I had my ultrasound today to check what the pain is on my right side after my bowel resection and it isnt good news

There is approximately 2-3 pints of fluid in my abdomen sitting right on top of my bladder, inline with my small bowel. I have to go back on friday for a ct scan.

The doctor said it could be a possbiltity of a couple of things............fluid leaking from bowel if the resected part has opened up slightly, a diverticulum that is showing signs of ruptering and that was it. Now i am so worried i asked if he could do the ct scan today and he said no becuase he wanted to see if the fluid volume has increased over the next two days when i go back on friday.

Im so dishearted at the moment...i asked if it means more surgery and he said quite possibly yes. he also said he may keep me in on friday depending on what he finds in the ct scan.


Please, has anyone got experience of this coz i am so wrried as to what it is and whats causing it. I just want to recover fully from my surgery

Sharon,

I am sorry to hear this. I did also have some problems after my surgery with fluid but it was only two weeks after. They said it was a hematoma--collection of old blood. Mine did reabsorb within a couple of weeks.

While I know you don't want more surgery, you do want to feel better. You will probably feel much better when they fix what is going on.

Hang in there.

Maggie

Hi Maggie

Thank you for your reply

I'm just going to have to accept what needs doing to get it sorted. The thing is he didn't directly say yes more surgery is needed his words were " yes, quite possibly" hopefully, i don't.

The thing is i am kicking myself, coz i knew something wasn't due to the pain i started getting that didn't seem like post op pain, i should have listened to others and gone back then to get it checked out.

Hindsight is a wonderful thing!!! :mad:

Sharon I just wanted to send you some (((((((((((((((((hugs)))))))))))))))))))
I am so sorry to here that you are going through so much. I hope that all goes well on friday and that you will not need more surgery!!

God Bless...Mandy

Sharon, do you get any symptoms from the fluid? I'm having trouble with my bladder right now too. I get a terrible pressure, just like something is pressing hard against the bladder, and then I have to pee about every 15 min. If I don't have the pressure my bladder is okay. The doc thinks it could be a fistula and that its my colon pushing on it but urine work and blood work are good.

Hi Twisten

The symptoms i get that are bothersome is that i'm very tender around that area to touch and going up my right side. I am going to the toilet alot of night, waking about 5-6 times

I'm not too good today. I woke up this morning with instant pain on my side, i went to the toilet and as i was sat there i got excruiating pain running down both sides, i started to get hot sweats. tried standing up but i couldn't coz i was in so much pain. The pain felt as though something had ripped straight through my abdomen. Being honest, i have a high pain threshold, but today that pain frightened me, i really felt like something bad had happened. The pain got worse eveytime i tried bringing my knees up.

I managed to stand up but could barely walk, i lay on the bed and rang my husband to come home from work. It was a constant gnawing pain. The pain has eased off now, but my right side has got worse with the tenderness. All day i've been feeling weak and lightheaded. Been feeling sick with it.

I don't know whats happening to my insides all i know is that it causing alot of pain at the moment.


I'm hoping the CT scan tomorrow will find the problem.


Mandy............thanks you for your kind thoughts :) xx

Oh, Sharon, I'm so sorry about this! I was collecting fluid in my lower abdomen after one of my surgeries. At first the surgeon said let's wait and see, the body may reabsorb it, or something like that. Somehow (I don't remember how or why; but there was a lot going on) it got overlooked until it had developed into quite an infection. But, when finally addressed, it was easy to resolve.

That pain does not sound good. Best wishes with the CT. I'll be thinking about you.

Hoping all goes well at your CT Scan tomorrow, I will be praying that you get to find out what is causing your pain!!
God Bless...Mandy

Sharon --- I certainly wish you well

Harry

Thank you all, it really helps to ease my worries when people like yourself send best wishes :)

I have to be at the ct scan for 1:40pm, drink some stuff then have the ct at 3:10pm.

I am hoping the doctor will tell me what he sees, i think he will coz he told me the results of my ultasound and it's the same doctor doing it today. Mind you, he will have to tell me if he wants to keep me in hospital!!

Thank you all, and as soon as i find anything out i will let you all know.

xx

Well, i had the CT scan and not really non the wiser yet.

He had a quick look and said what stands out the most is that i have a cyst on my left ovary the size of a tennis ball, and it is lying across the top of my bladder just underneath my incision from the bowel surgery. I have to go back for another ultrasound in 6 weeks and take it from there,

For the other results i am having to wait till i see my gastroenterologist the end of november! but, i am seeing my surgeon (follow up app from my operation) the beginning of November so i am going to ask him for the rest of my results. And if the pain is still there on my right had side i am going to ask for further testing.

