rljslh
10-25-2006, 12:18 PM
I am new to this board and to the Fibromyalgia I can't even spell it! I have been in a lot of pain and could not figure out why the doctors all said I was depressed. But that is not the case for me! The doctors kept telling me that there is nothing wrong with me and made me feel as I were a Hypochondriac! Finnaly I went to a dr that did the touch test for me! and that is how I found out but he said that there is nothing he can do about it. (I need to exersize that was his word of advice) So that leaves me where I started! Is there anything that I can do to help with the pain? Becides exersize? I do exersize but I am finding it hard to do! I really don't like it. It is not fun! But anyways any help would be greatful. Thank you :rolleyes:
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MAD MAZ
10-25-2006, 12:55 PM
Hi and welcome, Where about Is your pain!!
I know that pain Is no fun, I am in pain everyday, I feel so ill and weak, The pain I get going down each side of my stomach , under my ribs Is so bad most days I cry, I also have a underactive thyroid, and RA, I hope you can get some help by useing this board, The people on here are very caring...Mandy
I am also having test for crohn's....Oh to feel normal!!
I know that pain Is no fun, I am in pain everyday, I feel so ill and weak, The pain I get going down each side of my stomach , under my ribs Is so bad most days I cry, I also have a underactive thyroid, and RA, I hope you can get some help by useing this board, The people on here are very caring...Mandy
I am also having test for crohn's....Oh to feel normal!!
schao
10-25-2006, 12:56 PM
Hi there:
Welcome to the boards! What kind of pain do you have and where? Exercise is very good for fibromyalgia--gotta keep those muscles loose (try anyways :))
Everyone is very nice on here and I'm sure will come along and give you lots of advice :)
schao
Welcome to the boards! What kind of pain do you have and where? Exercise is very good for fibromyalgia--gotta keep those muscles loose (try anyways :))
Everyone is very nice on here and I'm sure will come along and give you lots of advice :)
schao
rljslh
10-25-2006, 01:56 PM
Thanks for talking to me! My pain is mostly in my back and neck area. Also in the legs alot. I have a hard time dealing with all this because if anyone touches me I hurt for a while! People look at me wierd! "I hardly touched you." I don't know what to say but it does hurt!
I will try to give exersize a chance again :p My biggest problem is that I start and never keep it up! I am good for a week tops! I know I need to though. But thanks. The people here seem to be nice :)
I will try to give exersize a chance again :p My biggest problem is that I start and never keep it up! I am good for a week tops! I know I need to though. But thanks. The people here seem to be nice :)
1sunny1
10-25-2006, 05:55 PM
Hi, The good Doctors that believe in Fybromyalgia will treat it with anti-depressants, the pain is different for just about everyone. I couldn't sleep because my arms hurt so bad and then my feet felt like they were unfire, and then the headaches, turns out the headaches are migraines and related to the Fybro. I am taking Zoloft and Elavil in the evening, it not only helps me sleep, but the Elavil helps with the pain. I also take 800MG Ibuprofen for the headaches, the mixture of all these medications had made me fell almost 100% again, however I still get headaches but not as often and can get rid of them more rapidly then I used to. Also, I have been able to step up my walking, from 2 miles to 5 miles a day, so hand in there, you might have to try a different Doctor. Good Luck, let us know how you are.:)
kirstee
10-25-2006, 06:00 PM
Welcome to the Board. Don't let that doctor discourage you by saying there is nothing he/she can do but recommend exercise (although exercise is great for FM). There is a lot you can do to make your life better. Researching treatments and trying different protocols will help you find a better life for yourself. I'm on the guafenesin protocol which has provided great relief for myself. There are other treatments out there as well. Don't give up because you deserve better!
Blessings,
Kirstee
Blessings,
Kirstee
stick2013
10-25-2006, 07:12 PM
Welcome to the board....:wave: Yes!! There are many things that you can do to help yourself. Eating healthy, exercise, vitamins & minerals, SLEEPING WELL, warm soaks in a tub, stretching, and most of all get a new Dr. In my opinion any Dr that tells you that there is nothing he can do for you, but tell you to exercise, is basically telling you that he really thinks that Fibro is ALL IN OUR HEADS!!!!!
There are plenty of things that a Dr can offer. Sympathy, empathy, meds, and P.T to help with the pain. There are pain meds, muscle relaxers, sleeping pills, Antidepressants (that help with pain and depression) ect, ect....
Hang in there.
