PM
Chadster/experts....
As Chadster said in is 1st reply that he doesn't believe neuropathy takes effectt from 1st week after infection. Normally, when does it apear coz i still have it. Now, what i feel is sometimes twitching in hands and feet, somtimes prickling sensations and other times, buring or heated sensations in my feet. During those times, the feet even get hot/warmer and sometimes even red..
Sometimes when i walk a mile or so the soles hurt also.
Chris - i am carrying valtrex for herpes along with me but not taking it. My doc asked me not to take it unless i develop and visible genital sores.
Also, for last couple of days i am noticing few red bumps on my chest and above stomach area. Its been 6 months. Can a rash appear this late or is it specific to seroconversion or during acute infection phase only.
Please let me know what u guys think
Thanks
chadster1041
09-20-2006, 02:30 PM
"I messed up" I did however say I was not a doctor and you cannot diagnoise yourself. I know you are not going to believe alot of the replies, why? because your mind has it made up that you might have HIV. From your posts, I think you are conclusively Negative. Have you been checked for Diabetes, Gullian Barre, which by the way is not just a cause of HIV. Many many people suffer from this and it is not from HIV. Yes, some do, but, neuropathy happens from shingles(herpes virus and many other diseases). Neuropathy happens from a disease attacking the Mylean Sheath(forgive my spelling) and can happen at many stages of many different dieases. Please see your Doc, and get the heck off of the iinternet sites. Yes, HIV sites comment on neuropathy, and yes in the later stages and also from the medication. If you read far enough, only about 20% of positive HIV folks experience Neuropathy,the rest are from Meds. ONCE AGIN I am not a Doc nor is this site! It suggest this. Get a Pen and paper, write down everything you are feeling, then take it to your Doc I don't care if he/she is Japanese,German or Russian and tell them how you are feeling and get it fixed. Your gonna feel soooooooooooooooooooo...much better when you do. You gotta do it alright. You will be alright:cool:
i_messed_up
09-26-2006, 07:11 AM
Hi....
Thanks for replying. I am trying to calm myself down. However, for last 2 days I am having a white spot in the throat on the left side. It is pretty deep and is even behind tonsils. It feels like a lump in the throat. I tried to screape it off using my finger nail yesterday. A little bit came off. Felt like cottage cheese but the spot still remains there today. This has again added fuel to my fears. Do u think it could be thrush or esophagitis. I am in the 6th month post exposure. Do u tink, it can happen now. I am getting real worried. Please do reply...