sta21
10-07-2006, 11:18 PM
I had one doctor tell me that the ill feeling (nausea, fatigue with insomnia, night sweats, hot flushes pain in different spots on my body) i was having was pre menopausal symptoms (im 21) i wasnt happy with this diagnosis and in fact thought it was ludicrous. About 2 weeks ago a lump started to form on my neck i went to a new doctor and after an examination and some test he ruled out viral infection but it did show my white cell count was abnormal and now im going for numerous tests and am furious at my other doctor for not looking more carefully at things. Im frightened and dont really want to say anything to my family just yet so as not to worry them but i do want to ring the other doctor and give him a piece of my mind.
lintek45
10-08-2006, 09:53 AM
sta21,
I'm sorry to hear of your troubles and I do want to say I've heard multiple cases of misdiagnoses.
that's why it's GOOD when we learn and know our bodies. Doctors make mistakes. we all make mistakes.
if you have a gut feeling something is wrong and you're not feeling well, by all means keep pursuing this issue. find another dr like you did. you hire them, not the other way around.
did the new dr prescribe an antibiotic first?
it goes in steps. sometimes blood work can be totally normal and a person can still have a form of lymphoma. some people feel fine and some don't.
are you doing research yet? just be careful of what you read because one can get very frightened and hear alot of negativity.
I think you are very wise for your age and you sound very mature.
don't you have one person or a close friend you can share this with?
you must be a nervous wreck and to not say anything about it till you find out an answer can drive one nuts.
it's good that we have boards like this where we can come and vent.
there is a national lymphoma foundation that has many answers to your questions if you are searching them. They're up to date and can be trusted with what you read.
I wish you peace and wish the best outcome for you at this frightening time.
you can write the first dr a letter. I've seen it done before by other patients who were misdiagnosed. he should be more aware of the symtoms of this disease. he NEEDs to be made aware.
alot of general dr's aren't up to date about the different types of lymphomas.
lymphoma specialtists are trained in this area specifically.
ENT's are good too. ear nose and throat doctors. they'r surgeons and can do an excisional biopsy. if you need a biopsy, have the entire node removed rather than be tested by a fine needle aspiration or what ever they call the needle biopsy where they take just a piece of the enlarged node.
this method can miss harmful cells. so that's another way things get misdiagnosed. also, always get a second lab to do the pathology, because if one eye misses it, another trained eye can see it. that's another common mistake that people aren't aware of.
to always get a second opinion of the biopsy.
just a few suggestions. please keep in touch if you can.
sincerely,
linda
sta21
10-08-2006, 09:01 PM
I got booked in this morning for a FNA when i went for a general check on the lump in my neck and a check on the rest of my nodes (right goin and left armpit nodes are swollen) so now im booked in and everything is set an i cant change anything if i get freaked out (which is very possible with me).
The doc decided to check on a lump in my breast that i have had for a few months (i wanted to see a female doc but none were available in my area) and i am now booked in for an ultrasound on that and an ultrasound on my uterus just to be sure and also for a pap smear.
Im a little nervouse about the FNA and the pap smear but hopefully i wont freak out too much.
I wont look up anything on the net because i know it will freak me out i have looked up the procedures for all the test's and even that freaked me out so im staying right away from all the different article's on the net. My dr also told me that the majority arnt right and everybody is different so reading them get's people worked up he said when they know exaclty what is going on he will answer all of the questions i have about it and give me any information he has so i am alot more comfortable with this Dr which i think is the most important thing right now.
lintek45
10-09-2006, 09:14 AM
sta21,
you are so fortunate that you found a good dr. he sounds good and I see that they're going to get to the bottom of this right away.
you're smart to take the advice of your dr and just wait for the results rather than getting different info from all over the place.
when is your FNA set up for? I guess the sooner the better for minds sake.
plus when is the US set up for?
My thoughts are with you and I'm here if you need to talk.
good luck on your testing.
I wish you the best outcome. lets put positive minds and positive vibes together here.
sincerely,
Linda
sta21
10-09-2006, 06:36 PM
thankyou
the ultrasounds are tommorow
the papsmear is if thursday
the FNA is monday
ive spoken to the doctor performing the pap smear and that has calmed me down alot about that.
im still very nervous about the FNA and how much that will hurt i dont think it will matter what a doctor say's about that it is a needle ofcourse its gonna hurt im just worried about how much it will hurt