As of yet i can not have my care discharged from the hospital, i am still under the hospital...............gastro, surgeon and possibly gynacologist now! I just want everything sorted out. I am glad though that i don't need any surgery yet. Even the possbility of more surgery cannot be ruled out yet.


I am going to go back to work in two weeks, i need to for financial reasons, will just have to be careful.


Thank you for all your kind thoughts, it has helped alot :)

xx

So glad to see you on the board, And not back in hospital!!

I have been having a lot of pain near my right ovary, I had a scan in june that showed a cyst.
I had a letter from the Gynacologist after I had the scan and it said that I have a collapsed corpus lutem, I have had the pain on and of for months, I think that Its my Appendix sometimes, but the doctors say that its not.

All this pain that I am getting under my ribs and feeling weak, I hate not knowing 9 months of hell, Iam waiting to see what the Berium Enema shows.

Got told last week that I am going in the menopause I am 41, The doctor said no more periods within a year, I think I would rather have them and not get heart and bone problems.
With me having a underactive thyroid you are more likley to get heart problems anyway.

Have you had pain near your ovary!!

I know you have been having bad pain, but I didnt know If it was near your ovarie or not???
God Bless...Mandy

Hi MAndy

No, i have never experienced any pain in line with my ovary, just the constant feeling of needing a wee!!! All my pain has stemmed from the crohn's and the bowel obstructions.

I hope you get some answers from your barium enema results and you find out what's causing your pain. when will you find out??

I hope all of you getting well soon and "GET FIX" the problems. I'm 48 and also in the perimenopause period.

While I'm reading all of your posts here, I developed some palpitations right infront of the computer! It's really scare me. I've quite a lot of symptoms like you all mentioned here. My cyst isn't at the ovary, it's at my right groin. Two weeks ago, it infected (abcess). I'd a course of antibiotic and squeeze a lot of pus out. Now still left a cyst inside.

I was booked in for a gastroscopy and colonscopy in one sleep at Jan 2007. The CT scan show I've multiple diverticula, it affecting most of the large bowel. I also have a serosal fibroid 2.1cm on the right at the fundus. Nothing get fix yet because it didn't had any serious pain yet.

I normally at heart forum. I come in this site is because my stomach's Dr said the colonscopy has a risk, it can poke the intestine. If it is the case then needs a repair. Did your Dr tell you all like that? Or she prepare to cut some of intestine out? It wasn't the procedure that I want, honestly. This time she won't let me out of her surgery if those procedures not booked in.

I have a deep breath. The scare/fears hasn't gone yet!

Everyone take care.

Pika

Hi Sharon. Before my crohns diagnosis I had a cyst on my right ovary that ruptured and stuck to my bowel. I had referred pain up into my left shoulder and other than that the only pain was when I had a bowel movement and that would just about make me pass out. They took the ovary out as soon as they found it. I have to ask, with your bladder problems right now are you having any signs of infection? I had my urine tested and it was supposedly good but I'm having terrible burning now that is constitent with a yeast infection. Of course it has to be a long weekend too!!

Hi Twsiten

I haven't had any pain to indicate a urine infection, no burning. the only thing i am getting is constant pain in line with my right kidney (at the back) just below my right lung,but it only comes about 15 minutes after i have had something to eat. Stays fro a few hours and then goes til i eat again.

It's strange you should say that when you had a bowel movement it hurt and it was linked to your ovary. Whne i sat on the toilet the other day ( i mentioned in my post earlier) that was when i got the excruciating pain running down both of sides, starting just below my ribs and right into my groin then it went across my bladder and sat there for a few hours, this was when i could barely walk.

Illnesses always fall at stupid times!!!!!!

Sharon,
I'm so sorry to hear more problems. hang in there and I pray that this doesn't mean more surgery for you.

hi Garden

Thank you :) you have helped me alot and i really appreciate that!

I am on imodium now, i am still running to the toilet within 30 minutes of eating!! Hopefullly the imodium will slow down the diarrhea.

I think when a person has an illness that isn't curable it is a case of having to live with it and accept it, that's what i am doing now, going to try to get on with things. It's a bit of a pain, coz if i eat out i have to time it right so that we are home within 30 minutes.