Sid
There are plenty of things that a Dr can offer. Sympathy, empathy, meds, and P.T to help with the pain. There are pain meds, muscle relaxers, sleeping pills, Antidepressants (that help with pain and depression) ect, ect....
Hang in there.
Sid
rljslh
10-26-2006, 12:05 PM
Thank you guys for understanding I was starting to wonder if all this was inmy head also! I will do some resurch on this. Eat right and exersize more often. I am so happy that I found this board. :)
doxie1
03-13-2008, 02:42 PM
I also suffer from this curse, Fibromyalgia for four years now. In the past I have taken several different types of medications for the pain. Although I developed a great sensitivity towards these medications and found that it is not the answer for me. I got the normal response from my doctor when I asked for his help." your crazy it can't hurt that bad it’s in your head maybe you should see a psychotherapists for this condition.”
So I did the only thing that I felt was the best for me. I FIRED MY DOCTOR, open the phone book and started calling around till I found a doctor that understood the condition and could treat me as a whole.
I now see a medical doctor that not only treats my pain with different types of medication but also uses other alternative therapy's. Such as acupuncture, Osteo-manipulation, deep muscle massage and exercise. My doctor went as far as to teach my fiancé how to do this type of massage so that when I have flair up he can do this at home for me.
I do not work because of the pain, nor do I collect SSI. I have been denied six times for social security disability because they believe that Fibromyalgia is not a debilitating disease. Even though I also suffer from Bi-polar disorder, rheumatoid arthritis, Restless Leg Syndrome (RLS) and Hemochromatosis (a blood disorder- too much Iron) I am still not eligible for SSI.
My pain at time is extreme yet I have learned to manage it to a point. I think the best thing that I did was to take control and not let a medical doctor tell me how I felt on a daily basis.
The medications that I take are very simple I take flexural to help loosen the muscle, lexapro, for the bi-polar, ibuprofen for pain, stretching with yoga or Pilates, weight training to help maintain the muscle structure so that I don’t loose what I have, and a low impact cardio to maintain a healthy heart. I also have changed my diet and eat the right kinds of food. I cut out all junk food from my diet and this seams to have helped although I still must be aware of how much Iron I put into my system because of the Hemochromatosis.
Remember each person with FM suffers differently, and what works for someone else isn’t always going to work for you. You are the care taker of your own body you know how you feel and what you can do and how hard to push your self.
Yes exercise is important to maintain the muscle structure that you have. Like the saying goes "if you don't use it you loose it." Just do what you can were you can try not to over do and yes you will have pain while you exercise and afterward. Just keep in mind not to over do.
What I found to be helpful in the beginning was to keep a diary, in it write down what activity you do on a daily basis how those activity affect you; how much of the activity you can do before you experience pain and discomfort; this helps by letting you know what triggers a flair-up so that in the future you can avoid or do less of that activity.
Hope this info is helpful...
So I did the only thing that I felt was the best for me. I FIRED MY DOCTOR, open the phone book and started calling around till I found a doctor that understood the condition and could treat me as a whole.
I now see a medical doctor that not only treats my pain with different types of medication but also uses other alternative therapy's. Such as acupuncture, Osteo-manipulation, deep muscle massage and exercise. My doctor went as far as to teach my fiancé how to do this type of massage so that when I have flair up he can do this at home for me.
I do not work because of the pain, nor do I collect SSI. I have been denied six times for social security disability because they believe that Fibromyalgia is not a debilitating disease. Even though I also suffer from Bi-polar disorder, rheumatoid arthritis, Restless Leg Syndrome (RLS) and Hemochromatosis (a blood disorder- too much Iron) I am still not eligible for SSI.
My pain at time is extreme yet I have learned to manage it to a point. I think the best thing that I did was to take control and not let a medical doctor tell me how I felt on a daily basis.
The medications that I take are very simple I take flexural to help loosen the muscle, lexapro, for the bi-polar, ibuprofen for pain, stretching with yoga or Pilates, weight training to help maintain the muscle structure so that I don’t loose what I have, and a low impact cardio to maintain a healthy heart. I also have changed my diet and eat the right kinds of food. I cut out all junk food from my diet and this seams to have helped although I still must be aware of how much Iron I put into my system because of the Hemochromatosis.
Remember each person with FM suffers differently, and what works for someone else isn’t always going to work for you. You are the care taker of your own body you know how you feel and what you can do and how hard to push your self.
Yes exercise is important to maintain the muscle structure that you have. Like the saying goes "if you don't use it you loose it." Just do what you can were you can try not to over do and yes you will have pain while you exercise and afterward. Just keep in mind not to over do.
