I have been diagnosed with fibro. First I was seeing a qwack of a cfs doctor who was treating me for cfs. I do have it I think it goes hand in hand with fibro. But I stopped seeing that guy cause he wasn't making sense at all with his treatments. I've found a more knowledgable and friendlier cfs doctor. He says that my problem is more fibro than cfs. I truly have to agree with him.

So my question is does anyone here with fibro have strange crawling sensation anywhere in there body specifically in the lower back and sides and sometimes the upper back? What about eye symptoms such as floaters or flashes of light?

It's weird cause the more I talk to my doctor and my therapist the more I realize that a lot of these strange symptoms have been going on for a long time in my life. I think now they have just been exaggerated by trauma.

anyway could some please give some feedback. I'm trying to understand as much as I can so I can deal with it the best I can. It's good to hear from people going through the same thing cause it encourages me and lets me know that I'm not alone and that others outside of the great cfs doc. and my cbt doc understand what I'm going through.

Hi, I have had the strange creepy crawly feelings, in my arms and legs...I also have floaters on and off. I also have had (now this is weird...lol) when I'm in the shower and the water is coming out sometimes it will look like balls of fire or shooting stars!!!!! Hows that for STRANGE!!! That one kicked in when I was pregnant with my third child 8yrs ago, I still get it, but its not very often...maybe twice a year.

Hope this helps

Hope

hi levente,
you are not alone. trust me. welcome. we have not met. i'm blue.
ah, the strange bugs crawling under the skin. went thru that stage. thankfully it seldom happens now. used to rub myself raw.
fibro sends mismessages telling the brain to react. it does. just look at the area and see that there is nothing there. tell your brain. in time your brain will listen to you and chill out. the mind is our most powerful tool.
i also have the floaters, they are not related to fibro. had them all my life. being more aware of your body now it makes sense you would focus, pardon the pun, on your eyes also. i would see an eye doc about the flashes tho. just to be sure they are nothing to worry about. have had them too. actually i play with my floaters. they are just bits of tissue that slough off and "float" about. nothing to worry about and nothing can be done for them. they just are.
so glad you found a doc to assist you on your journey. so vital to have the right team of doctors.
forget trying to understand this. just do it. nobody, but nobody understands it. too much effort wasted there. better to spend your energy doing the things you love and the things we all must do to get thru life.
it is a pleasure to meet you. i hope you find answers and support here.
peace,
bluelakelady

I think I double posted, but anyway ladies, thank, thank, thank, so much for your responses. It really helps when you here from someone who can relate and understand. Thank you again.

I be interested to know what it is you have done or taken to deal with your fibro?

hi levente,
the list of things i have tried is too long. pills, herbs, diet, exercise, you name it. massage therapy, meditation, staying active, eating healthy and plenty of water seem to be what helps me most. a positive attitude and the belief that i still have value.
pain is an aspect of all our lives. degree of pain is the difference. pills will mask the pain, they will not make it go away. being dopey was not my ideal way to live. i spent 9 years in therapy learning coping skills to reduce stress, learning to set and keep healthy boundaries. learning to love my body as she is and respect the effort she puts out every day for me.
pain is a daily aspect of my life. once i accepted that concept i was free to explore what i can do while in pain. i can do almost everything i used to do, only slower or less often. of course 3 strokes play into that also.
every time i think i know what real pain is my body shows me i know nothing. osteoarthritis is my newest gig to get used to. talk about hurt! amazing how my body can hurt so much and my mind be cool with it.
you will have to find what works for you. there won't be a fix that makes it all go away. there will be a way, your way, and you will find it.
peace,
bluelakelady

Thank you so much for you comments. Honestly these are the types of things I need to read right now, cause I know them it's just reinforcing when you read from experienced people. It's so hard to talk to people that don't understand cause they don't go through it. They just think that I should be able to do what I use to do. Right now I can't, but God willing I will get some of that back. My doc that I'm seeing is very cool about this whole thing and he's very honest and open about what he thinks, knows and doesn't know. He's a cfs/fibro doc. He told me that my severe wanting for my old life was a sign of mild depression to him. He didn't try to force anything on me such as anti-depresents. But did ask me if I would try a natural one called Jarssen or something like that, comes from some country in Europe. I think he said it was Ducth or Swedish and they been using it for hundreds of years. I'm just trying to figure this thing out and what works for me and how to get the most out of my life. I would like for you to read something but I can't post it here cause it's a url but If you can contact me I will send it to you. It's simply a thank you of sorts for your words. They have meant so much to me. I'm here in Korea and I have lots of friends and I have a large social circle and wow, I just want them to understand this fibro/cfs thing I deal with. Because they don't I tend to keep it to myself. I'm sure it would be the same way if I were in the states. Anyway I've got great job here and all though my superiors don't uderstand it completely they value me enough to allow me the space and time I need to deal with it. I thank God for that everyday.

Thanks and find me.

hi levente,
we cannot find each other outside of here. posting rules. this sadness you are having is called mourning. not depression. you are mourning the loss of your old you. totally normal. we all go thru it. you will come out the other side a new you, content with your body as it is and your life.
no one who does not have this will ever understand. we don't want them to. they would have to have it and we don't wish that on anyone, right? what our loved ones and friends can do is offer empathy, love and compassion. they can also come clean our house, giggle. i have a friend who does that whenever she visits. bless her.
i know how much the words here mean to you. i have been here 3 years now. so many faces have come and gone in that time.
friends will have a hard time adjusting to you saying no sometimes. good friends will still be there even if it means coming by and spending the day lounging abed with you watching movies. being sick weeds out the good time buddies from the good friends.
so glad your employer values you enough to adapt their needs to your ability. so important.
is korea pretty?
peace,
bluelakelady