Hi all...I am new here...I was looking online to try and find a support group or something and just came across this website so thought I would post. I am very frustrated. The doc says my fibro is in a flare up. And my goodness is it out of control. It has been 4 months and I am doing everything I have been told, read, etc to do and I just can't see a light at the end of the tunnel. My doc says that stress is a huge factor and my work is what caused the flare up...I need to work and can't quit...I am just seeking advice I guess. I am 27 and have many years ahead of my...my husband of only 2 years wants to help...but he supports me all the time...I don't want to take anymore from him. I guess thanks for listening.
heathbin

Hey Heathbin, you came to the right place. I know how you feel and I can really understand. This is a good place and there are good people here. Keep coming for the support. I understand what you mean about having to continue working, I feel the same way. The flare ups are, u know what, but like my doctor says to me all the time, fibro will not kill you. It might hurt alot but it won't kill you. Your alive and you will recover. You might get rid of your fibro but you will recover. Keep fighting the good fight.

Levente'

Welcome to the board. Fibro is frustrating, and working with the condition can be daunting. When I first started going through the initial stages of fibro, I remember having such guilty feelings about my husband and kids when I couldn't quite get my body to cooperate with the plans of the day. Somehow I got through, and I have found strong resolve and strength was written into my spirit as a result. I guess it's sort of a mind over matter thing. Keep fighting. You are a warrior, of sorts, and you need to keep going and find answers that will help you live your life in the best way possible.

Blessings,
Kirstee

Heathbin,

If your work is contributing to your flareup, can any accommodations be made? Oftentimes we are too worn-out to do anything but continue on, however, manytimes small changes in the job, or how the job is accomplished, can reduce the impact on the fibro.

Best wishes.

Thanks all...my doc has mentioned needing to keep my spirits because sometimes my mental state can help my body. Work is work...short of quitting my job I don't know what changes can be made but I think that I will just have to look at things differently....try not to take it all in so it does not affect me physically. I appreciate the suport....
heathbin

heathbin, after i had my baby 5months ago, i had the worst flare up. i have had flare ups before but man this was pretty bad. anyhoo my doc prescribe me a medrol dose pack which is a steroid, and after a day my inflamation went down alot. i felt like a new person.
i know now that if i have another one that i will consider the steroid again.
i hope you feel better soon.
robin
p.s.
you have come to the right place and i am glad you are here.
how wierd i am watching a commercial on fibromyalgia research study. i love seeing commercials about our sickness because that means that people are starting to hear about us.

HI Heathbin....
I pretty much found healthboard the same way you did.....I was diagnosed with fibro about 9-10 years ago and since moving back to Ok. 4 years ago I haven't been treated...still waiting on insurance. I have tried everything herbal you can think of. I have my good days and my bad days now going through something else too, with my cervical spine. Already had surgery on my lumbar spine!
My kids are grown, they just turned 18 and 21 but I haven't been able to do much with them in the last several years.....if they would ever see me slightly run they would about fall over.
Have you had problems with irritable bowel syndrome, UTI's, GERD,ect? I think I have just about everything associated with fibro....:mad: I know it effects work...I have to do a lot of walking, and usually my days start out pretty good, but by the end of the day I hurt and am sooo exhausted. I can wake up with pulled muscles and have no idea how I did it.
I took a college course last year and one of my instructors said she thought I needed to look into Lupus, because of being so tired and I have a rash on my face, then I got to wondering if maybe it is MS.
I have had a lot of stress this summer on top of everything else...my son joined the ARMY. I am very proud but it has made my depression worse, and he just got his orders for when he gets through AIT...he goes to Korea...so that doesn't help.....
I will close for now, I understand what you mean about needing a friend that understands...

Hey tiff-cher, I want to help you and your fibro. Your stress about your son coming to Korea, You can let it go. Korea is not what the media makes it out to be. I live here I went grad school here and now I'm working at a univ. It's not what you think, have seen, or have been told. Trust me. So if that helps your fibro. good. Also I have fibro and I have a great fibro doc here.

levente,
Thank You so much! I do understand the fact that he will be safe, I'm ok with it now. It's just the thought of him being so far away. Not only from us but he has his own family now, a wife and a baby boy, ten months old today! I tried to post a reply to you earlier but some how I lost it!!! Thank you again, every little bit does help me feel better! I try to be strong, not only for my health, but for my family too. My daughter and her brother are very close and she already has to deal with the fact that her boyfriend (fiance) is in Iraq.Thank you again levente :angel: I hope to hear from you again!!!