What I found to be helpful in the beginning was to keep a diary, in it write down what activity you do on a daily basis how those activity affect you; how much of the activity you can do before you experience pain and discomfort; this helps by letting you know what triggers a flair-up so that in the future you can avoid or do less of that activity.
Hope this info is helpful...
baserockermom
03-13-2008, 06:28 PM
rljslh, you can't be any worse at exercise than me, so how about I dare you and you dare me to a week of exercise... any piddling bit of exercise counts, are you on? Mad Maz is right, oh to feel normal again. Seriously, though, my doc of 10 years just kept throwing medicine at me. He was unavailable one time, so I had to see his nurse practitioner--she picked up on the combination of symptoms (known and studied since 1888; now who's the fool?) right away, sent me to a spec who confirmed it and I got some help. Exercise would help me... all these ladies can't be wrong... so don't you want to take me up on my dare. I need some incentive here. I'm desperate for motivation!!! Glad you're on the board, and welcome!
gorgee
03-14-2008, 09:35 AM
baserockermom, and rljsls, I am up for the challenge too? How about we walk or any exercise everyday for 1 week, 20-30 mins? Do you guys have treadmills, or good weather? I live in Maine, so the weather is not so good yet, in about 1 month it will be better, but I have a treadmill. Is there something else we can add to it, like drink 6-8 glasses of water a day, or eat a healthy diet that is good for fibro? I am up for anything, so let me know.
At the end of the week we will see how feel, and report daily what symptoms we had, or how we are doing because of the exercise. I have noticed if I walk in the morning, my rls, in my arms and legs is worse but, that could be a temporary thing. I am game!
rljslh, welcome to the boards! You are in the right place. I cannot tell you how much everybody has helped me. I get excited about being here, and writing to other people. Otherwise, I stay at home with my 2 and 4 year old, and am by my adult self , and really do not have any friends. I have my sister and she is wonderful. She helps me and comes and stays with me on the some weekends but, she is 1 hour away. SO this is wonderful place to be!
I look forward to chit chatting with you,
Kass
At the end of the week we will see how feel, and report daily what symptoms we had, or how we are doing because of the exercise. I have noticed if I walk in the morning, my rls, in my arms and legs is worse but, that could be a temporary thing. I am game!
rljslh, welcome to the boards! You are in the right place. I cannot tell you how much everybody has helped me. I get excited about being here, and writing to other people. Otherwise, I stay at home with my 2 and 4 year old, and am by my adult self , and really do not have any friends. I have my sister and she is wonderful. She helps me and comes and stays with me on the some weekends but, she is 1 hour away. SO this is wonderful place to be!
I look forward to chit chatting with you,
Kass
gorgee
03-14-2008, 10:15 AM
rljslh, welcome! The first thing I would do is get a new doctor. You have been diagnosed with fibromyaliga, and I would open the phone book and start calling dr and asking if they treat fibro. My dr, is a DO, and he helps me by prescribing my medicines, and also osteomanipulation. He knows exactly where my pain is by touching my body, and feeling the ropes and lumps (that is what he calls them), and know they are spasming. It is a great relief when your dr knows you are in pain, justifies it, and helps you.
Where is your pain, and how long have you been in pain? I am in pain daily, and I have been since September. I am a newbie to fibro, but it feels like it has been forever. It started this summer, my migraines got worse, like almost everyday. I felt so guilty for treating them everyday, but luckily my dr knew about my migraines so I had Maxalt, and vicoden for them. Then in September my tmjd flared up horrible, worse than ever, and I was told my condition was worse than more had ever seen, and I needed surgery. I had to hire a babysitter to come in and watch or wear out the boys so I could rest or call dr and surgeons. I had to travel 5 hours away to Boston to find a surgeon who could treat me, and I was getting scheduled for surgery. It was denied many times from my insurance even though it is medical not dental for me. My face is actually sliding to the right! I still have not had surgery. I doubt I will, unless a pure miracle happens.
Right after my tmj flared up, my marriage got so much worse, and my husband threaten divorse once I got my jaw fixed. He wanted the women he married 7 years ago back. I could not stand that threat! I am not a person who is going to wait for that to happen. I was a mess, and I am still not sure I am not still. My health went down hill fast. My body joined in, first in my neck and shoulders and then in my hands and feet, and then my joints and muscles. I was being attacked. My doctor felt it was from stress and once I got RID of my stress my pain would be better. My husband is not the type to take care of me, he does take care of us financially and I am so greatful. My husband is fine if I do not mention myself or how I am feeling, so I have to keep it to myself. I have been diagnosed with tmjd, chronic migraines, myofascial pain syndrome, and fibromyalgia.
