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View Full Version : ive been diagnosed with colitis


dje27
10-17-2006, 08:01 PM
Hi everyone, Just for everyones info I have had chronic diarrhea and intestinal pain for over a year. Finally got the nerve to go the doc. I had a colonoscopy done and he said everything looked fine visually. He did some biopsies. Well got the results back and it is collagenous colitis which is (microscopic colitis). More common in middle aged women. Only 2 in 100,000 cases. So even though visually your colon looks good hopefully your doctor does biopsies. It is treated the same exact way as ulcerative colitis. I am on Asacol for 6 month treatment.

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twisten
10-20-2006, 08:39 PM
Is microscopic colitis something that can be cured?

quincy
10-21-2006, 11:24 AM
Hi..no cure...just treated and maintained.

jbar47
10-21-2006, 02:18 PM
Hi..no cure...just treated and maintained.

Although there are reports of people who have treated with alternative methods and when checked during follow-ups , all of the signs and symptoms of the disorder were gone. Biopsies negative as well.

Not saying everyone who has it can be "cured" but I think there are enough stories of it happening that there must be some merit.

Maybe I'm just being too optimistic (a rare thing for me), but I look at a disease or condition that doctors say there is no cure for as simply being something they haven't found a cure for yet.

Good luck to you!

quincy
10-22-2006, 03:24 AM
Inflammation would be gone if the disease isn't active. Of course, cure is a subjective word. Cure to me would mean gone forever. There would, however, be remissions and flares, as with all autoimmune disease/disorders. And this is one of them.

Consistency would be the key, however. It can be treated with meds and controlled with meds, diet, supplements and other means to help maintain a healthy mind and attitude, be it mainstream or alternative/supportive.

Knowledge is power, and the patient should do all the research to be proactive (responsible) in his/her care.

quincy

jbar47
10-22-2006, 10:43 AM
Knowledge is power, and the patient should do all the research to be proactive (responsible) in his/her care.

I totally agree with you on that, quincy. That is how I've approached dealing with proctitis, which is also in the inflammatory bowel disorder (I can't bring myself to use the word disease) family.

quincy
10-22-2006, 12:23 PM
disease? ulcerative proctitis?

q

dje27
10-22-2006, 06:38 PM
Hi all, the way my doctor explained it to me is this. First I am on Asacol for six months at first to treat the symptoms and put them under control. Mega doses of Asacol!!!! Then I guess see how the medication does. Maybe he will lower the dose and see if symptoms stay good. So the meds just keep the disease under control. I will have flare ups. Have to watch what foods, etc. As far as the biopsy, there is a high chance that it will never show normal again. I am still having set backs every once in a while but it is much better. It is an autoimmune disorder. Not fun. If symptoms persists he will put me on steroids or prednisone for a while. He said the thing is just see what medication does best for me. Thanks all.

 
 
 




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