It will get sorted in the end, whether it means more surgery, more medication, life changes. I will get it sorted. I just come in here to vent off at times as sometimes it gets too much and it helps me to deal with it when people like you offer advice and words of comfort.

Sharon,
You are such a sweet-heart. With all your problems you take the time to help so many with your words of encouragement and support.

God truly blesses those that give of themselves!!

Harry

I used to post in here quite a bit but when things were good with my crohns I moved over to the pain management board (lots of great people there as well as here) and only popped in occasion so most in here are new to me other than Harry, he's been around a long time. Thank goodness!! Anyway I was on narcotics for 5 years or better because of chronic pain. Came of of them myself coldturkey, my choice not my doctors. I didn't even tell her until way later. Now of course I'm in a full-blown flare with possible fistula and I'm getting told by er docs we don't want to give you a narcotic because of your history. What history??!! I was a cp patient not a drug addict and to me the fact I stopped them myself should tell them something. I never doc shopped and the only time I filled early was going away for vacation. If I ever needed an extra pill I always called my doc first. I had a problem one time with a drug store where they doubled my dose and I didn't notice right away. The pharmacy took the blame so it can't be that giving me grief. I'm sorry this is such a long rant but I think it's crap that I have to suffer like this now. Any suggestions on what to do about this? Also this is kind of gross but I now have a horrible infection coming out my vagina and anus. I thought to start with it was a yeast infection but I've never heard of that type of infeciton back at that end of the body. I do have an external hemorroid also. Any one hear ever dealt with this? I really don't want to go back to the ER but this is agony with everything else flared up too. I'm also waiting to get into urgent care in the city but it could be months yet. Also I live in Canada not the U.S. Any suggestions or advice would be appreciated. Sorry again this is so long.

Hi Twisten

If you are having a flare up at the moment, stop all solid food and take nutrient drinks for 3 days, then go on to a low residue diet, gradually introduce foods back in to your diet. A low residue diet can help if a person goes on it as soon as possible.

It didnt work for me when i tried it because at the time my crohn's was very bad, but the nutrient drinks did help whilst i was not eating, they kept my vitamin and minerals topped up.

You will stil have bowel movements on a low residue diet as the bowel isn't functioning properly, so everything will probably go straight through you.

If you start to vomit, or the pain gets worse then you need to go to the ER. You probably know this anyway, but i know whats it like during a flare up and you just want to forget about everything and curl up!

Sharon, were you checked for gall bladder, or pancreatitis? Maybe blocked up bile ducts? The back right sided pain almost always indicates gall bladder or bile duct problem. Take care. Hope you feel better. Linda

Hi Linda

No, i haven't had my gallbladder checked. But, i had to have a CT scan on friday so i would assume that if there was something wrong with it then it would be picked up on that and my gastro doc will tell me next time i see him ????

I was told after small bowel resection it can sometimes irritate the gallbladder, something to do with bile salts i think? and the ability of fats being broken down.

Sharon,
The part of the small intestines you had removed is part of the ilium where the bile salts are reabsorbed after breaking down fats in your body. If they are not reabsorbed and get to the colon -- they can cause Bile Salts diarrhea.

This type diarrhea happens with about 5% of people that have their gallbladder removed and they put out too much bile without the control of bile that the gallbladder provided.

Your diarrhea problem could just happen because you now donot having enough small intestine to reabsorb the bile salts.

The problem with those that have no GB is helped by medication that combines with the bile salts--- Questran in a powder form or Colistid in a pill form. This type medication is primarily used to reduce cholestrol by absorbing the bile that digest fats.
A side-effect is that for nornal people ( those with GB and all of their small intestines) it causes constipation.

God Bless~~~Harry

Hi Harry

Thank you for that information, i knew it had something to do with the bile salts, just couldn't figure out what it was! ;) I want to avoid medication now, i think my system is going into overdrive due to the amount of drugs and the extent of the surgery.

I've had a big improvement in my condition since i started to take manuka honey, from what i have read it contains different enzymes to other honey and due to this it has a better rating of helping infections, digestive problems etc that medication or antibiotics don't work on.

It even cures MRSA!!!!!!!

I still have diarrhea, but it's not as bad, more bearable now and i just have a general far better well being inside my abdomen if that makes sense???


I really can't thank people enough who have helped me alot on this board, having this support just makes the experiences far more easier to deal with.