HEATHBIN...
I JUST WANTED TO CHECK AND SEE HOW YOU HAVE BEEN...:)


LEVENTE....
I FIGURED OUT MY SON IS LEAVING ON THANKSGIVING:mad: THAT MAKE ME EVEN MORE SAD. I'M TAKING SOME TIME OFF OF WORK TO SPEND TIME WITH HIM BEFORE HE LEAVES BUT I KNOW THIS IS GOING TO CAUSE ME A LOT OF STRESS, IN THE LAST 21 YEARS I HAVE NEVER BEEN AWAY FROM HIM FOR MORE THAN ABOUT 1-2 WEEKS AT A TIME...THIS MAKES ME VERY SAD AND I KNOW I'M GONNA BE A BASKET CASE WHEN HE LEAVES AND I'M AFRAID HOW MY BODY IS GOING TO REACT TO THIS....HOPEFULLY MY NEW MEDS WILL HELP WITH THE PAIN! STRESS DOESN'T HELP, AND I WILL BE STRESSED LIKE CRAZY...I CAN ALREADY FEEL IT.
FYI...I HAVE A DOCTOR'S APPT. IN JANUARY WHEN MY INSURANCE KICKS IN...HOPEFULLY I WILL GET SOME ANSWERS!!! I HAD SOMEONE TELL ME THEY DON'T THINK I HAVE FIBRO. I PLAN ON MRI'S AND LAB WORK AND SUCH TO SEE IF THEY CAN FIND OUT WHAT IS GOING ON. KEEP ME IN YOUR THOUGHTS AND I HOPE TO HEAR FROM YOU ON HERE AGAIN:angel: T

Heathbin, Hang in there is my first thot to you. Believe me I know how hard it can be and IS. I was diagnosed with fribo in 1975. Also have rheumatoid arthritis. Then just about two years found out I have lung disease and lung infection. Believe me doctors can be really helpful and really annoying. First dr. I saw for my aches was a rheumatologist and to say he was a gem is an understatement. At times I am sure you have felt and feel like your in need of a head dr. I used to say to my dr. you won't believe me if I tell you how I feel, but he did. He always listened. Even at night he was there for me. My brother now has fibro and he has told me since he got it how sorry he is. He says he used to think when I told him how bad I ached I was crazy and had to be exaggerating. Thruout the years I have had some really bad times but believe me you can make it. Try to be positive. Somethings that help me sometimes is I get shots of depomedrol and something that starts with a T. My mind this late is really shot and it isn't much better during the day. I take a lot of pain med and have learned not to feel guilty about it or worry about being addicted. I don't tell everybody. If anyone were going to get addicted I surely would. I am thankful the rheumy drs. I have had have been o.k. with them. The one I see now is very good. She keeps close tabs and I keep close tabs on them too because I do know they are nothing to take lightly. Again in closing remember to keep on going and not give up.

Levent...
He has graduated!!! And doesn't have to leave until the 26th...that makes me happy! Although my pain level is creeping up again...I don't think it is due to stress. Who knows....I have been taking my meds but they are not doing much good right now:( I can hardly use my left arm this morning, so we will see how my work day goes!
TC

I have had fibro for about 4 years (diagnosed). I had to quit my job and move back with my mother at that time since I am divorced and still have a child. I have come to the conclusion that the only people who understand are the people who have fibro. The only people I can talk to are on the internet, and I am still left wanting. I searched high and low for a support group in our city and came up with a big fat nothing. So.. I have decided to start one. Our first meeting is scheduled for dec 5th. Even if 1 person shows up, it will be a human connection. I guess I went a long way of saying to check for support groups in your area. I am in Dayton.

Heathbin,
I'm also a newbie (this is my first post) and I've been wanting to find some kind of support system as well. I can really relate to your initial posting. I'm 26, recently married (8 months) and I was diagnosed with FMS 6 years ago, but I'm sure I had it throughout my teens. My husband is also very loving and supportive, but I feel like I depend on him too much and wish I could do more. I just got through a major flare-up that was aggravated by stress and a possible early miscarriage, and it lasted a month! It is very frustrating and depressing, but I somehow manage to "survive" every time. Knowing there are others out there struggling with the same stuff can be really helpful.
Hang in there!
p.s. I also relate to your work struggles as I had to quit my full-time job this past March because it was way too stressful and I was flaring up all the time. I'm lucky that I only have to work part-time now.