MOMOFBOYZ
10-24-2006, 04:51 PM
I haven't really updated latley so here goes...
My Endocrinologist dx me with Hashi's- not meds at this time
My Neuorologits has no dx but ruled out ms, nerve damage ( mri of brain did show unusual shrinkage, but he said not to worry) Neurontin 900mgs a day. This has slightly improved the muscle twitching and tingling hands and feet.
My cardiologist dx me with MVP and I am on Topral
I see a back specialist next week. And tomorrow see a new general doc. As my current one is a waste of time.
He dx me with fibro but refuses any symptom to be related to it.
I have had one remission that lasted only days. And instead of being happy for them was oddly curious when each step didn't hurt. It was weird. Then I wake up and it is all back. Next remission I will enjoy!!!!
Some days (like today) I hurt all over. ANd may be a little depressed. As I wrote in an earlier post I need ssi but no one responded. And my Grandma just died. But life is good and I should be happy. It is just hard when you are in so much constant pain.
My husband has finally learned to accept this fibro and not be angry at me or life. It was really hard last Feb thru July. Didn't know if we would make it. But we finally got it together. He is actually understanding this miserable dx better. He even hollored at me to see the news the other night when they were talking about fibro. Of course I missed it!!!!!
Really all is good. I am more at peace. Not feverently searching for the miracle cure anymore. Of course I know you have to be in charge of your health care. And have a plan. But regarding fibro, acceptance is the hardest part.
I wish all of you luck and peace in dealing with this disease. Here's to more remission day!!!!!!!!!!!!!!!!!!
Deena:wave:
My Endocrinologist dx me with Hashi's- not meds at this time
My Neuorologits has no dx but ruled out ms, nerve damage ( mri of brain did show unusual shrinkage, but he said not to worry) Neurontin 900mgs a day. This has slightly improved the muscle twitching and tingling hands and feet.
My cardiologist dx me with MVP and I am on Topral
I see a back specialist next week. And tomorrow see a new general doc. As my current one is a waste of time.
He dx me with fibro but refuses any symptom to be related to it.
I have had one remission that lasted only days. And instead of being happy for them was oddly curious when each step didn't hurt. It was weird. Then I wake up and it is all back. Next remission I will enjoy!!!!
Some days (like today) I hurt all over. ANd may be a little depressed. As I wrote in an earlier post I need ssi but no one responded. And my Grandma just died. But life is good and I should be happy. It is just hard when you are in so much constant pain.
My husband has finally learned to accept this fibro and not be angry at me or life. It was really hard last Feb thru July. Didn't know if we would make it. But we finally got it together. He is actually understanding this miserable dx better. He even hollored at me to see the news the other night when they were talking about fibro. Of course I missed it!!!!!
Really all is good. I am more at peace. Not feverently searching for the miracle cure anymore. Of course I know you have to be in charge of your health care. And have a plan. But regarding fibro, acceptance is the hardest part.
I wish all of you luck and peace in dealing with this disease. Here's to more remission day!!!!!!!!!!!!!!!!!!
Deena:wave:
Sponsor
jojo
10-24-2006, 09:37 PM
:wave: Hi Deena sorry you are feeling so yucky....boy Lyme and Fibro are so close to eachother ....did you ever read up on Dr. Charles Stratton and fibro?? Or Dr. Michael Powell ? sounds like you are maybe giving up on trying to find a cure...I hope not...I know it can be very stressful searching for answers...but they are out there...
With the SSI....have you tried calling them to find out the rules...also think if you do a search for Social security Disability that might help you....it is very hard to get on disability....takes a very long time some people have to get lawyer's......
Hope you find some answers soon....
Hugs!
:D
With the SSI....have you tried calling them to find out the rules...also think if you do a search for Social security Disability that might help you....it is very hard to get on disability....takes a very long time some people have to get lawyer's......
Hope you find some answers soon....
Hugs!
:D
stick2013
10-24-2006, 10:02 PM
Deena,
Hi.........:wave: I'm sorry that you are having a rough time lately. Words just sometimes seem so empty when you are down in the dumps.. I know! Been there done that! I got the feeling when I was reading your post that you have kind of given up. I don't know you, your situation, your age, your pain or anything about you. Except what I felt that your post said. If SSI is what you want then go for it. I guess what bothers me is if you are indeed just throwing up your hands and saying SSI....... I say throw up your hands and try and fight girl!!!!!
I have had fibro for 8 yrs(DX'ed), and probably many yrs before that. I have Emphysema, mild kidney failure, 3 bulging disc in lower back, bone spur in lower back, osteoarthritis throughout my body.... I work everyday at a very physical job, and I exercise 30-60 min a day. DON'T give up...... Keep moving!!!! Exercise is the BEST thing that you can do for yourself and to fight the fibro. It helps with the depression too.
Please keep fighting.......
Sid
Hi.........:wave: I'm sorry that you are having a rough time lately. Words just sometimes seem so empty when you are down in the dumps.. I know! Been there done that! I got the feeling when I was reading your post that you have kind of given up. I don't know you, your situation, your age, your pain or anything about you. Except what I felt that your post said. If SSI is what you want then go for it. I guess what bothers me is if you are indeed just throwing up your hands and saying SSI....... I say throw up your hands and try and fight girl!!!!!
I have had fibro for 8 yrs(DX'ed), and probably many yrs before that. I have Emphysema, mild kidney failure, 3 bulging disc in lower back, bone spur in lower back, osteoarthritis throughout my body.... I work everyday at a very physical job, and I exercise 30-60 min a day. DON'T give up...... Keep moving!!!! Exercise is the BEST thing that you can do for yourself and to fight the fibro. It helps with the depression too.
Please keep fighting.......
Sid
jojo
10-25-2006, 09:54 AM
:wave: HI MEGAN....Yes I go to Doctor Powell!!! Infact I have an appt with him this morning....and have to dirive 3 hours there...so I don't have time right now to chat....
BUT HEY...NICE MEETING YOU!!!!!
I'll start a new thread ummm....maybe tonight.will have to see how I feel when I get back!!!!
Hugs to you!!!
Jodie
:D
BUT HEY...NICE MEETING YOU!!!!!
I'll start a new thread ummm....maybe tonight.will have to see how I feel when I get back!!!!
Hugs to you!!!
Jodie
:D