Sharon probably you also had your Ileocecal Valve
removed mine is missing heres a little info
The ileocecal valve performs two key functions. It physically separates the small intestine from the colon, keeping the bacterial content of the colon from backing up and colonizing the small intestine, and it regulates the emptying of the contents of the small intestine into the colon. By slowing the passage of nutrients from the small intestine, the ileocecal valve helps to prolong intestinal transit time, thereby increasing the time that nutrients are in contact with the mucosal surface. This serves to maximize the absorption of nutrients, fluids, and electrolytes. Small intestine resection decreases the transit time by physically shortening the length of the intestine, disrupts the normal rate in which food is mixed with enzymes, and shortens the contact time of the nutrients with the mucosal surface. When the ileocecal valve is also removed, bacteria from the colon flow into the small intestine, which can result in bacterial overgrowth. Intestinal transit time is further reduced, since the valve is not there to regulate the flow from the small intestine into the colon. This can exacerbate the symptoms of SBS (e.g., diarrhea, malnutrition, electrolyte imbalance) because the absorption of water, nutrients, and electrolytes is impaired.

The valve also prevents BILE from spilling off into the colon.Bile is very irratating to the colon. So possible questrim might be something you need. I take it every other day which is enough for me.

Hmm reading all about this bile stuff is interesting. I had my gall bladder removed in the spring and some of this stuff started happening shortly after. I know there's a word for how fast your symptoms dumps but I'm stumped on what it's called? Anyone know? What would the bladder have to do with that though?

Twisten,
You have Crohns also? Your bowels and bladder are very close in their often when your having bloating gas and some inflammtion it puts alot of pressure on your bladder. When my Crohns is bad so is my bladder they go hand in hand. About 10 years ago my bladder was so bad they first did a test to measure the bladder capacity I could only hold 70 cc very small bladder capacity. I could not go for anymore then 50 minutes without having to pee. Nights maybe two hours. It stung and burned felt like I always had a bladder infection. Went to doc after doc. I was about ready to well I don't know but it was to the point I could not take much more.
The 4th Urologist said lets go take some bladder biopsys at this point I begged take my bladder out remove it I'd rather pee in a bag then suffer like this. Anyways went into surgery they took 4 biopsys of the bladder linning 3 showed severe inflammation the 4th was a ulcer! While I was in the OR they made a decision to also do hydro distention because my bladder had shrunk so much from the years of constant inflamation I had practically no capacity to hold any urine. I had signed the consent prior to surgery to do this as there are risk. They over fill your bladder with a saline solution this stretches the bladder so you have more capacity. the risk is they can rupture the bladder doing this. Anyways it did help. They can not offer any reason as to why the bladder is inflammed when the Crohns is flaired. But they do say they think its the same process that causes the Crohns a auto immune thing.

Gardenandcats,
Thank you!

I think your Posts are awesome --- I am learning so much about Crohn's and it's complications -- What nightmare disease -- to endure.

God Bless You ~~~Harry

Thank you Harry. I'm a firm beliver in research and take control of your health when having a disease that not much is known about it. I'm always looking and reading and picking the docs minds! I just pray that soon they will find a cure for this. It can be very hard to live with. When the most simple form of life ,eating gives one such horrid problems.

Hi Garden

I am waiting for my gastroenterologist to ring me today. I have been having blood in my stool again and the pain keeps radiating into my back, which makes me think it could be my gallbladder. I don't think it is a urine infection as i don't have any other symptoms. I only get the pain when i eat then it fades after a few hours.

I have asked my gastroenterologist to look at my scan results and let me know if there are any indications of any problems with my resection site, if not then i can go to my normal GP and get him to see what this pain is.

With regards to the crohn's and with it being an autoimmune problem, i was told the reason why it causes alot of problems with surrounding organs its because it creates an unbalance of the good bacteria that lines the stomach and the stomach cavity, apparently it spreads just like a rash would do on someones face or legs etc. I had it explained to me in lay mans terms............they said the organs in the abdomen are very close together, just like people queuing in a shop, almost brushing shoulders, if one them people sneeze more than likely each of those people in that queue will develop a cold. This is what it is like for the organs, if one becomes infected, inflammed then it will spread. Crohn's can even affect the pancreas. This si why people can die from a serious flare up of crohn's.

I was also informed this is why once the crohn's is under control the majority of cases the other organs improve, but sometimes seperate treatment is needed on some organs.

My gastroentreologist's secretary has just rang me and i am going to move across into the ovarian cancer board and post the details in there.