Hi Everyone,

Two weeks ago, I had what the MRI thought to be a malignant giant cell tumor removed from my foot. After sending the tissue samples to two pathologist, I found out today that they removed a benign tumor called desmond fibroysis (I think I spelled it right). Well I have what is called Gardner Syndrome. Gardner Syndrome is rare, but its normally found in patients that have FAP, AFAP or HPNCC. Desmoind Fibroysis has a 50% recurrence rate. Since I have AFAP, my primary doctor has advised me to have my colon removed because of pass colon polyps. I just trying to come to turns with all of this new information. Has anyone heard of Gardner Syndrome or had their colons removed. Any suggestions, and help is welcome.

Thanks July..............

Hi Everyone,

Two weeks ago, I had what the MRI thought to be a malignant giant cell tumor removed from my foot. After sending the tissue samples to two pathologist, I found out today that they removed a benign tumor called desmond fibroysis (I think I spelled it right). Well I have what is called Gardner Syndrome. Gardner Syndrome is rare, but its normally found in patients that have FAP, AFAP or HPNCC. Desmoind Fibroysis has a 50% recurrence rate. Since I have AFAP, my primary doctor has advised me to have my colon removed because of pass colon polyps. I just trying to come to turns with all of this new information. Has anyone heard of Gardner Syndrome or had their colons removed. Any suggestions, and help is welcome.

Thanks July..............
How have you been doing since you posted this reply several years back?