I suffer from pain everyday, and sometimes it still breaksthrough even when I take breakthrough meds. The medicines that work for me are o.c 40 mg 2xdaily, I was very hesistant to take oxycontin but my pain was not controlled with vicoprofen and I was taking too much ibuprofen, so we switched. I prayed to god, and asked him what I should do about the pain medication, and after that my hesitancy was gone. I knew what to do. I went to the pharmacy and picked it up, and I have not regretted it since. My husband does not agree with it, but it is my pain and my body. I have to take care of the boys 100%. That is a battle everyday, but like I said if I don't mention me it is okay.
I also take flexeril, and valium for anxiety and muscle spasms. I do believe that flexeril helped me get my jaw under control so I could open it, talk and eat. Thank goodness.
I take lexapro, I have for years, for anxiety, and vicoprofen for breakthrough pain. When I was just taking vicoprofen talking was hard, and if I talked too much my pain was horrible.
This is what works for me right now. I have my pain much more under control that I ever have. I am so thankful for that, but I want to work on other ways to control the pain looking forward. I do wonder how much my pain is caused by the stress in my life.
I know this is a long post, but I always liked knowing what other people's stories were. It helped me feel not alone. I hope you have help and support. If you do, then you need to get a doctor asap. Keep writing us all, it has helped me so much.
Kass
Where is your pain, and how long have you been in pain? I am in pain daily, and I have been since September. I am a newbie to fibro, but it feels like it has been forever. It started this summer, my migraines got worse, like almost everyday. I felt so guilty for treating them everyday, but luckily my dr knew about my migraines so I had Maxalt, and vicoden for them. Then in September my tmjd flared up horrible, worse than ever, and I was told my condition was worse than more had ever seen, and I needed surgery. I had to hire a babysitter to come in and watch or wear out the boys so I could rest or call dr and surgeons. I had to travel 5 hours away to Boston to find a surgeon who could treat me, and I was getting scheduled for surgery. It was denied many times from my insurance even though it is medical not dental for me. My face is actually sliding to the right! I still have not had surgery. I doubt I will, unless a pure miracle happens.
Right after my tmj flared up, my marriage got so much worse, and my husband threaten divorse once I got my jaw fixed. He wanted the women he married 7 years ago back. I could not stand that threat! I am not a person who is going to wait for that to happen. I was a mess, and I am still not sure I am not still. My health went down hill fast. My body joined in, first in my neck and shoulders and then in my hands and feet, and then my joints and muscles. I was being attacked. My doctor felt it was from stress and once I got RID of my stress my pain would be better. My husband is not the type to take care of me, he does take care of us financially and I am so greatful. My husband is fine if I do not mention myself or how I am feeling, so I have to keep it to myself. I have been diagnosed with tmjd, chronic migraines, myofascial pain syndrome, and fibromyalgia.
I suffer from pain everyday, and sometimes it still breaksthrough even when I take breakthrough meds. The medicines that work for me are o.c 40 mg 2xdaily, I was very hesistant to take oxycontin but my pain was not controlled with vicoprofen and I was taking too much ibuprofen, so we switched. I prayed to god, and asked him what I should do about the pain medication, and after that my hesitancy was gone. I knew what to do. I went to the pharmacy and picked it up, and I have not regretted it since. My husband does not agree with it, but it is my pain and my body. I have to take care of the boys 100%. That is a battle everyday, but like I said if I don't mention me it is okay.
I also take flexeril, and valium for anxiety and muscle spasms. I do believe that flexeril helped me get my jaw under control so I could open it, talk and eat. Thank goodness.
I take lexapro, I have for years, for anxiety, and vicoprofen for breakthrough pain. When I was just taking vicoprofen talking was hard, and if I talked too much my pain was horrible.
This is what works for me right now. I have my pain much more under control that I ever have. I am so thankful for that, but I want to work on other ways to control the pain looking forward. I do wonder how much my pain is caused by the stress in my life.
I know this is a long post, but I always liked knowing what other people's stories were. It helped me feel not alone. I hope you have help and support. If you do, then you need to get a doctor asap. Keep writing us all, it has helped me so much.
Kass
baserockermom
03-14-2008, 01:30 PM
You're on, Kass, if you're ok with me starting out with any piddling amount. Maybe I'll up the time next week and add water the week after. I've done my piddling today, how about you? I'll start a new thread for the dare.